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Vinorelbine - the end of the line?? 

Hello all-I have just been recommended to move to Vinorelbine as my 9th line. My oncologist pulled me off DATROWAY due to severe SEs and told me this is one of the last drugs on the shelf for me. Not only is this a scary piece of information, but I also can’t find much online about this drug in terms of user experience. I’m at the point where I’m considering alternative therapy as I can’t wrap my mind around this is it. Any advice/suggestions are greatly appreciated!

Thank you all so much!

Comments

  • moderators
    moderators Posts: 10,640

    Thank you for sharing. It appears as though it's posted now. See link below.

    Vinorelbine - the end of the line??  — Community Discussion Forums

  • Thank you so very much!!

  • catfurr
    catfurr Posts: 40

    I’ve been on it for a few months and have had a mixed response. Some tumors have gotten smaller but one in my neck is bigger. Also have an increase in skin Mets. It’s my 12th line in 4 years. I’m being told I still have have options, including doing some of them again, Car-T therapy and drug trials.
    Get a second opinion?

  • ninaca
    ninaca Posts: 254

    hi, i’m on my 10th line of treatment and started Navelbine 10 days ago. this time the nausea was worse than other drugs but im working on getting it under control with Zofran. dont know if navelbineworking yet, have to wait on that. i have peritoneal mets, lobular, her 2 low. some stomach issues now with slow digestion. they also started me on zometa for a bone met so i’m dealing with 2 new drugs not always the optimist have at least one next drug in the line up. Trodelvy. Let me know if the drug is working for you. take care, Nina