Come join others currently navigating treatment in our weekly Virtual Support Groups! See times and register here.

Exchange City

16976987007027031387

Comments

  • citykitty
    citykitty Posts: 44
    edited May 2011

    Cindy -- It stinks, doesn't it?! I finished chemo end of March, ran through that as much as I could, and had exchange surgery 4 weeks later. Just as I'm feeling almost normal (as far as chemo SEs) and ready to run, I'm not allowed! But I knew it well ahead of time so I was able to plan.



    For me, no lifting more than 5 lbs for 6 weeks. That rules out even my purse, LOL! I had to pare it to the bare essentials!

  • JoanDavies
    JoanDavies Posts: 80
    edited May 2011

    Question -- I picked up some Danskin sports bras today, and I'm trying to figure out the purpose for wearing them as opposed to regular bras. I'm four days out of exchange, so I get that the boob shape will be changing. So is the sports bra just meant to be a container for the girls temporarily? Or is it supposed to compress them? It's definitely not pushing them into any specific location.

    I also noticed (as did my BF) that it looks like the nipple on my right boob (the cancer side) seems to point a little to the right, compared to my left one. :( I'm hoping that's also just temporary and that when it's all said and done, they'll be pretty and symmetrical. But I'm bracing myself for a revision, even if it means I'm getting nitpicky. 

  • Lilah
    Lilah Posts: 2,631
    edited May 2011

    Joan -- the point of wearing any bra post exchange is to keep your reconstructed breasts as still as possible while they heal from surgery.  As for the nipple, give it time.  It may change position once you've healed and any post-surgical swelling abates.  Your implants will go through changes in the next few months and you won't know till then if it is a problem.

  • JoanDavies
    JoanDavies Posts: 80
    edited May 2011

    Thanks, Lilah!

  • Izzybelle
    Izzybelle Posts: 12
    edited May 2011

    This my first time on "Exchange City". I had my exchange for saline implants on Friday. Today I was able to take off the bandages (no special bras from the PS) and my right breast is pretty swollen compare to the left and red - I had surgery on both breasts. Is it normal to be so swollen under the armpit? Is it because I am not wearing a surgical bras? Did I do to much today? Otherwise pain wise I am doing good. You might have answer this kind of question previously. Thanks in advance for your help... I am worried :(

  • MBJ
    MBJ Posts: 3,671
    edited May 2011

    Joan:  Lilah is correct:  you want those babies compressed and not moving so they can heal in the right place!

  • Pegs
    Pegs Posts: 32
    edited May 2011

    during my exchange he had to make me smaller than what the expanders were because of the radiated side.  i am bigger than i was initially.  i didn't get to see the doctor after my surgery he spoke to my husband, boy that iritates me , come see me i am the one you operated on.  i think all doctors should do that.  i had him lift my right side and i guess thats why that side was more sore than the left.  i think they will be fine if the don't drop.  the next step is the nipple , not sure how involved that part is.  i am having a hard time finding a sports bra  that is comfortable, i buy some and have to take them back.  any suggestions on that?  i slept sitting up for the first few days,is that still necessary?  i know my ps does good work , i've seen it but his bed side manner really sucks, he was more interested in talking to my husband about their motorcyles.  oh so i got that off my chest.  i just needed to vent

  • Lilah
    Lilah Posts: 2,631
    edited May 2011

    LOL Peg -- (somehow "got that off my chest" seems darkly humorous in the context).  Sorry he seems to have bonded more with your DH than with you!  Re: bra suggestions -- there is a thread on this site called "Bras 101: The Great Post-Exchange Debate" that you should definitely look at.  LOTs of suggestions there.  Here's a link to the last page of the thread:

    http://community.breastcancer.org/forum/44/topic/753120?page=66#idx_1955

  • Pegs
    Pegs Posts: 32
    edited May 2011

      lilah,

    yeah, i thought that was funny too, sick sense of humor i guess.  thanks for the info

  • citykitty
    citykitty Posts: 44
    edited May 2011

    Pegs, about your comment:

    "i didn't get to see the doctor after my surgery he spoke to my husband, boy that iritates me , come see me i am the one you operated on.  i think all doctors should do that."

    I agree it is frustrating that we don't get to talk to the doctor after surgery.  My impression is that while we're still under anesthesia, the surgeon talks to our family members to let them know how things went.  Then the surgeon has to  move on to the next surgery while we're still knocked out, so there's no chance for us to see the doc at that time.  In hindsight, I guess we should be asking more questions at our post-op.  But it must be annoying if your doctor is spending time chatting with your husband when you want the doctor's attention. 

  • Lillian
    Lillian Posts: 12
    edited May 2011

    Rowan,

    Yes, I'm constatnly eyeing myself.  I read somoene on here yesterday who said that if they're gone from the room any length of time her husband says, stop looking at yourself in the mirror and that he's usually right.  I had to laugh and tell my husband about that.  Yes, it seems I'm constatnly looking at myself.

    It was very odd for me to determine the size (I'm still questioning things about size of implants and possible DIEP, but I do at least know what size I want).  People tend to think, well, you get whatever size you want.  It's not that easy.  God chose my size the first time around--I didn't have to worry about it.  This is different.

    I was filled with 200cc after surgery, had itty bitty mounds, but thought I actually looked great.  With each fill I was scared I was getting too big,  Now I'm at 475 and feel just right.  When I hit 450, I said that's it, that's right. (I'm considering a larger implant because I don't want to lose size with the exchange).  I was very thankful to have had the moment of "just knowing" when was enough.  I don't know if other people have had that feeling or not.

    If you pray, I would say include it in your prayers.  It may sound silly to pray about boob size, but wisdom and peace are what He likes to give us.

  • Pegs
    Pegs Posts: 32
    edited May 2011

    I do understand why the doctor talks to our family, i was out of it, i was in recovery for at least an hour, but my post-op isn't until thursday, i don't even know how big of an implant he put in.  all i would have liked is a short visit 5 seconds, you did good see you thursday.  its ok, i will swamp him with questions on thursday.....look out lol

  • meJoy
    meJoy Posts: 37
    edited May 2011

    Beacher...I know how you feel about having the other side bigger than the other.  My TE is  a small C, and my unaffected side is DD.  In the beginning, in front of friends, I wore a cami. If I go to a special evening out, or with people who dont know, I also wear those inserts. My daughter found some in Walmart. In the beginning, I had to use some padding between my TE and the insert.  My scar was too sensitive to place something on it, so  thin padding, did the trick. I also felt that my friends didnt care how lop sided I am. And I also made jokes about how fast my TE was growing.

    Now ( 4 weeks after my final fill) I'm more comfortable wearing a sports bra for support, and usually walk around the house braless. 

    Welcome Nolo....There's a lot of info and great gals here who are very supportive!

  • almostdone27
    almostdone27 Posts: 15
    edited May 2011

    Went to the PS Fri for a one week follow up post exchange. the "ridge"he thinks is the Alloderm sling that he feels has not meshed with the tissue. At first he thought it could be a fold in the implant but isn't convinced because it was there with the TE too. Said if it is still there in July when I go for 3mo check and nip discussion it can probably be fixed when I have my nip surgery. overall a good appt. he pointed out some "dog ears" at the inside base of the breasts but said that could be fixed with a simple scar revision in the office. Anyone else hear of dog ears and what revision it entails??

    As far as working out, I can do unlimited walking at normal pace (whatever that is!) now and at the 4 week mark can begin cardio and light lifting. I can even play sand volleyball then. yay! At 6 weeks all systems are go.

  • Lilah
    Lilah Posts: 2,631
    edited May 2011

    Yes dog ears are common and while I too was told a small one that I have could be fixed at nipple stage, since I haven't done a nipple yet I don't actually know what it entails.  I think if it's small enough it's a matter of pulling the skin tighter from that angle when they pull skin up to form a nipple; if larger maybe they do a more superficial cut and tuck?  I am curious to find out myself :)  Hopefully others will enlighten us almostdone!  I am glad you have figured out what the ridge is and glad it can be fixed with nip surgery as well.

  • rowan
    rowan Posts: 131
    edited May 2011

    Hi Lillian,

    That's what I see myself doing when I do start getting fills--looking in the mirror all the time at my chest--kinda like I did when I was13 and I had NO chest--course I'm right back there now.  It doesn't really bother me that much, since I figure it's not forever.  But having the choice of breast size does seem eery.  

    What do you mean that you went  bigger with the implant because you didn't want to lose size with the exchange?  do you mean the implants will reduce in size over time?  are you talking silicone implants? saline? 

    Prayer is always a good idea.  I'm border agnostic.  I do believe that there is a force for good in the universe and in my life personally.  I have felt a powerful presence at times.  I just don't take to organized religion too much.  

  • MBJ
    MBJ Posts: 3,671
    edited May 2011

    almostdone:  I had a slight "dog ear" at the end of my incision line and when I had my nip/areola surgery it looks as if he trimmed and stitched this to lay flat and I think it's fading rapidly.  It stuck out quite a bit prior to him fixing it and wasn't a big deal.

  • annettek
    annettek Posts: 1,160
    edited May 2011

    my PS loves the terms I tell him from BCO- he said he had never dreamed of saying anything to a woman in regards to her body that had the word dog in it! hahaha

  • annettek
    annettek Posts: 1,160
    edited May 2011

    my PS loves the terms I tell him from BCO- he said he had never dreamed of saying anything to a woman in regards to her body that had the word dog in it! hahaha

  • almostdone27
    almostdone27 Posts: 15
    edited May 2011

    Cindy-- what I was told was long walks are just fine at a normal pace, keeping the heart rate about 105 or so. Just stay away from hills/uneven terrain, wear a good fitting bra, and try not to move your arms that much. I am training for the 3 day/60 mile walk and don't want to lose the progress I've made training wise! Yesterday I did 5 miles...took a little over two hours so the pace was slow but at least I did ok distance wise.

  • Lillian
    Lillian Posts: 12
    edited May 2011

    Rowan,

    I haven't had my exchange yet, but I will be getting silicone implants (more than likely). 

    What I mean is that I like the size I am now, like the way I look now, at 475cc.  But I have heard, and I think is true based on what I've read from people here, that if I get a 475 implant, I will look smaller than I do with the 475 tissue expander. 

    So I'll be going with a larger implant--I just don't know how much larger.  While I don't want to be smaller, I don't want to end up a lot larger either...  I know it doesn't matter that much--I just need to stop staring in the mirror! 

  • vmudrow
    vmudrow Posts: 415
    edited May 2011

    Rowan and Lillian - my PS says thinks that you need to put in a larger implant than than the TEs to get the same projection, not much bigger though.  I was filled to 400cc and he put in 450cc implants (silicone) to get the same look/size as the TE. 

    I know what you mean about the mirror - I was barely an A cup before and now look like a small C - takes some getting used to.

  • minustwo
    minustwo Posts: 13,800
    edited May 2011

    Pegs - I have an even better post surgery doc story.  My 40 year old son was the one in the waiting room.  BS came out after her 4 hours.  PS didn't come out at all after his 2 hours.  Luckily my son had looked up the doc's picture on line.  Four hours after seeing the BS, son approached the PS when he came out to talk to the family of the lady after me.   Glad son didn't tell me that story until a month later when I was bemoaning the PS general bedside manner or I might have gone ballastic.  Thanks for letting join the venting.

    I do agree with CityKitty about recovery.  Even though I was in there more than 3 hours, I still don't remember anything for the rest of the day or that night.  Anesthesia really wipes me out.  Good idea - we do need to give whoever is waiting for as a list of questions.

  • Lilah
    Lilah Posts: 2,631
    edited May 2011

    Annette -- you crack me up!

  • Lillian
    Lillian Posts: 12
    edited May 2011

    vmudrow--so do you look the same with the 450 implants as you did with the 400 tissue expanders?  Was that extra 50 enough?

  • Delilahbear
    Delilahbear Posts: 206
    edited May 2011

    Pegs - I remember after one of my ductal excisions before my BMX, my BS told me that she had a conversation with me in recovery and I had no knowledge about it when I talked to her later. I kind of remember seeing and talking to PS in recovery after past several redo's. I think it is best they talk to family as the anesthesia does a number on the old brain memory cells!



  • annettek
    annettek Posts: 1,160
    edited May 2011

    thank you Lilah- I like making people crack up:)

    as far as talking to PS after BMX surgery- I apparently had quite the conversation with him...I remember none of it...zip...I thought he was lying that he had talked to me and thanks to my little paranoid mind, believed my husband was lying when he told me I had talked to him (albeit, a little slurry but determined to be heard!)....complete blank in my memory. It was different after the exchange, that was done in surgery center rather than hospital and the anesthesiologist had a lighter touch with the joy juice...I woke up earlier than expected and scared the hell out of the recovery nurse. I remember that conversation with the PS perfectly...did ya gimme good ones did you gimme good ones huh? huh> are they good? do they look good? He practically paid my husband to get me out of there ... Then he teased the heck out of me the next afternoon when I went to his office. But you know, the exchange is so much different then the BMX obviously, I knew that on one level but since that was the only surgery I had to compare it to, I was scared and excited all mixed up. It is the polar opposite. I did not go under wondering if they would find my body riddled with cancer like I feared before the BMX...that was such a sad time, for all of us who went through that. Then we wake up, alive thankfully, with two rocks implanted in our chests and it gets really confusing....But the exchange made me feel like I was on the way to this new normal-sure it might sound petty in light of BC but not to me. I am thinking once you hear the words you have BC, you are allowed a few "pettys" here and there. Come to think of it, I am petting these puppies a LOT!

  • kate33
    kate33 Posts: 1,936
    edited May 2011

    Hi everyone!  I haven't been on here in such a long time.  It's nice to still see some familiar names.  I had my exchange last June and have a revision scheduled for May 13th due to some pain issues.  I just got a call today from the PS's office telling me that my insurance company will cover the revision but not the replacement implants.  (He is swapping out my implants for smaller ones and then do fat grafting over the top.)  Odds are small but did anyone on here have a revision where they swapped out implants who has United Healthcare and did they cover it?  I can't even pin someone down to tell me what the billing code is for the new implants.  I thought insurance companies had to cover revisions.  It seems like it would be even more so if it's due to pain.  The PS's office now wants an additional $1500 for the revision on top of $3600 I already gave them.  

  • Lilah
    Lilah Posts: 2,631
    edited May 2011

    Cute picture Kate -- is that your daughter (do you have kids?) or maybe you as a kid? 

    Did you call your insurance company yourself?  If the PS can say the pain is due to the size of the implants it seems to me the insurance ought to cover that. 

    So sorry you are having pain issues.  IS the pain from the weight of the implants? 

    I seem to recall you had some issues with riippling.  Won't a smaller size implant make the rippling worse?

  • kate33
    kate33 Posts: 1,936
    edited May 2011

    Hi Lilah!  How are you?  I do have one son but that's me as a kid.  (Was feeling nostalgic for the "good old days"!  LOL!)  I did call my insurance company- 5 times today in fact.  Kept getting the run around, transferring me to different departments, etc.  They keep saying they need the code to see if it's approved but the code my PS's billing office gave me is incorrect.  Then they said they don't pay for a second set of implants which makes no sense.  I think the pain is either because the implants are too big or the pocket is too small.  The PS, during the consult, said there was slight CC, too.  So there is a valid medical reason to swap them which is why this is so frustrating.  I have had issues with rippling, too, but am going to Dr. Khouri at the Miami Breast Center.  He is going to do fat grafting over the top of the new implant so I will end up a little smaller than I am now which would be great and will hopefully resolve the rippling.  If I get to do the surgery that is.  It is already a huge expense to go to Miami (surgery, 5 nights in a hotel, rental car, etc not to mention the hotel/car rental when I flew out for the consult).  I just don't think I can come up with any additional money to do this.  The insurance company said I could appeal but by the time I do I'll probably lose my surgery date.  Long story but I've got a small window of opportunity to get this done.  Am just so depressed.  Thought if I could find another United Healthcare patient who got her new implants covered I could figure out how they billed it.  Long shot, I know!   Hope everyone's doing good on here!