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Bottle o Tamoxifen

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  • jo1955
    jo1955 Posts: 7,545
    edited June 2011

    Sherry - The pain free weekend was great.  I still have an occasional twinge - getting ready to bump up the dose to 50 mg tomorrow night.  That should take care of the rest.  It is amazing how different things are when you are without pain.  I really feel like my old self again.

    Luan - Yes, osteoarthritis from rads - go figure.  I had some arthritis before rads - the rads just made it worse.   

  • JustmeAlicia
    JustmeAlicia Posts: 629
    edited June 2011

    Well they wanted me on Celexa, but it interfers with tamoxifen.  So I am on Effexor.  Yes, I have anxiety attacks and awful depression.  Cannot eat, so weak with fatigue.  Actually forced myself to do some housework today and sit on the deck in the sun.  I don't want to feel like this anymore and am disappointed I had to resort to medication. 

    Jo ~ glad you had a pain free weekend !

    Sandee ~ Glad you go the all healthy info !

  • jo1955
    jo1955 Posts: 7,545
    edited June 2011

    Alicia - Sweetie - sending lots of (((HUGS))).  Hope the Effexor works and you feel better soon.

  • June2268
    June2268 Posts: 926
    edited June 2011

    Hello friends, so sorry I have been MIA......totally crazy with School year end stuff and Dad.

    Alicia so sorry you are still not feeling like your old self.  I thought that ride with all us girls helped you!!!  Damn I think we better think of something else.  I hate to see you going through all this BS, I really wished we lived closer so I could be there to help you muddle through~~~ hoping that the drug they put you on does not take that long to work itself into your system.  Sending you a great big hug and kiss kiss!!!

    Jo I am so happy that the new drug they put you on is really helping you out!!!  You have been through enough between all the crap you have to put up with your job and your health!  Thinking of you each and every day!

    Luan WELCOME!!!!  These ladies are awesome and are always there for support day or night!!!

    Tink WHACK!!!!  he he ha ha sweet and innocent my A%#......

    I go in for physical therapy on Friday for my armpit cording.....yipee!  Nothing like making me wait 3 weeks to feel better.  Hope it is a quick visit as I am so sick of Doctors office.....

    A guy down the street from me (60 years old) lost his brother 2 years ago (freak accident) lost his wife 2 years ago from BC and his Mom just got put in a Nursing Home now to find out he has Pancreatic Cancer and not long to live.  He will leave behind 2 children ages 8 and 11.  How sad!  I have been sick over this since I found out last week.  Can you imagine what these poor kids are thinking.  Losing both parents to Cancer.  My heart aches for him and his family!!!  His parents are still alive and will more than likely bury their 2nd child before their time ends!!!!  Life is so cruel!

    Love ya all and miss ya like crazy!!!!

  • jo1955
    jo1955 Posts: 7,545
    edited June 2011

    June - Really miss you sweetie.  How are you holding up?  Whack Whack - just practicing for Friday.

    Yes, it is about time I caught a break.  The new people are working out great and I am totally pain free.  I am supposed to increase the dosage on my Elavil tonight - going from 25mg to 50mg.  Sleeping good these days but maybe the increase in dose will let me sleep even better.  

    My heart goes out to those children.  My mother passed away from pancreatic cancer.  From dx to her passing was 6 months.

    Tink - I can't help myself - WHACK WHACK - LOL 

  • Sandeeonherown
    Sandeeonherown Posts: 1,781
    edited June 2011

    Missing you June!!! How are YOu doing? You talked about everyone else....what about you freind?

    Alicia- maybe you need a rip in a car to halifax nova scotia where your hostess would be happy to show you aroumnd....you need another break

  • [Deleted User]
    [Deleted User] Posts: 323
    edited June 2011

    Hey June ! You sound awesome yourself :)

  • Chevyboy
    Chevyboy Posts: 10,258
    edited June 2011

    Morning gals.....June, so sorry about the news!  Geez, doesn't get any worse than that....!

    And Luan, no, that is not my cat....Ha!  We only have a little Sheltie who thinks she is our Daughter, Wink  (She is!) But I saw that picture once on the Internet, & kept it, because it IS so like a silly cat! 

    Have fun! xoxoxoxo

  • jo1955
    jo1955 Posts: 7,545
    edited June 2011

    Good Morning Tammi gals.  I am feeling sooooo good these days.  The Elavil is working its magic.  I almost feel guilty for feeling this way - okay! guilt is gone.

    Hope everyone has a great day.

  • Teklya
    Teklya Posts: 362
    edited June 2011

    Great big gentle hugs to all.  And to those who are having difficulties with side effects, more hugs!

    Appt with Rad Onc today.  I have my list ready!

  • sgreenarch
    sgreenarch Posts: 253
    edited June 2011

    Hi, jo. What is elavil? I like how happy you sound! Whatever it is, i think i want some!



    The mood swings are intense. Not sure if they are from the tamoxifen or the lupron shots that i now have to have monthly (thank you very much.) I wouldnt say that I am depressed. More like i just cant feel relaxed, still waiting to calm down. The feelings generated by this disease are complex! Of course i am deeply grateful for good benign results that ive had lately after these recent scares, but then i feel guilty that i am still feeling a general anxiety. Maybe its just hard to move quickly between terror and then relief. Maybe it just takes time.



    Hugs to you all from sunny Israel!

    Shari

  • Sherryc
    Sherryc Posts: 4,503
    edited June 2011

    Jo, haha I am feeling much better myself.  The cream is working so no pain in the booby.  Now as far my osteoarthritis in my hip for the most part the Celebrex is working but I went for my 3 mile walk last night and took a hot soak in the tub when I got home because I was so stiff.  Well at 12:15 I woke up in pain and had to take a Loritab.  Feel fine this morning.

    Luan-yes arthritis from rads go figure.  I never had any arthritis before this so it is a new experience for me and not one I am enjoying at all.  My left hip is really giving me fits.  The pain management Dr explained that during rads they cannot miss our bones and that rads changes the molecular structure of your bone marrow which circulates through out our bodies.  Anyway he said some people are effected by osteoarthritis and some by early onset osteoporosis.  And of course many are not effected at all.  Guess Jo and I were the lucky ones, not.  The Osteoporosis thing connected some dots for me.  One my first visit to my MO he wanted me to have a bone density scan done for a base line and wants me to start Fosomax.  I thought this was kinda strange being that I am pre-menopausal but now it makes sence. He is trying to stay ahead of the game.  I mentioned it to the pain Dr. and he agreed and thought it was very wise.

    Alicia sweety hope the Effexor works for you.  I hate seeing you in such a black whole.  Wish I could come pull you out.

    June-been missing you.  How are you holding up with everything.

    Well my Dad had his 2nd chemo yesterday and he is doing very well with it so far.  My Mom on the otherhand moans and groans about how tired she is and has to go lay down.  I told my aunt you would think she is the one going through chemo.  She likes being in control as you all know with cancer we are not in control.  Anyway one of my brothers is going to take my Dad next week and is going to try to put his footdown about her not going and stay home and get some rest.  We will see she is pretty hard headed.

  • jo1955
    jo1955 Posts: 7,545
    edited June 2011

    Hi Shari - Elavil is a trycyclic antidepressant that has been around for many years.  It is also used for pain management.  It is not really known how it works on pain but it does.  Elavil is usually taken at night since it does have a sedating effect.  Does help with sleep.  I have no trouble getting up in the morning or functioning the next day.  I used to have terrible mood swings and they have leveled out since starting this medicine.

    Seems one has to have a lot of patience with this damn disease.  I do have a lot of patience and this disease has really tested that.

    Sherry - So glad we finally caught a break and are feeling better.  We have been through so much.  I don't like the idea of having to take another pill but I will also do what I have to, to feel good.   Thanks for sharing the info your pain doctor told you about this nerve damage and the bone marrow changes.  It mades much more sense now with the toe pains and I can quit blaming it on the Tamoxifen.

    Sounds like mom is testing your patience.  Hang in there.  Glad your dad is doing well - chemo really sucks!  I have experienced chemo from a caretaker's point of view and it is not fun at all.

    Sending big (((HUGS))) to you sweetie. 

  • [Deleted User]
    [Deleted User] Posts: 323
    edited June 2011

    A good day to all the beautiful ladies !

  • jo1955
    jo1955 Posts: 7,545
    edited June 2011
    Luan - Love the sign - talk about positive thinking.
  • Paula66
    Paula66 Posts: 1,572
    edited June 2011

    HI all!  Its good to see Jo and Sherry get some pain free days, Yipee!!!!!!!!  Its about time.  From the way it sounds Im luckey that I didnt have to do rads.  It sounds like it really messes with ya.  I thought chemo was ruff enough, but the rads sound like they do more damage to you.  Good luck with the continued relief.

    Ailcia I hope that you are able to find something that will help you with you anxiety.  I know that its so dang hard to get back to some kinda life through all this.  Hang in there.  Im happy that we have each other to get thru this.  Take care.

    Getting closer to the big day.  Im starting to get some butterflies, but I can do this.  Heck if others have done this before me I can to.  Have a great day all!

    (((((Sherry)))))

  • tinkertude
    tinkertude Posts: 1,998
    edited June 2011

    LUAN...Love the sign!!!!

  • peggy_j
    peggy_j Posts: 89
    edited June 2011
    Alicia, sorry to hear you're going that. All those tests-- oy! That's super stressful. (I remember I needed a liver blood test before my breast MRI, standard procedure. I have never had any liver problems in my life and had just had a blood test a couple months prior, but there I was, sweating the results of that test. Super irrational). Congrats that yours all came back clean. Hurrah! I like the Rx for ice cream and toes in the sand. Hope you're able to pamper yourself. This might be  a hard time but you'll get through it (btw, I don't know those particular meds, but some antidepresssants are contraindicators for tamox. You probably already ran this past your docs but FYI in case it didn't come up)
  • JustmeAlicia
    JustmeAlicia Posts: 629
    edited June 2011

    Thanks all.  Yes as far as tamoxifen and antidepressants it seems the EFFEXOR is one of the few that can be taken.  So that is what they started me on.  I was so bad over the weekend they called it in for me.  I cried and couldn't get out of bed.  So today is day 5 on it, tomorrow the dose doubles.  I do feel a bit better.  They are also keeping me calm on the ativan for a week or two.  The therapist said I have anxiety and depression induced by illness (CANCER).  So this too shall pass.  I don't ever want to feel like this again.  I felt like I was dying slowly.   But am glad to see the light at the end of the tunnel.  Thank you all for your kind words. 

    :)

  • jo1955
    jo1955 Posts: 7,545
    edited June 2011

    Alicia - Good to hear you are feeling better.  Be kind to yourself and take things one day at a time. Sounds like the Effexor is working - it does take time to build up in your system.  Sending (((HUGS))) your way.

    Peggy - Just FYI - Elavil (a trycyclic antidepressant)  is safe to take with Tamoxifen. It is used sometimes for pain management.  I don't take anything until I am absolutely sure is will play well with Tamox. 

  • Sandeeonherown
    Sandeeonherown Posts: 1,781
    edited June 2011

    Alicia- get some good buddies around you this weekend, go for walks, watch movies, eat good food....it will see you through. Friends are th ebest. Wish we could all be there for a pillow  fight! Huns to you...remember,,,,24 hour rule!

  • tinkertude
    tinkertude Posts: 1,998
    edited June 2011

    Alicia I am hoping an dpraying today is a better day for you!

    JO. So glad to hear you are having releif and feeling good

    PAULA66..Yes you can do it!!!!! hugs

    well ladies today i smy one year Cancerversary.... seems like forever as I can really remember life before bc.. but I am here I am alive so onward I go!

    HUgs to all hope its a wonderful day!

    Maria

  • jo1955
    jo1955 Posts: 7,545
    edited June 2011

    Tink - Congrats on your one year cancerversary - doing the happy dance with you.  

                                      

  • tinkertude
    tinkertude Posts: 1,998
    edited June 2011

    I love that Jo!!!!! thanks xo

  • Sherryc
    Sherryc Posts: 4,503
    edited June 2011

    Tink congrats on your one year cancerversary, yeah!!!!!!!!!!!!!!!!!!!!!!!

    Alicia glad the meds are starting to work.  Take Sandees advice and have friends around you this weekend.  Maybe do a girls night out with a dinner, drinks and a funny movie and no talk about cancer.

  • jo1955
    jo1955 Posts: 7,545
    edited June 2011

    Just got my reminder call about the mammo tomorrow.  I have to be there at 8:00 with insurance information and referral.  Yikes!  My anxiety level just shot up.  I hope to get a tech that is gentle and to hear results before I leave.  I don't want to have to wait until I see my onc on the 20th - I will be crazy by then.  

  • Sherryc
    Sherryc Posts: 4,503
    edited June 2011

    Jo here hoping that they will give you the results tomorrow.  It would suck if you have to wait until the 20th.  Here's hoping for clear scans.

  • Resting
    Resting Posts: 117
    edited June 2011

    Alicia - I don't check the Discussion boards as often as I used to so I didn't know you had been having a hard time with depression. So sorry but am glad to see your trying out some kind of antidepressant. I take effexor (37.5mg) too and it's helped me with the hot flashes and anxiety. It does take a little while to really kick in though -- so hang in there.

    Doing well with the Tamoxifen and thinking of everyone even though I'm not on much these days.

                Carolyn

  • Sherryc
    Sherryc Posts: 4,503
    edited June 2011

    I need to have a mini rant here with my sistas.  As if the breast nerve pain was not enough even though the meds are working so no pain in that area as long as I use the meds.  After my visit to the pain dr last week and he told me I had arthritis in my hip and shoulders.  I have played around with the dosage on Celebrex and found want works pretty well and got the Dr's approval on it.  My rant is even though I am taking the Celebrex this whole arthritis is interfering with my exercise.  I went for my normal 3 mile walk on Tuesday and was hurting so bad when I got home.  Took a long hot bath and was a little better but woke up at 12:15 and had to take a Loritab.  So Dr. insist he wants me to stay active and not give in but will have to explore other activities that don't hurt so much.  At least the yoga does not bother me.  I would really go into a depression if I had to give that up.  So I really enjoy my walks but they hurt too much.  I am going tonight to see if I can handle a bike ride. I am really hoping that this pain is going to get better and not be there all the time.  I have never had arthritis and it does not run in my family either so I am not dealing with this very well. I will be 49 this month and keep thinking that last year my MIL had to have hip replacement due to arthritis in her hip.  I keep wondering if I have that to look forward to???  Gee no family history of arthritis or bc and I have both, how did I get so lucky to win the lottery, NOT?????

  • jo1955
    jo1955 Posts: 7,545
    edited June 2011

    Sherry - Rant & rave all you need to.  We are here for you.  A physical therapist may be able to give you some exercises you can do that will allow you do walk - maybe not as far but at least you could get out.  The SEs from these meds really suck and sometimes have a big impact on our lives.  I hope you find something that works for you.