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Helpful links about Triple-Negative Breast Cancer
For more information, see Breastcancer.org's Triple-Negative Breast Cancer section. Check out this Podcast: Hope After a Triple-Negative Breast Cancer diagnosis. Triple-Negative Breast Cancer Stories Hope this helps! --The Mods
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Calling all triple negative breast cancer patients in the UK
With so many forums and threads on this site to go through for information, I thought it would be a good idea for all of us in the UK to form a forum specifically for us, and to give our details and experiences in a compact manner. Anyone else in the world is welcome to join in. I was diagnosed with a very large tumour,…
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Not triple negative but have questions.
I was diagnose over a year ago and I have finished treatment up. I have been doing some research since I can handle it now. My tumor came back as aggressive basal type breast cancer which from my research is said that 80% of triple negative is basal type and the other 20% is like me with estrogen + mine was 20%. I did…
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Long term survivor examples.
Just an idea came across my mind. Can we share stories and examples of long term triple negative survivors. They dont participate in such forums. So its only by word of mouth that we get to hear about them. But I also see few of them in this website, who themselves are long term survivors. I feel so happy to see how they…
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Sacituzumab Govitecan (Trodelvy)
Hello everyone. I was wondering if anyone(s) could share any experiences they have had using sacituzumab govitecan (Trodelvy) either in a clinical trial or as recently approved by the FDA. We are trying to determine if it's the best plan of action for my wife at this time. There are 2 key things we are trying to determine.…
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Scared and Worried
I have just been diagnosed with an Invasive Ductal Carcinoma which resulted in also being a Triple Negative Breast Cancer. I will be seeing my oncologist for the first time on Monday. Not sure what to expect, the information out there seems to be a little scary. Any thoughts with the same problem as me. Thanks.
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TNBC Survivorship plan
I was diagnosed with TNBC in July 2022. I had a lumpectomy in August, then chemo Oct-Dec. Because of the genetics results, I elected to have a bilateral mastectomy with breast reconstruction using my own abdominal fat in January 2023. I have recovered quite well. By April 2023, my med onc discharged me to family practice,…
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TNBC at Mass General in Boston
Hi everyone I just found a website for Mass General in Boston- apparently they have a program exclusively for TNBC. I am wondering if anyone has looked into it or is currently under their care? I am meeting with my Dana Farber MO this Thursday to discuss my treatment options Should i mention that i saw info about the…
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Triple Negative, Stage 1 Thinking NO CHEMO
Hello all, I'm 44 years of age just recently diagnosed with cancer. My oncologist recommends carboplatin & paclitaxel chemo. After much research, I'm looking for alternatives to chemo. I am a PALB carrier and I'm not sure chemo would add any benefits to my situation. Is there anyone else that could shine some light on this…
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Calling all TNs
I think that we tn's need to have a sign up list like some of the other threads have...maybe put your age, and also what treatment you have had or are now having. What to do you think? I can start: age 50, diagnosed at age 49 1/2, lumpectomy, 4 AC Dose dense (every two weeks) and 4 Taxol, Dose Dense every 2 weeks. 35 rads…
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Can You Pause Radiation for Triple-Negative Breast Cancer? A Study Says No
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Any one triple neg with weakly positive HER2 (FISH)
Hi, I have very weakly positive HER2, so MO says I have both triple neg and HER2 positive ( weak)clones. I’m finishing neoadjuvent with TC and Herceptin tomorrow. Any one has similar path report and like to know how you are treated. Thanks
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TRIPLE NEGATIVE (Age 74) Lumpectomy (twice) ONE positive sentinel node - REFUSING TREATMENT
Good day, I'm writing on behalf of my 74 year old mother. She was diagnosed February 2023 with Invasive Ductal Carcinoma and Ductal Carcinoma In Situ (IDC & DCIS). Triple negative was our diagnosis. Ki67 is 20-25%, Grade 2, Apocrine features. First lumpectomy - (March 2023) clear margins, one out of six sentinel lymph…
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Lumpectomy vs. Mastectomy
I’m newly diagnosed and had consults with 2 different doctors. My tumor is small (6.5/7mm depending on which report used). Both recommended the same treatment- lumpectomy with radiation and then likely chemo. They mentioned that I could choose mastectomy instead and then there wouldn’t be radiation, but that there was…
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Haven't been here in a while....
Just wanted those of you newly diagnosed to know that I just celebrated my 14th year in February 2023, after diagnose and treatment of triple negative breast cancer. I know the fear only too well as I literally lived for many years on this forum to quell my constant anxiety of this coming back. I have, thankfully, not had…
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Stage III TNBC. Looking for stories of hope
Hi. My 30 year old wife's been diagnosed with TNBC. Unfortunately our treatment right from the start has not gone as per the standard algorithm. In fact her 4cm lump was determined to be a fibroadenoma and excised by a general surgeon, and it turned out to be tnbc with LVI, ki-67 65-70%, necrosis present, closest margin…
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Pregnancy after treatment for TNBC
hi ladies! Just over a year ago I was diagnosed with TNBC at age 30. I underwent fertility preservation and had some eggs frozen before starting chemo. I went on to get a pCR from AC, had a mastectomy and then 12 rounds of taxol. I did not have radiation and finished chemo this past June. My periods resumed immediately.…
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Confused about histopathology report
Hi All my mom had breast cancer diagnosis on 4/12/23 after which she underwent a unilateral mastectomy. At first she was reluctant to undergo mastectomy but with support from you all she finally did. Throughout this journey I could not have done without support from the posts here as it helped me learn so much the…
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Xeloda and TNBC
There's been a lot of news about the Japanese study where they administered Xeloda to TNBC patients after standard treatment, i.e., neoadjuvant chemo, surgery, radiation, who were NED but not PCR at surgery. MY MO is advising that I start this treatment this summer. I haven't seen much about going on Xeloda or dealing with…
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Misdiagnosed as Fibroadenoma
My wife noticed a family large lump (4cm) on her left outer breast on 8th sept. We immediately consulted a general surgeon who said he was absolutely certain that it was a fibroadenoma. He sent us to get an ultrasound, and the radiologist saw two lesions 3cm and 1cm next to each other, and said they're definitely…
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Tnbc
My name is Anne from Africa. Was diagnosed with tnbc last year. I was 13weeks pregnant. At the same time my mum was diagnosed with endometrial cancer. Am now 7 months after surgery and 6 months after radiotherapy and i see my hand is starting to swell.
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33 yr old TNBC Stage 2B and 13 weeks pregnant
Hi community, I'm: 33 yrs old and 13 weeks pregnant Diagnosed with TNBC, Grade 3, Stage 2B Cancer found in right breast and size 3.8 cm Cancer not found in lymph nodes yet I'll be in 2nd trimester next week and my husband and I are trying to evaluate the pros/cons of different options: Option #1: Keep the pregnancy and…
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Keystone 522 protocol -anyone experiencing side effects to immunotherapy?
Hi Everyone, I was diagnosed with TNBC stage 2 in Feb and have undergone neoadjuvent (chemo + immunotherapy) with 11 rounds taxol weekly and 3 rounds of cisplatin and keytruda. But since week 7 I’ve developed side effects to the immunotherapy. My heart rate elevated, I got breathe less, low grade fever of up to 100.5 daily…
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After mastectomy problem.
Hi My mother has triple negative breast cancer,stage 1,tumor grade 2, no lympnode are affected . After the doctor said it was cancer, the operation was done. The type of operation was mastectomy. It has been 44 days since the operation but the seroma is still not closing. Now what can be done in this situation? What could…
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Plan to decline last chemo
Hi all, 5 days ago I had the 15th infusion ...and it`s been hell. Felt extremely bad especially after having the Neulasta, with bad muscle and bone pains, continuous chills(scary especially after neutropenia last month), foggy brain, burning skin on my face, back and shoulders, liver and spleen pain. I am also…
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Wife Just Learned Of Brain Metastases
Married to the Love of my life since April 13, 1985. Our marriage like many has had it’s extreme highs and lows but after 38 years we are still together. The day before Thanksgiving 2020 we were caught totally off guard with the news that she had breast cancer and they were waiting on final results but almost positive it…
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PET Scan Post Neoadjuvant Chemo
Hello, I just did my follow up PET. Seems like nodes are normal; breast has some intensity but it is much less than before. I asked my surgeon if I can still get PCR; response is, we don't know. Is there anyone here who had some residual shown on PET, but had PCR? Thanks. -TS
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Introduction and impact of drug shortages - Carboplatin
Hello to all. So glad to have found you! Cancer is a lonely place. I found a lump in my right breast in January and went to my primary care doctor the following day. She wasn't able to feel it but ordered a mammogram and sonogram. After calling the breast centers recommended by primary care doctor, I was given an…
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Response with new treatment?
I was diagnosed in December with TNBC - stage IIB in my right breast. I started ac+ Keytruda on 1/17 and finished my last dose on Tuesday 3/21. I begin taxol, carboplatin & Keytruda for 12 weeks beginning 4/11. The response was small on the original mass. They have now found two more lesions that are actively growing…
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Newly diagnosed with TNBC: PET scan????
Hello everyone, I am new here and completely devastated. Just got diagnosed with TNBC (HER2 is indeterminate at 2+ and sent for FISH).y MO appointment is on Wednesday, followed by a SO appointment. Stats so far: tumor is 2.8 cm, one biopsies LN in the axilla is negative. They are scheduling a breast MRI. My question is the…
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Things that make ya go hmmmm…. Question on biopsy results
Hi! I'm newly diagnosed and I've been researching the information on my pathology report. I have a question that I'm going to bring to my doctors but I thought I'd share it here and see what information or thoughts you may have. I've already met with the doctors and discussed these results, but I have questions My report…