Bottle o Tamoxifen
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Paula M..Hugs to you it is ok to cry let it out. We are here for you. I dont know the answer to that. I know a friend of mine had DCIS and they checked her nodes by MRI didnt do Pathology onthem, but im not sure whats standard. please keep us posted!!! hugs!!!1
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Jules so glad you made it back to the train. We have missed you around here. We have all been worried about you so please keep us posted.
Paula around here is standard procedure to check the sentinial nodes for DCIS, LCIS and all other breast cancers. They inject a dye where they can trace to the sentinial nodes and then take anywhere from 1-3 out and look at it while you are under. If it looks bad they take more nodes and check them. I now different regions do different things. (((((((((((HUGS))))))))))))) hang in there girl, we are all here for you.
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Paula - I am a bit confused as well. I have some lymph nodes removes and checked but have not heard of lymph glands. Are they one and the same? Now I am curious.
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Jo as far as I know they are the same thing.
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sorryyyyyy..........nodes! hehee I am so out of it right now, it's a wonder I don't know my own name!!! Didn't mean to confuse you. Yes, nodes Well, I read my surgery report and my pathology report and NOTHING was said about lymph nodes...............now I am a little more leary about it all.........seems to me they would have checked them too!
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Also just got off the phone with the drs nurse that is going to do the surgery Thursday. He wanted to see the report from my MRI that they did in March. Well,the little town hospital says I haven't had one there.........OY!!! I had TWO there! One in March and one they did too early in January 2011l That is why I had to have the second one in March......I am so aggrivated with Drs. offices and that hospital out there!! I am just so thankful I changed drs.!! and hospitals!!
I just gave her the name of the three drs. I had in that town and the hospital's name and said good luck! I am about to go out there and scream at everyone of them!! but.........I don't scream at people.......so I will just let them deal with it all!
oyl........I think I need to just chill out and take a nap.......maybe it will all look brighter in a hour or so......ya think???? heheeeee
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Paula: I had DCIS and they did not check my lymph nodes. I was under the impression that they don't normally check them for DCIS, but I could be wrong and I will ask the surgeon when I see him in January. I'm not sure if LCIS would be the same protocol.
I've had a few issues with doctor's offices throughout this journey, so I know how aggravated you must be right now. Yes, take a nap and things should be brighter in an hour or so. And remember, we are all here for you
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(((((Paula))))) Sometimes dealing with the small town hospitals are an issue in itself. Been there done that. Take a hot bubble bath and have a glass or two of wine. Heck have the whole bottle you deserve it.
Oh June where are you I have some cake with your name on it, LOL!!!!
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Ckbfn i know that tamox can cause problems with the retina but the opthalmologist would be looking for that i imagine. Have you been to your regular optician too?
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Ckbfm, I just started having some vision changes in the last month. I have been on tami for 9 months. I have an appointment next week with an opthomologist. Mostly noticing that my distance vision is getting blurry, and my left eye is constantly watering. I hope it's just an age related thing and not from the tami.
Well, tomorrow is my first mammo since surgery and rads. Getting a little apprehensive about it, but I'll get the results right after, so that's good. Hope I get good news!
Hugs to all,
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Panmars we will be in in her pockets
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Paula M - Is your surgeon a moron or what? I would think all lymph nodes are checked with any kind of breast cancer is suspected. I would find another one and fast - and get those lumps checked ASAP. Sorry for the rant but in my book this is unacceptable. Will keep fingers crossed for B9 results. We are all here for you. Please keep us posted.
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shipmom, .. thank you so much! YES, my last journey with that group was very nerving!!
Paula.......guess what......I took a hot bubble bath, (before I even seen this from you!), and took a long nap!! I do feel better and not so aggrivated but, I know it will come again soon....hehee Can't drink the bottle of wine,......I'm on pain meds, have been since April for what they said was nerve damage.......This new surgeon thinks it is from the nodes under my arm....and he even said that to have nerve damage that they would have had to do something there, not just the lumpectomy the way they did it............
JO......I DID change surgeons, and drs.! These new ones are the ones that are having trouble getting all my records and reports. The new surgeon wants to see my path report, surgical report, and MRI reports before he does surgery on me Thursday. I would have thought they had done something with the nodes too.......they did when my mom had bc..... just scaring me more since there are lumps under my arm! and not the other one!
I KNOW you all are here for me and I know how much it means to me and all of us here. I PROMISE from now on no matter what I am going thru I will be here for ya'll and for others to........It has been a rough year, and working so many crazy hours and trying to have a life too has kept me pretty busy this year..........maybe I will slow down some......and I WILL KEEP internet too! heheee
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Sandi I will jump right in your pockets for you tomorrow!
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sunangel - I must have missed the part where you changed surgeons. Been so terribly busy at work and not enough time to read everything. I will try and get better. Will be thinking about you on Thurs. Please keep us posted. HUGS
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Paula M - I had lumpectomy twice to clear it all in one breast for DCIS. They did not take a biopsy of any lymph nodes and didn't feel like I needed it. That was true from my BS, MO, and RO so I am not sure if it would be what they do for LCIS. Sounds like it is a good thing you are having them checked though.
As far as eyes, other people on here have complained about problems with the eyes. Not sure who it was at this point. There are so many joys from taking this medicine that I sometimes wonder if it is worth it. Afraid not to take it though.
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Paula so glad you switched surgeons, sounds like the others one where not on the ball.
Jo hope you make it through your busy season. I was really busy today as well. Nothing like a Monday after the Holiday.
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peg I know what you mean. I am afraid of the what ifs if I dont take it. My husband gets so upset sometimes with the SE and he always asks me if its worth it.
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Just wanted to report back to you ladies, I saw MO yesterday and asked about how I noticed a marked decrease in my memory since starting tamoxifen. He told me that he hasn't really had patients tell him this, but perhaps they attribute it normal aging, or chemo brain. Since I didn't have chemo, that can't explain mine. He's going to look into it a bit, and told me to be vigilant in keeping track of my perceived memory loss. I see him in 3 months, and he said if its worse by then, we will go off tamoxifen.
I really love my MO.
Paula - I had DCIS and was asked if I wanted to have the nodes looked at at the time of my lumpectomy. I chose to have it done. The alternative was to wait until after surgery, and if we didn't get good margins, have the nodes checked in a second surgery.
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Pat.. I didnt have chemo either and I have memory issues and fogginess too. I see my Onc Mon I am going to ask her and she was she says as well
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Well girls I am happy to say that my neck is better. PT has worked with me since I was already going for my pec. I got a support thingy for my chair at work and changed the position of my computer monitor. Been laying on heat almost every evening and also got a great massage last Wed. Went to yoga last night and it still feels pretty good. A little stiff but nothing to really complain about. My MO renewed my script for PT for my pec muscle so I have 4 more weeks and hopefully I'll have all of my range of motion back. It is close but still not there and I want to be the way I was before rads. I think I can do it.
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Good deal Sherry. I hope the adjustments you are making will help you out.
As for the memory thing I find it a challeng sometimes. Dont know if its the left over chemo brain or the Tammi. Do let us know what you find out Tink! I dont see the Onc until the end of Dec.
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Sherry, glad you are feeling better!
Good news here today...my mammogram is all clear! Very relieved. I will have a breast MRI in 6 months, since I have very dense tissue, but until then, no worries. Yay!
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I have found that my brain does not work like it used to either. I was always a very good typist but my brain and my fingers don't work so well together anymore. I have to really proof read at work. I also don't have the memory that I used to either. I don't see my MO until Jan so Tink I'd like to know what your's has to say.
Woohoo Panmars that is great news!
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Yippeeee Panmars, that is good to read!
On the eye issue I know that I had an eye exam in June. I had been on the Tammi for a few weeks and brought it up with the eye doctor. He says that if you have any eye issues that come up to see him right away. I hope this is not going to be the case. I dont know if I can handle on more thing on this Tammi.
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Panmars - DOING THE HAPPY DANCE - Such good news.
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Great news Panmars... a few prayers my way now ... have my followup MRI tomorrow and mammogram on Tuesday next week.
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Great news Panmars and Sherry!
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Panmars: So happy to hear the good news! I just got the appointment for my next mammo on Jan. 12th and already the nerves have started, but I'm going to try to put it out of my mind and enjoy the holidays.
And since starting Tamoxifen, my mind is complete mush. I can't seem to remember anything if I don't write it down and I will walk into a room to do something and not remember what I walked in there for. I didn't have chemo, so I have to guess it's these little while pills causing it. Hubby thinks it's funny because he's been like this for years and since he doesn't take these pills, I don't know what HIS excuse is!
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Sherry: So glad to hear the PT is working and you are feeling better! 0
