Bottle o Tamoxifen
Comments
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Linda.... yes I still do split my dose. I still have se but I can function at least. .hope your leg cramos ease up soon. My legs get a hey is the best way to describe it. The biggest thing for me right now is the fatigue and mood swings.... I exercise daily and I guess that takes the edge off... but I still find there are some nights that I have to take half of a Xanax as I feel like I'm coming out of my skin....
It may not help my DD has been very sick with her this relaose of mono and we are now taking her to a specialist to see where its all coming from.... she is sick quite often... and the school is starting to give us a hard time even with doctors note.... I guess its always something.
Jo hope the new time to take your Med helps you sweetie.... hugs
To all my Tammy ladies.... you all rock.....
maria0 -
Sherry - I have not tried Lunesta or Ambien CR. I can't get anyone to really listen to me when I say I can't sleep. With this new medication I MAY get 5 hours a night and I am getting to the point I am a real bitch. It is getting so frustrating at times.
June - Oh girlfriend. I am just trying to get on with life. Seems these damn road blocks pop up I think just to test me and piss me off. I just don't think anyone should have to live with pain. Sherry knows just what I am talking about and this has also happened to her - I am referring to the nerve pain.
Paula - All I can say is WOW!
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Paula now I know why you work in welding. I bet there are some muscular guys around!!
Jo call your PCP who has known you for a long time and tell him you can't take the no sleep any longer and you must have something to get you through this transition
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Sherry - I will put a call in to him tomorrow.
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Jo - thankfully my oncologist immediately was sympathetic on the no-sleep front, and I've had great success with Ambien CR. We tried the regular Ambien initially, and while I could go to sleep, I couldn't stay asleep. Hence the CR. I've never had any problems with it, and I have no fog or anything in the morning. Good luck!
Sleepy Purrs,
Jenn
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Hey my tammy ladies!!!!!! SO SO Sorry I haven't been on here in it seems forevah!!!! Had problems with my puter and was trying to get on here with my phone, and that was a pain in the buttocks!!!! heheeeee All is good now, busy as all get out, with work........and now dating a really really really neat guy....and crap at home too
Things are going ok with me......blood work is still high, they haven't figured out why, and I am not worrying about it as much!! He changed me off the tammy and put me on something else, can't remember the name of it, I pick it up tonight so will let ya know..........does that mean I can't come back on here?????? NAH!! Ya'll wouldn't kick me out would ya??????? heheheeeee Hope all is going the best it can for you all !!!!
Well, off to get ready for work!! Love and hugs to all of you!!!!!
Paula M0 -
Paula M - you can still hang with us even if you aren't on Tammy. Glad to hear things are going better. Hope the new drug treats you well.
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PaulaM - I hope you don't stay away. I does not matter what drug you are on - sure hope the new one works for you.
Well, I finally slept good last night. Started the nortriptyline this morning and will see how it goes over the next week. Sure hope I don't have to increase the dose but it would be better than living with some chronic pain. Have I told you ladies lately how much I hate BC? It really sucks!!!
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PaulaM you better still hang with us!! I will have to hunt you down and whack you with a pillow if you dont, lol!
Jo I sure hope you can get some relief from this pain. Yes I agree BC sucks! Hang in there girl, you are a tough one for sure!
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Paula M would be upset if you did not hang out with us. And so happy you have found a neat guy to hang out with.
Jo hope your sleep improves.
Just got back from the new BS that I am using and he gave me results that my MRI was good and can now move forward with my BMX. I did not tell him I had already gotten a copy of the report from the MO. I am a little impatient. hehe. Anyway I know have to decide if I am going to let him do the MX and the PS do the recon or if I want the PS to do both. I like both of them very much and trust both of them. Also they both have the same ideas about the best way to do the cuts etc and both agree that it is worth giving it a try to save my radiated nipple, even though I am at high risk for it failing. As long as I understand everything which I do. So decisions decisions.
Oh and 2nd day on tammi and the vivid dreams are back, yuk, makes me confused I don't know if I saw or read something on the internet or if it was my dream last night. Will be glad when my body gets used to the tammi again and it stops.
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Jo- I'm glad that he at least had a idea for you to try. It would be so great if just changing the time that you take it would improve your pain and sleeplessness.
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Paula - New man and new meds! It's a great day! LOL (BTW, they didn't kick me out - I switched from Tamox to Arimidex 2 months ago). If they kick us out we will start our own board "Tammy Rejects" Ha ha!
Jo - sleep! Blissfull sleep! So glad you got some!
Sherry - great news on the MRI. Keep us posted on the BMX so we can have a pocket party for you!
As for me, one year ago today I started 6 months of chemo. Had no idea what I was in for! Can't believe it's been a year!
Vicky
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Good Morning Tammi Babes. It seems that taking my pain meds in the morning. I have slept great the past two nights. I go back to the pain specialist on Feb 7th. I tell you with this BC crap if it isn't one thing, it is another. I just want to be left alone - trying to keep the damn beast at bay. Hey! I have an idea. Let's all get together and try throwing the damn beast in the bonfire and then have a round of nice tropical drinks. LOL!
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MamaV love the name Tammy rejects. We might just all be there one day. haha
Jo the bonfire sounds nice. throw some things in let it get hot and then we can have some nice cold tropical drinks. So glad you have had a couple of nights of good sleep. Being back on tammy has made my vivid dreams come back alive. Not sleeping well, but not up all night either. Friday night will be a definite Ambien CR because I can sleep in on Saturday and get caught up on my sleep.
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Hey tammy sister's for those of you here who are prayer warriers I have a brother who needs prayer. Last night he called me to tell me his 15 year old daughter is pregnant. He and my SIL are trying so hard to stay positive but I could hear the stress in his voice. She is a sophmore in HS and of course they want her to finish HS. Her boyfriend is 17 and has dropped out to be a professional boxer. He is suppose to be working on his GED. I personally have always had my doubts about him as he comes to family functions and will not hang out and talk with all of us or any of the kids. Just wants my neice out at the car being lovey dovey. My neice is a very sweet girl but has no clue as to what life is really all about, heck she is only 15. Anyone they are having a stressful time and trying to make the best of it so if you guys could keep them in prayer I would appreciate it.
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Prayers going out Sherry. Its hard enough being pregnant in your 20, but to be a teen has to be so much harder.
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Sherry... absolutley prayers for them being said...
Jo.. so glad you are sleeping better and the time change on your meds has helped..
Paula you better not leave us... we will have to hunt you down lol... sistas forever no matter what!
Hope all my Tammy ladies are having a great day0 -
Hey Ladies, a little advice re: ambien. Take "right before" you want to sleep. I have taken it before puttin' on the jammies and woke up to find I had made myself a big lunch to take to work the next day and did not remember doing it. I stopped about two weeks ago and have been doing well (after a few nights). I took it for 3-4 years and have "other" stories. Thought I'd share a slightly different kind of eye candy. Crazy about you all, you strong women!
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Sherry, prayers going out for your brother, niece, and family. So many young girls having children and grandparents raising them - seems to be the new normal for so many - prayers for ALL of them as they encounter the challenges.
I totally think Tammy Rejects would be a viable option if anyone gets kicked out of here. I was on tami for a short bit, found these wonderful women, then went off and missed them terribly, and knowing I could join in again probably was a small factor in my being willing to try this drug again. Can't say I am enjoying the pill and how I feel on it, don't know how long I will be able to tolerate feeling like crap - but I love you all so much here - so will hang in there for a while, but may have to find a new home with Vicky and Paula and anyone else who needs a new home - but I think we won't have to as you are all so tolerant in general! BTW, I told the MO I would commit to 3 more months if she gave me a 90-day Rx instead of having to go every month to the pharmacy. Hope I can keep that promise - last couple of weeks have been especially rotten on the pain and fatigue issues. *sigh* Think I would rather be dealing with the vag discharge (that doesn't bother me any more).
Jo, that bonfire really appeals to me right now. It is cold, gray, rainy here - we are expecting another couple of inches of rain on already soaked ground. I am chilled to the bone (and the personal HF/sauna episodes just add to the misery of being cold AND wet!) despite furnace on, multiple layers of shirts, sweaters, shawls....
OK, enough negativism. I had a couple of hours of grace today (thats LOTS of "moments of grace") - met with a study group that has grown from 3 to 8, so lots of ideas discussed. Had lunch with DH, got one of the best canolis for desert, and am looking forward to preparing for my students for tomorrow. I am so grateful that my brain fog is better and I can do the main work that I want to do.
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Sherry - Prayers on the way!
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Sherry OMG I worry about them and will be praying for your whole family. Please keep us posted.
Well Mom is still dehydrated and they are now planning on taking her off the IV drip which the family doesn't want them to do, but I guess it is not in our hands at the current time, they say it is dangerous for her to be on longer than a week. Gosh I hate this crap, so up and down but at least she is still with us!!!
Love you all and Linda your group sounds wonderful, glad you found some wonderful women.....and the canolli sounds yummy too.
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June still praying for you and your family.
Purl I had a friend that was dieting and working out and she kept gaining weight and could not figure it out. Her college age son would come home late at night and find candy wrappers and bags of chips eaten with the bags on the counter. He would just throw them away. Anyway she finally figured out that she was getting up and slept walking and eating at night. She changed to Lunesta and was fine. Luckly I have always been fine on it, but I do take it when I go to bed as it works pretty quickly on me.
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Newbie CarolAnn here
I made it my first week! I love reading your posts....man candy, weather updates, prayer warriors, sleeping habits. Love it all. Ok, the wet shirt guy was nice.
I am only taking tamoxifin for six months and then I will take it for six more months, and then six months more...etc. Five years is to big a pill to swallow.
Because of you, I have olive oil in the shower for my vajayjay and am drinking lots of water to try and stay soft and healthy.
Here's to the next week!0 -
We are a mixed group thats for sure! Mixed nuts that is,lol!!!!!!!
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June- good to hear your mom is fighting
Sherry- fear is a powerful thing and our minds play us sometimes...if the melatonin helps keep you asleep and you sleep through the anxiety feelings, more power to it!!! How about a lavender bath befor ebed to swing with it?
Paula- I have the air con on in the room I each in..I tell the trainees to bring a sweater as when the air con is not on, there is no air flowing...such an unhealthy building. but I no longer seem to have hot flashes...my hands are cold all the time and I have the heat on in my bedroom this year....it is as if the tammi knicked me into menopause and then my brief stint on arimidex kicked me back to my normal cold feeling! One thing I have noticed post drugs...maybe because of menopause and dryness??? no vaginal discharge of any type...think of how much I am going to save on light day pads!!! Not sure how that will all work if I ever become sexually active again but will deal with that if it ever comes to pass! In the meantime, i am going to enjoy it!
Linda- when I was on tammi, splitting the dose in half really helped my sleep, moods and piece of mind....
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Jo - super hugs coming your way my dear...you are a tough cookie...have you tried zopliclone? like ambien, you have to take it soon before bed. I too have found food on the counter that I do not recall making..and posts here that i do not recall writing, actually..oy!
I stopped tammi last March and I am still here...kind of like leaving the workplace and keeping in touch with those you loved from it. once you are on this line..you can never leave! Welcome to the hotel tamoxifen!
Sherry....oh boy...hugs coming your way and loving thoughts going in the direction of your niece...may he turn out to be the kind of guys who stays around and loves her to pieces!
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Hello Tammi buds!
Hope everyone is well tonight.
Jo - I am glad you are getting some sleep. Amazing how much better one feels when rested.
Sherry - Will pray for your brothers family including your niece. Being a young mother is a special challenge so I hope the boyfriend will grow into the man she needs him to be.
June - Continuing to keep you & your mom in my prayers. Sending big hugs...
As for me, had my first 3 month onc f/u Monday. Went well so I will see him in 6 months. See the PS tomorrow for my 8 week post exchange visit.... Seems like life is about to go back to some semblence of normal...
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Just finished up my last chemo today
Doc will start me on Tamox in 4 weeks. He keeps telling me I will do well on this. I have learned that Docs try to minimize side effect to keep you aniexty level low. I will be on Tamox for 5 years and then another drug (forgot the name) - chemo brain.
Said I need to look for pain in legs (blood clots) and any abnormal female bleeding...have not had a period since starting chemo (age 50)
I know there will be hot flashes - I am getting them now...what to take for that ?
any other advice ? Am I going to be a bitch from hell on this ? Do I need to ask for anti depressants or more Xanax or sleep aids ( I do take Xanax at night )
I will read this whole thread this weekend after I get over all the chemo side effects. But would appreciate any advice for a newbie.
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Welcome Carolanne and Tappy.....I split my dose am and pm that did help quite a bit. I still have fatugue issues and anxiety and mood issues. I am premenapausal so I am still getting,my periods. Had an uktrasiund in Nov and there is thickening from the Tammy, my doc said the same thing watch for abnormal bleeding. Wishing you both the best and we are here for anything you may need....
Well my DD is sick now with a sinus infection, the mono is making her so sucesptible to everything. The school started giving us
a hard time even with a doc note so her doc wrote a formal letter saying it was medically necessary for half days and absences need to be excused her spleen is enlarged etc.., hoping that helps... they don't want to mess with a mom on Tamoxifen right??? Lol
Hope everyone has a good night
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Sherry - paryers are out there for your brother and family. It is tough but sometimes works out okay. Boyfriend sounds like a piece of work though.
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