Bottle o Tamoxifen
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((((SANDEE)))) I have you in my prayers.
Jo when I had my US a few weeks ago, the tech recommended. Im glad she did because I had no clue about that. I figure whatever I can do to stay on top of this the better off I am. I say yes have it done.
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Paula - Thanks - I will bring it up when I see my gyn in the morning.
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I continue to be blown away by the lack of empathy shown by some of those in the "healing"
profession. What a horrid way to treat women who have been thru' so much this past year. Shame on them!Teklya
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Hi Ladies, My sister is stage 4 and starts Tamox tomorrow. A few questions, please:
Do any of you take baby asprin to help prevent blood clots?
How about taking calcium and Vita D for the bones and depression. I read bone loss can be had in premenopausal women (which would be my sister).
I saw some ladies saying that certian antidepressants didnt work while on Tamox, which one DID help you?
I also saw exercise listed as a way to help with teh bone pain, which excercises have you found to help?
THANKS! for your help! your sistah! Terri in MI
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Sandee ((((((((HUGS))))))))))) I am sure everything will be fine. Just remember the 24 hour rule. I'm in your pocket and will stay there until I hear from you tomorrow.
Jo-yes talk to the gyno about the US and get it down. Better to stay on stop of it, especially with your history.
TerriD-So sorry about your sister. I will pray for her. I do not take a baby aspirin but have it on my questions for my MO when I see him the end of this month. My MO took me off of calcium because he wants to do a bone density scan and them put me on Fosomax. He did put me on Vita D. I do not take an anti-depressant but I think the one that seems to work best with Tamox if Effexor. I have hip joint pain and walking seems to aggravate it so I have changed to cycling. Also yoga is great.
Went to see the BS today and we talked about the MX. Pretty sure I am going to do it but still want to talk to the PS next week. I have lot's of questions for him. The good news is she said she can do a nipple/skin sparing MX on me. She will have to leave a little more breast tissue than normal because of my radiated breast. She said otherwise I take a chance at loosing my skin and having to have skin grafts. Do not want that. Otherwise she thinks I am a great candidate for it and thinks that it will make for a "beautiful reconstruction" her words. BUT she did not like the sound of my hip hurting me. So she sent me for an x-ray. She gave me the talk that since we are bc patients that anytime we have pains in our bones/joints we should have them X-rayed to rule out mets and not just assume it is something else. She said she really did not think that I had mets but was not willing to risk guessing. She is pretty conservative and does not believe in alot of over testing etc so I willing went. Went straight to radiology and had it done. She will call me tomorrow with the results. The tech asked why I was there and I told him about my bc and he said welcome to the club. I said I guess your a cancer patient too and he said yes, kidney cancer. He has had 37 surgeries. I can't even imagine. I asked him what they have taken out he said it would be easier to say what is still left. Gee my bc did not seem all that bad after talking to him. He was so positive and upbeat.
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Terri- I take 4000s Vitamin D and am on a baby aspirin for my heart (tamoxifen apparently was a factor in my having a heart attack and I was taken off it). I also take a calcium/magnesium pill daily. Exercize is a huge component of the healing process. you must be worried...keep in touch and we will all do our best to help.
Sherry, Jo, Teklya, Girlfriday, Paula....thanks....gosh what a mess. Last year, they sent me home...they look at the xrays and then either my Gp or the surgeon's office will call me to talk to me about the results. Last June, same thing happened..under the arm : have to do this xray again as I did not wuite get everything..or couldn't see everything" ...something like those words....no reassuring words when I said it was the same thing they said last year....which I suppose is good as honstly, she is the technician, not the radiologist so she is not allowed to say antythign to me...and if she only says things to those who are 'ok;, then I guess women would be terrified if she did not say anything. I know they need to be neutral ....wouldn't want their jobs for anything...Will call my dr. in the am and make an appointment for Friday late in the am hoping they have the results by then....Sherry, I will be sure to wear clothes with pockets the next few days. Good news that your surgeon has asked you to wait until back from holidays ....follow up is a gift!
Jo- no more surprises....go and get checked out, hmm? Both ends need to be taken care of....tedious and tiring though, I know....
Definitely am starting to recognize stress in my body....after the mammogram, my neck and jaw were sore, pulse was racing on the left side and that side s swollen...(cardiologist said all is ok...sress test is great, EKG more than normal etc so ..this must be Sandee stressed out, hmm)...decided to cancel listenin gto music with someone who will want me to talk and have decided to go rowing Thursday with the bosom buddies instead...missed yesterday as it was raining so I thought they would cancel...nope...so...exercize is what I plan on doing to get through this again....
Ladies. 24 rule is on for us all
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Hi Terri. My Onc has me take a baby asprin every day to help prevent clots even though we dont have a family history in that area. I am taking them just to be on the safe side.
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Thanks for all the good advice ladies - my appt is in 2 hours. Will post later when I get back and update everyone.
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Just a quick check-in note to all you wonderful ladies. I have had wonderful help from my mother this week, but I wasn't able to check in as she has me hopping! (at least as much as my energy allows!). Thank God for mothers - and I wish my mother did not have to take care of her adult daughter (just doesn't seem fair to her), but am so grateful to her.
My heart and prayers go out to you Alicia. Have been there, not sure how I survived it, but I did. Just continue reaching out here, and be kind to yourself as everyone else has also said.
All you who are going through waiting on tests, fighting the SEs, and dealing with life in general - lots of hugs and positive karma to you all!
Linda
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Sandee: I also am shocked at the lack of empathy at your mammogram health center. Where I go, once one is dx'd with bc, EVERY year after that they make you stay while a doc is called away from whatever it is she/he is doing at the time, looks at the mammo, calls you in and lets you know ASAP what the results were. Last mammo same as you, they had to do 'different' readings, hemmed and hawed, but doc read the results, all was fine...they just wanted to be sure, as my tumor was against the chest wall, difficult to find. If not for that mammogram in 2006, I'd be dead today...morbid? Maybe so, but true. I hope you hear soon, if not, I'd be the one calling ASAP today. You have/HAD a right to know right away. Keep us posted?
As far as fibroids, and tamoxifen. I have a fibroid we're watching, but I also developed massive uterine lining thickness even after being chemo-induced-post-menopausal (10/2006). Had 'breakthrough' bleeding in December, like a period (after no periods/bleeding since 10/2006). Had a biopsy/pap, all is fine for now, but lining is 4x normal...I go back end of June for another biopsy/ultrasound. And, every 6 months after that. YES, on tamoxifen, one needs to really have your gynecologist check you thoroughly. I also have retina damage from the tamoxifen, all permanent damage. I was on tamoxifen for 3 1/2 years, until blood levels showed absolutely definitely post-menopausal, now on Aromasin. Yes, bones are a-hurting and I have lost bone density, we'll see in August if it's worse, if so, at age 52, I may have to use the bone drugs.
Someone asked about vitamin d----SO VERY important, most of us are very deficient. I take 5,000ius daily and my level is 'good' now (49) from a level of 17 when dx'd with cancer. I DO believe vitamin d3 plays a part. When you get the script from your doctor, it's always Vitamin d2, which never helped me at all (50,000ius weekly for usually 6-12 weeks). Vitamin D3 is needed.
Good luck to all...we all have our own 'system-responses' to any drugs/treatments. ~juli
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Sandee what a thoughless tech !!! hang on sweetie. we are all by your side hugs!!!!!
Jo...good luck today, remember i am on your left shoulder
Alicia thinking of you and hoping today is a better day hugs!!! xo
Terri..so sorry to hear about your sister. I am pre men too and I take calcium with D for that reason and exercise. It does seem to help some! good luck to her!
tammyladies... hope you all have a wonderful day...hugs to all
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Waiting for the results of my hip x-ray. Why do we get so anxious about these things? I told my hubsand I hope it it arthritis. Who would have thought I would actually want arthritis but I figure that is better than mets. haha
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Sherry C, I know what you are feeling, I was quite sure I had Cancer of the Foot a few weeks ago and went in for an x-ray. We have to try and not get too overwhelmed.
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Jo, my PC started me on a bone density and pelvic ultrasound test every 6 mos. I would ask for it, else how are you going to know if anything has changed? It's a mammogram for your innerds! Scarlett, you hang in there Hon!! We will prop you up and keep you moving forward. Never, ever give up!0
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I just got back from my gyn and it is NOT good news. I had a transvaginal US done and it turns out that my uterine lining is very thick and I have 1.5 cm fibroid that needs to be biopsied. That is going to take place this Saturday. I am sooooo freaked out and a basket case right now. I have not even read posts today - sorry - can concentrate right now.
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Hello and good wishes to everyone !!
Jo, hope this helps with your anxiety, hon
"Fibroids and Cancer
Fibroids are benign uterine growths. Furthermore, fibroids do not turn into cancer"
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JO thinking of you. I went through that a few weeks ago, had a uterine biopsy and it was b9. But the testing and waiting are torture. Try not to worry but I know that is nearly impossible.
To all of you a big hug, those awaiting test results especially.
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Jo I am praying for you sista
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Luan - Thanks for the link - interesting information.
I hate the thought of having to be under anesthesia again. I do well once I am under but have an extreme fear of IV needles. That is the scariest part that and the darn waiting.
I am considering asking the gyn while he is doing the biopsy to just go ahead and do a hysterectomy - WTH - I don't need the plumbing anyway at my age.
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jo1955: All my best to you. I also had the 'tamoxifen-thickened-uterine-lining' and a fibroid. Had a biopsy in January, all was fine, but lining is more than 4x normal. We will do a biopsy/ultrasound every 6 months (next one is end of June). I will be thinking of you and sending good vibes your way. The waiting is the hardest part. I'm with you, I'm chemo-post-menopausal at age 52, so I'd also have a hysterectomy if the uterine lining shows change in cells, just get it outta there...don't need it nor need the ovaries neither!
Keep us posted...(((HUGS)))) ~juliI have a port from chemo so they use that for the scans/surgeries still. I am SO thankful for it, but not cus of fear of needles, it's cus they can't even FIND a vein to stick. Fear of needles is so not unusual, but be glad you have veins they can use! I will keep this port forever if I can (power-port, replaced my port-a-cath that failed in 2010...yep, no chemo now, but labs were torture for the techs (not to mention me and my only arm we can use due to the lymph disease in right arm), I simply have no to very teeeeeny tiny veins...useless.
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I forgot to mention that I had to insist on the TVUS today. My gyn was talking about doing it much later on. I said to him - "Why don't we do one now for a baseline since I have only been on Tamoxifen for 5 months?" He said fine - sure glad I did.
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jo: GOOD for you~!!!! We all really DO need to be advocates of our own healthcare, if we don't, who will??? I'm glad you found out this early on tamoxifen. I am 'ass'uming they are now going to take you OFF tamox? Aromatase Inhibitor possibly? I had already been switched to Aromasin Sept. 2010, breakthrough bleeding was end of December. So tamoxifen side effects can take awhile to appear. I'd NOT known that I should be checked carefully 'down there' at all....I'm glad that this thread is here and that the bc survivors can be forewarned and fore-armed! ~juli
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Juli - I have tried both Armidex and Femara and had too much nausea with both that is why I am on Tamoxifen. I am scheduled to see my MO on Jun 20th for my 4 month follow up. I bet this is something we will talk about. Just like everything else, hurry up and wait.
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Jo glad you found this out before your MO visit.
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Sherry - You and me both. I hope he has lots of time - there is so much I will need to catch him up on. The pain doctor and meds, now this. Whew! I think his head will be really spinning when I get done.0
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Yes my MO as well. Lot's has happened in the last three months. Glad my visit will be at the end of the day we may need the time. I have not heard from my BS so I called about 30 minutes ago and still waiting. I hate waiting for results. I wasn't nervous about this yesterday but have been a wreck today. Good thing it has been really busy here at work today, otherwise I'd be a mental wreck.
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jo: I hear ya, with side effects, we decide which are the ones we can 'live' with I guess! How about another aromatase inhibitor? I take Aromasin, and have daily migraines (another story, we won't get into that one, it causes quite a problem on this site, lol...yep...experience!)
so I have nausea daily anyway, and Aromasin has not caused an increase in it for me anyway. Good Luck to you all. Yep, hurry up and wait, unfortunately!~! BEST~~~juli0 -
Just got my call from my BS and my hip x-ray is clear no cancer in my hip. Woohoo some arthritis and she said I probably have some connective tissue issues and to keep taking the Celebrex.
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Sherry - WOOHOO - Good news is always welcome here - in fact, it is encouraged.
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Sherry ~ great news !!! Let's hope the good news keeps coming !
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