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Bottle o Tamoxifen

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  • jo1955
    jo1955 Posts: 7,545
    edited March 2012

    Paula - Now that is what I'm talking about.  That will get me through this afternoon and then some.  Thanks girlfriend.  You have the best eye candy.  Blood work is done and now going to the pain specialist after lunch.

    June - It sounds lke the tammy break maybe just what you need right now.  Remember, it has a long half life and can take up to several months to get completely out of your system.  I went off of it for 12 days and actually felt great.  Just focus on getting some relief and not on the tammy.  Will be thinking of you.

    Tink- I heard you this morning on my shoulder - the wings were just a flappin'.  LOL!  Take a break now and will know you are with me this afternoon.

    Hope everyone is having a great day. 

  • Sherryc
    Sherryc Posts: 4,503
    edited November 2013


    Jo's pocket party was fun!

  • June2268
    June2268 Posts: 926
    edited March 2012

    I know Sherry you couldn't keep your tongue to yourself......oops did I really say that out loud?  Ha ha......

    Jo it was a fun pocket party today but we were laughing so hard at Sherry that we didn't hear the results......

  • Sherryc
    Sherryc Posts: 4,503
    edited March 2012

    JUne it must be our tamox holiday getting to us already.  Sunday was my last dose for a month, yipeeeeeeeeee

  • Linda-n3
    Linda-n3 Posts: 1,713
    edited March 2012

    Snoopy, thoughts are with you as you deal with LIFE right now.  Safe travels, prayers for your father, sending lovingkindness that you find a few moments of peace and quiet amongst the craziness.

    Tink, hang in there with those sinuses.

    June, you can hardly blame Sherry for comments - I nearly passed out hyperventilating over the latest eye candy from Paula!!!!!!!!!!!!!!!!!!!!

    Odie, I am also enjoying a beautiful day here - sunny, warm.  Had lunch with a friend who is a retired pastor - we both love Indian food so meet about once a month or so to enjoy each other's company and satisfy our palates!

    I am 4 days without tammi - nothing much changed yet.  Still waking up with pain, still having drenching sweats.  But am optimistic I will feel better in a couple of weeks.  So what's a couple of weeks when I have been feeling like crap for 7 months?

    Jo, I have been very quiet and well-behaved in the pocket today, even though Tink pinched me.  Can you believe her?????????????

  • Paula66
    Paula66 Posts: 1,572
    edited March 2012

    You can tell its not Sunday anymore, huh Tink.  I hope she did'nt pinch you to hard Linda, lol!  With spring in the air she is a bit onery today, lol.

    Wow I had a fun filled pocket party, but I need a towel so I can wipe off the drool, lol.

    Snoopy I hope all is well with the mammo!

    Have a fun filled sunny afternoon my sista!!!!  Love Ya!

  • tinkertude
    tinkertude Posts: 1,998
    edited March 2012

    Ha...thats right Paula it isnt Sunday anymore !!! have to make up for lost time lol.... Sorry Lynda..just wanted to get tto the eye candy..... first!:)

    Hope your all having a good day an wonderful weather!

  • jo1955
    jo1955 Posts: 7,545
    edited March 2012

    Linda - Yes, I can believe Tink did that.  She can be such a bad girl and to think she promised me she would be good if I shared the eye candy Paula gave me.  Well, I know think so - LOL!

    Thanks everyone for going.  Now going to have to go wash my pockets out and get them ready for next Tues.

  • Sandeeonherown
    Sandeeonherown Posts: 1,781
    edited March 2012

    oh boy..I am SOSOSOSO behind again. Can't catch up so will just send some love. Linda, glad you worked things out with HR. Sherry - good you get a tammi vacation! Tink- so sorry you are feeling crummy again...June too! Sheesh...enough already!

    I had my root canal two weeks ago and now I think the temporary filling has fallen out. Made a dentist appointment for next week as I was old no infection was possible...and then mid afternoon, my lymph gland started acting up and pain on my left side. We will see how the morning goes.

    Got my visa for China...leave on the 29th for 30 days...then back for a course here in Halifax. Crazy schedule but I have given myself some jetlag time at both ends so it should be all right. Also have a job interview next week for an overseas position next year...all post June appointments of course...why do I put so much in store in those annual appointments?!?! Feeling much better since going to the massage therapist and having her realign my ribs..who knew radiation could make your ribs more pliable...movable? Tink- that was where my breathing problems have stemmed from. Also have an osteopath appointment for next week and have cancelled my chiropractor appointment as it helps my hip but puts my ribs out...even laying on the table...crazy...

    oh...and also decided that committee work with the group I am paddling with is not for me at the moment...despite being worried I would disappoint, I told them that I could not be on the committee...BC survivors understand...and they did! Phew!

    love to all...

  • Sherryc
    Sherryc Posts: 4,503
    edited November 2013


    Good Morning ladies well I have been off of tammi for two days and my passing gas has stopped. Must be something in the fillers of the Teva brand that does not agree with me. Also my hot flashes have stopped. But two weeks ago when they were really bad I went to acupuncture and they treated me for them and I could tell a significant difference by the following day and it continued to get better but not completely gone. Now off of tammi they are gone. Wooohoooo but I now I'll have to go back on this sooner or later and it will all start up again. But enjoying the break non the less.

  • Joanne_53
    Joanne_53 Posts: 714
    edited March 2012

    Sherryc - I wonder if acupuncture can help with the gas .... lol

  • Sherryc
    Sherryc Posts: 4,503
    edited March 2012

    Joanne I thought about this morning, think I should ask. LOL

  • June2268
    June2268 Posts: 926
    edited March 2012

    Sandee China for a month.....way to go girl.  Who would have thought massage therapy for ribs.  I think I am going to try it.....

    Sherry glad the gas has stopped for you.  I have not noticed any difference yet as I am only on day 3 so far.  My stomach is funky and have had the runs but my girl has the stomach bug so I could be on my way next, who knows.....

    Hugs to all you lovely ladies and hope everyone has a wonderful Thursday....

  • Sherryc
    Sherryc Posts: 4,503
    edited March 2012

    Sandee China sounds great, so adventurous. We will need to see lots of pics.

  • tinkertude
    tinkertude Posts: 1,998
    edited March 2012

    Sandee... what a wonderful adventure... will be anxious to hear about it and see pics :) hint hint

    Sherry... so glad you are feeling relief already... :)

    Junie... hope you feel better soon!!! hugs

    Hugs and love to all my wonderful tammy ladies... you are all such a wonderul bright spot in my day!!!!

    hugs

  • jo1955
    jo1955 Posts: 7,545
    edited March 2012

    Sherry - When I took my two week Tammi break to see if it was causing my muscle aches and pains - I found out it was the Tammi but when I went back on it - the aches and pains did not come back.  You may not have the same SEs. Here's hoping you don't have the hot flashes again.

  • newfmama
    newfmama Posts: 46
    edited March 2012
    Hi Ladies,I'm popping in with a question.  I've been reviewing several of the threads on Tamoxifen and am curious if anyone is having a side effect from Tamoxifen like I am.  I feel "drugged".  My eyes look glassy and my husband says I look like I'm "high on drugs". I had started Tamox (Teva) in November but went off in early Feb due to hives and thrush (at my Onc's direction).  I went back on 3 weeks ago (Mylan 10mg am 10mg pm) and starting feeling this way within about a week.  I'm also extremely tired, even after 10 hours of sleep.I will most likely call my Onc and let her know but am curious if anyone else has felt/looked this way on Tamoxifen.  Thanks!
  • tinkertude
    tinkertude Posts: 1,998
    edited March 2012

    newfmama... yes i have the same issue i am always tired and kinda fuzzy feeling is the only way i can describe it. Have to really push myself to do things.. and I exercise almost everyday and still have the same issue...

  • newfmama
    newfmama Posts: 46
    edited March 2012

    Maria, thanks for the reply.  It helps knowing that it's not just me going crazy.  How long have you been on the Tamox?  I'm hoping that with time, it will get better.  

    I was feeling so good at about week 5 of being off the drug, but now, feel worse than before.  I am thankful; however, that I don't have the hives or thrush...guess that will have to be enough for now.

    I hope all of you have a good evening.

    Deborah 

  • harley63
    harley63 Posts: 30
    edited March 2012

    hey, I'm back!  I lost my password and had to re register... LOL

    anywhoo...  I have 198 more Tamoxifen pills left to take!  Today is my FIVE year cancerversary!

    WHOHOO!!!  I should be finishing up the Tamoxifen Oct. 1.... 

    can't wait!

    Hugs

    Harley

  • jo1955
    jo1955 Posts: 7,545
    edited March 2012

    Harley - Big congrats on your 5 year cancerversary!  What a milestone and such as inspiration you are to the rest of us.  

                   

  • June2268
    June2268 Posts: 926
    edited March 2012

    Woo HOOOOOOO Harley.....we have miss you here, where ya been?

  • newfmama
    newfmama Posts: 46
    edited March 2012

    Wow Harley.  Congratulations!

  • Sherryc
    Sherryc Posts: 4,503
    edited March 2012

    Congrats on five yearsHarley wooooooooohooooooooooooooooo.  Glad you came back to see us.

  • tinkertude
    tinkertude Posts: 1,998
    edited March 2012

    Harley!!!! fantstic news!!! wahoo so happy for you! hugs

    Deborah.. I have been on Tammy for 18 months. Some se come and go but the constant ones for me have been the fatigue fuzziness and the moods. It is quite the ride. Hoping yours ease up, sometimes they do .Somedays I think I annot do this for another 3 and 1/2 years.. but then I use Sandees 24 hor rule and just say ok I just have to get through today!!! and just keep plugging away lol.. hope you have a great day

    Junie how are you feeling?

    Maria

  • jmland
    jmland Posts: 8
    edited March 2012

    Wow. This thread has been going on since 2007 and don't know if my post will be revalent but I have been on Tamoxifen since Oct and I have not made peace about it.  I guess it started with well meaning people who gave me information on the horrors of the side effects and it has caused me great anxiety. The hot flashes are not particularly bothersome to me.  I do not have night sweats but I have been experiencing nausea, muscle aches, extreme fatigue, and depression and the depression seems to be bothersome when it is that time of the month.  I have been so sick three weeks ago that I lost 11 pounds and it would take me a full morning to eat a jello cup.  The doctor took me off for 9 days and although the symptoms didn't clear right away, I felt like my normal self.  Now I am back on it for the third day and I am fatigued again and feel light headed.  I feel as if whatever decision I make about staying on it, I will suffer.  I have been reading posts on this site and I feel a little better.  I guess I feel now that I am not alone with what I am feeling and it is not me going crazy  :)

  • Linda-n3
    Linda-n3 Posts: 1,713
    edited March 2012

    Good morning!  I have been off tammi for 6 days, still having hot flashes and pain.  For those of you who have been off before, how long did it take for these SEs to improve?  I am beginning to think the pain may actually be from the chemo-induced neuropathy, but it affects my whole body, so I'm pretty sure the onc will deny that.

    Great to hear 5 years, Harley!  It is so encouraging to hear others who are not  only surviving, but also truly living!  Thanks!

  • tinkertude
    tinkertude Posts: 1,998
    edited March 2012

    Linda.. I love what you said " not only survivng but also truly living" love it and so true.

    JMLAND..Welcome !!! it is not you and  your not going crazy. I have alot of se from Tam and several of which yo described. I described it to my onc as being on permanent PMS lol.. although it isnt like that EVERYDDAY but yes much worse around cycle time for sure. We are here for whatever you may need!

    ok ladies i am off to do some straightening up. DH grandma is coming today for a week She just lost her husband a few weeks ago and wanted to get awayand we are thrilled to have her. She is the best Mimi ever. Never knew my grandparents.. unfortunetly they all passed before I was either born or old enough to remember them so she is theonly grandmother I ever knew..

    Have a great day

  • heartnsoul76
    heartnsoul76 Posts: 1,204
    edited March 2012

    Hey ladies!  Well, it's finally Friday!  Seems like a loooong week!  My mother always says, don't wish your life away.  Maybe I'm just looking forward to next week - my son will be on spring break from college and he swears he will help me with some big stuff around the house.  I really need the help because he will be going out of town for 12 weeks in about a month for an internship in Seattle.  Exciting, for sure, but it will be the first time I've ever lived alone in my life!  I hope to get a lot done, and not just mope around....but I'm sad about it.  I'm thrilled for him, so I can't let him know I'm sad.  I'm just going to try to stay busy but I'm really dreading it.

    Tink - how nice to have your DH grandma come visit.  I miss mine so much, they are just delightful with all their stories and cheerful disposition.  Just a joy to be around!  Have fun!

    Harley - woot!  I can't wait to get where you are!  Your doctor may try to get you to start on an AI now.  Would you do it?  I don't think I would.  They tried to get my mother to and she said no, and she is still fine 10 years later. 

  • Paula66
    Paula66 Posts: 1,572
    edited March 2012

    Yahooooooooo as Lynn says, its Friday and I'm off until I have to leave to go back on Monday!!  Lets get the party started!!!  Doing mental cartwheels of delight because the boys are going away for the weekend and it will be just me, aweeeee I can see potatoe chip suppers in my future, yummy!  Its not that I don't like my family, I love them.  I just long for some piece and quiet. 

    JMLAND welcome to the group.  The gals around here are great.  Don't be afraid to post questions that you have.  The gals here are so very helpful.  I too felt like I was gonna go off the deep end a few times.  I dont know if its the Tammo that causes this or that its par for the course.  Hang in there!  We are here for ya!

    Tinker have a fun time with your MIMI!!!  Its gonna be a beautiful weekend.

    Harley congrations on the milstone of this Tammi Train!

    Junie I hope all is well with you!  Looks like Tink is gonna be busy so we cant get her with any pillows.  

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