Bottle o Tamoxifen

You know I love my oncologist but she never told me what not to mix with tamoxifen. I gave her a list of my 15 vitamins and supplements and she never said don't take this or that nor did she mention juices, etc. I like the fact that I don't have to change anything but it makes me kinda wonder. And I've never gone on that drugs.com list to look anything up.

Ok so here is my recap from the pain Dr visit

He said that since the Elavil is working for the most part he wants me to continue to use it.  He also gave me a compounded cream to use topically.  I used it after lunch and it works.  He felt that this course was better than using a nerve block which I am fine with.  I also talked to him about my sore hips and shoulder area.  He was very good at explaining that radiation does cause more problems.  He said it is very good at doing it's job killing cancer but that there are SE's that come up and you have to deal with.  He said that even though our breast got radiated that there is no way for them to miss our bones in that area.  He said the radiation can cause a molecular change in our bone marrow and can cause osteoarthritis and osteoporosis in other parts of our body.  He said expecially if you were maybe prone to it and it can cause you to have an earlier onset of it.  He feels that mine is osteoarthritis.  He said since the Celebrex helped along with the private yoga lesson that I had last night that really stretched my hips and shoulders he felt was the best way to deal with it for now and we will continue to monitor it.  He feels like the nerve damage was caused more from radiation than my surgery.  Although my BS says it was from both. I talked to him about my surgeon wanting to do the MX.  He said if it was only for the nerves he would not recommend it but because I have some other issues he felt that it was a good choice and then she can deal with my nerves from there.  Although my BS told me and he told me there is no guarantee that it will completly go away but they both said that she can make it much better where I can probably get off the Elavil and if I need to keep the topical I can.  So it was a very good office visit and he was supper nice and informative.  Oh also because I broke my neck in 1995 and already had nerve damage on my left side he said that did not help my situation any. He felt that with the fact that I already had nerve damage on the same side I was radiated that it left me more vunerable to more nerve damage.  He did say that joint stiffness is a  SE from tamox but with what I was explaining to him he felt mine was more from radiation.  Like Jo says who really knows seems no one can agree on things.  But the good part is I really like him, he listens and seems to want to really help.  My DH went for his neauropathy and his case is much more complicated than mine and he was great with him as well and going to try some different things to get him some relief.

Sherry - Now I know you had a good visit with the pain doctor today - that is great news and you are pain free - guess I can really give you a good WHACK WHACK - bet you did not see that one coming hehehe

Chabba - Here is our waiter for the evening.   Maybe Sherry can come up with some other boy toys.

Forget the drinks Ill take him!!!!

Sherry, glad you got to see the pain dr! I was referred to our local "pain and symptom management" clinic, but got ticked off when they required a drug screen prior to even being seen by any of the providers, before I even decided I wanted to actually BE their patient, so am pretty frustrated with the whole neuropathy thing. Can you tell me (PM if you want) where you are and a little more about how you go about getting taken care of?  I am SOOO frustrated with quality of life these days.

Surfette, I did read somewhere about melatonin decreasing the invasiveness of breast cancer in some animal models in the basic science literature, but there have not been any human applications or stuides yet that I know of.  But my PCP said it would be fine to take it, most people need to start with 3 mg, some need as much as 9 mg for sleep.  I got a bottle that I am going to try soon, just having a hard time deciding when I want to risk any SEs from THAT one!  My understanding is there aren't all that many, maybe just some mild GI stuff that resolves over short time??

 Holy moly, Jo and Sherry, those guys are GORGEOUS!!!! Sorry I will not be able to join the party tonight (again) - have old people's early bird dinner date with DH, then leaving to visit family for the weekend.  Have a great Memorial Day weekend, all (and try not to get into too much trouble, esp. Jo and Tink....)!

So here are a couple of WHACK WHACK WHACK AND I AM OUTA HERE!!!

Sherry- would having a protein mix in yourmilk shake help? My ex used to add whey powder to shakes and smoothies every day when he was trying to gain weight....

Sherry, I think I am gaining your weight. Grr

OK, we have the tent, cabana boy and I will bring the Lychee Martini's which I spent all of last night perfecting.  I know, I'm a perfectionist. It's a cross I have to bear LOL

See you all later xxxxxxxxxxxxx

Jules

I whipped up a little appetizer - who can resist this.

Somehow I am able to maintain my weight.  Guess I am lucky there. 

Paula.thanks so much for that info.. that is good to know as every morning I have aglass with my tamoxifen yikes. wont be doing that anymore..thank you!!!

OH MY GOODNESS!!!! They look like they are dessert wow wow wow!!! nice work!

thoose strawberries look great Jo!

and hoep i am not too late tonight but  WHACCCCCCCCCCCCKKKKKKKKKKKK!!!!

HOLD on .....Did I just go back and read " TINK BEAHVE????""... lol... thats not fair look at them and my closet is empty....whats a Tink to do???? lol

WHACK, WHACK, gotcha tink!

Tink - Looks like the party was a bust last night.  Too bad the boys had to go home.  I think we must have scared the girls off.  I don't know how we got such a bad reputation. I was so ready with my pillow and those strawberries - I did have to eat those myself - oh well, you snooze you lose.

As a 20 year Air Force veteran, I would like to ask everyone to send up prayers and good thoughts to all our troops.  Let's honor them all this Memorial Day Weekend.

jo1955......

Glad to hear the Elavil gave you a good night's rest.  It's a medication that has been around for a long time.  Don't get too stressed about your annual, mine went fine a month ago as did the mammo, but the bone density was not good. 

I haven't heard any talk about "fried bologna sandwiches" in a long time but since chemo and the estrogen inhibitors I can't afford to treat myself to any so eat a couple for me !!!  I thought that was a midwest thingy.

You'll do fine.........just focus on the fact you have enough rads in you to fight an army !!

Norma Jean

Well jo1955...........chemo isn't any better, at least not the kind you get for BC.  Now, Hubby was treated a few months ago for Hairy Cell Leukemia.  His chemo was one chemo for ONE week, 24/7 via a pump he wore.  Looked like a fanny pack.  No Fair !!!

Hope everyone has a great Memorial Day weekend & be thankful for those who keep us free.

Norma Jean

Chabba - It looks like we both have our first mammo since dx.  Mine is also on June 3rd - first thing in the morning.  That is good - I can go and get it over with.  The shooting pains could be the same as Sherry & I had.  It is nerve damage from radiaiton - go figure - another SE we were not told about.  Both of us are taking Elavil and it does work.  I am finally pain free and full of energy.  Sleeping great since starting the medicine.  Both our pain doctors said the same thing about nerve damage so there really does have to be some truth in it.  You may want to ask your onc about this and see what he recommends.  It would be interesting to hear what your doctor has to say.