Bottle o Tamoxifen
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Pardon me for throwing this in...this is partly out of vanity and partly out of concern. So, if fat tissue produces estrogen, and weight gain is a side effect of Tamoxifen then it feels like taking this drug is sort of like spinning my wheels. I was wondering how many ladies gained weight on Tamoxifen? Is it water weight? Metabolism? How have you battled it? Has anyone found that diet/exercise changes countered the weight gain? I've already gone on such a strict diet that I am wondering if I will be able to eat at all! Thanks for any input. Susan
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well, I still consider mysel fa tammiwoman even thogh I have been on Arimidex for one week...holy dinah but it is a lot more expensive than tamoxifen....decided to only do a month to start since I was told side effects will moat likely be apparent in the first 4-6 weeks....and with insurance, that one month cost $39....add a $10.00 bottle of calcium and my vitamin D....(oh..and then the heart meds) and it becomes an expensive cocktail every day!! wow!!! but boy are we lucky the option is there hmm???? Sleep is a very elusive thing at the moment....no joint pain yet and getting my cholesterol checked on Monday so i have a base line...oy!
Thanks for passing along my name to Heather- we have messaged each other re. heartrelated stuff and tami
Sherry- hope you feel better!!
Saturday night....WHACK for good measure!
someone mentioned black cohosh earlier...I have read that if you are on tamoxifen, you shold avoid black cohosh so you may want to check with a naturopath.
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Well ladies my ride seems to never end these days. My dad was put in the hospital yesterday and he is not doing well at all. I thought we had lost him today but he is finally resting. I came home to get some sleep unless my mom calls. All my brothers came home and we have all been with mom at the hospital most of the day. Mom choose no ventalitor so it is just a matter of time.
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Oh, Sherry, so sorry you have all this going on. Our thoughts are with you and your family during this hard time.
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Oh Sherry I am so sorry that there is so much more you have to endure. I want you to know that you and your family will be in my prayers.! you are a wonderful person friend daughter and mom and we are all here to support you!!!!. much love and hugs coming your way! xoxoxoxox
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Sherry I am so sorry My prayers are with you and your family
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Sherry, so sorry for the pain your family is enduring right now.
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Sherry, so sorry to hear about your dad and all your troubles lately. My thoughts are with you.
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Sherry - thinking about you and praying for you. I'm sorry you're having to deal with all of this at the same time.
Susan - I've only been on Tamoxifen for 6 weeks so I don't know the answer to your questions. Since the stats on Tamox show a significant improvement in outcomes across the board, I hope we're not spinning our wheels.
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bcisnofun- So true about Tamox. I must believe in it, I am taking it! I'm very sorry if I threw a shadow on our treatment choices, and of course you are right about the outcomes. I was curious though, so I did some research and it seems that Tamoxifen is an appetite stimulant in many women. So there you have it...
I hope you are having a good experience with minimal SEs.
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SAB- I signed up with a personal trainer the day i started taking tamoxifen ...didn't lose poubnd sbut didn't gain during my 5 months either...and lost bmi.
Sherry- my thoughts are with you....riding gently on your shoulder and doling out hugs...
Sandee
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Hello my tammo sissys!!! It has been one busy weekend for this chic.
Sherry you are in my prayers and I have added you on paper so I dont forget. Just know that we are here for you so if you need to vent cry or hit someone, we are here. I hope your dad gets thru this
Have a fab night girls and know I love you all and Im glad your along for this ride. It sure has been a trip. One I didnt want to be on, but Im glad you all are there
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Hi. Just need to talk for a second with my friends who understand.
Went for a night out with the girls. Big group. First time since news of my dx became widely known in august. I've noticed that some women feel awkward around me, some even newly avoid me (do they think it's contagious? More likely just don't know how to act, though normal is what I'd like most.) We had two high profile deaths from BC over the last few yrs in our tight knit community here and I think women are fearful. They don't know that there are many women running around who are fine, and moving on. Some are constantly asking how I'm feeling? (fine, you?) Everyone means well, I'm just uncomfortable with having this new persona that people have such fixed ideas about. Do they even see me, or just the BC?
Well, movie night might not have been the best idea. First there was the trailer for a new movie about a young guy who gets cancer, and then the mom in the movie (The Help) has some undefined kind of illness that causes her to have thinning hair and impending death! I was uncomfortable during these scenes and pretended to play with an imaginary message on my phone but then thought, what the hell do I have to squirm about? tried to tell myself that this doesn't have to be my problem, but that wasn't working. I think that this is one of the lingering effects of this situation- discomfort at times. I imagine that this will, with god's help, pass, as time goes on. I know some survivors here who are no longer defined primarily by their disease, but it took a while. People see me out and about, exercising, working, in essence, acting normally. Wish they could see me this way. The fact that so many movies overdramatize this doesn't help either. I guess a movie about a healthy working mom BC survivor baking casseroles and doing carpool wouldn't sell as many tickets.
Thanks for letting me vent. Love you all, shari0 -
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Sherry - prayers, prayers and more prayers coming your way. I have learned not to pray for a desired outcome but for the strength and courage to deal with what we have to face. Let us continue to be a source of strength for you!
Vicky
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PLJ....Ovarian pain can definitely be from the tamoxifen. It used to be used as a fertility drug and for some people, (like me) it can crank up your ovaries and cause ovarian cysts. I was having terrible pain in both of my ovaries with pain shooting down my right leg and pain in my back. I would think you might want to go to your gynecologist. I've also heard of women getting headaches. I've never heard of the bruises but that doesn't mean it isn't related somehow.
If you google tamoxifen and ovaries, you should get some articles to read. It drives me crazy when the doctors say it isn't related when it is!
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PLJ, I had the bruising too, mostly on my legs. It went away after a while, but I must add that I was also taking a low dose aspirin once a day. I stopped the aspirin, and I noticed the bruising slowly went away. So it could have been just from the aspirin or the combo of that and the tamox. Not sure.
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PLJ...I did some googling and it does seem that the tamoxifen can cause bruising so something else I guess you'll need to ask your PCP about.
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my appetite has been enormous lately! I have to get up every night to use the bathroom too! Mood is sooooooooo flat. I tried effexor for a week but got these awful zaps in my head, so I stopped. I joined a gym and have been working out every day for the past month. The hot flashes were coming fast and furious and I think I am seeing a decrease. Still hungry all the time......Still a bit flat on mood and cry easy, but I am hoping the exercise starts helping there too. I have an ooph scheduled for next month.....can't wait for Oct to be OctOver!
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I have bruising too. I am not sure what is causing it but basically the only thing I do different since the bruising started is the tammy and vitamin d3. and a synthroid drug
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Sherry: I'm so sorry that you are going through all this. It's hard enough when parents are sick, but when you are dealing with health issues of your own, it makes it so much more difficult to deal with. My prayers are going out to you and your family. Please hang in there.
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Mrs. Beasley - I've been on synthroid for 30 years and have been told by doctors and surgeons that I "am a bleeder" and that's the reason. Good luck!
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Hi girls, I am hard at work, hee hee hee! When I first started the Tammi, a few weeks into it I noticed bruising on my arms and legs. I did find out this was common and after a few weeks they stopped.
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Hello all...
First & foremost, my deepest sympathy Sherry.You sure have a lot on your plate right now and I pray for you & your family....Sending heartfelt hugs ....
I am a newbie freshly home from the onco visit with my script for the wonder drug (Tamoxifen). Didn't run right to the pharmacy to fill it yet but will do so this weekend......Fingers crossed that my only side effect is weight loss ......tee hee
Guess we will just have to let the fun begin and hope not to look like Bigfoot in 5 years....
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Wecome Odie. I know that at the start pill splitting and taking 10mg in the AM and 10mg at night is what alot of us gals have done. It helps with the SE. I do know that after a few weeks I got tired of that and just took the whole pill. Good Luck and if you have any questions please ask someone around here will be able to help.
(((((Sherry))))))
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shari- I get you re. the HELP....I know I would not have been able to sit through it last fall...no way....this fall., I barely flinched...well...flinched a little.
My bruising is caused by the plavix I am on for heart but I know how disconcerting it is to look down and see a huge bruises on your leg...arm...wherever...very freaky....
I also get the weepy thing...and I feel like I cannot make a decision to save my soul...related to the heart? the year? the new drug, arimidex? ...seriously...no decision bigger han what I want for dinner andthen I make it and it sits there because I don't actually have an appetite....is all this normal??
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Hey all my tammi sisters out there. Thank you so much for your support. My Dad passed this morning. He had been very aggitated over the last couple of days. But last night became very peaceful and had a good night. I woke up early and got up and got dressed and went to the hospital on my way to work. When I walked in I could tell it was getting real close. One of my brothers had stayed the night and after the nurse came in I called my other brother who works at the wellness center at the hospital and told him to get over there and called my mom who finally went home to get some rest. We were all there when he passed and it was very peaceful. All my other brothers came as soon as they could. I am very blessed with the family that I have. No one fusses or fights and there is lots of love. We all helped mom take care of what she needed to do and two of my brothers are staying with her tonight. I called my MO first things this morning to let them know about my dad as we have the same doctor and he wants to see me first thing in the morning. So I guess I'll see what he wants to do about my new tumor. Don't know if he is going to want more test before biopsy or just go straight to biopsy. Makes me nervous that he wanted to see me so quickly. I am very spirtual and know that I have Jesus on my side so I have actually been pretty calm through all of this. Had my crying spells with my brothers but that is a good thing. We have also laughed alot today sharing all of our old stories and memories of Dad and growing up. I am the only girl with 7 brothers so they always say I was spoiled and got away with alot more. haha but I was my daddy's little girl. Thanks for all your love and support.
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(((Sherry))) Im so sorry to read that your father has passed. Im glad you have Jesus right there by your side, lean on him and often. He will get you thru it. Im glad you all were able to have the memories you have. Thats something that will always be there and thats the memories!
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Hi Sherry,
I will be joining the Tam-train tomorrow.
So sorry to hear about the passing of your father. God will get you through it. My heart and prayers are with you and your family.
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