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Bottle o Tamoxifen

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Comments

  • sunangel27
    sunangel27 Posts: 234
    edited December 2011

    Sherry!! PROMISE!! NO Margaritta's or martini's for Tink........don't want no broken wings........or us getting FUI..........(Flying under the influence) tickets......no jail time for us!! We have enough to deal with!! hehee

    Hugs!

  • CatbirdC
    CatbirdC Posts: 235
    edited December 2011

    when my onc said I didn't have to have chemo but he would prescribe Tamoxifen for 5 years.....

    then that statement was misleading......  you think?

    Bonnie

    CatbirdC 

  • tinkertude
    tinkertude Posts: 1,998
    edited December 2011

    Now wait a minute.. I really really was looking forward to the Margaritas!!!!.. hmmm maybe when we get back from our pocket trip???... with you all the way Paula hugs!

      hahaha could you imagine all of us in one cell!.what a party that would be :)

  • tinkertude
    tinkertude Posts: 1,998
    edited December 2011

    Bonnie.. yes I agree my ONC was not one to offer up that Tamoxifen is in the "chemo class" either. Would be nnice to know so when we start with the se we are not so thrown off gaurd..hope your having a good day!

  • Sherryc
    Sherryc Posts: 4,503
    edited December 2011

    Bonnie my MO did not tell me either, like I said before it was my mail order pharmacy that sent me the information.  I guess the onco's don't tell us because it is not an infused chemo. IDK

  • dualgate
    dualgate Posts: 17
    edited December 2011

    Sherryc, Hi I have almost the exact profile as you, I was just wondering how you are doing in the past two years? Im begining to have a little anxiety. I had a lumpectomy in nov 2009. rads followed jan 2010 and I am having some issues. Not severe, Im probably being a hypocondreact but just curious how someone with similar diag is doing. I also had no chemo. Jamie

    My oncotype score was 13
  • Paula66
    Paula66 Posts: 1,572
    edited December 2011

    Happy Birthday Shari!!

    Oh and yes we do need to keep Tink away from the drinks, lol.  But trust me on me on this one, it sure would be one heck of a cell party for sure!

  • geewhiz
    geewhiz Posts: 671
    edited December 2011

    Hi guys, havent posted on this thread before but was looking for some advice. I hit chemopause 2 years ago and have been on tamox for 18 months...ish. I used to not have much more than occasional hotflash but holy smokes!! Over the past month or so I wake myself up several times a night thinking my bed has a heater implanted in the mattress. I am drenched, and this goes on during the day too! My onc says in March she wants to switch to an AI. I suppose that has a host of issues too? Any thoughts as to why I am just now years later coming into these flashes? I am 45 years young.
    /p>

  • sunangel27
    sunangel27 Posts: 234
    edited December 2011

    Well, it didn't go as good as I had planned it would! :(    Part of it I already knew..but was hoping not!  Guess I was wanting to be in a bit of denial about them. But, onc did feel under my arm today and did feel the lumps. Set me up with breast specialist. I go the 21st of this month.

    The arm.....I have to go to the fibroadema clinic, They are going to call me with my appt. Onc is going to do my blood work again Jan, 10th and see me on the 15th.  And he is having my path report on the lung nodes sent to another pathologist for a second opinion.  And it goes on and on and on.........I thought I was gonna be able to breath for awhile, but guess not.

    Oh well, I WILL FIGHT!!!!!!! :)

  • Sandeeonherown
    Sandeeonherown Posts: 1,781
    edited December 2011

    Sunangel..in your pocket my dear!

    Going to a funeral Weds morning...the mom of a fellow staff member...her mom was diagnosed with stage 4 breast cancer and mets in July....so fast....I am sure I will bawl like a baby but really feel the need to be there to support Sam. Send up some positive thoughts ladies:)

  • Linda-n3
    Linda-n3 Posts: 1,713
    edited December 2011

    Oh, Paula, how frustrating!  Way too many appointments.... We are still hoping for everything to be B9!!! Yes, you will fight, but for now, take some R&R so you are rested and ready for the next battle.  You know we are with you and all in this together.  Special hugs tonight.

  • odie16
    odie16 Posts: 1,415
    edited December 2011

    Paula M - Hang in there & KICK BUTT!!! Sending hugs your way...

    Sandeeonherown - I am so sorry about your co-workers' mom. It breaks my heart to to hear of anyone losing their mom and to something like this just sucks....Sending heartfelt sympathy & hugs as well.

  • peg119
    peg119 Posts: 190
    edited December 2011

    Paula - that really stinks.  It is so hard to keep having appt. after appt. with no real answers.  Sometimes the answers make it easier to fight.  Hang in there and we are all hoping for the best for you.

    Sandee - sorry to hear about your co-workers mom.  This disease really sucks.  It is so hard how many women it has taken from us all.  I am so fortuanate that my mom and my sister both are survivors and have been for a long time.  Keeping you in my thoughts on the tough day coming up. 

  • Sherryc
    Sherryc Posts: 4,503
    edited December 2011

    SAndee so sorry about your coworkers mom. 

    Paula  (((((((((((((((((((HUGS)))))))))))))))))))) I am praying very hard that everything will be OK for you girl.

    Duelgate I sent you a PM

    Geeweez welcome to the thread.  I cannot figure out what goes on with the meds we take.  I have hotflashes that come and go and they also range from hardley anything to OMG my body is hot.

  • jo1955
    jo1955 Posts: 7,545
    edited December 2011

    Paula - This really sucks - sending prayers and good thoughts.  Will definitely be in your pocket.  Please keep us posted.

  • schipmom
    schipmom Posts: 100
    edited December 2011

    Paula: That really does stink.  I know how frustrating it is.  I'm sorry you are going through this, but hang in there and we will all be there with you.

  • Paula66
    Paula66 Posts: 1,572
    edited December 2011

    ((((Hugs))))) Paula. Praying for you. Jumping in those pockets for ya!

  • Panmars
    Panmars Posts: 166
    edited December 2011

    ((((((Paula)))))))) Hang in there, girl. We're with you all the way!

  • kennylynne
    kennylynne Posts: 75
    edited December 2011

    Sandy I have only been on the tammy train for a week so I can't really help you out. I too still feel like crap from the chemo still I will be 4 weeks pfc on Thursday. Good luck I see you are in London that is where I am doing my rads starting today uggghhhhh

  • Paula66
    Paula66 Posts: 1,572
    edited December 2011

    geewhiz I have almost the same problem as you.  I went into chemo pause and stayed there with the Tamo.  The hf were a nighmare.  They started to let up then bam a few weeks ago they came back with a vengenance.  I go to see the Onc on the 30th and see what can be done.  I hope that she has some answers.   

  • sunangel27
    sunangel27 Posts: 234
    edited December 2011

    I'm off the tammy for two weeks. Dr. wants to see if that is why I am sick to my stomach and vomiting so much lately. 

    Hot flashes? OH MY!!!! There are days when I need to carry a TOWEL with me!! I sweat so bad off and on all day, then others, it is only a few times a day..

    Thank you all for being in my pockets... and I will for SURE be in all of yours!!!

    Sandee so sorry to hear about your co-workers mom...condolences to the family!!

    Hang in there everyone.....we might have to throw a few parties later!!

    A friend of mine was dxed with breast cancer 10 yrs ago A few months ago she learned she had lung cancer, now it has spread to her brain....stage 4. She txted me last night and said the dr. told her the chemo possibly is working! The tumor has not grown any at all for now! Thank God!

  • Sherryc
    Sherryc Posts: 4,503
    edited December 2011

    Paula so sorry about your friend.  Is the cancer in her lung and brain BC mets or did she end up with Lung Cancer as well.  Either way I hope the chemo works for her.

  • CatbirdC
    CatbirdC Posts: 235
    edited December 2011

    Tinkertude ~~ Sherry,

     Although it won't be until June that I see Dr. Onc  I certainly plan to ask him about the Big T  being a form of chemo

    When I had the lumpectomy I was to get radiation.  When they found more ca and decided to do the mastectomy .... Dr. Onc  said something to the words....At least you won't have to go through the radiation or chemo.....just Tamoxifen.

     JUST.

    Bonnie Catbird 

  • Allenan
    Allenan Posts: 23
    edited December 2011

    Hello Everyone,

    May I join in on this group?

    Just finished radiation and eager to get on with my life but achy bones in feet, knees and hip keep reminding me to slow down.  Could this achiness be the result of the Tamoxifen.  I was taking it at the same time I was going through 5 wks of radiation.  The achiness is worse after long sitting (which I do at work).

    So far, no other SE from the Tamoxifen.  Oh, the hot flashes are still coming strong.  These started half way through chemo.  I am now in chemopause, getting and growing little chemo curls on my head.

    Anne

  • tinkertude
    tinkertude Posts: 1,998
    edited December 2011

    Anne.. welcome aboard! You have joined an incredible group of ladies. We are here for whatever you need, support, answers when we can and even laughs!!!  I get very stiff in the knees after sitting for awhile too. I think it is The Tamoxifen.

    Sandee. so sorry!

    Paula.. with you all the way girl!!!! hugs!

  • Snoopy73
    Snoopy73 Posts: 118
    edited December 2011

    Hello ladies! May I join as well? I finished my radiation on 11/14 and started Tamoxifen on 12/1:-) the only side effect that i still have so far is the hot flashes uuurrgghhhh they drive me bananas:-(

  • stheresa987
    stheresa987 Posts: 13
    edited December 2011

    Going to start Tamofixen after Christmas.  Just finished last round of chemo. Worried about side affects as I am still having some from the chemo.  No hot flashes...just bone and back pains.  Need to keep a positive attitude and keep reading your posts!!

  • tinkertude
    tinkertude Posts: 1,998
    edited December 2011

    Welcome Snoopy and sttheresa!. sorry we are all meeting like this, but you have come to the right place :)

    Maria

  • Snoopy73
    Snoopy73 Posts: 118
    edited December 2011

    sttherea - sorry about the chemo SEs:-( i finished chemo on 9/8 and i had the aches & bone pain for almost 4 weeks after!! then they just stopped:-) so hang in there. The other SE that i forgot to mention is sleep!! I cant seem to get any sleep, i have to take sleeping pills almost every night, otherwise i will sleep for 2 hours then wake up then stay up for a while then fall asleep again for a few hours uurrgghhh..

  • sandy115
    sandy115 Posts: 28
    edited December 2011

    Starting Rads on Monday been on Tomoxifin 11 days now does not seem to bad still having muscle pain due to 5 weeks post chemo.