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  • iHEARTu
    iHEARTu Posts: 20
    edited May 2010

    KatRNagain92 - Yippie Squishi!! What a great feeling it must be!!! Exactly 2 weeks from now I will be there!! I just can't wait for these expanders to be gone!!!!

  • pbebow
    pbebow Posts: 110
    edited May 2010

    Kat, so happy for you!!!  You got what you wanted!  That is awesome!!!  Can't wait to see your pics.  try to take it easy and don't work to hard!!!

  • Summer38
    Summer38 Posts: 96
    edited May 2010

    CS - Thank you for the massage info. I see a PT now for range of motion but he does not specialize in MX/TE so I'll talk to my PS about it. Though my PT is really cute! LOL

    Kat, Congratulations!! Glad you're happy with the new foobs!

  • Katey
    Katey Posts: 496
    edited May 2010

    It's so great to read how we're all moving along!! ups and downs along the way, but we're getting there! CS7 and Kat, you sound gooood!!

    Nip for me on June 18!!  It will be done in my PS office under local, gulp!  I'm happy about no anesthesia but know I'll be a nervous wreck!  Only tylenol will be needed after!  (have a few vicodin saved just in case;) Gauze wraps, stitches for a few weeks with avoiding swimming at that time, but can do core work, treadmill anything but chest exercises!   My old fip will stay as is, maybe a touchup at tattooing time.  Should be interesting to match cause the old one has a skin graft, this one will not, but I know my PS is fabulous and it will look just fine:)  Hate giving up part of the summer swim, but I do think the anxiety of waiting till fall would be worse for me. Oh, and he wrote a PT script to get this one stubborn shoulder worked on, so back to that next week.

    Thinking of you all, new friends and old!

  • TNgolfer
    TNgolfer Posts: 57
    edited May 2010

    First an apology.  When I mentioned benedryl, it was because it had been recommended to my for sleep by my breast surgeon.  I wasn't on Tamoxifen then (or now), so I didn't know about any interaction.  My advice to anyone reading these boards is to take what we all say and then ALWAYS check with your medical providers before doing anything (medication, supplements, exercise, etc.).

    Kat - glad you are happy and all has turned out well.

    Had some bleeding from one incision on Sunday night.  Called the dr's ofc Monday - it had subsided, but PS moved my Thurs appt to today.  I saw him this morning and he said everything is just fine (he did a fabulous job).  The reason that I was ordered "no bra" after the surgery was because he wanted the breast to fall naturally as he had to do some pocket work because the left TE had moved.  He originally thought he might have to do liposuction, but re-working the pocket and letting the implant "fall naturally" was the right thing for me.  But after this appointment, definitely wants me in a bra and said "an underwire if you can tolerate it".  Soooo the lesson here is we will all be treated differently and all take different paths, but hopefully all get great results.

    I haven't worn a bra since the first excisional biopsy back in November.  Didn't know what size I was or where to go.  Read that Nordstrom's has fitters but there is no Nordstrom here.  I went to a department store called "Belk's".  I don't know how many states have them.  But when I got there, they had a large sign stating they had certified fitters.  I asked for one.  I have to tell you this turned out to be a very emotional trip.  The woman was absolutely wonderful.  Walking to the fitting room I told her I had a mastectomy and recently completed reconstruction.  She just smiled and said "don't worry honey, we'll find you a bra".  She was professional, efficient, knew exactly what she was doing.  She would bring a couple in and check the fit and then was right back out to get a better fit.  She was patient and she knew this wasn't easy.  She reassured me we would find the right one for me.  We did.  Once I put it on, it was the right size and it was comfortable.  It was even pretty!  She knew it too -- she said, "see I think we got it".  I couldn't believe how that affected me.  I looked at myself in the mirror in a bra again and I looked fine.  I cried.  I hugged her when I left and thanked her.  She told me it had been her pleasure to serve me.  I immediately wrote a letter to their chairman in Kansas City Mo. 

    Back to the PS in 4 weeks to talk about a nipple for the right breast.  He does it in his office with a local -- yeah! no more anesthesia!!!!

    Thinking of all of you!

    Marianne

  • Kristinka
    Kristinka Posts: 223
    edited May 2010

    just wanted to say hi to you all - I've got my hands full with my job, my son's hs graduation, relatives coming in from out of town and a cold.  I've been skimming along the past few days and am wishing you all well.  I'm so glad that those who have had recent surgeries are doing so well - congratulations to Val, Lilah, Kat, Marianne and CS!  You sound wonderful.

    Best wishes to you, Rebecca...

    Kristen

  • pbebow
    pbebow Posts: 110
    edited May 2010

    Love the new picture Kristen!  I remember how busy things were when my son graduated from HS...  good luck to you and to Val with her son's graduation.

    Marianne, I am so glad that you are pleased and that you found a great place to bra shop.  I have only wandered around JC Penney myself... thinking about trying at Macy's or Elder Beerman soon (Nordstrom not an option yet).  What brand and style did you end up with, may I ask?

    I'm so excited!  I just bought Jonas Brothers and Demi Levato concert tickets for my 7 year old daughter!  She doesn't know... the concert is in September and I think that we'll give them to her for her 8th b-day in August.  I will of course go with her, but this will be her first concert and she is going to be soooo excited!!!!  It is fun to be able to do something like this for her, she has been so good and brave through out my whole BC experience, it'll be fun to go to this and just cut loose and be crazy star struck girls!!!  My best friend from HS (that was at the hospital with me during BMX) and her 2 daughters are going with us.  They live  a few hours away so we don't see them often, so it'll be such a great time for us all.  I, of course, would prefer to see Kenney Chesney or Brad Paisley or someone like that but this is all about her!!!   So excited!  Hope that I can keep it a secret until August!!!

    Paula

  • SallyEvian
    SallyEvian Posts: 2
    edited May 2010

    Thanks for the info Paula!

    Of course I completely understand the need for confidentiality. My TEs look pretty good so far - much better than I expected - and I still have to do the radiation business so I'm not dying to compare them to other jobs just yet:)

    I will do as you suggested and try to start interacting more on here.  My partner keeps trying to discourage me from asking questions on here because, as she says, "Everyone is different and everyone has a different experience."

    She thinks I should avoid advice from laymen (patients) and direct my concerns solely towards trained professionals (doctors).  She's just worried I will get scared by things I read, which is what happened when I had a completely unrelated cancer ten years ago.  It was much more rare and everyone on the brain tumor forum was desperate and dying.  I wasn't given very long to live either - somehow I totally beat it - but I think she believes this site might also be doomy-gloomy.  I've been trying to get her to spend some time on here - hopefully that will happen. It helps to compare notes - especially when others are actually surviving, doing well, and still posting.

    Thanks Again:)

    Sally 

  • maggie66
    maggie66 Posts: 71
    edited May 2010

    Laura and Kristen, super-cute pix!

  • val61
    val61 Posts: 969
    edited May 2010

    Sally - Your partner is just trying to help....my dh (who happens to be a physician) told me in no uncertain terms to stay off the internet when I was first diagnosed, and I was glad I did....way too much misinformation and depressing stories.  Once I'd met with my docs, though, I found I really needed support - mostly emotional - but some practical support, too.  That's what I found here on bc.org, and esp. here on EC.  It is true....you absolutely need to listen to your docs first.....but believe it or not, sometimes we need to advocate for ourselves, and this is a great place to garner information.  We hope you hang around here with us!

    Kat- So happy that you're happy with the new foobs!  I'll stay off my bra "soapbox" around you, I promise!  (but if you ever change your mind, you know where to find me....)

  • TNgolfer
    TNgolfer Posts: 57
    edited May 2010

    Sally and Val - you are absolutely right.  I found this website invaluable for emotional support (that you can't get from friends and family -- only from those who have been there).  And it has been invaluable for practical support (list of what to bring to the hospital:  silk boxer shorts, hard candy, list of phone #'s, fanny pak, etc etc).  It's also good to see what others may be doing (exercise, healthier diets, etc.) but get the medical advice from the medical community.  This is also a great place to give us courage to ask providers questions and also find out about new treatments, clinical trials, etc.

    Paula -- no problem sharing.  I ended up with a Playtex Secrets (side smoothing underwire), style #4138.  Bra shopping was odd because I was actually a D cup in some other bra's.  I was never concerned about size, as I was pretty small to begin with (a small 34B), but being 5'10" and only 135, I don't look large with a 36C (or D), I just look like a woman my height should.  But the best thing is the feel -- they are yippee squishy!  If anyone has a Belk store near them, check them out as they have certified fitters!

    Marianne

  • Kristinka
    Kristinka Posts: 223
    edited May 2010

    Sally, I'll echo what Val said.  My surgeon told me to stay away from the internet while we were figuring out my diagnosis and treatment.  Once we had decided on that and I had started with the surgeries, I found that the discussion threads on this website gave me a lot of valuable information about pain relief, recovery times and implant sizing.   I took that information back to my surgeon, and I think my recovery and surgical result improved because of the give and take.  Also, the emotional support is also very wonderful as are the friendships that we make here!  Kristen

    (Val, why do I always echo what you say!!)

  • maggie66
    maggie66 Posts: 71
    edited May 2010

    Sally, I think the web can be good and not-so-good when you're diagnosed. My naturopath and husband both told me to close the laptop (more or less) and I was not so happy to get the unsolicited advice, but some of what I read did freak me out and I stopped researching things on random websites. This site, though, has been so helpful for practical and emotional reasons for me. If I'm feeling like I can't bear any bad news for the day, I'll skip or skim and come back to it ... but sometimes reaching out and knowing your experience is shared has been the perfect antidote. This thread tends to be optimistic, but it's also real, so it's not all happy news/feelings, etc. I've come to rely on the very kind and generous support in a way I wouldn't have thought possible before. The women here "get it" in a way that my friends and family just can't. I'll be thinking of you, Maggie

  • Lilah
    Lilah Posts: 2,631
    edited May 2010

    Sally -- I'll echo what the others said.  Your partner is right and you should always seek medical advice from your doctors, not us.  But there is much comfort here and if there is info that seems useful, always check it out with your doctor.  Each person IS individual -- not only each of our specific breast cancer diagnoses (even those that seem the same), but also our breast reconstructions.  Still there is much about being here these past few months that has taken away the scariness and the aloneness for me... even WITH an understanding, caring partner and an excellent team of doctors.  So you are welcome to be here as much or as little as you want or need to be.

  • pbebow
    pbebow Posts: 110
    edited May 2010

    Sally, I hope that you can get your partner to check in on us and see what it's about... as others have said, noone here thinks they know more then your doctors and don't try to give treatment adivce... but this is where you come to vent, to share, learn and to rejoice!  For me it was so helpful to come here and read all of the success stories and hear about how these wonderfule women have went through what I was going through and survived AND were actually happy with their end result....  Yes there are always posts about being sore and not being happy with results (mine for instance) but then later you read where that person isn't in pain just a couple days later, or the other impatient person (me) realized that she judged her results too soon and is wonderfully happy.  You learn about different techniques that are available to fix little things, different things that can help with pain and just so much.  And you make some wonderful friends.  My wonderful husband walks by me every morning when I'm sitting here at the computer and says "So, how are the ladies doing today?  What's up with Team January?"  He knows that I need this, I need to come to people that understand what I am going through, what we are going through... I think too sometimes it helps him, because I'll read something and call him over and tell him about it, and he'll see that I'm excited or sad or whatever and he gets it....   Just be patient with your partner and try to share as much about this with her that you can, I think it really helps.  Before my BMX I read quite a bit on here (the whole site, not EC) and read about a lady that had had a BMX and chose no recon and I think it had been a couple years and she had NEVER let her husband see her chest.  She wore cami's to bed, and never let him see her after shower or anything... I talked to my DH about that and we made a pact that after my BMX we would look for the first time together and go through it all together.  He has been to every appt with me and taken care of me and took care of my drains and just been through it all with me and I think that it has helped him to be a part of this and to share this with me (not that anyone wants to go through this, but our partners don't want to be left out, they want to be there for us).  ANyway, sorry, I had a glass of wine with dinner ( a big glass) and I seem to be very philisophical now and just rambling.  Anyway, I'll step off my soapbox and back slowly away from the computer now!

    Have a great night!

    Paula

  • Lilah
    Lilah Posts: 2,631
    edited May 2010

    OMG Paula tears in my eyes at your story about sharing it all with your husband. 

  • fairportlady55
    fairportlady55 Posts: 152
    edited May 2010

    Paula.....wow. I hope one day to find a man like your dh! so moving. tears in my eyes too....

  • TNgolfer
    TNgolfer Posts: 57
    edited May 2010

    I love you Paula!!

    Marianne

  • Jerusha
    Jerusha Posts: 339
    edited May 2010

    Paula, the soapbox is a good thing! And you've got us all crying! (Well, me, also --- anyway). Having just joined BCO, I was up late late late last night reading through many pages of amazing entries. When I got up this morning, I checked first thing. Today I added Implant 101 and EC to the homescreen of my iphone, and was checking it constantly throughout the day; even at red lights! It was such a relief to know you all were there! The pull of support and understanding is very powerful. I live in a relatively small community, and for professional reasons have chosen not to tell people here about my diagnosis and treatment. A few people know that I had surgery -- I usually mutter something about bad mammos, biopsies, risk factors, genetics, blah blah, prophylactic mastectomies. My family all knows, immediate and extended, my dearest BFF's (who don't live here) know. My husband has been with me all the way, my lovely children ( though I put on a good face for them) have been wonderful and thoughtful, but as many have said... at the end of the day, (in the middle of the night...) nobody who has not -- is not -- going through this can truly get it. Whew for EC.

  • FACECRAFTER
    FACECRAFTER Posts: 433
    edited May 2010

    Wow. Gone for a day and a half there were four pages to catch up on!!
    Lilah- so glad that you are back with us..
    Laura2- so glad to see your face!
    Maggie- great story

    Ok I've llost track of who's who- but glad for all the good news..It's great to see everyone moving along in their journey.
    Texas- no one answered you here- but I did PM you.

    As for me, well....I just got out of the hospital yesterday.  The PS decided to clean out the seroma/hematoma and replace !! the drain.  So my LD scar was opened about 3/4 of the way
    and the dreaded drain is back.  Oh well, I'm glad they decided to clean it out as that filled up lump wasn't going anywhere and was the size of a baseball.  I'm on Vicodin and things are OK, but I need to be off work for a week (again!) and my poor clients are being so patient with me!!

    Well, I thought I'd check in.  One more stop along the scenic cancer highway.  Hopefully this is the last scenic detour I will take.  Aug 16th and I get my final implant (again!)..I can't wait.
    JUDY

  • boromom
    boromom Posts: 28
    edited May 2010

    Jerusa - I so understand how addicting this site is. I find myself checking it a lot. It is just so nice to have a family of women who understand and be lifted up when you're down. It has been a lifesaver for me.

    Paula - thanks for sharing about your journey with your DH - it was beautiful and made me smile/cry. Also, so excited about your concert with your daughter. I remember when we did that for our kids and the N'Sync concert (dating myself :) So hard keeping it a secret. It will be a great memory for her.

    Marianne - thanks for sharing your bra shopping experience. I have been to 4 different dept. stores and have tried on more than 30 bras - most at home. I have 3 bags to return. I have yet to find one I like. You convinced me, I'm driving the 45 minutes to Nordstroms on Sat morning to have a professional help. I cannot do this alone!!!!

    Hoping the sun will shine tomorrow.

    Melissa

  • Luna5
    Luna5 Posts: 532
    edited May 2010

    Oh Judy....I'm so sorry you have had to endure so much.  You take all of this with such grace!  You are an inspiration!  Your amazing upbeat attitude is so impressive. 

    Did you get to ride home in anything more exciting than the tow truck?

  • musiclovermom
    musiclovermom Posts: 245
    edited May 2010

    KRISTEN - super cute picture!

  • AStorm
    AStorm Posts: 1,393
    edited May 2010
    Val - did you say grapefruit!?
  • Hannahbearsmom
    Hannahbearsmom Posts: 266
    edited May 2010

    I want to thank everyone here for sharing their thoughts, feelings, and advice in such a loving, caring way. I don't post a lot but I do read every day and this site (and EC in particular) have really helped me tremendously along the way. It just means so much to have a community of women who are always there and can truly understand!

    TCK 

  • tory
    tory Posts: 85
    edited May 2010

    Melissa - I highly recommend going to Nordstrom! I had to go to find a prosthesis and bras to go with it and I was really anxious about it, but the fitter was so matter-of-fact about everything and knowledgeable and kind. If I had stopped to think about it I probably would have cried. Go and let them fetch everything for you. You might pay more depending on where you usually shop (I'm a cheapskate), but it is really worth it.

    Paula - You are so lucky and thanks for sharing your experience with your hubby. Mine's pretty great too and I can't imagine shutting him out like the woman you read about, but everyone's got their own way of coping. And yet, as supportive as he is, I've found coming here so, so helpful.

    Like Maggie said, "The women here "get it" in a way that my friends and family just can't."

    Thank you all for that! I'm sappy and I haven't even had any wine yet!

  • Estepp
    Estepp Posts: 2,966
    edited May 2010

    It is a good feeling to us, old timers, when we see you new ladies posting here and sharing your love with others... Sometimes I go back.. and read the first 5 pages of EC... Breast Friends!

    This is NOT a group any of us wanted to join. But is is a blessing we have eachother!

     ((((hugs)))))

  • bcincolorado
    bcincolorado Posts: 4,831
    edited May 2010

    Marianne, the bra shopping story brought tears to my eyes!  I haven't worn one since my first lump in Sept and I've had 2 more surgeries since then!  Maybe after exchange I will get to be "normal" again.

    I do want to pass on a great book for everyone on this site that I'm reading right now.  It is Living Well Beyond Breast Cancer by Melissa Weiss who founded this site.  Great advice and informative and easy to read.

  • Luna5
    Luna5 Posts: 532
    edited May 2010

    Tory...you and I have almost the same stats and we were both diagnosed on April Fool's Day only a year apart.  Did you have an OncotypeDX test done?  That would be just crazy if you got a 0 also.

  • Firni
    Firni Posts: 521
    edited May 2010

     My gosh, I was gone for 3 days and it took me all evening to catch up again.

    vmudrow  several pages back, you asked if anyone found their TEs to be bearable.  No one commented, but I didn't have a lot of discomfort with mine.  When you go for fills, ask if you can be sitting at about a 40 degree angle.  You will be able to feel the pressure from the saline a lot sooner. As soon as you start to feel uncomfortable pressure, ask your PS to stop.  If you are laying down flat, you won't feel the true tightness until you sit up.  Big difference between laying and sitting.  I was able to tolerate about 60ccs each time.  There is no reason at all to rush the fills.  Take your time and stay as comfortable as you can.  My TEs pretty much stayed in front so I didn't have to deal with the discomfort of TEs under my arms like some women have.  Anyway,  I was filled to 460 and ended up having 550 implants put in.  It wasn't too bad.  I was even able to sleep on my sides the third night after fills.

    Texas,  Why does the nurse do so many sessions with the tattooing?  I would imagine that the color would be very light after the first session if she's going to several more sessions.  I'm sure that Judy explained everything very well.