Have you been unable to afford or access quality breast cancer care?

moderators

The third week of April marks National Minority Cancer Awareness Week, a special time for us to come together and reflect on the unique challenges and disparities faced by the marginalized and underserved members of our breast cancer community. 

While genetic factors and country of origin can influence breast cancer rates and outcomes, socioeconomic struggles and cultural barriers can impact so many of us on a deeply personal level. Too many of our community members face obstacles in accessing crucial screenings and treatments due to financial hardships, insurance struggles, or the added bias of discrimination.

So, weigh in on our poll question, and share additional thoughts in the thread below. Tell us: Have you been unable to afford or access quality breast cancer care?

jlgarber

I’ve been able to afford care, but accessing the right care has been a challenge.

It Is really important for the cancer care professionals, support organizations, and patient community to begin to acknowledge that rural areas of the country do not have adequate health care regardless of racial origin, financial access, or political beliefs. And with most of the lesser studied stages or subtypes of breast cancer adequate care is impossible to find anywhere.

maggie15

I am seconding the above post. Whatever your racial or socioeconomic status, rural areas have medical provider shortages and a lack of up-to-date equipment. My rural hospital (Leapfrog safety rating of D) has two oncologists who treat everyone with cancer no matter what type. That is better than some places I have lived where the only option is a PCP and no oncology facilities within an hour's drive.

After a missed diagnosis for two and a half years, an inaccurate biopsy pathology report and a general surgeon as my only option I drive 100 miles each way for treatment. I am currently able to drive and can afford to pay for a hotel to stay overnight but I know the day will come when I can't do this since there is no public transportation. Most people living in rural areas can't afford to move to an urban area and have to make do with whatever is available locally.

pinkyblue2

I’ve had difficulties navigating the system to get the care I need, even if I could afford it.

I don't trust system. I've had multiple instances where I had to question advice but no real solid answers that satisfied me. I feel more like a guinea pig than a patient at times. There was even a delay in treatment and surgery for my bc, and I found out later that others I've met along the way had the same doctor and felt the same. It wasn't a coincidence. Race is a valid issue when it comes to care, proper treatment and advice. It is happening out here and it's real. If you haven't gone through it you wouldn't know.

moderators

@jlgarber completely agree. And agree also @maggie15

@pinkyblue2 we really feel frustrated and sad reading this, and. understand (and agree). We are here to help, and make a difference. Whatever we can do, we're here. Message us too, any time. Where are you located?

Thank you for sharing and helping to grow awareness.