Bottle o Tamoxifen

Mrsbeasley....more water is always a good thing according to my dr and personal trainer...i know I do not drink enough of it for sur....i am eating a banadna a day for the calf crmps I am waking up with...and i put my foot on a cold wall as soon as it cramps up and it stops immediately!

Whack ehack folks I am going to bed. 1am:)

Sorry I missed the party last night.  We had a power outage - started at 5:00pm and came back on at 12:30am.  UGH!  Hot and humid in the house - not sleeping for us.  

June - Congrats on the clear mammo but sorry about the arm. You have your PT appt the same day I have my first mammo.  

Tink - I hope you behaved yourself last night and did not damage our wings. hehehe

Lots of reading to catch up on and lots of chores around the house since I couldn't do anything last night.

Feeling better each day - just sticking with the 24 hour rule as much as possible.

Have A Great Saturday Ladies. 

AlicIa - So glad you are feeling better today - Tammi can be some wicked stuff.  Crossing finger for B9 results Wednesday on the MRI.

HAPPY 44TH BIRTHDAY A DAY EARLY!  Lets's get the party started.

                                    

Sherry - I tolerate the pain in my bad boob.  It has been bothering me on and off all day.  I want to try and wait until I see my GYN next month and see what he thinks it may be.  I am also supposed to see my onc later on in the month.  I have not really explored the problem with my onc.  He has the results of the CT & Bone scans that my BS ordered.  I sure hope this pain is not going to be part of my "new normal".  Not sure about the nerve block - someone would have to tell me that was the problem and the long term effects - if any - of it.  If you explore the nerve block, would you let me know what you find out?

Happy Birthday Alicia Hoping it is a fantastic day for you!!! hugs xoxox

I have pain all the time on my left side boob and into my arm think alot of it is from my dissections though always feels as if something is tight or sometimes just plain ol pain... i think this i smy new normal...i dont know anymore....

Paula - It is a fact that everyone have different SEs from Tamoxifen.  For me, the only one I am dealing with is pain in my hips & toe joints.  My legs feel achey somedays.  I started taking glucosamine/chondroitin about 3 weeks ago and it seems to be better.  Still have some stiffness but it is doable.  I have a history of osteoarthritis and the Tamoxifen is aggrevating it something fierce.

Tink - I hear you girlfriend.  Dealing with the boob pain and I don't know about all this anymore.  I sure would like to feel like my old self but I don't think that is going to happen. 

Tink - I know what you mean about pill anxiety.  I am so bad I printed out the list on drugs.com - Tamoxifen drug interactions and check it before I pop something new.  I am going to have to call my onc and see what, if anything, I can take for my darn allergies that are flairing up.  

Went to the kitchen and mixed this up for you - ENJOY!!

                                  

Tink - Be careful you don't get to "happy" and damage your wings.  If you print the list out, you can always refer to it when you need to take something.  If it is not on the list then it is okay.  Hopefully that will take away your anxiety and you can move on.

Tink - I know sweetie and you will.  I was in a terrible funk for about a week and a bit better today.  Never know what tomorrow is going to bring.  Just do the 24 hour rule - seems less stressful that way.

 

Goodnight JO....Thanks for the Teddy bear hug,.... made me smile big! xox

Hi, Guys:

Alicia, happy birthday. Your attitude is inspiring. I was terribly anxious when I got some crazy blood test results recently and then had to wait for a bunch of days until I knew what it was. (Crazy high estrogen levels. Needs to be treated, with either oopherectomy of lupron, but doesn't mean any of the horrible things I had dreamed up...)By day 3 I was so over the top nervous that I think I maxxed out! Suddenly I threw up my hands and decided that it was going to be whatever it was going to be and maybe it was even nothing or at least nothing bad. (We often overlook that possibility although who could blame us after what we've been through...) I took 24 hours off from worrying. Is that what you guys call the 24 hour rule? I keep seeing you refer to it and know that since I'm a newcomer I just missed it. Please repeat for me what you mean? In any case, I took 24 hours off from worrying and I was just plain happy and normal during that time.This was a HUGE accomplishment for little old me, to be able to at least contain the worrying for a bit. So I wish you the best. This is all so scary, but often what we fear is worse than what it actually will be. I have a friend who is a 25 year lymphoma survivor adn she's got this great saying, "What you worry about is not what's going to happen." Sending you prayers from all the way here in Israel and hugs.

Beanius, I've developed gallstones while on tam (YAY!) No surgery unless they make trouble (double YAY) but they told me it could cause side pain. Just mentioning it to you in case.

I've got my first follow up MRI on Tuesday. (Had a normal mammog in Feb, but I had ILC and second tumor was caught only on MRI.) I'm deciding to try to be calm and follow my own advice to Alicia, but it is really hard. Trying to work, walk, garden and be distracted. Prayer really helps me, too. Then first colonoscopy on May 30 (woo hoo!) followed by vaginoscopy in June (DES daughter, onc recommends a baseline. NOT even sure what this test is, but yuk, don't want to think too hard and think that may be a double xanax day.) No reason to expect anything and these are all routine tests, but then so was my mammogram...so I guess I'll have med test anxiety for a while. My prayer for all of us is that it remains just that, test anxiety and nothing more, for the next 50 years...

 All the best, Shari

Chevyboy - welcome back.  Good to see you again.  My Onc is a dinc too.  We have a satellite clinic here with a different Dr coming out from Olympia every day.  I've found it impossible to continue Making appointments for the current day so my next one will be for a different day.  I talked about the problem with my favorite member of my Rad team who suggested which day I might prefer to make my next appointment. 

Please stay with this thread.  We've missed you.

Chevyboy - Of course you can hang out with us.  There are no rules that say you have to be on Tamoxifen to be on the Tammi train.  We have some great pillow fights on the weekends - LOL

sgreenarch - The 24 hour rule is simply this.  Just deal with life 24 hours at a time.  Try not to worry about the next few days or weeks.  We don't have control over that.  Dealing with one day at a time is much more manageable and less stressful.

For those having tests this week, crossing fingers for B9 results.

                                   

Chevyboy - Beware, this is a fast moving train and can be hard to keep up with.  

I have a terrier mix shelter dog.  He definitely rules my house.  That lawn oranament by your dog looks familiar - I have 4 of those in my gardens.

                                

Geeze..........this tammy thread goes fast!!!!!! I just read the last three pages......will read back at another time........  SO much has been going on with me that I just haven't been on here. Been doing alot of research on nerve blocks......severe nerve damage !

I had been going to my family dr. and calling the surgeon that did my surgery because of HORRIBLE jabbing, stabbing, burning pain in my breast. Surgeon said, it's been so long since you had the surgery, you need to contact your family dr. So I did...he said 800 mg. ibuprohen, took that.....*took iburprophen and tylonal for months, didn't work....... 800 mg. ib. didn't work either....so I went in about screaming at him to do something!!!      He gave me loratabs and set me up with a pain clinic. Went on May 6th and they could not believe that these drs. let me go in such pain for so long.  The one dr. said that few women get severe nerve damage and I was one of the "special" ones........... oh gee thanks!!!!!!     So they put me on neurontin, and savella (an antidepressant) that are both used for pain..... and more loratabs. Plus a gel./cream to put on topically. They knew I was in bad pain.......my blood pressure is usually 110/80 (somewhere in there)... it was 189/90!!  So they talked to me also about a pain block. Went last Friday and had one. And Monday I go for another one.  Hopefully this will help! I can't keep going not being able to breath, think, concentrate on anything but pain!!!!

June........my heart goes out to you!!!!! Remembering you every day even if I am not on here. 

Tink........thinking about you too

Sandee ......great about the concert! Proud of ya girl

Alicia......already told ya happy birthday but happy birthday again!

 Paula ........welcome........my name is Paula too Nice to meet you!

ok.....I know I am missing a bunch......but know that I have just got off work, and read all this and now posted....and I'm exhausted and stil in pain, so can't keep up much lately...... but I do think of y'all
HUGS!!!!!!!!
Paula M