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Important Links About ILC
For helpful information, check out Breastcancer.org's ILC section. Podcast: Imaging Tests for Lobular Breast Cancer Lobular Breast Cancer Alliance Brochure - Information for Patients There is also advice and personal experiences from other community members here on the discussion boards, including: ILC Long Term Survivors…
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Imaging Tests for Lobular Breast Cancer
Imaging Tests for Lobular Breast Cancer Nov 9, 2023 Maxine Jochelson, MD, explains the imaging tests for lobular breast cancer, as well as why lobular disease is harder to see on mammograms. Lobular breast cancer is cancer that starts in the lobules, the glands in the breast that produce milk. Lobular breast cancer is the…
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Invasive lobular carcinoma
I am new to the forum, felt I needed some support to go through this whole process of my diagnosis. I am 73 years old, biopsy report invasive carcinoma, 7mm, her2 negative, ESTROGEN/PROGESTERONE POSITIVE GREATER THAN 90%.. appointment with surgeon 1/6 hopefully have surgery date set up. Due to the nature of this disease I…
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Pelvic ultrasound question
Hey I just wanted to get someone else’s opinion. I just had a pelvic ultrasound done for some irregular bleeding,pelvic pressure and pain. I am 4 years on tamoxifen. It was done in my GYN’s office and was told the doctor would read it. I asked if it would be sent to a radiologist and they said no. It worries me with my…
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Unilateral or Bilateral Mastectomy - Pros & Cons for ILC
Hi, I learned on April 12th that both biopsies taken from my left breast on March 26th have ILC. The MRI showed at least three more (Stage 1a). They are all very small, but given there are now at least five, the surgeon's recommendation is unilateral mastectomy. I am about 95% certain I'd like to just go for the bilateral,…
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Surprises continue
I was diagnosed with invasive lobular cancer, Stage 2, on March 6,2026. A mammogram in late July was read as normal. I had an MRI, which I pleaded for as my mother, and sister both had breast cancer. Done on March 5,2026. The after noon of the MRI, I got a call, to come in the next day for an ultrasound and possible…
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ILC Long Term Survivors
Does anybody know people, or are you someone who has survived ILC long term, (more than 5 to 10 years) without a recurrence? Please post! I was diagnosed in 2004, and think I am fine, but, as I see from the boards, you can never be 100% sure. Thanks! Nancy
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I just got diagnosed at 68, is this bad? Stage III (ER+, PR -, HER2 -)
I'd like to connect with people who have a similar diagnosis. • Primary tumor in the breast:
Invasive lobular carcinoma ILC
ER 95% positive
PR negative
HER2 negative
Ki 67 >10 • Cancer found in the axillary lymph nodes:
Invasive ductal carcinoma metastasis
ER 95% positive
PR negative
HER2 negative
Ki 67 >30
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ILC and on Arimidex for 5 years….now metastasis in lower spine and ribs and sacrum
has anyone had any experience with this. The pain is horrible, and they gave me didlidid for pain but tamoxifen for cancer. I am 72.
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Help so overwhelmed
I have just been diagnosed with invasive lobular carcinoma in my left breast. I have had my consultation with my surgeon and he suggests I get a lumpectomy and then radiation. I have a second opinion visit set up but after speaking with my children they were set on me getting a double mastectomy. I emailed him and he met…