Just diagnosed, in treatment, or finished treatment for ILC.
For helpful information, check out Breastcancer.org's ILC section. Podcast: Imaging Tests for Lobular Breast Cancer Lobular Breast Cancer Alliance Brochure - Information for Patients There is also advice and personal experiences from other community members here on the discussion boards, including: ILC Long Term Survivors…
Imaging Tests for Lobular Breast Cancer Nov 9, 2023 Maxine Jochelson, MD, explains the imaging tests for lobular breast cancer, as well as why lobular disease is harder to see on mammograms. Lobular breast cancer is cancer that starts in the lobules, the glands in the breast that produce milk. Lobular breast cancer is the…
Hi, I learned on April 12th that both biopsies taken from my left breast on March 26th have ILC. The MRI showed at least three more (Stage 1a). They are all very small, but given there are now at least five, the surgeon's recommendation is unilateral mastectomy. I am about 95% certain I'd like to just go for the bilateral,…
I’m 73 and was recently diagnosed with ILC. I had a lumpectomy along with 4 sentinel nodes; 2 of which were positive. I see my surgeon next week and will be starting 4 weeks of radiation followed by an estrogen blocker along with a second drug. I would like to connect to others with a similar diagnosis.
Hi. I have a scan tomorrow to see if my cancer has shrunk. Since I'm ER/PR+ with a low oncotype I've been doing endocrine therapy. Tamoxifen did not work and it grew 2mm. Switched to ovarian suppression therapy with letrozole. If this hasn't helped I think it's straight to surgery. My MO said there's a low chance chemo…
I am new to the forum, felt I needed some support to go through this whole process of my diagnosis. I am 73 years old, biopsy report invasive carcinoma, 7mm, her2 negative, ESTROGEN/PROGESTERONE POSITIVE GREATER THAN 90%.. appointment with surgeon 1/6 hopefully have surgery date set up. Due to the nature of this disease I…
Does anybody know people, or are you someone who has survived ILC long term, (more than 5 to 10 years) without a recurrence? Please post! I was diagnosed in 2004, and think I am fine, but, as I see from the boards, you can never be 100% sure. Thanks! Nancy
Hi I'm Chris 73 years old diagnosed with Lobular invasive Breast Cancer grade 2 my first surgery was on the 6th May 2026 followed up with my report on the 4thJune 2026 meeting with my Surgeon. The tumour removed was 14mm and she also removed two smaller 3.5mm and 6mm ones in my left breast. I also had two Lymph Nodes…
Hey I just wanted to get someone else’s opinion. I just had a pelvic ultrasound done for some irregular bleeding,pelvic pressure and pain. I am 4 years on tamoxifen. It was done in my GYN’s office and was told the doctor would read it. I asked if it would be sent to a radiologist and they said no. It worries me with my…
I was diagnosed with invasive lobular cancer, Stage 2, on March 6,2026. A mammogram in late July was read as normal. I had an MRI, which I pleaded for as my mother, and sister both had breast cancer. Done on March 5,2026. The after noon of the MRI, I got a call, to come in the next day for an ultrasound and possible…
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