Bottle o Tamoxifen
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Tink, if I'm at all typical shedding the skin dosen't turn us into butterflies. I must shed mine at least once a month and all it has done for me is turn me into an old crow! lol
edited to add - but then I'm years and years older than you!!!
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kjackson what a ride you have been on. I love your post though and your sense of humor. sometimes I feel like the keystone cops...which way do I go, which way do I go?
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Chabba.. I dont believe it, you must be a beautiful butterfly!
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kjackson-dang, what an adventure. Life can be like that, if it isn't one thing it's another. Hang in there sister. Good news about polys, is once their gone, the threat is gone, just have to have your screenings more frequently
Panmar-no SE from Effexor, could not handle this crap without it, plus it's an antidepressant so it helps with the mood thing as well.
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Hi, Everybody! I've missed you! It's been about three weeks since I've been able to get near my computer and I missed so much! I won't even try to catch up, just read the last few pages and it's nice to hear from all of you. Welcome to some of the new ladies. This is an odd way to meet, but a very nice bunch of women. I love coming here to say all the things I can't say anywhere else.
I've been busy with family visiting, holidays, cooking and work...too busy to think about much. Also too busy to have many dr appts, which has been nice. Now I've got to go back to it, but at least I had a break.
I've decided to have the oopherectomy and am meeting my GYN on Monday to schedule. Can't stand the Lupron shots any more and at age 50 there's really no reason not to do the surgery. Have to do one or the other as my ovaries respond to tamoxifen by getting hyperactive and pumping out too much estrogen. I was hesitant as the surgery may be a bit more involved due to my having had a hysterectomy in 2008, and there's scar tissue, but dr has reassured me that it's doable. I'd love to
hear from any of you who've had oopherectomies, how you were afterwards. Bad hot flashes? How long did they last? Mood swings? The hot flashes and mood swings on Lupron are intense. PMS squared. Hope this is helpful. Good news is that it's more absolute than the shots. I'm a bit nervous about yet another surgery and also losing yet more body parts (I joke with DH that this is my new weight loss plan...) but just want to do it and get it behind me. Wonder if I'll still be able to stay on tamoxifen. I think yes, as my onc said five years, even while on the shots. I'd like to stay on it as annoying but tolerable and I think I'd benefit from maximum time on tamoxifen and then max time on an AI.
Anyway, hope you're feeling better, Sherry. Regards to all,
Shari0 -
kjackson welcome and you have been through it for sure. This is a great group of ladies here.
Shari it is nice to hear from you. Good luck with the ooph. I have been busy with Dr. Appts and mine are about over so I can go into breaktime thank goodness.
Tomorrow I go for my 6 month screening mammo and US. I hate this roller coaster. Seems like I just got smash the other day. At least I can see the light at the end of the tunnel with my BMX. Hopefully this is my last mammo.
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Shari - So nice to hear from you - sure missed you. Good luck with the ooph. I plan on talking with my GYN next summer about having a hysterectomy and ooph - just take out all the plumbing. I will be 57 by then and 4 years postmenopausal so I sure don;t need it or the worry that goes with it., The Tamoxifen brings new worries of its own - don't want to have to think about another cancer at that end.
Sherry - Okay! What time do we go for the mammo and US? I will be ready to jump in your pocket. You know I won't take up much room. I probably need to plan on bringing coffee and pastry if it is in the morning. LOL
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I hope your mammo and US go well tomorrow Sherry! I'll bring cookies for a snack if it's in the afternoon.
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I think your name could be "ilove" for short. That's my vote!
Off to take my first dose (I know, it's about time.) Will I wake up tomorrow with hair on my palms? We'll see.
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Hey gals my mammo and US are at 2:30CST we can leave a little early and have a party ahead of time. The snacks sound great
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Sherry - Halloween is just around the corner so I baked us up a batch of these for tomorrow.
Need the milk to go with them.
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Sherry, hope you have big pockets; lots of ladies coming with you.
Though these tests are awful and stressful to the max, you've been doing everything possible, including taking yummy tamoxifen since your dx, and as they tell me, being watched very closely! Deep breathing. We will be there with you.
All the best, shari0 -
Hi Kjackson - You really made me laugh out loud with your post, all the things you expressed in that post sum up exactly how I feel, " I'd pack up and move to a tree and live on bark! " loved that LOL. Seriously tho I understand your fears, I started my Tamoxifen about 4 weeks ago and so far so good, no really bad SE, ovaries are sensitive and I can feel them, initially for the first few weeks my emotions were all over the place kept crying etc but thats calmed down, some joint pain but not all the time, hot flushes started with chemo and have continued with tamoxifen, no periods since april this year, hoping the flashes will calm down. I too was thinking about starting the antidepressants but I think we need to give our bodies time to adjust to this drug, my onc told me a couple of months of taking it and it will calm down, so if things are no better or I am feeling bad in a months time I will go and get the anti depressants.
Hope you are feeling ok and tc.
Love and light Sarah Sweety xxxx
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Sherry... count me in I am flying over!!! and yah Jo is bringing cookies
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OK Im pretty much a simple kinda gal and I dont do much but work or church. So I was super excited to book my daughters flight home for a visit. OMG what should have taken a matter of 10 mins took almost 1.5 hours. By the end of it I wanted to go on a crime spree just to let out the stress. It was not a very user friendly site. Lets just say it was easier to learn how to weld to pieces of metal together then book a flight on the computer, but my sissy is coming for a visit,YAHOO!!!!!
Shari its good to see you! I hope all goes well with the ooph. Let us know when you are having it so we can come along for you!
Sherry I will be along to jump in your pockets with an after testing drink!
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sgreenarch, had an ooph 6 weeks ago. Not too bad, except the incisions became infected, so that prolonged recovery. Not too many hot flashes, maybe 3 or 4 a day. Once in a while, they are intense, but not unbearable. I am still on tamox, and will probably stay on it. I feel a lot better without the ovaries, no pms, no mood swings. It's nice. I'm glad I did it.
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KJackson - holy cow! You have been through it - i love your sense of humor, I laughed out loud reading your post. Welcome and stay in touch. Seriously though, sorry you have had to face this blasted disease again.
I've kindof been lurking lately. Had my 6 month follow up - all is well, what a relief. Does October make anyone else cringe? I think because I try to live in denial that this has actually happened to me (twice) that I really hate seeing BC every where I look !!
Has anyone struggled with depression? I started taking T in June, i've gained almost 10 pounds and i'm turning into a bump on a log that doesn't want to do anything. I hate the weight gain and hate to admit that i might need to take something and I'm afraid that taking something else will make me gain more weight? Maybe i just need to join a gym. Seriously though, I'm not sure how to shake this and I don't want to tell anyone. Anybody else struggling with it?
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Welcome newbies hate that you have to join us here but these are great sisters with lots of support.
Thanks all for going with me today. It was not such a great day. Mammo went fine and then I had the US and when the tech came back and the radiologist was following her I knew I was in trouble. I have a 7mm mass in my rt (good) breast. We talked and then he went back and pulled my MRI from last year to double check it and he said it was not there last year. He says it is solid like a cancer tumor but not shaped like one. So he tends to lean on the side of it being B9 but he said it has to come out cancer or not. He said it is very close to my chest wall. He was going to call my MO and then I have to get with him next week to see if he wants to go straight for a biopsy or get a MRI or what we are going to do about it. I wish I had enough tummy fat to go ahead with my BMX right now but I don't so not sure what is going to happen. Would really like to have only one surgery but I may end up with an additional one. I am actually not freaked out like I was last year but I am pretty angry about having to even deal with anything at all. Paula where are the drinks cause I think I really need one. You gals are great and I love you all what would I do without you.
Oh and I have to say God was taking care of me again today. At the last minute one of my girlfriends decided to ride along with me. She was the one that at Christmas last year I sat and balled my eyes out with her because I was so miserable in radiation. So it was nice to have someone with me she let me get pissed and then we went on talking and laughing like we always do. DH is being very quiet tonight. I think he is more scared and I am more angry.
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Sherry, glad you had a friend with you today. I don't know what to say except that i'm praying for you and hope all goes well for you. Keep us informed. We care for you.
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Sherry this calls for some straight up shots. You need a good stiff drink or two!
You will be in my prayers until your done. Take care dear one I love you!!!! 0 -
Morning gals....Sherry....Honey, I just read your post....I'm so sorry about the news.... But you know how to handle this, I guess.... What can we say.... Dangit anyway..... I wish I could just give you lots of hugs...((((little sherry))))..... You will be in my prayers...
Tink! And Jo! And Chabba! Good to see you guys too! I go for my 6 month Mammogram next month....Geez, I hate this... But all seems to be going along good! I only see my PCP now, and after this Mammogram, maybe only go once a year for a check-up. It's been 2 years that this all started. I wonder if I will still get Mammograms every six months?
Take good care...xoxo
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For you!
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Darn it, Sherry! I'm sorry you are having to deal with this. You've been through enough. Keep us posted on what you find out. {{{HUGS}}}
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Sherry - OMG! Sure hope the mass is B9. You have been through so much already. I keep telling you I have enough belly fat for both sides if you need it. I will volunteer mine - LOL! PLEASE keep us posted. Keep fingers crossed and will say extra prayers.
Chevyboy - Where have you been? Missed you and glad you are back.
Tink - How was the sub day at school? Bet it felt good. Details, please.
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Sherry: We're all thinking of you and sharing our group strength with you.
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Chevyboy so great to see you poopongin and hear youd doing well!!! thanks for the Tink pic... always puts a smile in my face
Sherry.. oh so sorry sweetie. we will all be with you when you have to go praying for all good things and b9 results. Please know I am thinking of you hugs!!
Jo..It was great! I subbed in preschool with a friend of mine since it was at the school I used to work for, and we had 4 years old. They were a hoot. There were 2 kids my friend said " ok now I will tell you all their name but 2 of them you will NOT forget because you will be saying them ALL morning " lol... she was soooo right bit it was fun. Such a different feel from when I was a first grade assistant but I think at this point of my life I liked it even BETTER!. I knew all the teachers in pre school so I felt like I was "home" like I never left only better because I got to leave after 4 hours lol! great day I fo back Mon with the same class!
Caroline.. welcome and sorry we had to meet like this. I have been struggling with mood swings and anxiety. I actually see a counselor who diagnosed me woth PTSD... which I am sure we all have a little of. I exercise every day and keep busy but if it every got to the point of that not working and pulling me up I would go on medication for it. When my moods are good feels like life b4 bc when they are bad oh boy.. if you look at me the wrong way I will burst into tears and I was never like that before... it isnt like that everyday so Im hanging in.... wishing you all the best..hugs
Hi Paula June Chabba survivor
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ooops... hot submit too soon
I was gonna say ana all my Tammy ladies hugs for a wonderful weekend!!!
Maria
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Hi, Guys,
Saturday night here and just turned on my computer and found all of your posts since Friday afternoon.
Sherry, I must admit I came straight here to see how your mammogram went. I'm sure this isn't easy for you, in fact going through something again just plain stinks, period. But there are a few things I want to say to you. One is that I went through something sort of similar in May. They saw something on my MRI and then did a guided US and it was there, too. They did a biopsy right then and there and I had a week of hell awaiting the results, which were, thank God, benign. The reassuring thing that the Dr said to me then was that even if it were to be something, we are now being followed so closely that whatever it was would be caught very early. This didn't sound like comfort at the time, but in reality, though a huge hassle, it would most likely be very early, treatable and less dangerous. For all of us now, i guess we have to keep the big picture in mind, which is survival. And BC is a disease that sometimes presents bumps along the way. My cousin had a recurrence a few years after her first dx, and she us fine now, four yrs later, having gone through it twice. Wishing you B9 results in any case. We are here with you.
I have an appt w my GYN this week to pick the date for my oopherectomy. Trying to just not think too much and plow through. For those of you who've had surgery while on tamoxifen, were you advised to stop prior to surgery? Not sure they'll allow this in my case due to my high estrogen level problem, but we'll see.
All the best, shari0 -
Sherry - so sorry you have this scare. I hope it turns out to be nothing serious. I had a finding on my follow up mammo on the good side too less than a year out, Mine was small and presenting like the big C and was IDC. So I had two lumpectomies within one year and two rounds of radiation. Talk about pissed. I was floored. I hope and pray your finding turns out to be B9 but if not, it is doable - it's kind of insulting to turn around so quick and face it again. The upside is the whole ordeal is not so scary when you face it the 2nd time around. Keeping you in my prayers for good news.
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Thanks ladies for all your support. I am praying that it is benign but if it is cancer it is small and I know can be taken care of. At least now I am alot more knowledgable than I was a year ago and not near as scared. Went to a pink ribbon luncheon today. Was not sure that was going to be a good idea when I was getting dressed but I had asked my mom and my girlfriend to go as it was a fundraiser for Relay for Life. Glad I went just hard when people where asking me how I was doing. Not ready to tell many people at this point. Just want to find out more details. I don't want my mom to know until I really have something to tell her. Dad ended up back in the hospital yesterday and she has enough on her plate right now. Don't know what I would do with out all of you here. You all give me strength.
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For you!