Bottle o Tamoxifen
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Oh darn I was hoping that I wouldnt get the answer that I did. I do find myself going with the flow and it sucks. I remember when it wasnt that way at all. I do want it to let up some. I want to get back some of what I lost before cancer. Im still young enough dang it. Oh well I guess I'll just have to suck it up and be a big girl about it. It still sucks though, ugh!
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Paula don't give up as I lost my drive when I first started Tamox and then many months into it I felt numb down there, no matter how long or hard he tried NOTHING!!! But let me tell you now it is 1 year and 4 months later and I feel better than before......every-ones body acts differently, but I thought my sex life was over and it is so far from the truth. Been married for 12 years in September and my husband is ALL over me, all the time and he looks at me like we first met, so maybe that has something to do with it....ha ha.....good luck and hang in there, I swear it will get better...
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Oh I will be MIA for a few as I am heading back down to the Cape to celebrate my little man turning 8 tomorrow. Will tune in sometime next week.....love to you all!!!
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June have fun at the Cape. Wish I was joining you.
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June ~ have fun !!! Happy birthday to your son.
Sex drive = zero HERE. None. And hubby wants it several times a week. So I too go with the FLOW. I am definately drier down there and the skin thinner sometimes it hurts. I am famous for saying "don't hurt me" that will really ruin the mood.
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Ladies!!!!! Nooooo. Take back your sex life. A lot of it is in your head. Yes, yes, I know it's in the body parts, too, but 1/2 of the game is in your head. Try reading passages from a sexy, hot book out loud to each other, trade massages, cuddling, date nights (at home or going out), sexy gifts to one another just like when you were dating,write love letters or watch a nice romantic, sexy movie - alone or together. Or just do something together that you both enjoy. I think you might be surprised how you can get back in the game with some effort.
This kind of thing happens even without BC! You get older, you are married for a long time, kids, jobs and other priorities start to take over your life, menopause symptoms start kicking in, and phew, who's got time, energy or desire?? I am telling you, it takes effort. As far as the physical impediments, there are products out there to help with that. Talk to your doctors, they will know what to recommend. Really.
It has not been easy for me either, but I refuse to allow BC to take away one more thing that I enjoy! For me, intimacy is just too important a part of the relationship to allow that to become a casualty.
Don't get me wrong, ladies, to each her own. I just hate to see any of you letting go so easily that part of your life if you truly enjoyed it before bc. BTW, since it is hard to determine "tone" in an electronic communication, please know that my little rant was meant to be light-hearted - -
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Alicia.. I hear mine too, like he is freakin 20 again!!! geez i just want to lat here and watch HGTV lol!!!
June have a great time and happy bday to your little guy!
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JustLaura & CML: I, too, have a very similar diagnosis to both of you. ILC, 9mm, 0/5 nodes, ER+/PR+, HER2-. I am also taking Tamoxifen only as my treatment. JustLaura, I was even diagnosed 5/5/11, around the same time as you. The ILC diagnosis threw me for a loop, especially since my doctors had me "under surveillance" for 6 months prior to my diagnosis: they saw something suspicious on a routine mammo. Had a follow-up U/S then, MRI. Come back in 6 months: It was seen more clearly on 6 mo. follow-up MRI. It was not palpable to me or any of my doctors. I call it the "stealth" breast cancer. I feel very fortunate that my astute doctors / pathologists found the needle in the haystack.0
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Ok girls having problems with dryness use those lubricants. I will have been married for 24 years this coming Oct. As I said earlier I had a hysterctomy that caused me to have dry vaginal issues. I found lubricants to be my best friend. As for me I think now that we don't have kids in the house any longer and it is just DH and me we spend alot more intimate time together. When the weather is nice we just sit outside after dark and talk and talk. Then last leads to him saying something sexual and before you know we are in the bedroom. It was much harder when I was trying to keep up with kids, I would fall into bed at night exhausted and that was all way before BC.
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These threads are so timely for me. Thank you all for sharing so much. I started the big T on 6/10 but only took a half-dose for a month. I was such a chicken, I wanted to see what it would do. Had a discharge, mild flashes and leg cramps the first day (and ever since). Started taking the full pill a month later. Many more hot flashes - I relate to those of you saying hot flash, chills, hot flash then chills. Oh well, I'm getting used to it. I now even look at the pill - as my life saver. I sure hope it does.
Who had the pocket air-conditioner? I need one of those!!! That and to find a nice fan for my pocketbook.
Then those of you talking about side effects - I am the same, I feel nothing - and I hate it. It feels like an out-of-body experience. My DH is being kind and I'm trying to go with the flow... but I want my life back!. I think part of it is in my head, and the other physical - because of dryness it is painful. I've tried lubricants but they are too thin. I saw the oncologist this week and he said there is an estrogen cream that he approves of - so I will try that.
To add to it, my DH started taking testosterone shots! Oh the irony of it all
. He's loading up on testosterone, I'm taking an estrogen blocker - go figure!0 -
Thanks all for the input. I am just so tired of all of this. Heck I was enjoying the time of my sex life. We have always had a very active sex life even with the kids and work. I guess I was a big ole horndog. The problem is now thats gone and I miss it so. I know that removing both my breasts was my choice, but cancer wasnt. I just miss alot of what we did because of it. My husband is my soul mate and we never ever had to try this hard at sex. Heck we gave do it like rabbits a new name. I guess what Im trying to say is I dont like the just do it I wanna be part of it and it sucks. Ok enough of the whining. Thanks all for your help. As always I will get thru this somehow, because Tamo will be in the picture for a long time.
Caroline Hi there! Wow and I thought I had ot bad. I cant even imagne what you are going thru. Its gotta be like having a teenage boy on your hands.
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Paula - There are some many things that this damn disease has taken away from us and I know it is frustrating. I hope you can at least find a happy medium.
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JOOOO..HI!!! Its me your friend Tink... I havent made a request in a loooong time, i could go for something choclatey and sweet for dessert
just saying its been awhile 0 -
TINK - You are still a spoiled brat and I love you for it. How about this?
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Jo, OMG!!!! Tink, thanks for prodding Jo a litte!!!! 0
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Assuming you are sharing....?
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Looks yummy! n3ypb, I hope so, LOL!
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Absolutley ladies I am spoiled but not selfish hehe!!!
Jo you still rock and yes i am spoiled but WHO spoiled me huh???? huh???? I wonder
They are the perfect treat yum!
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Tink - Who me? Ya think? I do enjoy it.
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you do such a great job!
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yumo I love chocolate covered strawberries
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That a girl, thanks for share Tink!
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Tink - I try. Maybe a pillow fight tomorrow night ladies?
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That would be great Jo... I sure do miss those!!!! will you have more yummy treats?????
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Another newbie, scanning the threads with amazement and gratitude. I had surgery July 12th, no chemo, will start Tamoxifin AFTER 6 weeks of radiation. Did anyone else do it that way? Oncologist said it's not necessary to endure SE from rads and Tamoxifin at the same time.
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Welcome aboard SAB! You wil find great ladies and support here. I did not have chemo or rads, but your onc sounds like a wise doc. One thing at a time is enough!!!. we were diagnosed on the same day one year apart!. hugs!
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Yummy strawberries, thanks for sharing
....yes, a pillow fight sounds great!! 0 -
SAB - I had no chemo, 7 weeks of rads followed by tamoxifen. Started tami in October but have only taken 9 months of it. Was so sick with pneumonia that I forgot all about taking my meds for a month in June. This is a good place to come. Any questions any of us has, there is someone here to help or to guide us to help.
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SAB welcome! I didnt have chemo or rads either. I agree I don't think Ive heard anyone of doing the rads and tamoxafin at the same time. heftLefty I agree with you completely, I am so thankful mine was found when it was which is hard with the ILC. I was always fearful of breast cancer to begin with, and to have ILC that is hard to detect was even scarier. So relieved i was dilligent about getting checked and I had baseline screenings before I was 40. Otherwise,I wonder if we would have caught when we did!
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SAB I had rads and my RO told me to wait two weeks after rads before starting my tamox. Welcome to the group althoug none of us really want to be here, but it is a great fun bunch of ladies.
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