Bottle o Tamoxifen
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MISSZED..Welcome aboard. It is a fun thread with wonderful ladies and great support. Sorry we had to meet like this but we will be here for you!.
Sandee.. welcome back.. cant wait to see the pics sounds hilarious!!!!!
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Welcome Misszed-this is a fun group and very informative.....
Sandee I am so glad you had fun, you deserve it.....I too have LMAO at the bras on the lawn. How creative!!!
Hope all are doing well.....
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Good morning, ladies. Is dry, scaly skin an se of Tamoxifen? I have always had somewhat dry skin, but now I am almost shedding! It is especially bad on my arms. I am using Eucerin to combat the dry skin, but it's like spreading paste - so gummy and sticky! Ick - especially in summer heat!
Since starting Tami 2 weeks ago, I haven't noticed any real se's, so now I am just looking for them, I guess. Still worried that no se's is a sign that I am not absorbing this drug, which is my only chance to beat BC.
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misszed - Welcome aboard the Tammi Train. No one wants to be on this ride but you have found a very supportive and fun bunch of ladies. We do tend to get wild and crazy but please feel free to jump in at any time if you have questions or need to share some concerns. We can be serious when we need to. Sending prayers up that you have no SEs. I have been on Tamox since Jan 5th and so far so good.
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Heftylefty what a beautiful pic!!! My skin is more on the dry side as well, but I didn't link it to Tamox......I just lube up in the morning and night and it seems to be a lot better......did you reas that was a SE???
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Good Morning Tammi Babes
Hey June - So glad you are able to get back on here more often - you have been missed.
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Sandee been missing you and the bras on the lawn is so funny.
misszed welcome about the tammi train. This is a fun and support group here.
Hefty Lefty welcome about as well. I don't know if you had rads or not. but I notice my skin being very dry towards the end of rads and it took awhile for it to go back to normal, and I drank tons of water. Now tamoxifen has messed with my hair and nails something terrible. I am now taking 5000mcg of Biotin and it is helping. But tamox could very well be messing with your skin as well.
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I already need it to be Friday. I have been way to busy at work. but that is just me I want to get everything done right away.. Drives me crazy to wait until the end. DH was like you have until Thursday for the banquet and I am like yes but I want everything done today so I don't have to worry about it later in the week.
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Very light week this week, thanks Jo as I have missed you as well.....
Sherry I too think Tamox has messed with my hair and nails. My nails are so brittle and break down so low they hurt. As for the hair I am constantly having a very bad hair day as no manageability lately. I think it is thinning out as well.....
Tink where are you??
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HI jUNIE.. I am here flying aroud lol!!. so good to see you on here! started back on the treadmill today. felt good taking it slow though and building back up. I have an ice cream date with a good friend of mine so I am headed out soon. hope you are enjoying your day too
Hi all.. and hugs to all my favorite ladies
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Thank you for the compliment, June. Yes, I did read that somewhere but I have read so much in the past few months, I am not sure where I got the info.
Sherry: No rads for me. Tami is my only treatment. The dry skin is much more intense than it ever was, and I am drinking a LOT of water - more than I ever have.
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June I do think the biotin is working. My hair was thinning I think it has slowed down some. On my nails they became dry brittle and ridged. But I can tell on the new grow that it looks much healthier. I find that if I keep nail polish on it helps as are splitting very badley. I hope when the new grown gets to the end it will be much better.
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Hi misszed and welcome. The girls around here are a good group.
I have noticed that my skin has become drier then it every was. The only problem with me is I'm almost 3 months PFC, do I don't know if thats it or the Tamo. I think at this point Im gonna say the Tamo is to blame. I blame it for lots these days, lol. I sweat more now then I ever have. I know its hot, but I worked in a weld shop and never sweated this bad. Im so ready to be over the hot flashed thats for sure. Man o man am I ever.
Have a great afternoon and stay cool, lol!
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anybody had skin breakouts? that seems to be the only change for me after 1 week! my nails are normally brittle just because i wash my hands so much
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I am also taking 5000mcg of biotin and have noticed a difference in my hair - not thinning as much. As for the nails, no problems there - they are really strong and I have to keep them cut or they really bother me.
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Misszed - You were a few days ahead of me on DIEP and now 3 days ahead of me on Tamoxifen. I started Tamoxifen yesterday (the 1st). So far so good, but it is far from over, I probably haven't even absorbed enough it yet to do anything. I hope it breezes by for you!
HeftyLefty - My mother and my sister were both on Tamoxifen for 5 years. The only time either of them had a side effect was my sister. One week before she was done with her 5 years she had some issues (serious issues that hospitalized her) she just stopped taking it and the probelm immediately went away. I am far from being an expert (what - with my 1 1/2 days on Tamoxifen at this point) but I don't think that having a side effect indicates the effectiveness of the drug. It only means how your body processes it. Everyone has a different reaction to each chemo regime (my mom was hospitalized each time she had chemo, my sister didn't miss a day of work) and everyone will react differently to the other potent cancer drugs (Tamoxifen being one of them). I think you are just lucky! (I'm really hoping to follow in your footsteps and do the exact same thing)!
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JustLaura - I have been on Tamoxifen since Jan 5th and have had minimal side effects - ones that are doable. One being my hair was thinning - am taking Biotin for that and another being hot flashes - actually lack thereof. I do have a few in the evenings but am able to get a good night's sleep. I sure to hope you are SE-free.
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Juliet I have had skin breakouts that I have not had in I don't know how many years. I wonder if Tamox has made my hormones kick back in?0 -
HeftyLefty - I have been on Tamoxifen for 7 months now, and I was starting to get worried because I didn't have any SEs, either. I saw my onc around the 6-month mark and she said that didn't matter, that I should be happy about that. BUT, naturally about a week or two after my appointment I started aching in the weirdest places - like my achilles tendon, my forearms, and then basically all over. I even had a leg cramp the other night! Now I'm just hoping they go away! These drugs do such weird things and it's so different for everyone. BTW, you can ask for a test to see if you are metabolizing tamoxifen. My onc did one at my last appointment, and it said I was metabolizing it.
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Hi ladies,
Thought I's stick my head in to say hi. HI!!!!!!!!!!!!!!!!!!!!!!!!!
Haven't been on in awhile so I know I am out of the loop and I apologise for not having the patience to read back over the last month. Wow, it's been a month. Shame on me.
I have been dealing wiht a fractured rib, which lead to an xray, which lead to finding something on my lung, whci is leading to more xrays and tests. Geez, don't you just love cancer? NOT!
So I need to hear happy stories and get some of Jo's food. Yum!!!!!!!!!!!!!!!!!!
I am totally enjoying life and not sweating the small stuff. Well for this week anyway.
Happy Tuesday to you all xxxxxxxxxxxxxxxxxxx
Jules
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Jules - So glad you popped in today. You have so been missed. Food? You want food? This is my favorite comfort food - hope it is one of yours too. Thought I better bring enough to share.
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Thanks Jo. I have decided that I will try the tamoxifin and see how I do. For my issues it seems like a better bet and the long range effects are more well known than the newer drugs. What seems sad to me (among so many other sad cancer related issues) is that my MO said that my chances of a recurrance for 10 years is l7% without a drug and 8% with a drug. That still isn't that low for stage 1 grade 1, in my opinion. Both the surgeons that I first saw said that this wouldn't kill me, so I would have expected it to be lower, but I guess not.
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Ruth - It seems the decision to take Tamoxifen or not is a hard one. Different MOs come up with different numbers for recurrance - hard to know who is right and who is wrong. Bottom line - taking Tamox is like an added insurance policy and it really is a crap shoot. It comes down to this - it is well known that the benefits are well documented and it is available. When I got my script for it - I did not even give it a second thought. I went right to the pharmacy, got it filled and put it with the rest of my pills and supplements. This was even after I had tried Arimidex and Femara.
You are going to do just fine.
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Jules.. keep is posted please on whats going on ! we are here for you hugs!
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hey jules , are you really from swansea? i'm from newport! here's hoping for clear scans, hugs
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Hey lovellies!! thanks for missing me while I was gone!!! think the computer and my positioning is really adding to the shoulder pain as it was not there all weekend (and I didn't check email once)....have to sort out an appropriate chair and height etc....
I am going to go get my camera now and see if I can post a picture or two....hilarious....I, of course, thought of this thread and th ebosom buddies paddling team and thought...PERFECT!!!! there was a bra for every size! Carol's daughters were not impressed but the rest of us laughed for hours!
welcome newbies....the biotin does help. I noticed my nails were peeling and britle the 4 months I was on tamoxifen ..glad things are back to normal now that I am off it!..instead, I am bruised like a banana from the plavix for my heart....not sure which I prefer....I refuse to not wear shorts because of it and I guess that means my blood is thinner and won't clot now but holy dinah!!
hugs to all!!
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Jo, I can always count on you to make me feel better with the comfort food.
Tink, will do. Not worrying as much as I thought I would. Just taking one day at a time.
Juliet, yes, I'm a real Swansea girl! Newport, small world. Are you currently in Newport?
Oh, they've put my leg/feet cramping down to restless leg syndrome. Anyone else dealing with that? I know it isn't due to the tamox as it started 4 months into chemo.
OK, need to sleep off Jo's pizza
Jules
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no jules living in fl! they keep having this funny white stuff on the ground there ! going home the end of the month so brains sa might be in my future definitely some cockles though, will after to stock up on my tea and chocci julie
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Hi Julie
I lived in south Fla for years Ft Lauderdale area, which part are you in?
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OOHH!! I will be coming to Florida in September...Tampa for two days and thinking of going to Miami and the everglades for a day or so beforehand...those of you in the region, what would you recommend seeing? (and is there a group to paddle with for a night while I am there???)
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