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Start Here: Important Links and Info About Hormonal Therapy
For some extensive information, see the main Breastcancer.org site's section on Hormonal Therapy, including detailed information on: What Is Hormonal Therapy? Is Hormonal Therapy Right for You? Types of Hormonal Therapy Treatment: Aromatase Inhibitors Arimidex: Benefits, Side Effects and More Aromasin: Benefits, Side…
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Anyone ER+ 1-10% weakly positive, PR- , HER2+?
Hello, Anyone is ER+ 1-10% weakly positive, PR-, HER2+ ? Do you take anti-hormone pills for ER+ 1-10% weakly positive ? thank you Applejj
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Tamoxifen Users
Hello, Have any of you experienced polyps in your colon or precancer/cancer in the colon related to tamoxifen use??
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For Arimidex (Anastrozole) users, new, past, and ongoing
I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users. I am starting on Anastrozole today. Plan is to take it for 5 years, possibly longer. I already have osteopenia and osteoarthritis (limited to…
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Breast Cancer Index Test
Hello ladies, has anyone taken the Breast Cancer Index test to determine their risk of reoccurrence for the purpose of knowing how long they should be on Letrazole? Medical Oncologist for my cousin suggesting that she take the test but suggests waiting 5 years... My question, why wait 5 years?. Also is this test a…
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Did anybody get tinnitus from taking Tamoxifen?
I have been on Tamoxifen for 1 month and start to get tinnitus which occurs all the time (not occasionally), when it's night it's worse 'cause it's much more quiet; and at day time when it's not very noisy I can feel it as well. Tinnitus is not mentioned on the material about SEs from Tamoxifen I got from the clinic....but…
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anastrozole
Hi, After 1.5 years on tamoxifen, I became menopausal and the tamoxifen was changed to anastrozole. After 3 days of treatment, I am experiencing intense mood swings. My doctor suggested I can go back to tamoxifen. Is any other patient experiencing similar side effects with anastrozole? Do they go away after a few weeks?…
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Side Effects and Options
Please give opinions. I had a lumpectomy in March 2023, had radiation treatments and began taking Anastrozole May 2nd. Within the last 2 months my right ring finger has been locking and my right index finger gets sore if I bend it. Told the oncologist and the response was 2 options: 1) discontinue meds for 3 weeks and if…
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Tamoxifen Side Effects
How long were you on Tamoxifen before you started to notice any side effects? Also, what was your age when you started Tamoxifen
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Quit AI drugs - how long to wait before osteo arthritis interventions like PRP?
I was on AI drugs 15 months (Letrozole 11 months, transition 1 month, Anastrozole 3 months). I was unable to tolerate the joint pain and now take Tamoxifen 20 mg (1 month). My knee osteo arthritis advanced during last year. Symptoms were lack of range of motion, pain when moving, and loss of strength to stand (likely…
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What Helps Women Stick to Hormonal Therapy Treatment Plans After Surgery?
What Helps Women Stick to Hormonal Therapy Treatment Plans After Surgery? August 25, 2023 Lowering medicine prices seems to be one of the best ways to help women stick to their hormonal therapy treatment plans after breast cancer surgery. Read more…
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"Roll Call" for those who've stopped Hormonal Therapy early
If you quit or reduced hormone therapy and don't mind sharing future status at least once a year, could you share concisely current cancer status (no evidence of disease, metastisis, new breast cancer) or other health facts? This will give an easy to follow thread of results of quitting. It is such a gut wrenching decision…
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Menstrual Cycle while on Anastrozole and Zoldex 1 Year
I've been on daily anastrolzole and monthly injections of Zoladex for one year and I just started a period. I'm almost 45 so I wasn't menopausal prior to starting treatment. I'm a little anxious as you can imagine, since the drugs should have me in induced menopause. Anyone else have this happen to them?
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Zoladex and Letrozole age 55 hysterectomy age 38 don’t know if I need the Zoladex?!
how can I tell when I can stop the Zoladex? I haven’t had period since 2005. I didn’t want surgery again as I had terrible adhesions after my hysterectomy. Anyone else in similar situation?
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Tamoxifen after 5 years?
Hi :) I am 54 years old and was on Arimidex for 1.5 years (side effects were too much for me) and Tamoxifen for 3.5 years. I was not menopausal when I started, but I am now. I assumed after five years that I would be done, but my oncologist has now said I should stay on for at least two more years. I'm seriously…
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Zometa side effects
I will be having my first infusion of Zometa this week. Has anyone had any side effects from Zometa? I hope to be able to travel a few days after and to go to work the next day and wonder if this is a reasonable plan.
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Brain Fog and Cognitive Effects
I didn't see a recent thread for this so I thought I would create one. When I first started hormone therapy I was placed on Tamoxifen. I started it just a few months after chemotherapy, and between the two I experienced pretty thick brain fog in some respects. I'm on Lupron and Anastrozole now and my mind is significantly…
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No sleep for three days on brand name Arimidex
Hello, back again for your sage advice and shared experiences. I started brand name Arimidex a week ago. If I took in the AM, I'd feel catatonic all day, completely dissasociated from my brain and exhausted. So I started taking at night but was utterly wired all night long. No sleep. Not even with prescription sleep meds.…
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Bottle o Tamoxifen
Dear All, (and Layne are you there?) Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits,…
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FEMARA
I STARTED TAKING FEMARA ABOUT 2 WKS AGO. WHEN DOES THE SIDE EFFECTS START TO KICK IN Edited by Mods to add content from the main Breastcancer.org site on Femara: Benefits, Side Effects and More
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Tamoxifen and Thickened Uterine Lining
Hey all! I've been on Tamoxifen for over 2 years now as a preventive for DCIS. Recently I started having spotting between my periods. During my annual checkup, my ob/gyn ordered a pelvic ultrasound, which came back with thickened uterine lining of 16mm. I just did a biopsy to determine if I have uterine cancer or atypical…
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Completed 10 years anti-hormonal: now doc rx evista????
Dear all, I just finished a decade of tamoxifen/arimidex and finally exemestane. My current oncologist, at our last meeting, now suggested I take Evista, since I'm still considered high risk for breast cancer. I thought I'd be celebrating completing 10 years of AIs, and now I'm looking at taking them BEYOND ten years. 1)…
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Beginning 5th Year on Tamoxifen
Hi All, I'm 2 1/2 months into my 5th year on Tamoxifen and my patience is wearing thin for dealing with the side effects. The worst one is stomach upset/pain. I'm taking a ton of PPI medication and have been since day 1, but apparently it's not enough on some days. I've only skipped one pill in March and one in May as I…
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Any POSITIVE stories about AIs or Tamoxifen?
I am seeing a lot of posts seem to indicate that AIs are frequently stopped due to side effects that are not bearable. I am on Tamoxifen and expect my onco to recommend me changing to an AI. I have gained at least 10 lbs since starting T just shy of 2 years ago. I do have joint pain (specific to the hip area) but am sure…
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Tumor marker vs Signatera ?
Metastatic BC. In hormonal treatment with Verzinio for 6 months. Signatera test came back negative and 0 yesterday and at the same time, CA2729 came back at 300. What could cause the specific test to show 0 Circulatiing tumor cells and the non specific test to show a fair amount of CTC?
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Arimidex and permanent damage
HI, all. Looking for some guidance as I am struggling with the decision to take it or not. I am 58 post-menopausal I do not have the BRCA gene mutations. My risk of recurrence with AI is 4% and 8% without. All in all, I've got it pretty good. My lumpectomy was easy. Radiation not too bad. I don't have to do chemo. I feel…
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Kisqali (ribociclib) and ILC
I am having results with Kisqali, anastrozole, and Zometa undergirded with lots of prayer. I have had debilitating bone pain in my back for over 2-years. Finally diagnosed with Advanced ILC 27 Sep 2022. I started anastrozole in Oct, Kisqali in November, and had a Zometa injection in December. Two days ago, I became aware…
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Older Woman HRT
I am looking to connect with similar patients. I was on HRT for 30 years. Oh God bless Estrogen. Stopped when diagnosed. I suffered, Three weeks radiation and on Tamoxifen for 2 months. Ive been miserable more and more depressed and sick feeling. just quit. I'll be searching this forum for older posts. One of my questions:…
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10 years out and looking at bioidentical hormones
Hi All. I'm 10 years out. IDC, ER/PR +, no lymph nodes, double mastectomy, chemo, 5 years Tamox, full hysterectomy. My life has declined due to lack of motivation, energy, zero libido, weight issues, etc...I am not depressed (have had that and on med for that). Friends told me about bioidentical hormones changing your life…
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Letrozole
Can Letrozole cause colitis in the sigmoid colon.
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After stopping tamoxifen, how long before night sweats stop?
My last dose of tamoxifen 5 mg was May 26, 2023. I am getting better sleep most nights, but still waking up with night sweats several times each night. How long does it take before it’s finally out of your system?