Come join others currently navigating treatment in our weekly Virtual Support Groups! See times and register here.

Exchange City

16426436456476481387

Comments

  • travelgal6979
    travelgal6979 Posts: 76
    edited January 2011

    Hi girls!  Hope everyone is doing okay.  I just read some of the posts about the cold foobs and could totally relate.  Mine are cold all the time too, especially in this N.E. weather.  I struck me funny though when I realized how perfect my hubbie and I are for each other now.  He has a syndrome in his hands called Raynaud's which makes them freezing cold.  Now he can touch my cold foobies all he wants when we're fooling around and I don't feel a thing!  I guess we're really made for each other...cold hands, cold foobs!  :-)  Have a great day ladies.

  • deekaay
    deekaay Posts: 254
    edited January 2011

    I was diagnosed summer of '08 so the Summer Olympics were the happening thing and the inspiration for my Wig Olympics.  It was my first fun event with my friends post diagnosis.  All the positive feedback I got from my dear girlies gave me confidence as I moved into life with a wig.  It felt so good to know fun was still going to be part of my life. You know you wonder in those early days....

  • deekaay
    deekaay Posts: 254
    edited January 2011

    travelgal, cute story.  We find matches with our mates in unique ways, don't we?

    I never notice cold foobs during the day, but at night when I get into bed, there they are, 60 degree foobs!  Weird.  I did notice last night that they were warm at bedtime, but I'd left my bra on right up to bedtime which I dont usually do.  Guess they like being wrapped.

  • dara_diverse
    dara_diverse Posts: 5,006
    edited January 2011

    Oh my, I found myself touching my foobs to see if they are cold and they are, geez I hadn't noticed, thanks lol. I betcha that anyone reading this page is putting their hands down (or up) their shirts and feeling the foobs.  I already have a hard time keeping my hands off them.

    Can someone tell me where this pic forum is and how to get in? I would like to view and maybe post pics.  I am a great before and after story.  After five surgeries, my chest went from looking like something other than a chest to a nice set of girls, minus the scars and less the nips but in comparison, I went from really mafugly to really purdy (in my eyes anyway).  In looking back at my pics, especially before and after removal of te due to infection, I am really amazed at how my ps put me back together again. 

  • Lilah
    Lilah Posts: 2,631
    edited January 2011

    Dorothy I PM'd you about the picture forum.

  • Nedeza
    Nedeza Posts: 351
    edited January 2011

    Hi ladies!  It is truly AMAZING how far this thread has come!!!  Just lurking around & too many posts to catch up with but I do want to add that...

    You're all so wonderful...wonderful that there is this forum to help all the newbies who have joined this thread.  I couldn't have done it without the support.  I am happily able to say....LIFE IS SO BEAUTIFUL!  What I WANT to say is....I HAVE MY LIFE BACK!!!!!! Laughing

    Many blessings to all!!!

    NAE

  • Lilah
    Lilah Posts: 2,631
    edited January 2011

    Hugs to you NAE!!

  • MBJ
    MBJ Posts: 3,671
    edited January 2011

    Nedeza:  That is so encouraging to hear!  Congratulations--you are where we all want to be!

    Travelgal:  What a great story!  My DH and I have had so many strange coincidences during all of this BC stuff.  It seems that even though the diagnosis was the worse thing that ever happened to us, at the same time my husband's career skyrocketed so that I don't have to work so hard and amazingly enough things just seem to get better, not worse.  If someone would have told me two years ago that all of this would happen I wouldn't of believed them.

  • travelgal6979
    travelgal6979 Posts: 76
    edited January 2011

    Awwww NAE that was SO nice to read.  Many blessings to you as well. 

    MBJ...it is amazing that some positives do seem to come out of all this BC stuff...I guess we just have to look.  That's wonderful about your dh's career so you could have a little more time for "you".  You've been wonderfully supportive to many of the gals on here . :-) 

  • SunnyCoconut
    SunnyCoconut Posts: 191
    edited January 2011

    MBJ - Travelgal is right about you being such a great support to so many on here.  You truly are a bright spot in what can be a dark time for us.  You have a good spirit about you.  Thanks!

  • Estepp
    Estepp Posts: 2,966
    edited January 2011

    Good Post NAE! Good for others to see... and I am happy for you !

    I feel my boobs all the time...... I knew these bad boys were cold from day one.......... Wink

  • whippetmom
    whippetmom Posts: 6,028
    edited January 2011

    Yes MBJ....you definitely have a gift!  We are blessed to have you here!

  • MBJ
    MBJ Posts: 3,671
    edited January 2011

    Ahhhh!  You guys are the best!  I just remember how terrified I was when I was first diagnosed and I try to pay it back as much as I can--maybe I am not as knowledgeable as our personal Breast Whisperer, but I do like to help if I can.  This place and all of you wonderful women have been a life saver for me!!!!  ((((Group Hug)))))!

  • deekaay
    deekaay Posts: 254
    edited January 2011

    NAE and MBJ, good for you for sharing the Life Is Good stories.  Hugs to you both!

    Speaking of life being good, I went to a spa this morning for a full body massage and it was the BEST ever!  Sixty minutes of amazing feeling...to my body.  It felt so wonderful to have an appointment to go for treatment and have it be all stuff that feels good and when you leave, there are no Rx's to fill, drains to manage, pain or post op visits.  Just great feeling.  On my BODY!!!!!  Mega yipee's, I feel like I transitioned to another level today!!!

  • negirly
    negirly Posts: 199
    edited January 2011

    Deekaay - I agree with you about spa treatments.  I did massages monthly though chemo and started again after surgery, once cleared. 60 Minutes is great but if you can arrange it 80-90 minutes is heaven.  

    Massage tip - I used an inexpensive neck pillow (the horseshoe type) to lay on with the TE.

    Question to all: For those who had lymph nodes removed... Do you have the massage therapist avoid massaging your arm? (to reduce LE chances). I don't have LE but I don't want to do anything that may precipitate it.

     Go Patriots...

    Karyn

  • Claire82
    Claire82 Posts: 490
    edited January 2011

    My PT actually massaged my arm to avoid LE.

  • didel
    didel Posts: 733
    edited January 2011

    Ok I have kind of a gross question/problem I don't know how bad it could be. Ok here I go..before my BC diagnosis...about 3 years ago..I got this disgusting fungal infection in my toe..then a few months later (as I was using OTC meds) I got a spot on my skin on my neck,..then it spread to my chest and groin area. I feel like I have been battling this for so long. SO the summer before my BC dx I took Lamisil (even paid for it full price since ins wouldn't pay for it and it is EXPENSIVE) and it was gone..but then three months later I had my mx and it came back with a vengence. I couldn't take Lamisil again as I was getting ready to head into Chemo and could only use topical cream. The infection was really bad all over my stomach and back..after chemo I took Diflucan.,..infection gone.. BUT NOW ITS BACK! and all over my perfectly sized foob. I am so depressed. It itches and just looks disgusting. I called my doc and he has called in a rx for me but I am worried that this is something that will cause me to lose my implant. Does anyone know if a fungal infection is as bad as bacterial when it comes to losing an implant?? My doc wants to see me on friday which just seems so far away. I am heading out to get my meds shortly but I am worried it's not going to work. GOD forbid I was just a little too happy following good surgical results...something else to knock me back down. Sorry I am in a down mood I had a horrible dream and woke up crying and haven't stopped since.

    Any one else have the fungal infection problem post op??
    Diand

  • Lilah
    Lilah Posts: 2,631
    edited January 2011

    Diane -- Oh I'm so sorry to hear about this battle you've had with fungal infections... it sounds really nasty.  I don't have any experience of this so can't offer advice but wanted to send you my sympathies at least.  My one thought is that if the fungal infection is topical then it should not compromise your implant.  And I certainly hope that remains the case. 

    Claire -- when you say your PT massaged your arm to avoid LE, do you mean your PT did a special massage to help encourage good flow along your lymph channels?  I must say my concern with going to a masseuse would be similar to kward's... if the massage is done improperly can it cause LE?  Or is there no way to do it wrong? 

  • deekaay
    deekaay Posts: 254
    edited January 2011

    kward, Lilah--I had a lot of lymph nodes removed and have very mild LE.  I want to keep it mild for sure.  My PT does a very mild massage from my fingers to shoulder, along ribs, and across upper chest to encourage lymphatic fluid to move into the body from the arm so build up is avoided.  I do this at home, too.  She always moves in a direction toward my torso.  When I went for the spa massage yesterday, I just asked her for mild pressure on my left and firm everywhere else.  I did make me a little nervous when she did my arm but I am hoping I won't get a problem.  I see my PT Tues. and will ask her about this.

    Diane-that is some scary sounding fungus.  You are right to get in to your doc asap.  The only other thought I had was whether a dermatologist might have something important to contribute?  Hope you get a treatment going soon that will rid you of this nasty fungus.  Hugs, deekaay

  • negirly
    negirly Posts: 199
    edited January 2011

    DeeKaay - thanks for the information - I haven't let anyone touch that arm, mainly out of fear.  I just saw my BS and didn't think to ask her.  Maybe at my next 6 mos check.

    All of you are always a good source on info.  I may not post much but read everyday.

    Karyn

  • Claire82
    Claire82 Posts: 490
    edited January 2011

    Lilah - My PT massaged my arm to encourage a good flow. I don't think i would let anyone touch my right arm or side except for a trained PT. I'm planning on seeing my PT soon. I'll ask her about a massage therapist.

  • MBJ
    MBJ Posts: 3,671
    edited January 2011

    DiDel:  Sorry you have fungus issues.  I had a horrible fungal infection in my toes that I thought I got from my local (i.e.cheap) nail place and I now have my own professional tools that I take when I get a manicure.  Chemo completely knocked out mine although I still get a weird skin rash that is often caused by low estrogen.  Get your dr. to refer you to a dermatologist.  Also, have you considered food allergies?  I notice every time I have dairy my skin rash flairs up.  Try taking probiotics which will attack problems that start in the stomach.

  • MBJ
    MBJ Posts: 3,671
    edited January 2011

    I wouldn't let a regular massage therapist touch my left arm because I am so afraid of lymphedema.  My PT does massage this area but always moving it out towards other lymph nodes lower in the body or to the other side of my body.

  • Lilah
    Lilah Posts: 2,631
    edited January 2011

    Thanks ladies.  I don't have a PT or a masseusse!  LOL  I also don't have LE but want to keep it that way... hence my question.  Thanks for your insights. 

  • didel
    didel Posts: 733
    edited January 2011

    Thanks for the kind words and support. I feel so groooooosss. I just picked up rx pill and cream so I hope it works! I itch like crazy!!

    Diane

  • MBJ
    MBJ Posts: 3,671
    edited January 2011

    deekay:  I have to say I am jealous of your massage!  That sounds soooo luxurious and wonderful.  I am a bit afraid to have one now.  I will ask my PT next time I go to see what she recommends because it would be so nice to have one.  I have a gift card from my DH that I have never used for Brooke Williams Spa.  Can't decide if I should have a facial, a massage or a mani/pedi.  Life is good. Hugs.

  • madison777
    madison777 Posts: 9
    edited January 2011

    Another newbie question.  First time posting here.  I decided to jump over from the sizing thread since this is a more general question:  When I had my natural breasts, they were quite small, but I was able to make them appear larger by wearing a Victoria Secret bra.  My own breast tissue was very squishy so it could easily be moved around and with the help of some padding, I ended up looking somewhat proportional.  Can you do that with implants or are you pretty much stuck with the size and shape that they are?  Sorry if this is a dumb question, but I have never seen an implant in person.  I have only seen pictures of them.  I am still in the filling stage of the TE's so I hope that I will be able to see one before my exchange.  Thank goodness for Whippetmom or I would have no idea what size to ask for.  Thanks!

  • Estel
    Estel Posts: 2,780
    edited January 2011

    madison777 - Ask your PS to feel the different implants.  I had a hard time deciding if I wanted saline or silicone.  I asked to feel & see each type.  I then covered them with part the patient gown I had on and felt them through the fabric. 

    Regarding movement of the implant and 'squishiness' the gummies don't move much, if at all.  The silicone rounds have more movement and are more pliable.  Over on the bra thread, the gals who've had the gummies have had a hard time finding bras because where the gummy is, the gummy tends to stay!  Laughing

    So ... it all depends on what implant you get.  Do ask your PS to see/feel/touch an actual implant.  You have every right to do so ... you're putting the thing in your body! 

  • [Deleted User]
    [Deleted User] Posts: 25
    edited January 2011

    Madison777 - I know this sounds creepy but, also ask your PS if he/she has any patients that have volunteered to show patients their results and let you feel how it feels under the muscle and skin. 

  • GG27
    GG27 Posts: 1,308
    edited January 2011

    Madison777, I have silicone gummies & am about 4 months out from exchange.  I can wear different styles of bras but they certainly don't move around as much as my OEM ones!  But I also don't need to wear a bra so it's a trade off, for me, I would rather be able to go without than be able to stuff them into VS push ups.

    I see on the list that I have already had my nips done??  Wish that were true, happens on Wednesday, wish me luck!