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Bottle o Tamoxifen

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  • Paula66
    Paula66 Posts: 1,572
    edited November 2011

    Shari when is your surgery?  I need to make for sure with the time difference I can be in your pockets.  I hope it goes smoothly for you!

    In 7 days my daughter will be on a plane to come for a visit.  I cant wait.  Tink flap your wings like crazy so time will fly by, lol.  I cant wait.  I miss her badly. Im hoping that we can talk her into staying home.  

    Have a great day all!  My bro is coming up for a visit.  It'll be a good time.  Havent seen him since Easter and thats too long.

  • sgreenarch
    sgreenarch Posts: 253
    edited November 2011

    Hi, Paula. My surgery is Thursday, thanks. Its nice to know that youre thinking about me. I am trying not to be nervous, especially since this surgery is more preventative than reactive. First time Ive scheduled surgery not in a total panic. But i am having trouble sleeping and concentrating. Just want to get past it. Thanks. Enjoy having your daughter with you. Our oldest son is far away, travelling now, and i miss him like crazy, so I understand.



    Nbelvile, welcome! You might want to search the hormone therapy threads for Femara topics. There are lots of postings by Ladies who are taking it. I think most of us here on bottle o tamoxifen are mostly still on tamoxifen. But here for you in general. Sorry I dont know about Femara.



    Shari

  • Sherryc
    Sherryc Posts: 4,503
    edited November 2013


    Thanks all I have my post op appt Monday afternoon and am hoping she will have my results by then.


    Shari I will def be in your pockets on Thursday


    Nbelvile Jo on this site took femera but now takes Tamoxifen. Hopefully she will check in and give you some insight.

  • jo1955
    jo1955 Posts: 7,545
    edited November 2011

    nbelville - Welcome to the Tammi Train.  Sorry you have to be on this ride with us.  Sherry  is correct.  I did take Femara and was on it a week before I called my MO and said enough.  I had terrible nausea along with so many aches and pains I could not sleep and could not eat.   All in a week's time.  That was after 3 weeks of Arimidex and had the same issues.  I have been on Tamoxifen since Jan 5th and the side effects are very minimal.  In fact, since I have been on Tamox, my hot flashes are just fllushes.  I had some hair thinning but on the advice of all these wonderful ladies, I started taking Biotin 5000 mcg and my hair is growing back.  Perhaps a talk with your MO is in order.  Like my MO told me at one time, "No one should live in pain."  That is something he does make sure of.

    June, Tink, Paula and all you wonderful Tammi Ladies - Hope you all had a good weekend.

    XOXOXOXOXOXO 

  • June2268
    June2268 Posts: 926
    edited November 2011
    Hey girls I am going to share some sad news regarding Swanseagrl/Jules/Julie Day on FB.  She is in Wales, Uk right now to spend some time with family and friends.  She has been having problems with her ribs fracturing and then they found a spot on her lung, well it turned out that she had another fractured rib which flared some red flags and bottom line is she had cat/pet scan and showed mets.  They are trying to determine if she is still er/pr + or if it has changed.  She wont be back until mid November at which time she will have numerous test, preop/surgery/bone biopsy/possible rads and maybe the ovaries out.  So needless to say our dear friend has a lot on her plate and I know a lot of us women communicate with her on FB, but for the ladies who are not on FB, I just wanted you all to know that she loves each and every one of you and there are some people who know and some who don't.  So on FB, I would tend to keep in on the quieter side.  She does check her FB, if you gals want to message her.  I hate to be the bearer of bad news but she said it was ok for me tell you all and I know how much she means to you all......love you ladies and hope your weekend was lovely.
  • juliet62
    juliet62 Posts: 3,246
    edited November 2011

    please tell her she's in my prayers , from a fellow taff

  • jo1955
    jo1955 Posts: 7,545
    edited November 2011

    June - Thanks so much for the info.  Please keep us posted.  

  • chabba
    chabba Posts: 3,600
    edited November 2011

    June - Thank you for telling about Jules, I've been worried about her since she hasn't been on here for so long.  I'm not on facebook so please tell her she is on my prayers as well.

  • Paula66
    Paula66 Posts: 1,572
    edited November 2011

    Thanks June for the info.  I will keep her in my prayers. 

  • Sherryc
    Sherryc Posts: 4,503
    edited November 2011

    June thanks for sharing that.  I have been praying for her for several weeks.  I was devastated when she told me. I am so glad that she is in Wales right now visiting her family.  I know that she will cheris this time with them.

  • June2268
    June2268 Posts: 926
    edited November 2011

    Sherry how are you doing and the family especially Mom without Dad?  I think about you often even though I don't have much time to pop on here......you ladies will always be special to me, each and every one of you!!! 

  • tinkertude
    tinkertude Posts: 1,998
    edited November 2011

    June thanks for letting us know. I will be praying hard for her!!! love you!

    Sherry how are you feeling? been thinking about you too!

    Shari... all will go smoothhly Thurs will be thinking of you too

    So much going on here ladies.. I am so grateful for each and everyone of you!!! hugs to you all!!!

    Jooooo where are you!

    Paula huggies to you too :)

  • Sherryc
    Sherryc Posts: 4,503
    edited November 2011

    Mom is doing pretty good but lonely.  She has had lots of friends taking her to lunch and all of us kids going by in the evening.  I go tomorrow for my post op visit, I really hope my path report is in. I have rested alot list weekend and DH took me to the movies this afternoon.  I was getting cabin fever.

  • June2268
    June2268 Posts: 926
    edited November 2011

    It's so hard when love is ended.  My Mom does have Alzheimers, but she is so lonely without my Dad and forever is crying and just wanting to be with him.  For my Mom, my Dad was her everything as she stayed at home to raise her 9 kids and it was my father who was the social bee.....not her.  Even with time it does not get easier, my heart aches every time I see her and sometimes I know this sounds horrible, but I would rather not go there as it puts me in such a funk.

    My BFF lost her Mom a year ago today and it was especially hard for her leading up to today.  Life is forever a lesson of strength and how much we can take.

    Im hoping to hear great news Sherry and we will all be waiting.

  • tinkertude
    tinkertude Posts: 1,998
    edited November 2011

    June that is so true My dad has been gone for 3 years and my parents were married for 57 years and my mom cannot get past it. She cries all the time for him and at her worst will say I just want to be with your dad. It is heartbreaking like a part of them has died too!.. so sad

  • jo1955
    jo1955 Posts: 7,545
    edited November 2011

    Tink - I'm here!  Been busy this weekend.  You are not here much and I sure miss you.  Hugs to you!

  • tinkertude
    tinkertude Posts: 1,998
    edited November 2011

    I miss you too Jo!!!! love ya too xo

  • Sandeeonherown
    Sandeeonherown Posts: 1,781
    edited November 2011

    yep///this is anniversary wek for family members...my folks' anniversry dates ate wtwo weeks from each other...right in the middle of it now....sad days...

    to Swansea....does anyone have her facebook address so we can send her gentle hugs in both places so she gets them wherever she checks? gosh...

  • Sandeeonherown
    Sandeeonherown Posts: 1,781
    edited November 2011

    ye./this is anniversary week for family members...my folks' anniversry dates are two weeks from each other...right in the middle of it now....sad days...

    to Swansea....does anyone have her facebook address so we can send her gentle hugs in both places so she gets them wherever she checks? gosh...

  • sgreenarch
    sgreenarch Posts: 253
    edited November 2011

    Hi, All,

    I'm a bit newer to this group, (though now i dont know what I'd do without you; youve become my official support group) so I dont know swansea/jules that well, but June, if you speak w her on FB, send her our goid wishes. I dont know her full med story but there is a woman here who is living a full life...with bone mets. Its been years. She does get treatment, but its become more of a chronic disease for her. I think there are more and more like her. Im not minimizing the terror jules must be feeling now, but just hope she knows there are some hopeful stories, even in later stages. I guess i would just want to give her a hug and that message of hope. Will keep her in my prayers, too.



    SherryC glad you went to a movie! What did you see?



    Question: anyone know what to do about intermittent constipation. Sometimes it gets so bad and i dont think i can stand to eat any more fiber! Is this tamoxifen or menopause? Yuk.



    Thanks! Shari

  • survivor11
    survivor11 Posts: 430
    edited November 2011

    MamaV-funny you should ask about liver enzymes. Mine have been slightly elevated as well but went off the chart when I got sick this last time with the Mono. They got so high that I was officially diagnosed with Hepatitis A. Will get redrawn this week. Never really crossed my mind that it could be the Tammy, thought it was left over from the chemo.

    Sherryc-sending gentle hugs and praying for B9 rsults.

    June-thanks for the info about Jules. Not on FB, but do send her our love and support. I can't imagine how terrifying this must be for her, but I do know that there are alot of woment who deal with the mets as a chronic condition and not as a terminal condition. I also know what you say about life lessons, they can open your world and mind up to so much, but damn I think I'm done with life lessons for awhile.

    Shari-try taking Philips Colon health OTC med. It seems to help keep the constipation at bay.

  • sgreenarch
    sgreenarch Posts: 253
    edited November 2011

    MamaV, dawn reminded me of something. I've had slightly elevated liver enzymes for a few years now. No one makes too big a deal over it since the elevation is so slight. But when I went to get pre testing for something they insisted on doing a liver scan (fun, not...) which showed a clean liver, but discovered gall stones! Which can be caused by...high estrogen levels. They told me as long as they don't cause symptoms they don't treat them and I never would have known I had them without the scan, so we are doing nothing. But just wanted to let you know that it seems like lots of things can cause elevated liver enzymes. By all means, check it out w your dr, but know that it's not automatically something serious.



    Shari

  • Paula66
    Paula66 Posts: 1,572
    edited November 2011

    Shari I know that you said that you just cant eat anymore fiber but try popcorn.  It works like a charm.  I have it as an evening snack and by morning its doing its thing.  I like it better then anything.  It doesnt leave you running to the potty like crazy but it does give ya that cleaning out.

    Love to all my Tammi girls as you go about your day!

  • Sherryc
    Sherryc Posts: 4,503
    edited November 2011

    Ladies I have been off of tammi for 9 days leading up to my surgery.  Took it last night for the first time and I could not sleep worth a darn and had continuous hot flashes all night and they have continued on this morning.  I was really hoping that I had not been off of it long enough to make a difference in SE's.  At least I am not neaseated.

  • Paula66
    Paula66 Posts: 1,572
    edited November 2011

    Am with you in your pockets today Sherry!!!!

  • MamaV
    MamaV Posts: 373
    edited November 2011
    sgreenarch and survivor  - Thanks!  We all know that the big C will always be our first reaction to any abnormal test.  I had another enzyme test on Saturday morning - this time a fasting test.  No results yet ... I'll keep you posted.  Going off tammy soon anyway b/c I am now officially post menopausal ...  more info when I get it.
  • Sherryc
    Sherryc Posts: 4,503
    edited November 2011

    Back from the BS and NO CANCER, thank you Jesus!!! Lot's of other crap going on in my breast but no BC.  Thank you all for your prayers and support. Don't know what I would do without all of you.

  • jo1955
    jo1955 Posts: 7,545
    edited November 2011

    Sherry - Such good news.  The pocket party was nice. I did not get stepped on once.  

  • schipmom
    schipmom Posts: 100
    edited November 2011
    Great news, Sherry!  I'm so happy everything came out OK for you Laughing
  • peg119
    peg119 Posts: 190
    edited November 2011

    Great news Sherry.  Glad things turned out okay.

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