Bottle o Tamoxifen

Deb - On the advice of all the wonderful ladies on this website, I learned so much about lymphedema and injury to the radiated side.  I invested in a lymphedema alert bracelet - money very well spent - and do keep close tabs on my left side.  So sorry you had to find out the hard way that the lymphatic system is forever compromised.  Glad you got it taken care of.

June - Sweetie!  I hurt for you - can't believe you are still in pain and no real solution in site.  Sending good thoughts that you get some much needed relief soon. 

Hello all!  

I have been wrestling with some issues regarding tamox so I thought I would stop by and ask the pros!  Does anyone know if the major tamox manufacturers are able to use E464 in the US.  Does anyone know if Teva and Mylan are able to use that here?  Also, is there any collective opinion of Teva and Mylan?  

As for Nolvadex, how do you get it and how are things going for those on that?  Is that considered "top of the line" for tamoxifen?  

I am so confused but what is not confusing is my recently cracked molar and awful red rash on both forearms.  Research revealed Teva Tamox has a history of causing tooth problems. I was on Mylan Teva for the first 4 months and everything was fine.  My "mail order" drug coverage encourages use of them and they send these 90 day supply packages (I am sure none of you are a stranger to this).  In any case, through that process I was switched from Mylan to Teva and I have this rash and a number of other problems showing up just as I crossed the 90 day mark on Teva Tamox.  Conventional wisdom says get back on Mylan but I thought I would ask you all just the same.

Any and all opinions, information and tips are appreciated!  After the bmx and chemo, it seems as if we are left to drive our health bus and blind at that!  I don't mind being my own advocate at all but I am a bit chagrined and challenged by the lack of "cancer" doctors post-chemo.  You don't know where to turn with questions and even when you finally get a chance to ask, there are not really any answers.  

Please help me, girls!!!!  I need help with this tamox drama!    

Paula lol I can relate. My hubby swears its not the Tammy, but thelast few months it seems like I have been a bit lactose intolerant. Its horrible never had an issue before whats up with that??

Junie... extra hugs girl! I am so sorry you are still hurting. I am hoping you find relief soon Please let us know how your ultrasound goes. Ill be there being very good and quiet in your pocket... YES I can be quiet when necessary lol! hugs to you!!!

Lizzy sorry I cant help on that one I only take the Tamoxifen as well. I do hope you find the answers you are looking for though!!

Hi Jo...... miss you

Hi Sherry, Shari Linda Shipmom

glad to hear i'm not the only one who's extra gassy these days... been like that for many months now, sometimes worse than others....not sure what i'm eating that makes it worse sometimes...beef definately does, as does greasy foods, pizza hmmmm.  My family say's  i 've overtaken DH in the gas department.....not an honor i was especially looking for... and rather embarrasing depending on the circumstances....   I was wondering if it was the tamox, but did not see any posts on it,  seems to be a bit of a co-relation going on here though...maybe it is the tamox?

 I did try some acidopholis  (BIO-K plus  capsules are a really good brand) and that did seem to help for a while.. i don't take it all the time, just once in a while... perhaps it's time for another dose, to see if that helps.  I eat yougurt everyday, but don't think that's enough.

I'm very interested to hear how many others tammi babes have this problem!  

maybe  if they hooked us all to the grid , think of the energy we could supply and its unlimited!never mind natural gas co, we could be the tamox gas co.

Deb I cannot believe that happened to you.  You must have been freaked out.  I don't ever recall anyone ever telling me to be careful going forward of any injuries on that side of the body.  good to know and I am soooo glad that you are doing better and gave all us gals the heads up.....I miss seeing you on here. 

Chili - I have taken acidophilius on a regular basis for the last 3 years.  I had several back to back yeast infections and my gyn told me to get some.  This also helps out if you have to take any type of antibiotics and if you are like me - antibiotics tend to give me yeast infections.  I take 2 billion active cultures.

I am laughing at all the gassiness around here as I have that problem as well.  But I do know that it is the tamox because I was not that way before taking it and as soon as I started the tamox the gas started.  Usually it comes late in the day and the evening. 

Lizzy I looked at my bottle and my mail order pharmacy uses Teva Pharmacuticals for the tamoxifen.  I have not had anything happen with my teeth or a rash.

I would like to know that also Jo.  I want to be able to not have to take yet another pill to control this issue.  I've had enough of the pill popping!

June:  I did kind of freak out when this happen.  And the worst part was that I was up in New Hampshire alone at the time.  We were up for 3 weeks and hubby wanted to come back here for a few days to check on his parents, mow the lawn and do a few other things before coming back up.  So he left on Sunday and was coming back on Wednesday and I stayed up by myself with two of the doggies (NOT the two that had fought thus resulting in the bite!!!).  When I woke up on Tuesday with the arm in pain, I knew I shouldn't wait to go to the ER until he came back up the next day, so I went to the hospital myself.  What freaked me out was when they said they were going to admit me for the IV's.  I was by myself, the dogs were home alone and my husband was 3 1/2 hours away!  So they gave me one dose that day and sent me home with the IV set-up still in my arm and had me come back the next day for the next round of IV's. 

Just called the gyno and they are calling me in a prescription for 2 Diflucans for this yeast infection that seems to be going on.  If it's no better by the end of the weekend, I will be seeing them on Monday.  Yikes...all from a tiny little dog bite!  I learned my lesson...the hard way!!

June - What a mess you are having to deal with.  Maybe we need to take the cysts and stones and throw the damn things in the fire. Wish I could come up there and give you a great big hug.  

My hubby would like to have sex more often but when the hormones are taken away the estrogen level goes way down and frankly I could care less. 

Junie... thats insane! They shouldnt be making you wait any longer so sorry!.. hugs to you. Yeah they told us when my hubby got snipped the same thing I was like its gonna take a loooong ttime to empty lol... last thing on my mind first on his lol!

Please let us know when you find out whats going on hugs!

Hi Jo... been around My DD was sick again with a flu bug this week sinus infection last welcome back to school so been running around alot. Hugs!

Hello to all my dear Tammy ladies!!!

June - Can't believe you are going to have to wait until Monday.  I'm sorry - if it were me, I would be sitting in the friggin waiting room demanding to be seen.  That is totally insane.  Hope you hurry and get your period.  I have to tell you, once you go into menopause and stop having them it is weird at first but really nice later on down the road.  Hot flashes you say???? I was having them for 8 years before I stopped having periods so it made no difference to me.

Tink - Sorry Ali had the dreaded sinus infection.  My sinuses have been giving me fits lately too.  I am so stuffed up and have the darn headache.  I haven't been taking much since it seems everything is a no-no with Tammi.  What I need to go is get off my lazy butt and call my MO to see what I CAN take.  I would probably feel soooo much better. 

June:  Did they tell you if the cyst was solid or fluid filled? A few years ago, I had 2 cysts...one on each ovary.  The one on my right was solid and the one of my left was fluid filled.  They could tell from the ultrasound that the solid one wasn't cancer, but since it was solid, they removed the entire ovary.  The fluid filled one probably would have gone away on it's own had I gotten a period, but the stupid solid cyst was preventing that from happening, so while they were in there removing the right ovary, they took just the cyst off the left side.  Old Aunt Flo came back within 2 months after the surgery.  The surgery was very simple...done laproscopically (sp???).  You can PM me if you have any other questions about it. It just sucks being a girl sometimes!!!!

SO aggravated as now the OBGYN says this has nothing to do with a cyst.  They say it is too small to cause problems and now want me to see an urologist....WTH!!!  I am so friggin frustrated I cannot even begin to tell you.  They also wanted me to make sure I was not pregnant (ectopic), so I went to the store and got a test and negative it is......so now my next call is to my urologist and see what he has to say.  Cross your fingers ladies!

Hope everyone is doing better than I this evening, and thanks for all the love and support each and every one of you give to me!  Love you all!!!