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Bottle o Tamoxifen

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  • JustmeAlicia
    JustmeAlicia Posts: 629
    edited June 2011

    HI girls a little update from me.  I went to see an gastro specialist today because of the no appetite, weight loss and nauseous.  He feels it is all depression related.  He said I am in an anorexic state (I had anorexia as a teenager)  I have to get myself out of it.  He said yes there could be something wrong but feels it was all brought on from the stress of my testing.  I was fine before that.  He said 2 weeks on an antidepressant is not enough time, and gave me the number for a new psychatrist. Gastro will see me in 6 weeks and  if still feeling bad he will run tests.  He was so nice.   I was in tears crying............  I feel a bit better ~ So I am going to try to force 3 small meals down a day.  I have been living on a piece of toast and a glass of milk all day.  I hate feeling so out of control.  I have to get back to that happy place and live in the moment....not the what if's.

    HUGS ! Hope everyone is doing well.

    Alicia

  • jo1955
    jo1955 Posts: 7,545
    edited June 2011

    Alicia - Maybe add snack - like a carton of your favorite ice cream.  That will help with the calorie intake.  I hope you are feeling better soon.  You will get past this - we are all here for you.  (((ALICIA)))

      

  • Sherryc
    Sherryc Posts: 4,503
    edited June 2011
    Alicia ((((((hugs))))))))))  In the past I have gone through that horrible depression and not eating as well.  Just really wanted to check out of life.  Took awhile for the antidepressants to kick in and work for me and then things did little by little start getting better for me.  We all love you here, wish I could be there to make you smile.Kiss
  • Sandeeonherown
    Sandeeonherown Posts: 1,781
    edited June 2011

    Juli/Tink- why am I so accepting of this....???what the hell is wrong with me that I don't get angry? Have to work on that for sure...went to a movie and laughed at in appropriate stuff last night...managed to get through the day and wen to cardiac gym class and then to the chiropracor where i promptly burst into tears when she started to readjust my back....dear god....will call my Dr. tomorrow to ask if they can call in for the results and I will go to them Friday if they have an appointment for me.

    Jo - Does it never end? yowser!!! I am soooo sorry you have more health crap to deal with....when I was driving home form the chiro today, I was trying to think on the positive side of these past two years and came up with - ah well...best to get it all over and done with while I am young an dhealthy....easier to fight right now....how about that? Want to borrow the thought? hugs to you!!!

  • Sandeeonherown
    Sandeeonherown Posts: 1,781
    edited June 2011

    Sherry - good news re. no cancer in the hip..not so great re. arthritis but a more livable option?

    alicia- how about little tupperware containers with nuts and berries in them....something to snack on so you are getting goodness into you but not a major meal? It makes sense that this is all sorrow related, hmm? know you are being hugged!

  • Sherryc
    Sherryc Posts: 4,503
    edited June 2011

    Sandee I told my Dr when she called that I said to DH last night that I hope I have arthritis. Who would have ever thought I would want that.  She laughed and said yes when you get cancer it is amazing how your perspective on life changes.  I said no kidding lets see arthritis or cancer which do I want not a hard choice.  Hope you are able to get your results tomorrow

  • Sandeeonherown
    Sandeeonherown Posts: 1,781
    edited June 2011

    yeah...choices....if the right breast is cancer....I will hope it too is under 1cm...get another lumpectomy and even the darn things up...how is that for perspective?!...

  • juli0212
    juli0212 Posts: 801
    edited June 2011

    sandee, I know you didn't mean to be funny, but that DID make me laugh??    :)   Perspective indeed....you are in my thoughts, girlie.   ~juli

  • Sandeeonherown
    Sandeeonherown Posts: 1,781
    edited June 2011

    Julie....essentially, that is what my BS and I decided last year...if it comes back, she said, we will get you on the table, get rid of it and I will have a plastic surgeon right behind me fixing things up. Hope, if need be, she was serious....but yeah..a giggle over it is also fine. Perspective.I still have enough to spare.

  • Sherryc
    Sherryc Posts: 4,503
    edited June 2011

    SAndee you made me giggle too.  It is funny the way we think now.

  • Paula66
    Paula66 Posts: 1,572
    edited June 2011

    Jo I hope things get better for ya.  I know what your going thru right now.  Its scarey to have this stuff going on when we are trying to heal from the battles of breast cancer.  Your dealing with the upstairs getting it straight and wham the downstairs has to come into the picture.  Im glad you did get the test done that you wanted.  You are in my thoughts!

    Sherry I glad your testing came out good.

     ((((Alicia))))

  • chabba
    chabba Posts: 3,600
    edited June 2011

    Just a little something to brighten our day.

  • heartnsoul76
    heartnsoul76 Posts: 1,204
    edited June 2011

    That's so beautiful, chabba! Definitely a day (and night) brightener. Thanks for that!

  • sgreenarch
    sgreenarch Posts: 253
    edited June 2011

    Hi, Guys:

    Been away for a while and read your posts to catch up. A lot going on. Amazing how this can feel like there's no let up. I was depressed at the beginning of May since I had a medical event scheduled each week in May. And now, since every medical event is a potential mine field, I started to unwind at the end of April just thinking about it! Got through gyneco/oncologist, finding of really high estrogen levels and then first Lupron shot (not so bad...though the hot flashes are wicked, sudden chemical menopause...still, it's just sweat, can deal...trying to keep perspective...) which brought the E2 levels down to normal. Then MRI and preliminary read all clear, then ....not so fast: biopsy of suspicious cyst, which turned out to be benign (Thank G-d, and of course, the waiting for that result was hell...) then colonoscopy and gastroscopy (ok.) Just got second lupron shot, still OK (I know people who said they couldn't stay on them as the SE's were too bad, weird kidney stuff happened, but if I can't take them, I've got to have an oopherectomy and really want to avoid that if possible. That surgery would be a bit more complex in my case as I have scar tissue from previous abdominal hysterectomy.) 

    Jo, I don't know if this will help you, but I was the Fibroid Queen. Had one pre BC that grew over 10 years to be the size of a 4 month pregnancy. Ultimately had a hysterectomy 3 yrs ago at age 47, but it was all benign (just big and annoying.) Fibroids are mostly benign so please try to calm down if you can about this. Worst case, honestly, having a hysterectomy wasn't so bad. I kept my ovaries as in the big picture they're supposed to be good for long term heart and bone health. And mine seem to really want to hang around and stay active :) It's just too bad that you have to have all this stress. Ironically, this is one of the advantages of having had the hysterectomy. At least there's one less female body part to worry about!

     SherryC, glad your hip is ok. I do understand the worry, though. 

     Alica, I think about you and your post scan depression. I understand how that level of stress can tip you over into a depression. But you can climb out as time goes on and things are actually...OK. I bet your stomach issues are stress related. Not eating and taking meds on an empty stomach can wreak havoc. They did with me. Try if you can, to eat more and coat your stomach? Really sending you good wishes.

    I was feeling a bit down today, too. Heard of a few bc deaths (of women I had known were very sick) of college classmates and then someone local, here. I know that every disease is different but it's still hard to hear. I try to remind myself that each case is different and many of us can live to old ages, dying of something completely different, but then irrationality takes over...Oh well. Good to vent. I can't do this with family so easily. Don't want to worry them or be overly morose. Please forgive me for being a downer - just need to be able to let this out. On the flip side, I just read about great new statistics for bc survival thanks to earlier detection and better treatmts. Those women had been diagnosed years ago.

    Wishing us good results and good health!

    Love, Shari

  • tinkertude
    tinkertude Posts: 1,998
    edited June 2011

    Shari you vent all you want, thats why we are here.. hugs to you and sorry for your losses!!!!!

    Sandee..sending hugs your way and please let us know as soon as you know.You are strong and an inspiration. BC does indeed give us a very different perspective on everything.. that is the truth ...hugs!!! xoxoxoxo

    Alicia.. milkshakes are always good for weight too. Sending hugs your way. you CAN do this!!! one day at a time. I have been to 3 therapy sessions and it is amazing although I have a long way to go, it still feels like a little relief.. and I have learned to be happy with "little" steps.. wow thibgs sure do change for us.

    Sherry..So happy to hear your xray was clear!!! wahoo!!!!! hugs !!!

    Chabba.. beautiful peaceful pic! :)

    hugs to all my Tammy ladies!!!

  • GirlFriday
    GirlFriday Posts: 203
    edited June 2011

    Alicia: I've been having a craving for caramel rolls/stickie buns...I grew up in central PA, and it seems that no one in the northeast knows how to make them.  They are buttery, cinnamony, sugary pastry goodness.  I'd hit the local bakery if I were you! Cinnamon is good for what ails you! And so is pastry. And so is butter! At least that's the way I look at it!

  • jo1955
    jo1955 Posts: 7,545
    edited June 2011

    sgreenarch - Sounds like you have been busy with the medical stuff - so much we have to put ourselves through just to try and stay healthy.  Hope you feel better real soon.

  • Sherryc
    Sherryc Posts: 4,503
    edited June 2011

    Yesterday was such a hectic day here at work.  Had deadlines for kids so they were in and out all day.  One of our organization of volunteers are not seeing eye to eye and were in and out yesterday to talk to my boss.  Thank goodness I don't have to get involved with the politics.  Reports due and Newsletter to build.  Just finished the newsletter and it is on the printer.  Maybe today I can slow down.  Was so busy yesterday that one of the volunteers had just come in and sat down at my desk when my Dr called.  Had to get up and walk across the room so I could talk to her. Did not want him hearing my conversation about cancer and MX.  Anyway today will be a much better day.  Not so stressful

    sgreenarch-you have been busy with Dr's.  Hope you can tolerate the Lupron shots.

  • Sherryc
    Sherryc Posts: 4,503
    edited June 2011

    Where is everyone today.  My day finally settled down, now I can breath.

  • jo1955
    jo1955 Posts: 7,545
    edited June 2011

    I am here.  Been trying to get as much done as I can before Saturday.  I have been doing research on the internet and the gyn is going to do a hysteroscopy.  From what I have read it takes less than an hour and I should be able to get back to doing things by Sunday.  I have a whole list of questions for the gyn tomorrow.  I am not going to be rushed into anything.  Felt so rushed for cancer surgery - not going to let that happen again.

  • heartnsoul76
    heartnsoul76 Posts: 1,204
    edited June 2011

    I love the way hysterectomy is based on the word "hysterical". I wonder how hysterical men would be if women were trying to cut their balls off every time they turned around!

  • jo1955
    jo1955 Posts: 7,545
    edited June 2011

    heartnsoul - You crack me up - That is a thought - HMMM!

                            

  • Sherryc
    Sherryc Posts: 4,503
    edited June 2011

    heartnsould I have wondered that myself.  too funny.

    Jo yes do not  get in a hurry about anything.  Now with experience we know we did not have to move as fast as we did with our BC. If you do have the hystercomy ask if they can do it laproscopic and a vaginal removal.  I did mine that way and I think the healing is much easier on you.  Sometimes with Fibroids you are not able to do it and have to have the bikini cut.

  • jo1955
    jo1955 Posts: 7,545
    edited June 2011

    Sherry - I would dread a bikini cut.  Many years ago, I had an ectopic pregnancy and I would cut from the belly button down.  Two years later, I was cut in the same place - the doctors tried to repair my left tube but it was too damaged from adhesions.    Will just have to wait and talk to my gyn tomorrow.

  • worldwatcher
    worldwatcher Posts: 46
    edited June 2011

    Hi ladies

    Just checking in after 3 months on Tami.  I am still splitting the dose, 10 mg morning and night. It's working well for me. I have had infrequent SEs of about every kind, a hot flash now and then, some bone pain once in a while and some nasty calf spasms waking me up at 4 a.m. a few times.  Nothing that I can't deal with, I'm happy to say.

    I'm due for my one-year mammo and US at the end of June.  It's been a long year..seems like about five instead.

    I have arthritis in my spine, so my onc ordered a nuclear bone scan last month..thankfully it was clear and my tumor markers remain normal.

    I wish the best for all of you and a lovely summer.

  • tinkertude
    tinkertude Posts: 1,998
    edited June 2011

    worldwatcher.. so glad to hear you are doing well!!!! great news! :)

    heartnsoul that is hysterical love it!

    Hi JO/SHERRY...Been a crazy week here DD has finals so she is getting out of school all different times then DH leaves me honey do lists to run errands during the day lol...

    being outside is horrible right now... the temps here have set records and the air is so heavy!! yuck

    JO..I am packing up my wings as I will be there with you tomorrow!!!!! hugs!

  • jo1955
    jo1955 Posts: 7,545
    edited June 2011

    Tink - I have my list of questions ready for the gyn.  I am going to make him tell me in detail this procedure he wants to do - a hysteroscopy.  Then I will make a decision.  I am not going to be rushed.  Oh!  Be sure to sit on my left shoulder - I can hear better out of that ear.  LOL

  • tinkertude
    tinkertude Posts: 1,998
    edited June 2011

    JO//Left shoulder it is!!! you got it!!!!! 

  • Sandeeonherown
    Sandeeonherown Posts: 1,781
    edited June 2011

    Tink/Sherry- Thanks ladies!! I called my Gp today and said  'as soON as the result come in, please call me. I m a nervous wreck here ....just tell me the news on the phone again...." have the lymphodema clinic on Monday afternoon...face feels swollen and the temples of my glasses are touching my face (which i know sounds odd but it means my sinuses are a bit swollen)....driving my nutty!!!

    Went to visit a student in the hospital...out of the coma and now on the hematology floor. He recognized me but is still unable to talk ...can move his head...now THAT is perspective. Meanwhile another studen has two siblings and their families who are trapped in Libya with his parents refugees in two different countries.Not saying we are lucky by any means....but wow...

    worldwatcher....I hear you...the past twelve months have indeed felt like 5....can't actually believe I/we all made it through the fall. and winter and are still standing and pushing hard. Good for us!!

    Jo, god luck on Saturday...going in armed with questions sounds perfect!..

  • Paula66
    Paula66 Posts: 1,572
    edited June 2011

    Hi all!  Its a beautiful night out tonite.  Its not to hot out.  You sit outside and not sweat like crazy.  I dont have a problem with the heat.  I like it hot.  Now the cold is a differnt story. 

    My hotflashes I had with chemo came back with a vengance.  WOW did it ever.  I did get a few weeks in between the chemo and the tami taking.  This will pass I know.  

    Tink dont ya just love those list.  Guys complain when we do it, so fare is fare.  

    Jo good luck tommorrow.  Make the doctor take his time.  This is something that cant be rushed.