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Going flat or breast reconstruction

Scheduled to have bilateral mastectomy next month. I am very much undecided if I want to have reconstructive surgery or not and go flat. If I go flat, I am afraid I might get depressed as my body will be very different. With plastic surgery, I’ve read of women having so much pain and needing to do more procedures afterwards. I don’t want to deal with pain anymore and possible procedures in the future. For those women who have decided, how were you able to make your decision?

Comments

  • moderators
    moderators Posts: 8,789

    @greatjoy, welcome to Breastcancer.org! We're sure others will chime in with their experiences and support soon. In the meantime, here are some articles from our main site that might help you in making your choice:

    Talking to Your Surgical Team About Going Flat

    Podcast: Talking to Your Doctor About Going Flat

    Hope these insights help you along the way. Wishing you the best!

    The Mods

  • abigailj
    abigailj Member Posts: 119

    I wanted to have as close to the same body as possible- for me personally that was important and well worth going through the additional procedures (minor discomfort from those). Everyone has their own perspective on what’s most important to them in dealing with this - I encourage you to discuss your options and fully express your feelings to your breast and plastic surgeons. If you can, meet with more than one PS to make whatever you decide is best for you.

  • greatjoy
    greatjoy Member Posts: 2

    abigailj - Thank you so much for your comment. I saw a plastic surgeon and he suggested to put expanders in and from there I still have the option to go flat, implants or tissue. He said seeing it might help me decide what I really want. At that time I thought that was a good choice given that I am still undecided. But now I am have sleepless nights about it.

  • needs.a.nap
    needs.a.nap Member Posts: 226

    Hi @greatjoy. I’m so sorry you are having to be here with us, with these difficult decisions. It’s a lot to weigh out.

    I think I felt similar to @abigailj in wanting to look as close to the same as possible. Since I was having a mastectomy anyway, here was my chance to actually go a bit smaller so I had a single mastectomy with tissue expander, then the eventual implant and the other side reduced.

    I also wanted to continue being physically active and didn’t want any long term issues from surgeries that might limit me. Now that I’m finished with my surgeries and have healed, I’m so glad I did it. I’m glad my plastic surgeon nudged me to get fat grafting also. He could see the outcome from the start, whereas I had no clue. I hadn’t really even looked at pictures to get an idea and I realize now that I absolutely should have asked to see pictures of his work!! Thankfully it all turned out well but yikes, I was a bit trusting.

    Healing takes time and it’s challenging to stay patient with it all … but eventually you will be healed and this will be in your rear view mirror so to speak. It’s strange but life really does move on. So how do you want to look/feel moving forward? My implant side looks a bit weird (with a hollow depression above the implant and a lot of visible rippling) but with a bra and clothes on, it’s good enough. I’m not self-conscious and I’m not constantly fiddling with my bra or clothes to make sure I look okay. It just looks normal with clothes on, and it even feels normal now. (Disclaimer: my vision has started to get worse so maybe I don’t look as normal as I think, ha ha).

    I also knew I probably wouldn’t need radiation or chemo, so that had a bearing on being willing to do reconstruction. And I was otherwise very healthy so it seemed like I would tolerate the surgeries and heal well, and thankfully I did.

    I know there’s a lot to consider as you make these decisions. I wish you all the best with whatever you decide!