New primary diagnosis
I was unsure about where to post this, since I have a few questions that probably overlap with other groups—probably an atypical scenario. Was just diagnosed with invasive lobular cancer at the scar site of a previous lumpectomy (8 years ago) for tubular cancer—a rare and non-aggressive subtype. Pathology report also listed atypical ductal hyperplasia. From what I've read so far, it's very uncommon to have a new primary cancer appear on the older and different primary scar. Has anyone had a somewhat similar experience with a different primary the second time around but on the old lumpectomy scar? In my reading, they speculated that inflammation from scar tissue could be a contributing factor.
The lump is hard and easy to palpate, which I think may not be particularly characteristic of lobular cancer which can be more difficult to detect? Has anyone had a hard, painful lump with lobular?
Anyone else have a diagnosis of atypical ductal hyperplasia along with the primary dx?
(Btw, haven't had a chance to pose these questions to the doctor as of yet.)
Any feedback appreciated.
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Hi @benaya , we’re really sorry you’re facing another diagnosis after all these years.
We hope others with lobular cancer, ADH, or a second primary near a previous lumpectomy site will chime in. In the meantime and if you’d like, you can also post in the , where you may find others with similar experiences.
We’re really glad you’re here with us, and we hope your upcoming conversations with your doctors bring more clarity.
Sincerely,
The Mods
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Thank you! I will post in the ILC group as well.
Had a chat with chatgpt yesterday which was pretty amazing in terms of answering many of my complex questions.
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