Questions about Zometa and consult with another MO
I am writing this on behalf of my mom and need your wisdom and experience. This is about whether we need a second opinion from another MO and choice of Zometa.
First of all, we are a little bit unhappy about our MO. She is the director of a major hospital, and we can understand that she must be very busy.
In March 2022, my mom had bilateral mastectomy and was scheduled to meet her in May. The surgeon ordered Oncotype for us.
Two days before our appointment with the MO, their nurse called and converted our appointment to a phone call.
On the appointment day, her nurse called on behalf of her, basically told us that the oncotype score is low and we do not need chemo, just need to take Aromatase for five years. We asked for a copy of the oncotype test, the nurse promised us to send, never did after the phone call.
I had to contact Oncotype directly and get a copy. Her score was a 2. Very low so we are ok with no chemo option. Then I saw the date of the report, that was one day before they converted our appointment to phone calls.
In July 2022, the nurse called again and told us we may need to start Zometa treatment in October 2022 (once every 6 months for 3 years), and asked us to get a dental clearance. My mom's dental situation is complicated, and the dentist says that it is very possible that she may need invasive dental work in the near future even though we try to fix most of the problems before October 2022.
I did some research to see if we have any other options of bone strengthener. Some posts in this forum mentioned Xgeva and state that it may stay in the system for a shorter period of time compared to Zometa. I am aware that I am not a medical expert so I wrote an email last month asking the MO if we have any other choices of medication, for sure I did not demand anything it was just a short inquiry email. To date, I wrote two follow up emails and called twice. There is no response from the MO. The nurse told us that she does not have any information re my inquiry.
Our only concern is that if my mom needs invasive dental work after we start, it is better to adopt a medication that may give us more flexibility of doing the dental work. To date, we have not met the MO in person even once. Each phone call with the nurse lasts 5 minutes. We have the feeling that because of my mom's low oncotype score, they do not pay enough attention to my mom's file.
So to summarize,
Our questions are:
1.If you have any experience re bone strengthener treatment choice, please share with us;
2.Do you think we should consult with another MO for second opinion since our current MO is very busy and not being very responsive?
Any insights will be greatly appreciated. Thanks again.