Bottle o Tamoxifen
Comments
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Thanks ladies, knew I could count on you being there to listen to my rant.
Only got about 2 hours of sleep last night, think it's going to be a nap day today. Kids as school, no errands to fun, house and clothes are clean and it's cold as heck here, definantly a nap is in order.
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Paula thinking about you today
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Sherry: I'm getting the same ovary pain that you describe. I only have one ovary left as the other was removed a few years ago due to a solid cyst that thankfully turned out to be B9. But for the past week, I've been having this pain where the remaining ovary is. Periods, when they decide to come, seem a bit heavier too. I see the gynoo next month for my yearly, and I'm sure she will be ordering an ultrasound to see what's going on. Oh, the joys of Tamox
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Sorry...it was Tink that posted about the ovary pain, but I addressed my reply to Sherry instead. Duh!!! Told you my mind was MUSH!!!
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golfergrandma-I have not had those side effects.
Survior my insomnia comes and goes. Seems to be worse when my hotflashes are bad. The hotflashes come and go as well. Seems to be here more than not.
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I'm seeing my newest ophthalmologist tomorrow. I saw him a month ago & he said he saw no sign of tamoxifen damage on the retina. I thought one of the side effects is faster cataract development but ophthalmologists here in Florida are eager to remove them, regardless of whether or not they should be removed. The last ophthalmologist I saw said I did not need that surgery now. I test all right with my glasses on but still have the blurriness coming & going. I see my oncologist in a couple of wks & I'll ask if I can take Evista instead. I had taken that quite a while back as hormone therapy when that was pushed by the docs. The only side effect I remember is leg cramps, which I have off-n-on with tamoxifen.0
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Paula thinking of you and praying for you.....love you girl!
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Work has been so crazy this week. I am ready for Friday to get here. I'm going to try to start wrapping some presents tonight. Ready to get my shopping finished and enjoy the Christmas seanson this year. Last year was not very enjoyable going through rads.
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Paula,
Sending warm thoughts & hugs your way.....
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One week on the Tammi train... So far my side effects include dizziness/nausea and lack of appetite...
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Sherry - I know the feeling being really busy at work. I can also relate when you talk about not being able to really enjoy the holidays last year. Rads were really mean to us. Tomorrow would have been my last rad tx. I had a pre-Christmas event in the rec hall tonight and I do remember last year not being able to stay because I was so tired. It was so nice tonight to be able to stay and enjoy all the good food and be able to socialize with the residents. I am so very tired tonight but the long day was well worth it.
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Im so glad this year is so different. I didnt even decorate for christmas at all. I was afraid it would stay out for months. I dont like the way hubby does certain things so I didnt want him putting it up. Plus I really wasnt feeling the holiday cheer so I was ok with it. The tree was the only thing I missed. I thought the kids wouldnt care if we didnt have a tree, but it was weird. Thats the only thing I missed.
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Tamox is not a pleasure. But im told its just the se . My face also got very puffy. Maybe im imaginine it but i dont think so. The kinda make u feel a little crazy like oh well its just what u have to go through if u want the six percent decrease if that of recurrence. But like everone says to me u were so strong through it all no one would ever know . If people only knew huh. Now time to maybe relax but no deep sleep w mind wandering n flashes kickin in high gear.
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Jo I did not realize that your last day of rads was my first day of rads. I started rads on Dec 2 last year.
Paula I am so glad that we are all in a much better place this year and can enjoy the Holiday's.
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Starting Tomoxefin tommorow starting Rads on Monday.Oncol wanted me tro take arimidex as he is not sure if im postmenapause,If you are Not postmenapause arimidex wont work the oncol said there is no way of checking for sure to find out about being over menopause,I choose Tomoxefin as it works on pre menapause or post menapause the % is just not as high on Tomaxefin for postmenapause anyone else have this issue.Also to mention had a hysteractomy years ago for cervical cancer with overies left in thats why oncol cant predict if ive gove through menapause.
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Ok, I am going to vent as I am so upset today with my weight gain. I was doing so well for so long and then my weight starting creeping up on me month by month and all of a sudden I am up freakin 12 lbs. I know I have had a lot of added extra stress lately but this feeling fat before the holidays is really upsetting me. I don't want to have a bad holiday due to my weight, which I have to say when it was under control I felt great about myself. Now I can barely fit into anything and I refuse to head on into the next size. Could it be the Tamox late SE. or stress due to loosing my Dad and Mom going downhill......sorry guys, just hating the way I look today and feeling very blue!
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tinkertude - The feeling that you have is exactly like mine! It's as though my ovaries hurt and, since I'm 73, I guess I have forgotten how getting my period feels. Anyway, it's very uncomfortable with the cramping and pressure. When I looked up tamox online, it listed this SE as a severe side effect that should be reported to the onc.
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(((June))) From what I have heard the weight gain is related to the Tammo, yuck!!! I know that some havent had this issue but alot of gals have from what I have seen on the boards. Plus the added stress you have been under may have something to do with it. I read once that the cortizol our bodies produce goes outa whack when we are stressed and causes weight gain. I wish I knew how to help you get thru this but I'm not a good eater so Im not good at finding the right balance of foods that may help you. Maybe there is someone here who can chime in and help with that.
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June, I know how you feel, but as women we really need to not let our weight affect how we feel about ourselves. I know this is easier said than done. It's tough because the tamoxifen does slow down the metabolism (I think, I think menopause would as well), and this time of year with the cold weather and the holiday cooking, it's next to impossible not to gain weight. I hope someone with more insight than me will come along with solutions. I guess some aerobic exercise could help raise the metabolism a bit. Good luck, but feel good about yourself regardless, and let me know if you get any good advice on it.
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JUne it is probably both tamox and stress as Paula is right about the cortisol. I am trying to loose about 5 pounds because I thought I was going to have DIEP and now I am not so gained a little more than I would like. What I do is use a program like livestrong.com or loseit. The both let you put in what you eat and what you do for exercise every day. It calculates your calories so you can see exactly where you are. I use livestrong and the thing I like about it is that you can put in your weight and how much you want to loose per week and it calculates the calories you need to do this. It keeps me focused.
SAndy I had a hysterectomy years ago as well and still have my ovaries. My MO checked my hormone levels and determined that I was def pre menopausal. They will check it yearly and if my levels get to a point where they no for sure I am post menopausal they will switch my meds to an AI. You should ask them about checking your hormone levels. By the way I am 49.
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Thanks guys you are all the best.....I do walk on the average 5 times a week for 3 miles and however I did have to stop for a month due to foot problems but have resumed over 6 weeks ago. Just very very frustrating and I am almost 100% sure it is from all above....stress, Tamox and peri menopause....yay, just my luck to feel crappy about myself during the holiday season. And Sherry I think I will check that out, sounds interesting.......thanks for letting-me vent! Love ya ladies
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June I agree I think it is both. So much has gone on for you and stress does horrible things to our bodies throw Tammy into the mix and ugh! hugs!
Golfgrandma.. I think I am going to mention it to my Onc I have an appt Mon. I had an ultrasound a few weeks ago due to some wierd bleeding and it said the ovaries were ok the endometrium was on the higher limits of normal and I had endometrium cysts.. I am 43 and my cycles are so messed up now
QUESTION...
lADIES has anyone had issues with their fingers/hand joints. About a month ago one of my finers started hurting linda sore could nt open a jar stuff like this, I figured it was from the computer and clicking the mouse too much lol.. now another finger on the opposite had hurts at the bottom part. Could this be the TAMMY???
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I find my fingers have become stiff and it's hard to grip something like a jar to open it. I still have some neuropathy in my fingers from taxol I'm dealing with, but no pain other than the stiff joints.
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Tink, I can relate. In fact, my fingers/hands became so bad ( this was back in August ) that I could not open a door, a jar, or barely tie my shoes. In less than 2 weeks, it spread to every other joint in my body. I sounded like rice krispies every morning when I got out of bed. I went to a rheumatologist who, after ruling out a bunch of other things, decided it was from the tamox and put me on 5 mg. of pred once a day, which I am still on. It made a world of difference, but I hate prednisone. I see my rheumatologist in 2 weeks, and I will start to wean off it. I hope the joint problems do NOT return. After nearly 4 months on pred, I have gained weight, and my eyesight is shot, though I think that will return once I'm off it. I hope your joint pain does not get too bad that you wind up going this route. Just another fun SE of the tamox, I guess.0
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golfergrandma, after three months on tamox I started having pelvic bloating the week after my period. (felt like cramping, though I just had my period!) When I asked my MO, she suggested I see my GYN just to be sure. I learned that patients with BC have a statically higher risk for ovarian cancer (not related to Tx or meds, just a statical correlation). They did a pelvic ultrasound. Ovaries are fine but some thickening in my endometrial lining, probably due to tamox. I have no other symtoms (usually endometrial cancer comes with irregular bleeding) but my GYN wants to do a biopsy just to be safe. My MO had said that after BC, they have a very low threshold for investigating symptoms. Everyone is in "better safe than sorry" mode. I didn't think the US was that big of deal; when I saw the big wand I had to laugh. Oy! The things we go through! Good luck!
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UGGHHH!
So my BS nurse called with my MRI results and I didn't hear what I was hoping for. No all clear... instead she said there are "a few spots that are probably benign" and we will talk about watching them when I see her on the 14th. REALLY? Are you fricken kidding me? I can't even process this. Do I freak out? Dec 14th is just 3 days before my one year cancerversary diagnosis. This is sooooo hard!
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True Sherry...just have no idea how to do it...it didn't end ....it inched away...i wil all sort out....today i am simply exasperated.
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oh mamav.....breathe...breathe ....24 hour rule is strictly needed here!
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oh mamav.....breathe...breathe ....24 hour rule is strictly needed here!
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sunangel, if i were closer and worked with you . I would be in there like a dirty sock to help....do what you can do..think about ou this christmas..they will get over it if they have to work..they have no idea....sending you hugs]
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MamaV, I'm sorry about your MRI report. Just another thing to worry about, which none of us need. Hopefully it's nothing, and MRI's do commonly produce false positives. At least that's what I've been told. Take a few deep breathes and try not to worry too much, though I know how hard it is NOT to worry. Sending hugs to you!
Sandi
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