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Bottle o Tamoxifen

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  • Sherryc
    Sherryc Posts: 4,503
    edited May 2011

    Sandee hope your hand heals quickly.  guess I better be careful when I am working in the garden.  Welcome back.

  • heartnsoul76
    heartnsoul76 Posts: 1,204
    edited May 2011

    HAPPY MEMORIAL DAY! THANK YOU TO OUR MILITARY, PAST & PRESENT, FOR YOUR SERVICE TO HELP ENSURE OUR FREEDOM.

  • Sandeeonherown
    Sandeeonherown Posts: 1,781
    edited May 2011

    Hey laides,

    thanks for the warm welcome back...taking five days to go home to Ottawa was exactly what my heart needed...and the workshop on the weekend worked out well in the end...some strange things happened there too but it is all par for the course these days! .the rest is just bizarrness that I am starting to get used to...it is all vaguely reminiscent of grade ten when I tore a hamstring, had my appendix out, had strept throat and sprained my ankle...a bad year for health...must look up the stars!!

    sunangel, my mammogram is slated for 6 months post radiation...but they actually have me down for an mri in september too...I pushed for the mammogram in June....I figure the results will come in just about to the day of my routine mammogram last year!

    sgreenarch- the rooms I can handle...the blue gowns makeme lose my mind. I refused to pu tone on for my stress test...my breasts are swollen more than they were after radiation and just having a blue gown on? nope...these gals are NOT going to move solo...I will wear my sports bra for the EKG tomorrow too...they can just work under it...the technician for the srtess test was great (well ok...I will fess up and admit I teared up a bit at the idea and she rescued me and said I did not have to put it on)..but now that I know...hell...not wearing it...

    Jo...you were not stupid....you were living your life and like us all, were under a clear balloon....now it has a couple of puncture holes in it...but here you still are. BRAVO!

    Tink-How is your gal doing?? congrats on getting that pill down!! Reward yourself when you have taken a certain number..count the sleeps instead of the sheep!

    hugs to all. You really are GREAT and I have missed you:)

  • sgreenarch
    sgreenarch Posts: 253
    edited May 2011

    Happy belated Memorial Day. Deep gratitude to you, Jo, and to all who risk your lives to serve our country.



    Sandee, welcome back. Glad you did your heart good. Here

    's a mammogram story for you. At my first post dx mammagram this past Feb, i am standing in the stupid blue gown waiting for the tech who comes in and says, 'which one are we doing first?' to which i answered that we don't have to spend much time pondering since there's now only one. (dont they read the damned charts?) She was mortified but i felt bad for her and told her we'd save time; there was less work to do. One less boob to mangle.





    It went well, which is all that matters. Wishing that for all of us, for now and many years to come.



    SherryC, how is your hip?



    Had a colonoscopy yesterday- all clean! Gastroscopy too, clean but with irritation which they ascribed to....tamoxifen (have had heartburn since starting tami but really no big deal if i avoid certain foods.) so wonderful to have all these good results this week. Was a hard month , with the sudden high E2 levels and then the breast biopsy. Very grateful to God. thanks, too, for your support, Ladies. We will get march through this!



    With love, shari

  • [Deleted User]
    [Deleted User] Posts: 323
    edited May 2011

    Hello all, new to this thread but not to Tamox...does anyone know if there is a generic to it ? The pharmacist told me no, but i swear when they gave it to me in a bottle (apparently because of stock rupture, whatever that means) , as opposed to the box format i was getting, my symptoms went up the roof, not fun!!! Back on the box "version" and already feeling better. Kinda of weird

  • Chevyboy
    Chevyboy Posts: 10,258
    edited May 2011

    Yes, Luan, there is a Generic,  And that is what most of us take I think.... I found this under Wikipedia...maybe explains it better.

     "Tamoxifen was discovered by ICI Pharmaceuticals[2] (now AstraZeneca) and is sold under the trade names Nolvadex, Istubal, and Valodex. However, the drug, even before its patent expiration, was and still is widely referred to by its generic name "tamoxifen."

    I know I was just taking the generic, & it was really cheap at Super Walmart.... I actually didn't know that you could buy the Nolvadex, etc.  Glad you are feeling better!

  • Sherryc
    Sherryc Posts: 4,503
    edited May 2011

    Shari my hip is better.  Pain Dr put me on Celbrex played around with dosage this weekend and found that I have to take 200mg twice a day for my hip and shoulder to not be in pain.  Pain Dr. said I have osteoarthritis as a SE of rads not Tamox.  He said tamox will give you stiff joints and muscles but not arthrisits.  So more pills in the pill box.

  • jo1955
    jo1955 Posts: 7,545
    edited May 2011

    Welcome Luan - Sorry we have to meet like this but this is a great group of gals.  I am taking the generic Tamox - that is what my insurance will pay for.  Little SEs - hot flashes reduced to warm waves.  Thought toe joint pains were from Tamox - the pains in toes and boob are nerve damage from rads.  Have to take Elavil to stop the pain.  

  • Linda-n3
    Linda-n3 Posts: 1,713
    edited May 2011

    Jo, thank you, and any other women (or men) here who have served our country in the military.  I have many relatives and friends who have served and are currently serving, and appreciate how much they sacrifice on a daily basis.

  • Linda-n3
    Linda-n3 Posts: 1,713
    edited May 2011

    For those of you going for mammogram soon, I want to let you know a couple of things.

    First, I have had intermittent pain in my breast, which got much worse the week before the mammogram, got much better following the report that all was well! Maybe anxiety exacerbates the symptoms??? Hmmm...... No real surprise here! Still have intermittent problems, but am dealing with them better.

    Second, I told my MO that I was extremely anxiouss about being squeezed, etc. considering how much pain I was already having, the scar hasn't even healed yet, etc.  So she asked that I be scheduled with one of the best techs for post-op mammograms, and the tech turned out to be EXTREMELY competent, compassionate, and caring, minimized both mental and physical stress.  So ask for the best - if you have gone through the surgery and other treatment, you don't need to put up with a new tech, a student tech, etc. 

    Hope you all had a great weekend! I spent it with family and felt very loved.

  • Paula66
    Paula66 Posts: 1,572
    edited May 2011

    Welcome Laun.  This gals are a nice bunch.  They are helpful and fun at the same time.

    Well my day of take Tami is fast approaching.  I am a little nervous but I am sure all will be fine. 

    Thanks Jo for your serve to this great nation.  Thanks to all who made this country a safe place to live.  I went to my first Memorial Day Service Monday and it was amazing. I dont know why I have never gone. If your town does something like that next year plan on going.  I was so moved by it.

  • Sherryc
    Sherryc Posts: 4,503
    edited May 2011

    Welcome Luan, mine is generic.  I have  a mail in prescription drug coverage and get three months at a time.

  • GirlFriday
    GirlFriday Posts: 203
    edited May 2011

    I've been on the train for almost two weeks.  No SE's that I can distinctly identify, as I was traveling for most of that time.  I haven't had what I would consider a true hot flash, but I notice I am doing a blanket dance at night.  Blankets up, blankets down...I hate the idea of hair and nail issues.  I'm picking up Biotin asap.  My hair has turned gray pretty quickly over the last 6 months.  I just cut most of it off, but if I start getting hot flashes, and get thinning hair, I'm going Pixie cut!

  • tinkertude
    tinkertude Posts: 1,998
    edited May 2011

    welcome Luan.... yes these wonderful ladies are right there is a generic I am also taking it Nolvadex.

    Hi GirlFriday.. yes the blanket dance I like that! I bumped back up to 20mg this weekend and that was one of the first things to start back up yippeeeee!

    Hi Chevyboy Jo Sherry Paula and all you wonderful Tammy ladies

    N3YPB glad you had a great weekend. feeling loved I believe is one of the greatest healers! hugs!

  • JustmeAlicia
    JustmeAlicia Posts: 629
    edited May 2011

    Hi Ladies, I am here lurking but not saying much !  I am in a really deep depression.  Finally met with a therapist today.  She put me on Celexa and Ativan.  I have lost 10 lbs in 2 weeks.  Between the worry about the lung scan and nodule, the liver mri, the uterine biopsy and the pap smear.  ALL of which came back ok !  We will look at the lung nodule again in 3 months it may have always been there ~  YET, I cannot get myself out of this depression I feel like I am dying.  I hate feeling like I have no control. I am exhausted, dizzy, feel faint and nervous.  So I am trying little by little to get up do some laundry small things every hour, move and do something !  Drank a protein shake today and a few saltines.  It will probably be 2-4 weeks before the medicine kicks in but I am hopeful it will and I can get on with living again !!! 

    Hugs to you all !!!!!

    Alicia

  • tinkertude
    tinkertude Posts: 1,998
    edited May 2011

    Alicia I am so sorry !!! I sent you a PM..

    HUGS!

  • sgreenarch
    sgreenarch Posts: 253
    edited May 2011

    Dear alicia, wow. Seems kind of sane to go into a depression after all those health scares. All that anxiety can morph into depression pretty quickly. Too many medical events; tests, scans, appts, then waiting for results. The interminable waiting.



    Cut yourself some slack. You are likely not dying, just stressed beyond your available resources and who wouldnt be. Youve been through a lot. Sounds good that you are getting some help, (i sure did during the darkest days of this past year) and that you arent pushing yourself too hard.



    Thanks for writing. Know that we are thinking of you,

    Shari

  • GirlFriday
    GirlFriday Posts: 203
    edited May 2011
    Alicia: I second what Shari said...and I want to suggest ice cream as an additional supplement.  Expecially in a sugar cone in the sun, with your toes in the sand, or your feet dangling off a dock, or  in a screened in gazebo (if you live in Maine).  If ice cream does not work, I would try chocolate chip cookies warm out of the oven with cold milk, and if that doesn't work...how about a lime n coconut margarita?  Or a homemade lasagna with garlic bread?  Basically hit the comfort food, and get into the sun by the water if you can, then just ignore everybody and read a trashy novel! Sealed
  • heartnsoul76
    heartnsoul76 Posts: 1,204
    edited May 2011

    ((Alicia)) I'm so sorry you are feeling so horrible. Glad your test results are good, though! I think you're doing the right thing - just keep going through the motions until your mood lifts. Lord knows I've been there; they're keeping an eye on a couple of things for me and once you pass a certain point, they say, "Okay, it's benign, don't worry about it." I'm grateful my doctors stay on top of it, but it IS unnerving! Big HUGS to you!

    Luan - hey girl! Nice to see you here! I haven't had any SEs to speak of. I use the generic - on my bottle it just says Tamoxifen Citrate made by Mylan. I actually didn't know you could buy the Nolvadex any more, either. I remember asking my pharmacist about it and he said they couldn't get it, but it's probably just their distributor doesn't bother getting it. Glad you got your old stuff back. Weird how it makes a difference!

  • JustmeAlicia
    JustmeAlicia Posts: 629
    edited May 2011

    Thanks girls for the kind words !

    ((((HUGS)))))

  • jo1955
    jo1955 Posts: 7,545
    edited May 2011

    Alicia - Sweetie - don't be so hard on yourself.  In fact, treat yourself to sometime special.  This damnn disease is so overwhelming at times and depression can set in quickly at times.  Focus on the 24 hour rule - just take one day at a time.  GirlFriday had some excellent suggestions.  (((HUGS)))

    Tinnk, Chevyboy, Paul and the rest of you Tammi Babes - Hope eveyone is having a good day.

    Just a side note - I looked at my Tammi script today and mine is Tamoxifen Citrate - generic - my insurance requires me to get generics whenever possible. 

  • Sherryc
    Sherryc Posts: 4,503
    edited May 2011

    Alicia so sorry you are feeling so down.  Wish I as there to give you a big ol hug and help you keep moving.  Sounds like you are doing all the right things.  As Jo said the 24 hour rule.

    Jo how was your weekend being pain free.  Mine was great.  I have to use my new cream one to two times a day but it works.  Also I played with my Celebrex and figured I need 200mg twice a day to not have the arthritis pain.  I hate taking additional pills but at least it works.

  • heartnsoul76
    heartnsoul76 Posts: 1,204
    edited May 2011

    Sherry - what kind of cream are you using? I'm having some breast pain and going to the doctor Thursday. I'm interested to see what he says/does about it.

  • Sherryc
    Sherryc Posts: 4,503
    edited May 2011

    HSN it is a compounded cream I had to get at a compounding pharmacy.  It retails for $298, but with my insurance is was $30.  The label reads 12 Gm CMP Gabaprofen.  I know it has gabapentin in it along with an anti-inflamatory and analgesic.  I can always call the pharmacy and get the exact mixture if you are interested.

  • heartnsoul76
    heartnsoul76 Posts: 1,204
    edited May 2011

    Wow, $298? I haven't met my deductible yet, so it would be out of pocket - yikes! Still, I'm going to copy down this info you gave me and ask my doctor if he knows what it is and maybe see if there is a regular prescription cream that would work in a similar way. It sounds great, though. If I meet my deductible this year, then I just may see if you can find out the ingredients! Thank you for offering! I'll let you know what he says Thursday!

  • [Deleted User]
    [Deleted User] Posts: 323
    edited May 2011

    Hi gurls ! Thank u so much for the heartwarming welcome :) Should have come here before, but this site is so huge, just this thread...but i promise to read it through, i,m sure there are quite a few nuggets to be found in here ;)



    Thank u for the info on Tamox. My box says Novo-Tamoxifen 20 mg by Novopharm. Does that mean that it,s generic? Sounds like it... I don,t know if it,s a coincidence or not that i,m feeling better by my second box. I was really miserable, the pain stopped me from getting up and doing anything, the depression, a big black pit, the confusion, just like you Alicia :( also thinking of going anti-depressant. Are u gurls mostly on Celexa or Effexor?



    Jo, Sherry, osteoarthritis from rads ? :((((

  • Chevyboy
    Chevyboy Posts: 10,258
    edited May 2011

    Hi gals!  Alicia, are you having something like panic attacks?   When that used to happen to me, I was a mess!   At least that's how I felt, like I was going to die.....  I usually got them at night, and had to get up & get my mind off of that "feeling!"  Do you have yours all day?    Those are so scary! 

    I used to get them before I even had breast cancer....Sometimes I think our bodies just go wacky, for no reason!  But the sooner you can get those feelings under control, the happier we'll all be!

     xoxoxoxoxoxoxooxxoxo

  • [Deleted User]
    [Deleted User] Posts: 323
    edited May 2011

    Chevyboy, is that your cat ? Sooo cute, just like a cat :)

  • Sandeeonherown
    Sandeeonherown Posts: 1,781
    edited May 2011

    Sharit- glad all the tests came back clean.....thank goodness!

    Luan- there are different brands of tamox....makes sense that the 'binders' would give different reactions.

    Linda- good advice and likely true..anxiety causes pain etc.

    I have been having weird breast dreams....my mammogram is next Tuesday and my cardiologist appointment was today....EKG says I am a normal,healthy woman and my stress test said I am a lot healthier than expected as a 49 year old woman. I am a ten on whatever scale they are using and they want you to be a seven so apparently my test was a 'negative result'...which is good! the cardiologist said I look much better than when she last saw me ( in a blue gown and itching to get the heck out of the hospital!) and that she thought I had lost weight ( I told her it was the gown but maybe...)...in any case, I am perfectly healthy, was given the go ahead to return to the gym so....I did!!! Went to pump class tonight....lower weights bu tmy goodness it felt great to be there!!!

    Alicia- Jo has got it ....24 hour rule my friend....24 hour rule.....you can get through 24 hours...you CAN!!! girlfriday has some great advice too..ice cream , to wriggling and breathing...the tests came back clear.....! you are good to go...now breathe, let out the fear and wriggle your toes honey! You can do it! (but I am also very glad you hav egone to see someone and have gotten some medicinal assistance too....you deserve to hav ethte eedge taken off. What a year!)

  • [Deleted User]
    [Deleted User] Posts: 323
    edited May 2011

    Sandee, thanks - Alicia , ask to change brands, because if what I was getting in the bottle is what you,re getting, it felt like poison !!!



    I so want to move back to Ottawa !!! Lived there most of my life and miss it soooo much !!!!