Bottle o Tamoxifen

Jo I will keep you posted and glad something is getting done with your pain.. See we both have BS appts on June 7th.

OK  I finished reading all the pages and now I cannot remember what I read.  Maybe I can blame that on the tamox as well.  My hair is thinning so bad.  I picked up the stuff my cousing ordered for me and started usuing it but I know it will take awhile to kick in.  I just hope it works.  I have thin hair to start with and don't have any room to loose.  I think it was much worse this weekend.  I could see it all over the counter in the bathroom and when I took a shower the shower could not drain because of my hair.  Or maybe it is just that I am really paying attention.  DH says I have been leaving a trail in the bathroom for quite a while.  umh wonder why he did not say anything to me about it.  I'm sure he knew it would freak me out.  He says if I loose to much he thinks I should get a wig instead of trying to clip in all those hair piece thingys.  Says he would feel better with me wearing a wig for 5 years than to not take tamox. Hopefully it will get better.

Linda - Blame it on Tink -  she taught me everything I know.  AH Friday - that was soooo much fun.

Sherry - We will have to compare notes on Jun 7 BS appts.  My appt is at 5:10 so it will be late when I post.

Tink - My June calendar is loaded with appts.  Have mammo, gyn, bs, onc and gp.  Whew!  If all is good then no appts for 3 months.  I could get used to months without having to sit in a cold waiting room.

Don't worry Tinderdoodle - I won't give away all your secrets.  That would take all the fun out of it.  hehehe 

Sherry - I hear ya.  Once I see the pain management doctor, don't know what kind of follow up I will have either.  Still waiting to hear when I go.  Will let you know when I find out.

GOOD MORNING TAMMI BABES! 

thanks Chevy, I am giving it a go.  I have had so many SE with tamoxifen.   My body has adjust for the most part, but seems when you get adjust to one SE another one pops up.  I don't think DH would let me off that easy with not taking it.  That is why he told me he would rather me wear a wig for 5 years than not take the tamoxifen because of my hair.  He has been great through all this and does not speak his mind on most things unless I ask, but is always there for support.  So I guess I better respect him on this one because I know this bc stuff scares him too.

CHEVYBOY..Thanks... of all the se I have had that is not the worst so yes absolutley planning on sticking it out .

Shery sounds like your dh is great too! that makes such a difference...

I am still on 15mg and plan on bumping back up to 20mg this weekend.... than July 1st I get to come off of it for 2 weeks for surgery... I am anxious to see how I feel when i am totally off of it

hope all my Tammy friends are having a great day!!

swanseagirl, my Naturopathic Oncologist put me on Hesperidin Methyl Chalcone, it's a flavonoid. One capsule 3x a day, and it did help a lot.  I am down to, usually, one doozie a night now, very occasionally I'll have one during the day as well.  I buy them over the internet, they are made by Douglas Laboratories.  

 Have 2 ?s for you ladies.  #1)  I'm having surgery on 1 July to repair a cystocele (my bladder is falling out, it is gross - feel like I have a ping pong ball in my undies some days and that shit ain't going to fly anymore). It was there before, but the Tamoxifen has made it much worse. Anyhow, I am concerned about the tmox complicating things.  Have a call into my breast surgeon now, but do you all have any advice to share?  #2)  I have had an occasion to fly several times since Feb. If I fly only 1 hr, I am fine, if I fly 2 hrs, my feet and calves hurt for several days afterward.  This has never happened to me before BC, has it to any of you?  Thanks and hope you ladies are having a good day.  

Today is the 365th day since my diagnosis and I celebrated by throwing on my Survivor shirt and pedaling into the sunrise with a happy and grateful heart this morning.

Hello ladies,

I'm officially a member of this club. I began my Tamox 5 days ago.

Welcome Pat - I also would encourage you to carry a pillow with you at all times - especially if you are hanging around on Friday nights.  It can get a little crazy around here.  These gals are the best.

Chabba I started taking Biotin about a month ago because I noticed my finger nails were getting more brittle, did not notice the hair at that time.  I am hoping that will also help me.

PXsunshine congrats on the cancervary.  Whoop!!!!!!!! sorry I can't answer your other questions.  Someone here will.

PitPat welcome to the club, hope you sail righ through without SE's, but if you have them I am sure someone here can give you advise.

Well I'm 4 years behind my sister on the BC journey. She is on her last year of Tamox. My doc says it will be two years for me then onto Aromatse inhibitors. My sister has paved the way for me and I see that she has some issues (weight gain to start, then she lost it, now she has normalized).

She has been my sole inspiration of going forward. She is amazing and she is what holds me up most days as I take all these tenative first steps. But the ladies here at BCO have been great too.

I'm done chemo and rads. I have salpingo-oophorectomy at the end of august. I want to get back to a bit of normal life before going forward with more treatements.

I also have re-con to plan. PS thinks implants are my best option. We'll see.

I'm stiff and sore all the time, regardless if I exercise or not. If I do get active I feel great, but once I stop I kinda seize up. so I feel this way before Tamox. I hope it goes away over time. Cause it really sucks.

And exactly what size pillow should I carry? and is that to be prepared for a pillow fight, or snooze attacks?

 Thanks for the welcome.

Patti

Patti - I am so sorry you and your sister are having to go down the same BC road.  That is just not fair.  You do need a break from treatment before going further - the poor body needs time to heal and adjust.  You will move forward when the time is right and your body is ready.

The size of the pillow is up to you - it is for the Friday night pillow fights.  One rule though, if your pillow happens to be filled with feathers and it breaks - you have to clean it up.  So you get an idea what to expect - WHACK WHACK -hehehe - you never know when you are going to be attacked.

 ECG - I know what it feels like to go through the motions - have experienced that often.  I thought is was a case of PTSD - would have bad dreams of reliving rads during these times.  Could some of it be from Tamox - maybe.  I hope you get to feeling better soon - (((HUGS)))

Chevy that is one fatening plate of food there.  I am trying to eat healthy.

ECG wish you could get to feeling better.  You have felt blah for quit a while now.

Patti so sorry you and your sis are going through the same thing, but at least you guys do have each other for love and support

Chevyboy, that's what my Doc is doing for me, building me a shelf. He said they have a new technique the past 2 years that he now teaches to other Docs across the country, he has done 100's of them.  I asked him if he'd do that to his mom or wife and he said he would if they needed it, so I said go ahead, but don't screw me up or I'll hunt you down like a dog and he said I shouldn't worry about a thing.  He'll fix me right up.  Thank you for sharing that your shelf still stands!

I LOVE macaroni and cheese!!!  One of my favorites, good anytime of the day or night! haha 

Sherry - Seems that is about the average time to see a specialist down here.  I was extremely lucky to get into the surgeon in 2 days - thank goodness for cancellations and a little whining does hurt either.  I have decided that once I have my mammo and I get clear results (how's that for positive thinking) then I am going to get started on my kitchen remodel project and work in the slew of appts I have.  I really want to get this done.  It is part of my "new beginning" and I find doing those kinds of things very therapeutic.