New Diagnosis
I was diagnosed with invasive ductal carcinoma, two large masses in my left breast. HER negative, estrogen/progesterone positive. My radiologist told me she was pretty positive it was cancer before official results, which was really helpful for me to process. I’m meeting with the oncologist and surgeon next week. I’ve been scared, sad, angry. I keep thinking this isn’t fair, but logically I know that doesn’t make sense to think. I’m struggling with who to tell when. Sometimes I feel like telling everyone I’m around at work, other times I don’t want to tell anyone, but it’s constantly on my mind. I hope I feel like I have a better understanding of next steps after next week appointments. What is the usual timing between diagnosis and treatment starting? My kids are in high school/college and I’m trying to be as honest with them as possible but I know it’s scary.
Comments
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Hi @boldnorth ,
I’m so glad you found your way here, though I’m sorry for what’s brought you. It makes so much sense that you’re feeling scared, sad, and angry — so many of us remember that stretch between diagnosis and the first appointments as especially overwhelming. Nothing about this feels “fair,” and your feelings are completely valid.
The time between diagnosis and starting treatment can vary from person to person, depending on the plan your team recommends. Many members find that once they meet with their surgeon and oncologist and have a clearer roadmap, things start to feel a bit more grounded.
Telling others — especially your kids — is such a personal decision. It’s normal to go back and forth about who to tell and when. You get to share in the way and at the pace that feels right for you. Many say that it is best to wait till you have your treatment plan in place, and are feeling more in "the know" so they know what's expected.
You’re not alone here. We’re here to listen and walk alongside you as you head into next week’s appointments. 💛
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Hey twin! Looks like we potentially have a similar diagnosis. Hope you are doing okay. I was offered surgery about 2 weeks after being diagnosed- mastectomy in my case. Think I would possibly have qualified for neoadjuvant chemotherapy but my tumours hid on scans (hence their size when finally removed) and they looked much smaller on my diagnostic mammogram than they turned out to be in the lab. Thankfully margins were all good so don't think surgery first did any harm. Hopefully you will get a date soon. You have found the best information resource about breast cancer there is and the most supportive corner of the internet - we are here for you.
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