Exchange City
Comments
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bcincolorado:
I almost forgot what else I was going to post! My exchange was done today....I'm sore and even brushing my teeth was aggravating my incision with the arm movement. I'm taking pain meds & PS rxed Valium for muscle spasms, (which I learned here will help prevent the implant from shifting....thx again ladies!!) My boss scheduled me off all next week, but I know she's secretly hoping I'll show up sooner! Made several comments that this surgery would be a "piece of cake"...no, she's never had this surgery or a mastectomy either! She also loves to point out "so and so worked when she had her chemo"....sigh. I plan on taking one day at a time and not rushing back too soon. I've been through too much to return to work and do something impulsive and undo my PS's handiwork!! I have the time saved to be off all next week, so if I need it, that's what I'll do. I've spent years at that job going to work when I really should have stayed home and I feel that this is my life and my future and those outcomes depend on how I take care of myself at all times now. Wow, that was a long Part 2, wasn't it?
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Psalm121: Thanks so much for the suggestion for the mouthwash! I'll have to look for it when I go to the store this weekend.
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Colorado.. good deal.. get in there and get that mouth looked at.. it will all be good!

Congrats Psalm121... good job! And I am not sure how long ago you were hear reading.. but I posted a long time ago about teeth and anti-biotics.. ( when I was going through all this..)... pass it on to all your BC friends.
Deborah.. how are you sweety? Have not seen you posting much. I hope your spring is going well!
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on mouthwash.. I am sorry if I missed the part about anyone on chemo needing this.
If you are on chemo.. and have mouth sores... get a RX from your doctor for Magic Mouthwash.. AMAZING!
Biotene is amazing if you don't have too many sores...
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Hi ladies ~ All this talk about dentistry...thought I would copy & paste what I posted on another forum. It was way too much for me to re-post this.
As far as premedicating before a dental cleaning...PLEASE check with your surgeons. To my knowledge it is not indicated that we do this. If there is any discussion or question please, please check with your doctors. Unfortunately, doctors and dentists are not always on the same page. Someone mentioned Mitrovalve Prolapse? The AHA association, since last year, does not no longer recommend premedicating prior to dental treatment. If a repair was made for the MVP then this is another issue. The best advice I would recommend is to talk to your surgeon & get the facts. We certainly do not want to build up a resistance to antibiotics.
Hi Ladies~
I thought I would comment on your posts. I am a Registered Dental Hygienist. I will say please do not stop flossing and do not replace flossing with a waterpik!!! These two are two different things. Another important note is...you need to floss below the gumline...not just between the contacts. Continue to brush thoroughly...with a soft brush. All brushes are not the same even though it may say soft. Using an electric brush is useful. I highly recommend the Sonicare by Phillips. Make sure that you are brushing at a 45 degree angle (referred to as BASS method) to get along the gumline. Even if you have some bleeding, do not hold back on your brushing & flossing. The healtier you keep your gums, the better for your overall health. Bacteria travels through your circulatory system. If your gums remain red & especially puffy, have your dentist Rx Periogard or Peridex (Chlorhexadine Rinse). Also, if you have chemo/rads as treatment, make sure you are brushing or rinsing with a fluoride product from your dentist~~~not OTC pastes/rinses. When you have chemo/rads it reduces your salivary flow thus you may experience dry mouth syndrome. Having dry mouth causes everything to stick such as plaque/food debris. When this occurs this sets up for rampant decay as it weakens the enamel. I put my patients on Prevident or Gel Kam products all of which can only be Rx'd by your dentist. If you are experiencing dry mouth, OTC products such as Biotene can help by moisturizing your mouth. This item can be found retail.
I hope this FYI helps!!!
NAE
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Laura - OK that is one COOL photo! I love it! Is that you right now with the new hair? I am SO envious
I so look like my brother right now (well, a bit chubbier but that's him alright). And by the way, I chemobrain spaced out earlier and forgot to say: CAN'T WAIT TO MEET YOU IN LV IN OCT TOO!!!!Psalm121 -- I loved reading your post today about happily having your exchange (right breast like me too!) It helped calm my nerves, which are running wild. Plus my added aggravation at the moment: my insurance has been rejecting all the bills from Sloan Kettering since the new year began even though they are identical to bills they paid in December... my insurance says Sloan has to fill out something/do something and Sloan is saying it's my insurance -- it's SO AGGRAVATING. I try not to let it bother me as I know I have the insurance, I know it's covered, I know I've done everything I'M supposed to do... but really why should ANYONE have to deal with this kind of stupidity when going through cancer treatment?
Sorry didn't mean to rant but I'm just so miffed.
Val -- aw thanks for that... yeah I'm a bundle of nerves. Thank GOD I'm busy! I only think about it late at night right before bed (nicely robbing me of sleep... sigh) I'm doing better today. You all help SO much it's amazing.
BCinColorado -- sounds like you are having similar surgery to me... and glad to hear you're happy about the gummy. I am getting one as well (though I WILL need a lift and a reduction)... and I worry that I won't like it, then I remember I felt one and think: no it was good! Then I worry that what I felt wasn't REALLY a gummy but some other sort of cohesive gel. LOL. I'm ridiculous!
For all of you who have ever written PMs to me asking me if I ever get upset... here I am in all my silly anxiety
I DO have my moments.Nedeza -- thanks so much for that info. I get my teeth cleaned regularly and floss, etc... have never heard of having antibiotics before a cleaning! (Or did you ladies mean before something more invasive?) And thanks everyone for the reminder to keep our teeth and gums clean!
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Hey Laura: thanks so much for the congrats, I so admire your spirit, which really comes through so well in your posts!
Thanks, Nedeza: for the dental info....I had a dental cleaning 1 month after finishing chemo and my dentist was very pleased with my dental health. I used the Biotene faithfully and was really careful to clean gently. Why did my gums & tongue bleed so easily, even though I was so pro-active with mouth care? But, come to think of it....even if I got a paper cut or hang nail, that bled really easily, too....just curious if anyone else had that.... Also, my dentist insisted on pre-meds and she was fully aware (as was I) of the new recommendations. She is a perfectionist and so patient-oriented that she said considering that I still have mitral valve prolapse and history of low-immunity, she wanted to not take that risk. I love my dentist! She & her staff sent me cards throughout my surgery/treatments and were such an encouragement! Also, regarding pre-meds, I read somewhere that they are recommended to women who have had lymph nodes removed because it will help prevent bacteria from being introduced and causing infections in mastectomy/surgery arms. Had you heard of that before...was news to me til just this past week and was glad to learn it as i had my exchange today and PS treated me with antibiotics as well.
Thanks, again, ladies.....your advice is much appreciated as is you warm welcomes!
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I am pretty sure that I was given IV antibiotics during ALL of my surgeries (including my first lumpectomy, when they thought my cancer was not invasive). I think that's pretty standard op these days in hospitals (whether you have mitral valve prolapse or not).
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Thanks Terri! I am feeling much more encouraged with everyone's feedback. My hubby and I went on another walk tonight! We're taking advantage of the beautiful weather before it gets to be over 100 degrees here!
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Hi Lilah!!
I was busy typing my post and just now read yours.....I was so excited for my exchange today I was all smiles..even at 5:00 a.m.! It sure is crappy that insurance companys create so much stress for us....I hope your circumstances resolve very soon and if that's what you call upset....maybe you need some anger management classes! Wink, wink! and, of course, you're exactly right about the antibiotics with surgeries, irregardless of mitral valve prolapse....when I asked her if I would be receiving antibiotics she said "absolutely". I'm just so paranoid, I've had to be very much on my toes during all this....medicine allergies....side effects.....right arm precautions. My mind just whirls with thoughts and my poor doctors tolerate me so well!
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Hello ladies, just sitting here at 4:50 am waiting to go to the hospital for my exchange! Yippee Squishy!!! Just want to say to Judy, hope all goes well and happy healing today! And anyone else having surgery, treatments or appts, hope everything is wonderful!
Good day ladies!
Paula
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Dear Judy,
Wishing all the strength healing and comfort to you today and in all the healing days that will follow.
Laura
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Congratulations Psalm 121....love hearing about good outcomes
Gives me hope 
Paula I hope your day is going well and you outcome is exactly what you hope for and painless too

I go in for my last visit to my PS today before my exchange surgery in 10 days! woohooooo! I am looking forward to getting the final surgery over with....my TE's and I are not friends...so tired of being poked!
I do have to admit to some anxiety.....I thought I was completely relaxed until I had a dream two nights ago. In my dream I woke up form my surgery and had huge Dolly Parton boobs! I was walking around trying to hide them and in tears. So I guess I am pretty scared of the final outcome...it's scary to go under anesthesia....wake up....and see what this has all come to. So deep cleansing breath....deep breath....relax...think of a happy place......phew

Healing, comfort and strength to all,
Laura
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Good Morning Ladies:
Nae, thanks for the professional input for dental health!
Psalm121: I hope you are feeling well this morning and yippee squishy to you!
Laura: I hope your appointment goes well today.
Lilah: I know that it seems to be natural for us to get nervous about surgeries even if it brings us closer to the end of this roller coaster called Cancer!
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I'll third the recommendation of Biotene mouthwash. I used it faithfully during chemo because my mouth was so dry that I choked on all food,and everything stuck to my gums and teeth. When I finally was able to get my teeth cleaned, they had less plaque than usual! Even after a year of not seeing the dentist! (I had been almost due for a cleaning when I started chemo.)
I didn't know about the antibiotics before dental work but it makes sense. My father-in-law had a heart problem, and almost died from having his teeth cleaned. The bacteria got into his heart. My husband has a total knee replacement and must use antibiotics before he has dental work. So I'll just join the family club.
Good luck today to our surgical ladies!
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Lilah, just to second (or tenth) and validate your nerves. I was so nervous before the exchange. It's so emotional and brings to the surface so many of the original fears of BC, I think. Even though my TEs were very uncomfortable, at least I knew what they were. I had also just gotten back into my life, really, and was so resistant to thoughts that I'd be out of the mix again. You're going to feel so much better, but also know it's so normal to be nervous -- and changing the date is huge, even though it'll be better in the long run.
Happy Friday, everyone! Judy, Pbebow and Jenweg and all the sisters having surgery or doubts or just getting thru today, my best wishes and love and gratitude for you for supporting all of us. Maggie
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Judy & Paula & Jenweg~~thinking of you all and wishing wonderful outcomes and mild symptoms!
JizoLaura~~These next 10 days will fly by and you'll be "yippee squishy" before you know it, sooo happy for you!
Mornin' bcincolorado!~~I'm doing very well, thanks for thinking of me. Some soreness, but not too bad and I keep having to remind myself of PS's instructions of no lifting/pushing/pulling! I feel that good! Did have some muscle spasms early this morning, so will plan on taking the Valium as prescribed to help with that....don't want this implant to shift! Take care & talk to you soon!
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Laura (jizogarden) - I had some mighty strange boob dreams around the time of my exchange - I must have had ten of them. Now I'm sorry I didn't write them down... I think that the exchange is hard to conceptualize. It is difficult to take in intellectually let alone emotionally, so I did do the freak out thing just before and after. I think I'm 8 weeks out now, and I'm much more comfortable with these implants, both physically and emotionally.
Happy healing to all of the ladies who had surgery this week - take it easy and be good to yourselves,
Kristen
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Psalm~
I am totally impressed with your dentist! I want to add that yes...if you do have questionable conditions such as being immunosuppressed then additional measures are taken..such as premedicating. Every medical doctor has his own protocol although there are guidelines. Some with MVP want their pt. to take premeds forever each time. The most important thing is to be safe!
NAE
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My PS also wants me to take antibiotics before any dental cleanings. He can't explain it medically, but he has had patients who developed infection or CC, and the only cause or "trigger" seemed to be a recent visit to the dentist.
NAE, your advice to us is great - we should talk to our surgeons and dentists and follow their recommendations about dental care and antibiotics.
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Nae, thanks for your input! I've been hoping you'd weigh in here! What to do when the surgeon says something different the the hygenist? I had some amox left so I did premedicate even tho surgeon said I didn't have to, it just seemed too close to exchange, and I am still sore on one side (when does that stop?!). My hygenist said to premed every time. Would 4 x 500 amoxicilin hour before cleaning every six months contribute to the too much antibiotic problem?
I've also been thinking of the added alloderm as another foreign object along with the implants. But just didn't want to go into all that at dentist office. I still don't like telling people what I'm going thru. I know I should have but didn't mention my new dx to them. Wish I could go to you NAE!
Kristinka, did you have fun college touring? We loved doing that with our daughter! And did you really mention bra shopping on the trip, or am I imagining that! We're headed out your way to see her, bring on that CA sunshine!!
Lilah! Yes, I think we are all a bunch of nervous nellies here before procedures! I had such major anxiety but took nothing for it, not even a drink, silly me when I think about it. A glass of wine or a valium sure would have helped! Sometimes a wrong procedure number is given to insurance companies, hope that's all it is and will get straightened out.
Psalm are you writing right after surgery? What are you on!
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Hi Katey!
I laughed out loud----well I was prescirbed Vicodin but have only taken 2 so far! My mastectomy was nipple sparing, so incision was along the lower curve of the breast, kinda where an underwire on a bra would rest, so my PS used same incision area, but smaller, for my saline implant. I do have some soreness but I can already tell that it is less than it was even yesterday. Swelling is minimal compared to mastectomy....this whole procedure was less traumatizing to my body. Also, she prescribed Valium for muscle spasms, which I have taken but only once... apparently muscle spasms can cause the implant to shift. So I guess that's why the restrictions on lifting/pushing/pulling, too. Yesterday was a very happy day for me, I really feel like I'm coming out on the other side of this bc ordeal now, and in my happiness wanted to share with my bco friends in hoping to encourage and relieve some anxieties!
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Katey -- thanks and much appreciated reassurance! In my rational moments I know it will get worked out (the insurance thing) but if I let myself go I start worrying they are going to try to make me pay for stuff I'm not supposed to pay for. I think this just means its time for me to call and be the sand that makes the pearl.
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Have a collection of Vicodin that I didn't need . . . . you never know they may come in handy later.
Lilah ~ My mother used to say that "worrying is effective" because most of the things that you worry about never happen.
Posted the nipple bandaging technique a little while ago for those ladies that might need it. Am loving it and not ruining any of my clothes or poking anyone's eyes out!!
Have a wonderful relaxing healing weekend everyone!!!
Colleen
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Hello to all the EC ladies.I am new posting on this thread but I have followed it for awaile though. I will be having my exchange on the 28th. I am nervous but I know with all Deborah's help I will be fine. I have to say reading some of your post at times make me laugh and cry on the same day

Rebecca
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Colleen, Thank you so much for sharing your bandaging method with us. This is so helpful....you look great!
Continued healing and health,
Laura
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Ooooofffff.......my last fill today.......I swear my TE's are up under my chin =o\ Will be sleeping with valium tonight. I only want to be a B....I can't imagine how full my fills would be if I was wanting to be a C or larger...the mind boggles....
My ps is happy with how I'm looking and ready to meet me a week from Monday
I'm anxious and happy at the same time. I told him about my Dolly Parton dream and he laughed telling me please don't worry....I'm not going to look anything like Dolly ;o) he did think it was pretty funny.Hope everyone is doing well...home from surgeries safe and sound.
Judy I sure hope you get a limo when they let you return home.....you deserve it

Strength and healing,
Laura
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Rebecca: Welcome! Congrats on your up-coming exchange!
Psalm121: I'm so glad to hear you are doing well! You cheer me up reading your posts. I know we are both on a couple of the same ones. I do love that verse too!
I got my exchange date and it is June 4th! Gummy-bear implant for me! Right now I'm excited to get this over and be "done with cancer"....well except for Tamox for years, and years, and years, and the doctor appointments and tests won't end but surgery will for now at least!
I imagine I'll get nervous before surgery like everyone else seems to be....I hate to be poked with needles! Tired of being a human pin-cushion.
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Ok to those wondering about premedicating for dental treatment including cleanings..my PS suggests premedicating since it is not any different from someone needing to be premeded after having an artificial joint replacement.
NAE
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Psalm, Welcome and congrats! Glad to have you as a full EC member now!Colorado, Sounds like a supportive boss--what's up with that!? Love all this dental info, great discussion!Ahh, Lilah, there's the worry part of you. You're as bad as me, hang in there, you'll do great and you'll come out of this with an actual pair, it will be so lovely! Sorry to hear about the insurance pains!Rebecca, Welcome! Off to see Colleen's new bandages--thanks for keeping me updated!Julie0