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Just Diagnosed

karenjsf
karenjsf Posts: 7
in Just Diagnosed

I was just this week diagnosed with invasive ductal carcinoma. I learned the type is estrogen+ and her2+. I'm scared.

Comments

  • moderators
    moderators Posts: 8,955

    We're so sorry you find yourself here, @karenjsf! We know what a scary and overwhelming experience this is. Especially in the early days and weeks, when you have more questions than answers. You are definitely not alone! This community is a wonderful resource, full of people who've been exactly where you are right now. And we're all here for you.

    The Mods

  • hangin
    hangin Posts: 21

    Hello Karenjsf,

     Just wanted to let you know I am sending you bundles of positive vibes!

  • yomomma716
    yomomma716 Posts: 3

    I was diagnosed with right sided Invasive Lobular Carcinoma, Lobular Carcinoma in Situ ER+(90%)/PR+(30%) HER2- (FISH), Grade 2, 6cm in January 2025. I am 51 years old with no history of breast cancer in my family. I have extremely dense tissue and this cancer was detected on an US as part of my yearly. The process of testing and diagnosis feels like it's taking forever. My mammogram was 12/27/24. I will have my 1st surgical consult on 2/20/25. I'm trying to not let my brain run away with negative thoughts, but it has been hard. I've been doing a lot of research so I can be an active participant in discussion with my surgeon. I'm glad to have this resource at my fingertips.

  • moderators
    moderators Posts: 8,955

    Hi @yomomma716,

    We're so very sorry to hear of your diagnosis, but we're so glad you've found us. You're sure to find our incredible community a wonderful source of advice, information, encouragement and support while you navigate your care — we're all here for you!

    We wanted to share with you our section on Invasive Lobular Carcinoma as well as this Podcast episode on Testing for Lobular Carcinoma, which explains why it can be so tricky to diagnose.

    Additionally, we invite you to post in our ILC forum to introduce yourself and meet others with a similar diagnosis.

    And, as you get ready for your first surgery consult, we thought this page might be helpful:

    https://www.breastcancer.org/treatment/surgery/lymph-node-removal/sentinel-node-dissection/questions-to-ask-surgeon

    We hope this all helps and we look forward to supporting you. Let us know how else we can help!

    —The Mods

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