Bottle o Tamoxifen
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Thanks Chevy. After 23 1/2 years of marriage he still turns me on and makes my heart flutter.
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Linda - I have been on Tamoxifen for 5 months and have incredible toe pains. My onc started me on Lyrica but I stopped it for several reasons, it did not relieve my pain, my feet and legs were so swollen and I started putting on the weight. Instead, I am now taking glucosamine/chondroitin and that seems to help. I think the Tamoxifen is aggrevating my arthritis.
NormaJean - I am 3 years postmenopausal and take Tamoxifen because the AIs give me terrible nausea. I have not had a hysterectomy - have not had my annual pap smear yet - that is on Jun 8th. I will be talking to my gyn about some of the SEs one can have as far as the uterine lining thickening and so forth.
Teklya - CONGRATS ON THE B9 MAMMO.
Goodness, I am gone a few hours and you Tammi Babes have been busy.
Okay! This is what I found out. The burning/stabbing pains are permanent nerve damage from the radiation treatments - UGH! The pain doctor told me it is hard to get rid of - it ever - and can be treated several different ways. For now, he is having me take Elavil and I see him again on Jun 14. I have to tell you, I do not like this guy at all. I saw him write something on my chart calling this "neuropathic pains" and if that is the case, I can ditch him and have my oncologist treat me for this. Why don't I like him you may ask? He is arrogant and condensending. I hate for someone to talk down to me. I am a bit smarter than that. Bottom line, at least something is being done.
Sherry - It will be interesting to hear what your pain doctor says - it sounds like we have the same problem. What a lovely couple in the picture - you are a small one - what about a size 2?
Tink - Thanks so much for going with me - you can fly off my shoulder now - LOL!!
June - My toes pains are only on the left - hum! I wonder why?
I hope I did not miss anyone. There was a lot to catch up.
Hope everyone is having a great day.
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Tekyla ~ great news on the clear mammo ! Celebrate ~
Jo ~ so sorry you don't like your dr. Hopefully the pills will help. Nothing worse than being in pain.
Sherry ~ you and are hubby are cutie pies ! Love the pic, thanks for sharing.
I have pain in the bottoms of my feet when I walk, my tailbone when I sit, and my right shoulder. Talked to Oncologist AGAIN today (man they must be sick of me) Thankfully they called me to follow up on yesterdays lab work, thryoid test is normal and they checked me for rheumatoid arthritis, all were good. All of my other levels wbc, rbc, platelets etc are all normal as well. So again no answers. They are calling in Effexor for me to see if this pain is just depression/tamoxifen combination. I have no appetite at all. I go all day without eating can only eat a little bit at night. Am thinking it is the just 3 weeks on tammi. It makes me nasueous. (SPELLING?) I may try tomorrow to take it at night. I just wish I had answers why I feel so crappy. I really just want them to tell me something is wrong ~ so I know, but it seems everything keeps coming up good. I now have myself convinced I have pancreatic cancer and that is why I can't eat. LOL I"M A MESS. Hoping to get the Effexor tomorrow and look forward to seeing if this is all truly just depression and anxiety. Thanks for listening to my ramble girls.
Gotta get back to the last OPRAH she is giving a nice pep talk today and I need it.
HUGS !
Alicia
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Alicia have you tried taking prilosec. When I first got on tammi and was so nauseated my MO put me on it twice a day. I am now down to once a day but I can tell that I cannot stop it.
Jo-- Elavil is what my BS put me on as well, I am on 25mg. It does work, I think it took about 1 1/2 weeks to really get into my system. I still have breakthrough pain and that is why I am going to see the pain Dr. hoping he will just give me a topical lidocaine cream or something for the breakthrough pain. My BS also said it was neuropathic pain but gave me a formal name that I cannot remember right now. I have it written down at home but did say it was from surgery and rads. Figures rads had something to do with being that we both had so much trouble with our rads. I hope you get some relief from the med. Oh the most common SE is constipation so my BS said for me to take a stool softener every day with it. I have tried to go without it and have problems so I just take it every day. Also dry mouth drink lots of water. Weight gain can also be a SE although I have not gained any since taking it.
Oh and JO sometimes 2's are too big. But I say I am a two if I can find them to fit and other than that I have to shop in the junior dept and buy a 5. Juniors are easier to find than ladies 2's but I also don't want to look like a teeny bopper. I am short just 5'3" but I had 3 1/2 inch heals on.
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Alicia - Sorry you are having problems with the Tammi. Hope you can find some relief soon. I was nauseous when I started and I found out if I take mine with a glass of milk in the morning - my stomach is okay.
Sherry - I am supposed to start the Elavil tonight. Still need to pick it up from the pharmacy. Hope it does work and I don't get the breakthrough pains. If it does, then I can't imagine why my onc would not continue to follow me on that and can dump the pain doctor. Lets see - I have lung damage from rads, permanent nerve damage in the boob from rads - what else has rads done to our bodies? The bad part is the rad oncs would deny this could happen - at least mine would - he is the real moron.
Size 2s are big? Really? You are small. I am 5'7" and when a size 4.
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Jo you are pretty skinny yourself.
I will see what the pain Dr. has to say and then I may just see if my MO will take care of it. My BS was hesitant to go any further with meds for the pain and that is why she is sending me there. I won't see my MO until the end of June and by then I will have seen the BS again and the PS. My MO's head is going to spin with all that I have been through since the last time I saw him.
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Sherry - I hear what you are saying. My MO does not know I went back to the BS - had the darn seroma and got talked into going to the pain doctor. I feel the same way you do - if this medication works then I am going to see if my MO can take care of it. I really want to find out how long I will need to take the Elavil. I know all about this med - it was very popular when I was working in psychiatry in the military - it has been around for a very long time. When in June is your MO appt? Mine is Jun 20th. But by then I will have had my mammo, annual pap and follow up with the pain doctor. Yes, I can see it now - both of our MOs with spinning heads - LOL!!
At 135 lbs I could afford to eat a few fried bologna sandwiches. hehehe
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Hi All,
Know this sounds Uh Duh....
but I'm curious as to what MO stands for ??? Maybe_________Oncologist.
Catbird
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catbird
MO stands for Medical Oncologist - you were half right.
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Catbird! Don't feel bad! I am STILL learning what all the abbreviations are about! And if you behave, I'll buy you a Chocolate Coke! Ha, ha!
For just you and me! I'll ask for an extra straw! 0 -
Tink and Jo, you know very well why you have earned the reputation you have on this thread!
Teklya, a few (many?) years ago, before I became a vegetarian, I introduced my DH to fried bologna sandwiches for Christmas dinner because we had a turkey that did not defrost enough to cook because our house ran out of heating oil and it was very cold all night until we could get oil. So we had turkey the next day, but the fried bologna dinner made for a memorable Christmas! LOL!
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jo1955............Thank for the info. I have a gal that is 2 mons. behind me in the exact same tx and she has already had her hair "shaped up" and had color put on what few gray hairs she has (She is on Tamoxifen) I think that is part of what has me frustrated. That's only part of it. I feel as though I have PTS like my dad had & our soldiers coming home now.
If you don't mind sharing, please let me know what your GYN tells you.
Sherryc..........Great picture of you & your cowboy. Texan, maybe? Wedding are always a wonderful way to make a person smile.
I can't remember who suggested my daughter/ERnurse go with me to June 2nd onco appt. She is and so is DH. Hubby is also a pt of the onco doc. Everyone should have a Patient Advocate at all times for appts. or hospital stays and that day I will have 2 !!!!
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N3YPB...I am sure I do not know what you mean lol!
Sherry what a great pic of you beautiful lady
TEK..thrilled to hear the good news!!! hugs!
Jo dont blame you dont like being talked down to either I hope he is at least able to help you and make you feel better!!!! hugs
Chevyboy...oh man does that choc coke looookkk goooooooooooood!!!!
I get more of achey legs once in a while my big toe hurts weird I know.
Catbird... you wanna share that yummy coke
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Jo......Sherry......and all. Just wanted to update you and let ya know......things are still going pretty good with me and the pain!! I haven't had much at all this week!!! And lowering the amount of loratabs I had been having to take too. I think this is doing good!!
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Congrats Teklya! I bet thats a great relief.
Sherry you are a skinny gal. You and your hubby look like both were having a ball.
Jo I know what ya mean on the attitude fro some doctors. I know Im not the sharpest tool in the shed, but dont ever talk down to me. That just turns me off. I hope your MO can help in a better way. Good luck!
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n3ypb - I have not idea what you are talking about - I am innocent
NormaJean - I think we all go through periods of PTSD - some worse that others. This is a very overwhelming disease and it is hard on the emotions. I have my gyn appt on Jun 8th and I will definitely let you know what he says.
Tink - What DID we do to earn such a reputation? I think we are being framed. LOL!
sunangel - So glad the pain is leaving you alone. I know what you are going through. I hope this new medication helps me. I am so sick of being in pain all the time.
Paula - My MO is wonderful. I did agree to see the pain doctor one more time and then I am going to tell him I want my MO to take care of me. My DH and I see the same MO. He started seeing him first about 6 years ago. I went to his very first appt and was impressed with what he had to say. DH really likes him - that is why I chose to go to the same one.
Chevyboy - I am not a big fan of chocolate so you don't have to worry about me wanting to share. My favorite is a root beer float.
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I completly forgot to ask the MO and the PA how often to get an ultra sound of my uterus done. Any of you gals know how often we should have one done. One part of it wasnt bad, but the other was a bit uncomfortable. Thanks.
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Paula - That is what I want to ask my gyn when I see him next month. I am so concerned about this issue. Been on Tamox going on 5 months. About 10 years ago, had fibroid tumors bad - very heavy bleeding for 8 - 10 days and then light bleeding most of the rest of the month. Have a history of uterus being much larger than it should be. I think I really want a transvaginal US even if it is for a baseline. If you find out something, would you please let me know?
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Jo, I will let ya know what I find out. If you have a history its a good idea to keep an eye on it. The transvaginal was abit uncomfortable. I know it wasnt her fault, but uncomfortable it was. The tech recommeded it, so I did it. If Im gonna be on this pill, I wanna make for sure I have test ran when they need done. As soon as I know I will post.
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That chocolate coke does look yummy.........
Popped my first effexor tonight ~ hoping to feel better soon. They said give it about 2 weeks. I start out with a lower does for 5 days then double it. She said lets wait and see if the joint pain resolves itself a bit it is only 3 weeks back on the tammy.
Nite girls
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June - thanks...it was scary but i figured if they were letting me sit there instead of taking me right in, that Iwas going to be ok...and I flt safe and not panciked feeling that way in the hospital, you know
Jo- soft wahack returned babe! get thee to a boob doctor and stop suffering my friend....you need all your ooph to beat the rest so...get this gone!
Tink- only thing I forgot was a book to read at the hospital...but i did remember it today for my cardiac rehab session..made it less tedious...and they had received the results of my stress test so wheeee haaaa!!! they upped the anty on my machines...from 1.5 to 3.6 and an incline. thank you god! made my deay!
sherry- i clearly missed a party ..did you toss in some men?
Ladies, how has their mammograms coming up . mine's june 7 and cardiologist on may 31, the wek nfore..might as well get er alldone!
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sorry ladies...i missed way oo much b trealized it is 12:#0 and I have to take my car in first thing so...signing off....whack whack wih the pillows!!! hhhuuugggsssss to all:::))
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Sandee.. glad you remember your book today and the stress test went well!
ALICIA...Hoping you find relief soon and ae feeling great!!! hugs!
Jo..hiiiiiiiiiiiiiiiiiiiiii hehe yes I think we are getting a bum rap!... it was great flying with you today
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Sandee - Good news on the stress test - that is the kind of news we like to hear. My mammo is Jun 3rd. That is my next hurdle to get over.
Tink - Either we are getting a bum rap or we need to teach these gals how to swing pillows LOL
Took my first Elavil last night and slept great -- I usually don't have the boob pain at night so will see how the day goes. Heck, maybe this new pill will take care of the toe pains too - that would be a bonus.
Have a Great Day Everyone.
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Alicia- When I first started Tamoxifen, I too had nausea. I lost 35 pounds in 4 months. Some of the things that worked for me were ginger tea and ginger drops. I only ate once a day and didn't have any interest in food. I drank lots of water. The nausea got better with time. I also have muscle pain and cramps in my feet especially at work. I am a nurse so I am on my feet 8 or so hours a day. I tried splitting the dose am and pm. but taking the whole dose at night was better.
I am off to ride my horse and enjoy some sunshine after alot of rain.
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I have been on Tamox for 4 months. I have had pain in both knees shortly after starting the medication. I told the MO and he said it is not an SE of the meds. It feels as though the inside back area of my knees are inflamed. I don't believe it is NOT caused by the meds.
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Gee you guys were a busy bunch last night.
Norma Jean I am a Texan and love my cowboys. I am only 2 1/2 hours west of you.
Sandee I as in such a hurry to leave for the wedding I forgot to send the boys for the party. I bad, but I'll round some up for this Friday. Maybe I can find those cowboys again. Tink sure had a good time with them.
Sunangel glad you are feeing better
Alicia hope the Effoxor works on you
Well I feel pretty crappy today. My hips hurt in the beginning of taking tamox but I have been taking glucosome and it went away. Well it came back about two weeks ago and it has progressively gotten worse. More so in my left hip. Last night around midnight I rolled over and the pain woke me up so I got up and took a pain pill and went back to bed. This morning my left shoulder hurts. I just generally don't feel good, very tired and no reason to be and now getting kinda nauseous. I called my PCP and spoke to the nurse but she felt that since I was going to the pain dr tomorrow to see what he says about all this and then call my PCP after that. I am going for a private yoga lesson tonight with my instructor so hopefully some stretching will help. I don't know if this is all tamox or nerve related or something else completely different.
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MO ????
Glad I was at least half right Jo. I always called my medical oncologist my "Onc" LOL
Chevyboy~~ thanks for sharing your chocolate Coke with me !!!! It's been years since I've had one of those. And I loved them as a teenager.
)CatbirdC....or CBC..... lololololol
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Slinky I get some pain on the knees legs as well and i dont believe its NOT the medication either....never had it before!
must be
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Catbird - Medical Oncologist - MO or Onc - same thing. Depends on who is talking as to what abbreviation they use.
Sherry - Oh sweetie - I am so sorry about the pains. That really sucks. I know my onc will deny that all the joint pains is caused by Tamoxifen but I beg to differ with him. I pulled up the SEs of Tamox and the first thing on the list is joint pain. I printed out the page and I will take it to him on my next visit and see what he says.
First day with the Elavil. Took it before I went to bed last night and it already seems to be working. Have had some little twinges today. Still need to do something about the feet. Seems the glucosamine has stopped working - maybe I will get lucky and the Elavil will take care of that too. Will wait and see.
Cowboys for Friday night? Too cool! I can't wait to see what you round up.
Hope you get some answers from the pain doctor tomorrow. Let me know what you find out.
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