Illinois ladies facing bc
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Robo....can anyone really handle TWO Tina turners?
Lmao Lago.... I just literally laughed out loud "I'm a real post ho". Ha ha...0 -
Madismom - What a great picture of you with your DD and DM. Your daughter is adorable with her band-aids under her eyes - very tough!
tdbear - Great to see you again. I hadn't heard of Casting for Recovery, but I just looked it up and am now very intrigued. I love to fish and have always wanted to try fly-fishing. I love the idea that it combines the post-op exercise movements with casting. Did you do a retreat? I'd love to hear about it. I'm sure there's a long waiting list, but perhaps I'll apply for one of the upcoming years.
mdg - Barring anything unforeseen, I am going to try and go to the dinner downtown Friday and I will be driving. I'm in your area, so if you (or anyone else in the area) would like a ride, just shoot me a PM.
Speaking of downtown, a friend of mine took me to Chinatown for lunch today. Some of her family members are owners in one of the restaurants there. We feasted on way too much yummy dim sum and chrysanthemum tea. I brought leftovers home, which I'm still snacking on.
Hoping to get this drain pulled this Friday. It's starting to get on my nerves!
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Rene: Madisonsmommy and I are taking the train from Geneva. I will be on a time crunch waiting for DH to get home from work to leave DS with. Care to join us on the train? We are leaving at 5:37pm. I can't go any earlier.
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In honor of our girls with no hair, I am changing my avatar for the month of October to my one and only bald picture. No doubt it will confuse the heck out of you when you meet me on Friday as I now have a mop of dark curly hair that shames most poodles. lol. Note: Finished chemo last February.
And to any and all LURKERS out there, jump on in. We welcome you with open arms and would love to get to know you. Love, Onward
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Oh, just in case there is doubt, I am the short one. : )
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Rene what restaurant? I love dim sum (husband does not).
BTW if anyone new decides to come on Friday just let me know so I can add to our reservation. So far I have 14 yes and 1-3 maybes. Reservation is for 15.
Hope all the gals in treatment are doing OK on this rainy day.
Those of us on the estrogen sucking drugs… don't ya just hate the stiffness that comes with cold wet weather. Now my shoulder/neck is bothering me from the accident too. Seeing my GP on Friday. I really don't want to go back to PT.
Laura hows the job search going?
YEDA!
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Onward....LOVE the avatar pic and that you posed for a bald pic....I'm not sure I'll be that brave!
I'm SO looking forward to Friday night....what a great way to end my week!!! And yes, Maria and I will be late due to there only being one train we can take with our schedules but we'll be there....hopefully by 7:00!0 -
Madismommy: Make sure you take one of yourself. You dont have to post, but when I look back at that picture, I am always shocked. I really dont remember it and now I look at it as a badge of honor. Yeah, I got through it and no matter what I am going through today, I will get through that as well! It's been said before : Illinois girls are tough! Cant wait to meet you new girls and if your good, I'll let you run your fingers through my "poodle hair!"
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Good morning. I was looking forward to "chemo curls" but mine is stick straight and wussy. Oh well, at least it grew back! I am looking forward to Friday.
Laura- Changed my mind about Vegas.
Lago- Yep, hate the crotchety old lady joints!
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I forgot about magnesium! And I am hoping all this new pain is due to change of weather. My wrists hurt too. Got rather depressed last night with all this. Was wondering...is this it for the rest of my life? Snapping out of it today! I am a mess. I left my phone at a store at the outlet place so I have to go back to get it (just over the border in Wisconsin). It is not easy being me and to be frank....ME BETTER GET WITH IT PRETTY SOON!
Have a great day girls!
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Hi to all.. have been reading along just don't have much to 'add' lately.. this stuff is just kicking my butt some days.. then I feel better for a few then I get treated again.. but tomorrow is last of this three week series.. then off to Boston next week with my DD!! I am SOOO looking forward to time with her as she's just too busy and I don't get that time with her.. should be feeling better by then to actually enjoy it.. I am having a very weird se that NO ONE has heard of.. I have sensitive to the touch arms.. like I can't even put on or take off clothes at NIGHT.. it's better by morning.. and shooting pain into my hands..
Went to Indiana last Fri... there are some good trial options for me.. and he's just an amazing dr who spent over an HOUR talking to me!!
Hope you all have a great time on Fri.. I really can't make it this time.. but will do my best to be there for the Holiday lunch!!
Marina
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(((HUGS))) to you Mak.... i hope you start feeling yourself again soon!!! Have a great time in Boston....sounds wonderful and just what you could use!!!!
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Good morning, Haven't checked in lately, but have been keeping up on everyone...(as Makmak said, nothing to "add"). I go this afternoon for my Zometa and Faslodex and I'm dreading it because my port has been unco-operative for the last two months. What should be a fairly quick treatment, ends up taking 3 hours or so. They end up getting the port to work after letting the Heparin sit for a few hours, but in the meantime have to use a vein to get the bloodwork going, since that needs to be done before treatment. The vein thing is a real joy since none of them can find a vein. End up having to get the port to work, since they can't do an IV (for the Zometa). Pet scan will be done 3 weeks from today and we'll see where we are at that point. Think I'm about ready to call it quits at work (go on disability), but don't know how we'll make it. I carry the insurance, and the cost of carrying that (Cobra), will kill us. Seems like most of my check goes to insurance as it is. My boss said that he hopes I can give him enough notice so that there's time to train someone. That comment about sent me over the edge. Keep in mind that one day that I missed because of treatment they had 3 people working on various parts of my job and when I came in the next morning it took me 5 hours to get caught up (and to try and fix the mistakes that were made). The back and hip pain is only somewhat controlled by 2 Vicodin in the morning (that starts to wear off by noon). When I get home I can start to take the Morphine and Xanax, then sleeping pill later. Still didn't get to sleep before 1:30 a.m. last night. Sorry to have carried on for so long here... Thanks for listening... Hope everyone has a good day and a great time Friday night!
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Marcia don't get me started on health insurance and health costs. It angers me that you have to make choices like this. As far as your boss… just smile and say "I understand" then do what you have to do. Of course you would want to be there to train but if you can't you can't. It's his problem not yours. Sorry about all the pain. ♥
makmak have fun in Boston. Eat some clams for me. Nice that you are ending this 3 week series. Is this sensitivity thing sounds like what shingles feels like (although I know it isn't shingles). Certainly sounds like some kind of nerve thing. I hope they can figure that out.We'll miss you on Friday ♥
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(((scrap)))
(((mak))) Have a great time with your girlie!
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Onward-it was great to meet you last night! I will no longer be a lurker.
Lago-I am planning on going to the dinner on Friday. Can you please add me to the reservation? I got the details from onward. I am also triple positive and am looking forward to meeting you!0 -
CHmom you're in. BTW looks like you were only a few months before me with diagnosis/treatment. We're almost twins. Can't wait to meet you too!0
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Well, I got my phone back and slipped out of the slump. I just felt such a terrible sting, Marcia when you told us what your boss said about training someone. He (she?) probably did not mean to say anything so hurtful, but that hurts. I faced a bit of that when i tried to go back to work. They already had someone being trained as they assumed I would be out for much longer. I remember meeting her....adorable and young and actually a real sweetheart. She commented on the jacket I was wearing (military style) and I later realized the message I was subconsciously giving. I was listening to country western on the way to Wisconsin and heard this great song about a woman with cancer with a good and supposrtive dh or bf. I will try to get the title and send it on.
Mak, have soooooooo much fun with dd in Boston. I love traveling with my dd.
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Zap....the song is "I'm gonna love you through it" by Martina McBride.....I'm a big country fan.
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Bingo, Mad, that is it!
I love country too, especially in the car zooming along. My grandchild (only four) loves Taylor Swift and can sing some of her songs from beginning to end with a country girl attitude.
Maybe all have heard this, but still nice to hear it again.
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CHMom: So glad you not a lurker anymore. Although it was quite rude of me to push you that way! lol. Welcome, Welcome, Welcome. This is the place for all the "cool girls" to meet. Cant wait to see you all on Friday. Let's have a no rain day please. Onward
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Welcome to you CHmom. We are glad you are no longer lurking. It's a very nice place here.
Sbook....the job thing wow
Susan....at least you knew where your cell phone was. I lost mine a couple weeks ago and have no idea where......and no idea where to start looking around here. I really wasn't too good with using it....but of course, now its gone.....I find all the time I'm feeling the need to use it....even if only to let Dh know I'm on the way home.
Went to work this a.m. and got off at 6 p.m. Its ok though......A little crisis going on but it will soon resolve and I'll end up with a better schedule. All things given time work out usually, but it is difficult as I'm not used to the long days anymore.
Though I like a big variety of music ( anyone heard of Zamfir....hes one of my favorites ) I usually listen to C & W. Just grew up with it.
Need to go put a meatloaf in the oven. See you all later. I'll find a quote later.
Hugs, Jackie
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Okay, Jenn, you have me now! I JUST LUV COUNTRY and it is so cool that you do as well. There was another song I heard that got me going.
http://www.youtube.com/watch?v=6xSGLZd9Vg4
I gotta meet up with you, Jenn, CW lover, but Friday will not work for me. Definitely the Holiday Party BJ is planning.
Jackie, I brought chocolates to the people who "kept" my cell for me when I left it behind. I use it rarely but I need having it. The rains were so bad when I went to fetch it and I kept thinking that I need a cell should I have a problem. I have a very cheap one but it keeps me feeling safe. Get another so both you and Denny feel safe together when away!
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Makmak -- I'll be in Boston too this weekend, with my twin daughters. Family time for us, visiting my brother and his family, and all my cousins! Will have my own little BC support group..... when my aunt and cousins get together, we are all survivors... my aunt having been diagnosed at the age of 26, and she is now 74!!!!! Three other female cousins (and that's all of them, on the maternal side) all survivors between 5 and 20 years out! Should be a great weekend... wish I could join in on Friday night, but I don't think that it is in the cards, the twins and I catch a 7am flight, ouch!
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I couldn't load your 2nd YouTube...
sometimes my i pad doesn't cooperate though.....I am planning on coming for the holiday lunch!!! I'll be only 10 days away from my last chemo then, so BIG time celebrating!!! . Im a huge country fan....I like all types of music but country is my biggest.....Kenny chesney and brad paisley are a MUST see concert every year and my daughter and I just saw Taylor Swift, she's a huge fan like your granddaughter!!!
Lisa....I wanna go to Boston and meet your family of BC survivors!!!! That's incredible, almost 50 years out!!!!!!
Jackie....I hope you find your phone.....that would drive me bananas!!! But, it's one of my lifelines....LOL
Welcome CHMom.... adey's right....gotta come game hang with the "cool girls"
I went and priced my new "bling" tonight.....to have my wedding ring and engagement ring reset in white gold exactly as it is now will cost 1200 bucks....and than to add a second band opposite my wedding band with the identical setting of diamonds another 800..... I drop it off next week!!!! YAY!!!! but, I have to go without my wedding ring for a whole month....BOO!!!! I even wore it when I had my daughter, the whole time....the only time I've had it off is my damn mastectomy....they made me take it off right before wheeling me in to the OR... A month is a long time.0 -
Adey.... forgot to tell you.....I was hoping for curly and red hair for being so brave and doing chemo and yep....I got my same, thin, fine, mousy brown. The real bummer is that when it first came back....the pigment was held up a bit and I thought my new color was grey.....so it wasn' the bummer it could have been. I don't color my hair as yet.....so guess nothing much was harmed....still have to get perms if I want any amt. of body. Yes Gilda Radner....it is always something.
Hugs, Jackie
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Hi, IL ladies, I had a port put in yesterday, which went fine, and then first Herceptin today. MO wants to wait to start TC until next week. I read some stuff about cell phones above. When I got home from my first infusion today I lost my cell phone. I had to call myself on the land line. I had dumped my cell in the garbage with my snack trash from the doctor's office. Then I took a long nap--guess I needed it! No other SEs besides senility!!!
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You can't control the outer circumstances of your life but you can control how you react to them. That makes you dominant over circumstances.
~Anonymous0 -
Good morning everyone....ok, long work hours dilemma seemed to have gotten help last night. I will go early this a.m. to check out the new person and see how things are going. Will be nice to go back to the 'regular' schedule --- the one I wasn't sure I'd be on.
I will be doing something soon about that cell phone. Have to totally empty my car and see if it fell out in there somewhere. I will probably never be too good with the thing, but have to admit....there is a great feeling of safety when one is resting in your pocket so I can't let this go on too much longer.
Lisa....I forgot to tell you.....what a boost to the morale to hear your personal family "survivor" stories.
Best get going.....I'm sure there are other things I've forgotten to mention from last night when I was not sure who I was, but so enjoyed reading everyones' posts.
Nancy Jill....welcome to the world of uh.....uh....well senility. There are no strangers here. Only stories we can't remember. It will get better or like me you will learn not to care too much.
Hugs, Jackie
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Good morning everyone - thanks so much for your support!! I thought it was going to be a long afternoon at the onc office, but I was wrong. Had the nurse that I don't usually care for, but everything went well - yeah - my port worked!! Still dealing with this work thing, but I'm going to wait till I have my pet scan and see the onc next month for the results and see where to go from there. Last results were considered stable, but when I asked for a copy, I could see that the SUV number in the hip had gone up -don't know how much it has to change to change from stable (?) I've been at my job for 27 years (and still waiting for that party for 25 years...). Wouldn't bother me so much except that we made a big deal before for a woman here who worked part time for most of her 25 years! He hasn't figured out how to treat people fairly (equally). I would like to leave on good terms, since I think he'll help out with insurance costs while I wait for disability. I've been leaving about an hour early for quite a while, but work is done before I go, or I take care of it in the morning. They do have to answer the phone though - hope they can handle it -not really but that's a story for another time. Haven't used any "vacation" time since this whole cancer thing started (took off for lumpectomy, etc) - 3 years. Taking off at least a day the end of next month and I'm too chicken to even mention that!! Oh well, guess I should get back to the grind. Thanks for listening!! Hope everyone has a great day!!
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