Bottle o Tamoxifen
Comments
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June: I am so sorry about what this woman has put you through. You have been through enough and you shouldn't have to deal with her nonsense too. The problem is not YOU...it's HER. I think she needs an attitude adjustment and I do think she is jealous too. I like Jo's idea of throwing her ass in the bonfire! Although, it was water that made the Wicked Witch of the West melt, and from the sounds of it, I think water would work on this woman too! Hugs to you
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JUNE ~ pffttt on that person you used to call a friend. She is jealous. After all you have been through you don't need her. Your a sweetheart !!
MamaV ~ glad for the all clear. Try to rest easy and not give it any thought. No worrying till you have to worry.
Jo ~you are so sweet, June throw down some wine with Jo ~ Have 1 for me.
I have my gyno tomorrow hoping all goes well. It is my 6 month check up. Hopefully he will do a sono of my ovaries/uterus. He usually does thanks to good old TAMOX. Feeling pretty good, physical therapy is really helping out with my foot. I go 3x's a week, only have gone 3 times and it is really coming along. Hoping to wear a low sandal to a very formal black tie wedding Friday night. A mere 400 people ! I am wearing a simply gown.
Paula...my dear, hoping you are resting and your pain is a minimum. Thinking of you....
Hugs to all,
Alicia
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I agree with everyone else June, there is something wrong with that woman. And I think Deb is absolutely right, she is jealous of you. Maybe because of the wight loss?
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Hi all! Vicky I wish people could see your story along with Sherry and then read others as well. When I was looking into what type of surgery to have I read all kinds of stories, not just here but other sites as well. They are alot of where I got the courage to have them both removed. Alot of people thought I was nuts but in the end I did it more for piece of mind and that was my mind that needed it. Good luck with whatever you choose to do. We are here for you!
Hugs to you "other Paula"
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Why do I think I have read a number of things tha say black cohosh and tammi are not to be taken together?
Shari..good luck re. your mammogram and your dad's treatment..seems some years it all comes to us in droves, hmm??
hugs to you all!!! this has been a heckuva year for all of us,,,,
to the newbies! WELCOME!!
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Just got back from taking the train to see my daughter in Chicago for a couple of days. My mom went with me and we had a great time.
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I will have to do some research on the black cohosh thing because I had read it was OK even though I am not trying it. But interesting discussion. If I remember when I see my MO in January I will ask him.
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Wow this board is moving so fast. Hi to all and ((((hugs)))) to many who are facing so much right now.
June - so sorry about the idiot woman who is being mean to you. I too hate conflict. I wish you could just avoid her altogether. You are awesome and don't deserve this. I loved Jo's comment about throwing her in the bonfire for a slow burn - you ladies are so awesome, so caring and so funny
Back to your earlier comment about weight gain - I am coming up on my 6 month Tammi anniversary - i am up easily 15 pounds it seems - and I'm not sure why it is happening. It is depressing!!! on top of everything else. I haven't changed my eating habits. I also have pain (a dull ache) in my abdomen that you guys are mentioning. Need to schedule with the obgyn i guess. MamaV - so glad to hear your MRI is looking up. I think my next round is an MRI and the BS warned me of the false positives. All these scares. I so get why some of you are thinking about BMX. I wonder too.
Paula - you are in my thoughts and prayers, so good to hear from you - keep us posted on your results. You are one tough cookie and we are all right there with you - we will help you fight the good fight.
Jo - you are such an awesome person. I know this already from all of your posts, but what you did for your co-worker - you ROCK!
Shari - so sorry to hear about your Dad. I hope the at home treatments will do the trick and knock it back into remission. Thanks for sharing what you have been through with your family. Sounds alot like mine. Not only do we have our own worries, but have to worry about others in our family as well. And all of us here - our new extended BC family. Thank God we have each other. @#$^@#$ This @#$^@#$ disease!!!
Huge sigh of relief for those of you who have received good news lately. Boy the ups and downs.
6 months of T for me so far - and i'm pretty shocked by all the changes. They're tolerable but noticeable. joint pain, hair thinning, skin aging, uterus hurts, low sex drive, not to mention the hot flashes that I'm now so used to waking me up at night - I just get up and go lie on the leather couch. Has anybody else got one? Aren't they awesome? They are so cold when you first lay down. I'm glad it is now chilly outside. Some days i think i need to blow dry my hair in the mornings out on the front porch. The flashes and symptoms had died down for a bit but are back with a vengence for the last month or so. Go figure.
Thanks for listening to my complaining. With all of that said - and i don't want to scare off the newbies - I would not stop taking it. I believe (or fiercely hope) it is holding the BC at bay.
Love and great big hugs to all of you!!
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Sherri, I had done the lumpectomy + chemo, then had recurrence just exactly one year after diagnosis. BS said conservation was out of the question, UMX minimum, so I had BMX because I am NOT going through this crap again!!!! I think there are a lot of women who choose this route. I don't think recovery from BMX is any more difficult than UMX, doesn't take a lot more time under anesthesia, etc. I am still not feeling great - finally got one of my health care providers to actually say that the time for healing and resolution of pain is 6 months to a year - a lot different than "a little while" that they have been telling me. Now I know it's normal, and I am less anxious, and a little more compassionate with myself. I joined one of the surgery discussion boards, and that was the best support ever! I was one of the last in the group to have surgery, so the ones who went earlier in the month were so encouraging as they reported their experiences and healing. Another great bunch of women here at BCO.
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June - hate that you went thru that with the supposed "friend". I agree with everyone else that you need to rid yourself of people like that. You deserve so much better. She likely is simply jealous.
Sherry - I too thought black cohosh diminishes the effectiveness of Tamoxifen... May have seen it on the ACS website
Peg - Glad you had a good time with your mom & daughter... Welcome back.
Paula - Sending prayers and gentle hugs your way. Hope you are recovering well
MamaV - Glad the MRI was normal...We'll be here to "watch" with you.. I did the BMX for peace of mind and like Sherry, I knew in my heart it was the right decision for me. Do whatever feels right for you...
Jo - You really do "rock" and I am honored to be on this board with someone like you.
Shari - Hope your dads treatments result in complete remission for another 20 yrs or more.
Alicia - Good luck tomorrow at the ob/gyn visit. Had my first one today since dx and starting the Tammi train....Doctor was very sweet and no issues found....
Alas, no more doctor visits this month.... Woohoo!
Hugs to all!!!
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And to my friend Tink, thanks for sharing what the MO said on the weepiness. If you don't mind, I'd love to know if the Effexor helps as I may need to request it myself. Can't take the constant tears even when I feel happy.....ugh!!! Heck, I fell apart the other day simply because the handle broke on the electric skillet..... Heaven help me....lol
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Jo your comment is hysterical and listening to all others respond to it, was the highlight of the week. Thanks again pals, nice to get comforted when I needed it so much. Hopefully i wont be up all night rehashing those mean things she said over and over......I am truly hurt and this will take time to heal. I do love your comment MamaV about how to explain to my daughter, I hope things are going a little better for you too and as for the mastectomy, I wouldn't even begin to be able to give you advice for that one as that is the hardest decision ever to make, but some women are so completely happy and satisfied with it, so maybe post it somewhere here on the board.
Caroline when I got done with all my surgeries and treatment I decided I need to really take care of myself so I put my sneakers on and started walking tons and within 5 months I was down 20 lbs, but it looked like more as the walking toned me. Now seeing I have lost my Dad 5 months ago and Mom going downhill, I have put 10 lbs back on and I am so frustrated. I tend to stress and harp on things and I know this so called friend will piss me off for many months as I am not one to lose friends as I value each and every one of them. So I will rehash her meanness over and over again, it is just who I am. I wish I could be like my hubby and blow people off. I really need to learn that. As for this pill and the weight gain I have heard from so many people that it has not bothered their weight and others how they lost weight. Like I said earlier I worked my tail off so I wouldn't be one to pack it on and it happened anyway and I am miserable about it as I once felt good and now I feel like a porker,......let me know what you find out and what might work for you and maybe we can do this together. Hugs
Again my friends, thank you for all your support you guys are the best. Now if I can get Paula and Tink to join me for a pillow fight I could use to get out some aggression....
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Linda and Odie thanks for the encouraging words. Now that I have made the decision it is wait until I can have it done. I had a difficult time with rads so PS wants me to wait for 1 year post rads which is the end of Jan. Then my boss is pretty much gone from mid jan to mid march and it is just the two of us. He has been really good to me and I don't want to put him in a bind. So I will schedule the end of march. Talked to the scheduler today and she said they would open up the march schedule in jan. So as soon as she can put me on the books she will.
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Good grief - I am away for a short time and so far behind in reading.
Sandee - My MO told me absolutely no black cohosh with tammi - said it is a no-no.
Caroline, June, Odie - Ya'll are just making me blush. My co-worker is such a sweetheart - I had to help her.
June - When you are ready to throw that piece of sh#t in the fire you just let me know girlfriend. I will bring the wine and we will watch her burn. I have the perfect pic to go along with this but will have to post it tomorrow - so hold that thought.
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You know it's amazing how grateful I've become for you Ladies. Just wanted to tell you all that. I do love how we hurry to reassure, comfort, inform and support each other. When first dx I was too in shock to talk much and I told almost no one. Slowly I was able to come on these boards and I've found a place that feels good and safe, each day. I miss the days when I can't check in. Is it weird that this is virtual, and that we are all so physically far from one another? I woukd love to one day get together and meet all of you, but until then, this is great, too. Guess I should also be grateful for the Internet and the founders of this website. So....thank you!
Re mastectomy, as I see that some of you are considering it. I had no choice due to the positions of two tumors in one breast and had a unimx. Some might say this is the worst of all worlds, asymmetry, still have to scan other breast, etc. I do feel that way sometimes as its almost impossible for me to go bra less, always have to remember to pack my damned boob! Still have mammograms...(mine is this coming Sunday and if the tech says, as she did last time, 'which side first?' you may read about me in the news as the woman who went postal at the imaging center. Actually what I did say to her was, 'there is only one side. Look how much time we'll save!' Cant they read the damned charts before speaking?!?) On the other hand, I have an emphatic all clear on my right breast, its all healthy right now, and there are times when I'm grateful for even one. This is all so personal. For me, I chose to do it this way knowing I was being watched very closely and could always take off the second one later. My BS gave me this advice and I'm glad I listened. I seem to be the kind of person who needs to do things in steps, if possible. As for the surgery itself, it's a relatively easy recovery. For anyone thinking about it if you want to PM me w further questions, feel free.
All the beast, shari0 -
Good mornin'......... wow!! Alot to read in just the short time since I've been here last!
I read all the way thru, and dam if I can remember who or what is going thru what or who!!! heheeMy brain sometimes is mush,and this morning it is SUPER MUSH!! Yesterday was my first day back to work since surgery, and even taking the pain meds, I hurt like hell....and it was a busy long day......I usually work till 430 but bailed out at 300. Told the other girl, I just couldn't make it any more. Came home, went to sleep and slept most of the night, other than my kids waking me up just to eat, and going pee pee, I slept thru it all till 500 thismorning......wow....not like me!
Haven't heard anything on the reports yet. Hopefully today, I am going to see the surgeon again, so maybe he wll have them by then.
Jo, throw that woman deep in that fire!!!! DAMN I hate people like that!! And yes, I have had to deal with some so called friends over the last year goin thru this shit.....We all find out who we can trust to "be ourselves with, and who we cant"........My daughter in law and son and one woman at work are about the only three I can "be myself" with now......and that sucks. I told my dil, one day I hope that we can have a few good days of just going and having ALOT of fun instead of her taking care of me, or listening to me whine. She said, MOM IT WILL HAPPEN!! I PROMISE!! She is my angel sent from heaven!!! I dont know what I would do without her!!
MamaV......rest, and relax.....as my favorite old dr. told me......don't worry till I say to worry.....so now, I TRY not to worry till my new dr. tells me to.
Shari, thinking of you and your dad sweety, I pray all goes good with him!! and the treatments work!
To others going thru the mammograms , praying B9 results for you!!
Well, time to get ready for work.........I've been getting sick in the morning, and being a few minutes late to work about every day for almost a month!!! Hopefully I won't be anymore.......I been trying to get ready and head out earlier!!Have a great day ladies...........LOVE and HUGS to you all!!!!!!
Paula M
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Paula, it is good to hear from you. It is great that you are already back to work, but take care of yourself! Keeping fingers and toes crossed for good results for you. Hang in there.
Sgreenarch, I know what you mean, I also had a uni mastectomy, but I did have reconstruction. But it is going to be an anxious time to get mammo's every year. Still it is good to have one natural breast. Such hard decisions we have to make. I didn't have a choice between the lumpectomy and mastectomy either.0 -
June - I found that perfect picture. Couldn't you see me doing this?
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LMAO Jo.....thank you for that!! You can also lead this pillow fight on Friday as you are so well prepared.....
Paula I am so glad you have you dil, she sounds fantastic. We all need the positive people in our lives.....thinking of you and hope you are feeling alot better!
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Good morning ladies.
Paula I will be in your pocket today when you go to the surgeon I am praying for positive results.
Now my curiosity is up on the black cohosh thing. Even though I am not taking it. but I googled and everything I read said it is OK. What I read actually said that in inhibits the proliferation of breast cancer cells. But did also say that there had not been enough clinical trials done and that more needs to be done on it. My MO is always up on the lasted studies so I am definitely going to ask him about it in Jan when I see him. He always has an opinion on things.
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Thanks for the info Sherry. Thats the first thing that came outa my Onc and she says no black cohosh. Now I'm starting to wonder about it. I go at the end of the month so I will for sure be asking her. Thanks for looking into it!
Oh June dont think I have forgot about you, hee hee hee! I've got my whacker aimed and ready for Jo's a ok, lol
I will tell you this much, Im tired of the hot flashes for sure. I was hoping to follow your gals lead and have them calm down, but no I have to be different, lol. Just like my mom always said, I had to be the most stubborn one of her 5 kiddos. But really give me a break enough is enough!
Have a great day all my Tammo girls and I love you all! Tink get better soon miss ya! Junie love ya!
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Hi Ladies
Paula M.. PLEASE KEEP US POSTED HAVE BEEN THINKING OF YOU!!!! HUGS
ODIE.. I will as soon as I start taking it lol.. I have such great pill anxiety I am scared to death now to put anything else in my body, so on the counter it sits like the Tamoxifen did for awile, and look what happened when I started that lol.. I am going to try and do it. If I do I will let you know how it works out... good luck to you too sweetie!!!! hugs!!!!!!
Jo.. You rock! but I knew that already!!!!!! hugs
Junie.. yes into the fire she goes.. that stupid stupid women.. I agree jealous indeed! you are the best girlfriend!
Paula.. hugs to you too today and Shari and Sherry and MaMAV Alicia and ALL you wonderful Tammy ladies you all are the best!!!!!!
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Thanks everyone ... you ladies are THE BEST!
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Jo, as usual, you crack me up!!! I would post this in my office, but I work at a faith-based institution and would probably get a comment from the dean. Or student.
Marie, I can't remember which pill you are waiting to take. Is it Effexor? I have also had SEs to just about every medicine I have been put on in the past 2 years, but I agreed to one last try for symptom control, and I started at the very lowest dose they make - 37.5 mg - took it for a couple months, then boosted the dose to the 75 mg. I had some SEs the first 2 weeks, the PCP said if I could tolerate them just a little while they would get better, and they did. I still don't like the idea of taking this drug, and know that there may be some difficulty getting off of it, but in the meantime, I think it is probably doing some good overall. I think that's the part I hate most of all - admitting the drug is helping!!!
Well, this Yankee girl is about to head into a Southern snowstorm and wondering if I will get back tonight. My car and I can handle just about anything except traffic jams. I am not a patient person.
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Tink just take the plunge and take it.
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Linda.. can I ask what kind of se did you have?
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CArolineNC- I bought biotin har conditioner as my hair seems to be thinning fmor the arimidex...and it is already looking shinier and thicker...you are pretty sensitive and kind yourself...very attentive to the details folks are writing.
Linda- definitely 6-12 months,,,,more like 18 by the time the darn thing / ie. treatment is done....I went to a counsellor tongitht..needed some tweaking and he is the fellow i went to see when my partner left 2 years ago....he talked about grief ....and suggested some books..and said after a parner leaving, bc diagnosis and heart attack...sounded to him like i had some more grieving to do! ...so..onto amazon I went....and he mentioned depression and how after a critical illness, it is so common....and to keep dping what i ( and all of us are doing) ...ie talking about it...this is my main place for taling about cancer. I am grateful to you all about that...
greenarch - maybe walk in by saying ' start on this side because the other is not happening' ....so you start it rolling theway to want the conversation to go...humour or not
jo- you do indeed rock...it is people such as yourself that make this world a better place to be in becaue you my dear are trustworthy.
sunangel- be gentle with yourself...you just returned and it DOES take thestuffing out of us...you are goin gto be tired so plan som nap times:)
I am goin gto my surgeon appointment tomorrow...routine appointment? No idea...there was no sign of cancer in june so..not sure what this is all about....s meeting 12 months post surgery I guess....nervous anyhow....i will have a pocket shirt on....if anyone is tempted to come with me...then a wal to calm down. any takers??? still 11 celsious in Halifax so warm enough for a walk
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Sandee - I will be in that pocket. Will bring out the long johns - that is pretty cold where you are. I have a feeling I won't need them though - will get the warmth from all the other warm hearts that will be with me.
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Wouldn't miss a pocket party Sandeeonherown... Count me in!!!
Sweet dreams ladies....
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Sandee darling did I ever tell you I love your new profile pic......gorgeous! I need to come too, party in Sandees pocket tomorrow.....love ya gals!
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