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Helpful links about Triple-Negative Breast Cancer
For more information, see Breastcancer.org's Triple-Negative Breast Cancer section. Check out this Podcast: Hope After a Triple-Negative Breast Cancer diagnosis. Triple-Negative Breast Cancer Stories Hope this helps! --The Mods
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Calling all triple negative breast cancer patients in the UK
With so many forums and threads on this site to go through for information, I thought it would be a good idea for all of us in the UK to form a forum specifically for us, and to give our details and experiences in a compact manner. Anyone else in the world is welcome to join in. I was diagnosed with a very large tumour,…
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TRIPLE NEGATIVE (Age 74) Lumpectomy (twice) ONE positive sentinel node - REFUSING TREATMENT
Good day, I'm writing on behalf of my 74 year old mother. She was diagnosed February 2023 with Invasive Ductal Carcinoma and Ductal Carcinoma In Situ (IDC & DCIS). Triple negative was our diagnosis. Ki67 is 20-25%, Grade 2, Apocrine features. First lumpectomy - (March 2023) clear margins, one out of six sentinel lymph…
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Scared and Worried
I have just been diagnosed with an Invasive Ductal Carcinoma which resulted in also being a Triple Negative Breast Cancer. I will be seeing my oncologist for the first time on Monday. Not sure what to expect, the information out there seems to be a little scary. Any thoughts with the same problem as me. Thanks.
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Long term survivor examples.
Just an idea came across my mind. Can we share stories and examples of long term triple negative survivors. They dont participate in such forums. So its only by word of mouth that we get to hear about them. But I also see few of them in this website, who themselves are long term survivors. I feel so happy to see how they…
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Misdiagnosed as Fibroadenoma
My wife noticed a family large lump (4cm) on her left outer breast on 8th sept. We immediately consulted a general surgeon who said he was absolutely certain that it was a fibroadenoma. He sent us to get an ultrasound, and the radiologist saw two lesions 3cm and 1cm next to each other, and said they're definitely…
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Calling all TNs
I think that we tn's need to have a sign up list like some of the other threads have...maybe put your age, and also what treatment you have had or are now having. What to do you think? I can start: age 50, diagnosed at age 49 1/2, lumpectomy, 4 AC Dose dense (every two weeks) and 4 Taxol, Dose Dense every 2 weeks. 35 rads…
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33 yr old TNBC Stage 2B and 13 weeks pregnant
Hi community, I'm: 33 yrs old and 13 weeks pregnantDiagnosed with TNBC, Grade 3, Stage 2BCancer found in right breast and size 3.8 cmCancer not found in lymph nodes yetI'll be in 2nd trimester next week and my husband and I are trying to evaluate the pros/cons of different options: Option #1: Keep the pregnancy and move…
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Keystone 522 protocol -anyone experiencing side effects to immunotherapy?
Hi Everyone, I was diagnosed with TNBC stage 2 in Feb and have undergone neoadjuvent (chemo + immunotherapy) with 11 rounds taxol weekly and 3 rounds of cisplatin and keytruda. But since week 7 I’ve developed side effects to the immunotherapy. My heart rate elevated, I got breathe less, low grade fever of up to 100.5 daily…
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After mastectomy problem.
Hi My mother has triple negative breast cancer,stage 1,tumor grade 2, no lympnode are affected . After the doctor said it was cancer, the operation was done. The type of operation was mastectomy. It has been 44 days since the operation but the seroma is still not closing. Now what can be done in this situation? What could…
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Plan to decline last chemo
Hi all, 5 days ago I had the 15th infusion ...and it`s been hell. Felt extremely bad especially after having the Neulasta, with bad muscle and bone pains, continuous chills(scary especially after neutropenia last month), foggy brain, burning skin on my face, back and shoulders, liver and spleen pain. I am also…
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Wife Just Learned Of Brain Metastases
Married to the Love of my life since April 13, 1985. Our marriage like many has had it’s extreme highs and lows but after 38 years we are still together. The day before Thanksgiving 2020 we were caught totally off guard with the news that she had breast cancer and they were waiting on final results but almost positive it…
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PET Scan Post Neoadjuvant Chemo
Hello, I just did my follow up PET. Seems like nodes are normal; breast has some intensity but it is much less than before. I asked my surgeon if I can still get PCR; response is, we don't know. Is there anyone here who had some residual shown on PET, but had PCR? Thanks. -TS
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Introduction and impact of drug shortages - Carboplatin
Hello to all. So glad to have found you! Cancer is a lonely place. I found a lump in my right breast in January and went to my primary care doctor the following day. She wasn't able to feel it but ordered a mammogram and sonogram. After calling the breast centers recommended by primary care doctor, I was given an…
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Response with new treatment?
I was diagnosed in December with TNBC - stage IIB in my right breast. I started ac+ Keytruda on 1/17 and finished my last dose on Tuesday 3/21. I begin taxol, carboplatin & Keytruda for 12 weeks beginning 4/11. The response was small on the original mass. They have now found two more lesions that are actively growing…
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Newly diagnosed with TNBC: PET scan????
Hello everyone, I am new here and completely devastated. Just got diagnosed with TNBC (HER2 is indeterminate at 2+ and sent for FISH).y MO appointment is on Wednesday, followed by a SO appointment. Stats so far: tumor is 2.8 cm, one biopsies LN in the axilla is negative. They are scheduling a breast MRI. My question is the…
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Stage III TNBC. Looking for stories of hope
Hi. My 30 year old wife's been diagnosed with TNBC. Unfortunately our treatment right from the start has not gone as per the standard algorithm. In fact her 4cm lump was determined to be a fibroadenoma and excised by a general surgeon, and it turned out to be tnbc with LVI, ki-67 65-70%, necrosis present, closest margin…
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Things that make ya go hmmmm…. Question on biopsy results
Hi! I'm newly diagnosed and I've been researching the information on my pathology report. I have a question that I'm going to bring to my doctors but I thought I'd share it here and see what information or thoughts you may have. I've already met with the doctors and discussed these results, but I have questions My report…
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Attitude Debate
I have been a regular poster on breastcancer.org for over 2 years and this is my first time to start a topic. It seems that on a lot of threads lately, the original question gets sidelined by the discussion of attitude. So I thought maybe if we had a place to discuss that specific issue, it would alieve that problem. Plus…
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No pCR and still alive and living happy lives
Dear all, Today I have started My first session of Palictaxel out of 12. I have had 4 ACs and the tumor has shrunk from 19 m to 8 mm. I was expecting a full response because nobody felt the tumor anymore, but unfortunately that was not so. Yet I am happy with the 8 m left. My oncologist does not want to put me on carbo…
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High B12 levels
I had 15 chemo infusions(last one 5 weeks ago), I am preparing for double mastectomy with reconstruction and had blood analysis 10 days prior to surgery.(next week) PET Scan was clean and blood results came two days ago mostly good but I had a very high B12 level of 1335. I got extremely scared reading online what high B12…
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Mets during active treatment? Possible?
My wife's currently undergoing treatment for stage IIIb TNBC. She had a 4cm mass that was misdiagnosed as a fibroadenoma and removed via lumpectomy. Subsequent PET CT showed an enlarged axillary LN 3.6cm with no evidence of distant mets. She's currently completed 4 AC and 8 cycles of weekly pacli and carbo (with Keytruda…
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Anyone have pCR with a lot of nodes?
I've got a lot of lymph nodes involved. Axillary and potentially in my L3 axillary as well. Anyone have pCR with a lot of nodes? I am TN as well. Or any long survival stories?
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Sacituzumab Govitecan (Trodelvy)
Hello everyone. I was wondering if anyone(s) could share any experiences they have had using sacituzumab govitecan (Trodelvy) either in a clinical trial or as recently approved by the FDA. We are trying to determine if it's the best plan of action for my wife at this time. There are 2 key things we are trying to determine.…
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"Atypical cells"
Hey My mom has been diagnosed with TNBC this month. She has performed surgery today and is expected to undergo chemo in a month. She went through MRI and PET that showed no involvement other than the primary tumor site. Today the surgery occurred, and after finishing we were notified by the surgeon that they have not seen…
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Shrinking response in chemo
Hello all, After 5/12 taxol/carbo/keytruda rounds, tumor has yet to start shrinking. When did you guys have it start shrinking? Thank you
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Xeloda for "Maintenance" purposes (not Stage IV)
I was given Xeloda last year for "maintenance" purposes, and to say that I had a difficult time on it is an understatement. After some adjustments to the dosage, I was taken off of it after only three cycles (we tried lower doses.) I was diagnosed with a recurrence in July. It was physically present a month after having…
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Olaparib (Lynparza) as adjuvant treatment
Hi I was diagnosed with Stage2b TNBC earlier this year in February. I completed my chemo, surgery (no PCR) and radiation. I am now recommended to take Olaparib for a year to prevent recurrence. Looking for experience from people here on this treatment. Thank you
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To the newly diagnosed: 6 Years With TNBC, Still Going Strong
Good morning, everyone. I’m stopping in after a long hiatus to offer some help to those newly diagnosed with TNBC. Almost 6 years ago I was diagnosed with stage 3C triple negative breast cancer. I was in total shock, grief, and had to stop working due to anxiety and depression. I have had two recurrences since then. I am…
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Partial response to chemotherapy
Hi all, I had my first ECO few days ago half through the chemo(almost done first cycle, 10 infusions out of 12). In spite of a rather aggressive approach: 12weeks of Paclitaxel & Carbo, with Keytruda every 3 weeks (will be followed of Adriamicin & ...I keep on forgetting the second and Keytruda) I have only 60% shrinkage…
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Podcast: Hope After a Triple-Negative Diagnosis
Thought you all might be interested in this podcast from Breastcancer.org: Hope After a Triple-Negative Breast Cancer Diagnosis Hope you find this helpful! -- The Mods