New diagnosis 2 years after first diagnosis
in early 2018, I had a bilateral mastectomy for high grade DCIS in my right breast and had 3 lymph nodes removed (all negative). I had DIEP flap reconstruction at the same time as the BXM. Both the surgical oncologist and the general oncologist said I didn’t need radiation or adjunctive therapies. I was monitored for recurrence with an MRI every 6 months. In May 2019 my MRI showed to foci in the same area as my original tumor. The oncologist, plastic surgeon and radiologist said it would be too difficult to biopsy and they would just watch it.
Fast forward to 2020, my husband lost his job and our health insurance. And because of covid my MRI was cancelled in May 2020. In August we moved to a new city where my husband got a new job. I found a new oncologist and she sent for an MRI immediately. It came back BIRADS 5 in the same place as the May 2019 MRI. A biopsy stereostatic was done last wee (was not hard to do).
My diagnosis is invasive micro-papillary cancer. This is my third primary cancer in less than 5 years (I had uterine cancer in 2016]. Now I have to wait to meet surgeons and am getting a petscan next week
Questions - since I have a flap, has anyone had one flap removed? I want to minimize difficulty of surgery recovery. Or is it beast to keep the flap. The tumor is behind my flap, on my chest wall.
The doctor said there are likely lymph nodes involved. I am 48 and feeling really scared that it is metastatic. I am afraid of doing chemo, the thought of poisoning myself seems wrong. Can anyone share their experience on doing chemotherapy, the good, bad and ugly.
I am angry that my Miami oncologist passed over doing a biopsy in 2019 stating it would be too difficult to do, even though it wasn’t hard at all.