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Bottle o Tamoxifen

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Comments

  • Linda-n3
    Linda-n3 Posts: 1,713
    edited July 2011

    Tink and ECG, sending best wishes for speedy recoveries, hoping the pain resolves soon. Amazing how these meds can do some good yet mess up other aspects of our lives... choosing between pain and sleep is not easy or fun. May you have both soon. - Linda

  • sgreenarch
    sgreenarch Posts: 253
    edited July 2011

    Hi, Ladies,



    Tink and ECG, wishing you a fast recovery.

    Sherry, sorry about the funeral, though i like how you found the good in it.

    Jo, nice kitchen! Thanks for the pix. We have room for more interior designers in my office if you are interested. Not the easiest commute for you, but nice coworkers.



    Im learning how to hobble around in my cast. Feeling like such a klutz. I was enjoying exercising so much and now it seems i wont be able to be taking my walks for a while. Oh well.



    Take care, ladies. Shari

  • Paula66
    Paula66 Posts: 1,572
    edited July 2011

    Tink and ECG your are in my prayers.  I hope you all are doing good. 

    Shari you are in my prayers also.  Im sure its not fun having the cast on after going thru all of this and just wanting things to calm down.  

  • JustmeAlicia
    JustmeAlicia Posts: 629
    edited July 2011

    Tink and ECG thinking of you both ~ sending healing soft hugs your way !!

    Shari sorry about the cast on your foot !  UGH ~

    Sherry so sorry to hear of your friends dad's passing. 

    JO ~ I like both kitchen pictures !  It is a lovely kitchen ~ nice job on the renovation.

    Busy here with the summer.  Have Oncologist and Lung Scan appt in August trying not to think about it until then.

    Hugs my friends,

    Alicia 

  • jo1955
    jo1955 Posts: 7,545
    edited July 2011

    Alicia - Hope you are doing well - don't get to see you here often enough.  Sure miss you!

  • tinkertude
    tinkertude Posts: 1,998
    edited July 2011

    Hi ladies

    getting up and around more today. Still quite  uncomfortable but better than the day before. Post op Wed and then i guesss i will have to start back up on the tammy train. I will tell you that its been an emotional roller coaster I was so looking forward to the break but to be honest didnt really feel much different emotionally and now its time to start up again. I guess its true when they say it stays in our system a long time... oh well got that out of my system time to move forward i guess... anyway missed you ladies hope you are all doing well!!!

    love and hugs Maria

  • jo1955
    jo1955 Posts: 7,545
    edited July 2011

    Hey Tink - So glad you are doing better - sure missed you on here.  BC is the darn gift that keeps on giving - the emotional roller coaster is no fun and you will get off of it soon.  Onward and upward.

    Sending gentle hugs (((TINK))) 

  • tinkertude
    tinkertude Posts: 1,998
    edited July 2011

    Thank Jo.. just feel so sad!....miss you too!!!!

  • Paula66
    Paula66 Posts: 1,572
    edited July 2011

    Tink its good to see you out and about.  You sure have been missed aroud here!  Take care and I hope your up and flying around like never before!  ((hugs))

  • jo1955
    jo1955 Posts: 7,545
    edited July 2011

    Tinkn - You needd a group hug about now.

     

  • sunflower71
    sunflower71 Posts: 53
    edited July 2011

    Hello to you all!

    Well I had surgery, survived chemo, made it through rads, all without questioning or pausing.  Now, a bottle stares at me by my bedside reminding me to start taking it, yet I don't.  It took me 2 weeks to fill the damn thing and now I can't seem to bring myself to swallow the first pill.  Did anyone else have such trepidation?  Please, tell me this is not going to be such a big deal!

  • Sherryc
    Sherryc Posts: 4,503
    edited July 2011

    Alicia good to see you on the boards, guess you have been busy with the kiddos this summer

    Tink glad you are up and moving around and feeling better.

    Sunflower I did not hesitate to take it just jumped in.  Had some SE's at first but within a few months my body adjusted and I an good now.

  • GirlFriday
    GirlFriday Posts: 203
    edited July 2011

    sunflower74: I was more anxious about Tamoxifen, than anything else.  Don't know why.  I was going to try to rush and take it without allowing myself time to think, and then the script took 24 hours to fill as the pharmacy was out of it!  I took my first pill on the morning before a long trip.  I was so anxious I thought it might not stay down.  After 8 weeks I still look at that pill every morning, and my heart skips a beat, but I tell myself 56 down, 1825 more to go.  or 8 weeks down, 260 more weeks to go.  The sooner your start, the sooner you'll finish!

  • jo1955
    jo1955 Posts: 7,545
    edited July 2011

    sunflower - I just jumped right in and took the darn thing.  I had some small tummy issues in the beginning but no problems now.  I look at this as an added insurance policy.  No regrets.

  • PattiB
    PattiB Posts: 107
    edited July 2011

    Girl Friday & Sunflower - Ditto - the sooner you start the sooner you'll finish.  Just imagine it blocking out the estrogen that is food for a recurrance. For me I put the risks of SE's of tamox in perspective but taking the pill everyday makes it hard to put the disease behind you.  Hope I said that right and makes sense. 

  • GirlFriday
    GirlFriday Posts: 203
    edited July 2011

    PattiB:  After my heart skips a beat, I try to remind myself how far I've come.  I don't think I'll ever stop looking over my shoulder for the Big C to come knocking, but maybe I won't be looking quite as often.  A wise friend told me that illness is a reminder to find balance.  My daily ritual of taking that little white pill, helps to put all things into a perspective that I hope leads me to be more balanced in my life.

  • tinkertude
    tinkertude Posts: 1,998
    edited July 2011

    Thanks ladies its good to be back!

    Sunflower I had a hard time starting too, the ladies are right the sooner you start the better off we end up. we will be here with you as you go along this journey, i split my does 10mg in am and 10mg in pm it helps me a bit but others do fine with the whole dose you will learn what works best for you as we all react differently to it... let us know we are beside you. I see you are from Ft Lauderdale I lived there for many years I graduated from St Thomas Aquinas in Ft lauderdale  and live in North Lauderdale for years!  welcome aboard and sorry we had to meet like this but you have found an incredible supportive group of ladies on this thread!!!

    Jo..ahh loved the group hug just what I needed !!!! xo

    hugs to you all

    Maria

  • sgreenarch
    sgreenarch Posts: 253
    edited July 2011

    Hi, ladies. Tomorrow is one year since dx. Trying to focus on the good; blessed to be here.



    On that note, sunflower71, my suggestion is to run, not walk to take that pill. It lowers your risk of recurrence and we are lucky to live in a generation that has tamoxifen in our arsenal. Most of us have/had SEs, but all manageable. You can come to this place to vent, complain, compare, share, but do take the med. Youll be fine.



    Tink, glad you are feeling better.



    Been away from home for almost three weeks. Have had a wonderful time here visiting family. But

    looking forward to being home.



    Love, shari

  • Sherryc
    Sherryc Posts: 4,503
    edited July 2011

    Shari in case I forget Happy Cancerversary!!!!!!!!!!!!!!!!!!!!!!!!

  • jo1955
    jo1955 Posts: 7,545
    edited July 2011

    Shari -  Happy Cancerversary early - don't know if or when I will be on here tomorrow.

                                           

  • achpurple
    achpurple Posts: 245
    edited July 2011

    Sunflower:  I found myself two weeks out of rads and realizing that I didn't really want to start taking that pill, but I knew I had to so I started taking just 1/2 a pill in the morning (because I'm very sensitive to lots of meds) then the second 1/2 later in the day.  Guess it was my way of "testing the water" - didn't notice any difference at all except that now I have very vivid dreams (I NEVER used to dream).  I did that several days in a row until I was comfortable just taking it.  It is very important to just remember that it is a very important part of our treatment plan.  Some mornings I look at it now and find myself thinking "this simple little pill is giving me so much."

  • Sandeeonherown
    Sandeeonherown Posts: 1,781
    edited July 2011

    Tink- glad you arefeeling better

    jo - wow!! looks great!

    June- I know you are not on here at the moment..vacationing and all..but sure hope you enjoy it....you deserve some beach and umbrella drinks

    greenarch- vacationing with crutches is no fun...been there and hoping you do not have to do subways with them!!! Good for you for saying you would go sit with her while she has a mammogram...not the place you want to be I am certain!....just going in to the hospital on Thrusday for physio makes me sweat....know the cancer ward saved our lives but soooo gives me the willies!!! Cool on the ouswide and trembling on the inside some days Iget....had a minimeltdown in my doctor's office last week and she suggested anti-depressants and a 5 week holiday when this training course is done....personally think I just need a damn good cry and a huge change so have decided to do it my way since I refuse to add more pills to my daily intake...just not doing it....we are allowed to have days that are not good...recovery takes time so...good for you for helping to take some of the 'scary away'! My lymphodema massage therapist said she has not been for a mammogram for over 5 years....that she does regular breast exams...I said " well that is good but just so you know, my cancer was found through a mammogram..if I had waited until I felt it, my situation would have been a whole different story"...must be scary for her to deal with women with breast cancer all the time but not be able to makeyourselfgo to a mammogram...

  • Jenmarie9
    Jenmarie9 Posts: 9
    edited July 2011

    Achpurple: I've been lurking here for awhile, but I wanted to let you know that you are not alone with the vivid dreams!

  • jo1955
    jo1955 Posts: 7,545
    edited July 2011

    sandee - Where have you been?  Missed seeing you.  I do think we are entitled to just have a bad day or a few cry days.  We have been through so much and it is hard to come back from all this crap.  I sure hope your LE therapist does get herself in for a mammo - that is a scary thought that she has not been for 5 years.  I could have done self exams from now until next week and never left the lump - mine was also found on a mammo.

    Hope you are doing well otherwise.  (((HUGS)))

  • Sandeeonherown
    Sandeeonherown Posts: 1,781
    edited July 2011

    Shari- blessed to be here indeed!!!

  • sgreenarch
    sgreenarch Posts: 253
    edited July 2011

    Hi, guys. Thanks for the good wishes. Not sure what I would have done without all of you during this three weeks away from home and hubby. Just nice to be able to talk to you. I love my family, parents, siblings, neices and nephews, cousins, etc., but couldn't let my hair down, really. No one knows how many times a day I'm reminded of BC. When I get dressed, missing a breast still, needing to remember the damned sweaty prosthesis. Or when I wake up achey or go to sleep taking that pill each night. No need to talk about it and upset them. Nothing they could say, anyway. This last year wasn't easy on them, worrying about me from such a distance.



    Sandee, I hear what you're saying about the antidepressants. I like knowing they're there and understand every woman who takes them after going thru this. But I am taking so much other
    medicine I just don't want one more pill. I hear you. I also think a good cry and doing whatever is in
    your power to destress your life could help. I also got myself some therapy this past
    year; best money ever spent.




    Heading home Thursday. Good news is this cast on my foot may get me chaperoned thru the airport and a good seat on the plane. Lookin on the bright side. Oh, and airport security can have a
    field day with all my fake or packaged parts!



    Love you, Shari

  • tinkertude
    tinkertude Posts: 1,998
    edited July 2011

    Shari..Happy Cancerversarry and many many many..... more!!!!!!!!!!!!!!!

    Off to post op today started running low grade fever last night nnot sure what that is about since i have been on antibiotics since surgery we shall see...

    hugs to all you wonderful ladies!!!!

  • Sherryc
    Sherryc Posts: 4,503
    edited July 2011

    I have also had those wild vivid dreams, altho they are gone down but gee at first it was like I would wake up and go wow I was active last night.

    My mom picked me up some BC books at the onco's office the other day.  I was reading one of them on cancer in general and it was talking about how after you finish treatment and how you try to integrate back into a normal life and the things you can do.  It talked about people having a hard time and that the longer you are in treatment the longer it takes you to get back to a normal life.  Well I thought about it and realized why we BC gals have such a hard time is because we are in treatment for 5 years unlike other cancers.  WE have surgery, maybe chemo, maybe rads, but we all take some kind of hormone drug for treatment.  If not doing a script then doing something alternative but we are in treatment and are reminded of it every day when we take our pills.  Thought it was very interesting and wanted to share it.

  • jo1955
    jo1955 Posts: 7,545
    edited July 2011

    Sherry - That is interesting on the actual length of treatment we BC gals are in.  I really did not look at it that way with having to take that little pill every morning but you are right.  It is a "chemo" pill although we call it hormonal therapy.

  • Sherryc
    Sherryc Posts: 4,503
    edited July 2011

    Jo it is interesting that our pills are considered chemo.  I knew that but had not really referred to it that way to my kids.  My DIL called me after her mom was diag and had surgery and she said her mom was going to have to take a chemo pill for 5 years and did I have to do that.  I told her yes and explained all the different ones that they use and how some people have no SE's but others have many SE's.  She said she remembered me talking about the SE's that I had had but did not realized it was considered chemo.