Illinois ladies facing bc

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  • hopefulhealing
    hopefulhealing Posts: 581
    edited May 2012

    Good Monday morning!  Wonderful news for so many of you yeah!!! 

  • Adey
    Adey Posts: 2,413
    edited May 2012

    Lisa and bj,  it begins AGAIN!  I did workout 1 of Couch to 5K today.  I am going to try to do it every other day instead of 3 times a week.  Wish me luck..... AGAIN.  (c:

  • LisaMomOfFour
    LisaMomOfFour Posts: 226
    edited May 2012

    Oh Adey ...  good luck!    I went all the way through the program and was running a good twenty-thirty minutes at a pop (on a treadmill with no incline, so much easier than outside.....).  

    Then I had my revision surgery and doc said NO RUNNING for two weeks, so I just started up again last week, and it really feels like I am starting over.  Very frustrating!  

    And since I will be having nipples done in July, I'm going to go through this again, won't I?  

  • Adey
    Adey Posts: 2,413
    edited May 2012

    I'm with ya.  I have stage 2B in August.  I hope to get in one 5K before and I will begin again too!

  • lago
    lago Posts: 11,653
    edited May 2012

    I started to seriously work out again in January. It seemed prior to that I would start to strength train then  have to stop do to surgery. My last surgery was in October. Did some healing then got the full-time freelance gig and it was winter. When the gig ended I started again. Tattoos weren't an issue.

    But you can always walk, maybe not power walk but walk soon after most of these surgeries. I think the actually recommend it.

  • C-squared
    C-squared Posts: 338
    edited May 2012

    Any insight for this rollercoaster ride? I had AC #2 last Thursday (5/3) with the awful headache Thursday eve and Friday.  They prescribed me Ambien, which I picked up on my way home from work, and I went to sleep until Saturday.  I woke up a little sluggish but not feeling to bad.  I spent Sunday in bed due to a complete lack of energry for anything else and now Monday in bed. I'm feeling light headed and squeamish, mild headache and some dehydration (trying to hydrate), no apetite but know I have to eat!  I'm curious why I was rather "okay" on Saturday and then went back downhill?  Anyone else have this experience?

    CC

  • lago
    lago Posts: 11,653
    edited May 2012
    C-squared I didn't have AC but not staying hydrated might be part of the reason. I made sure I drank at least 64 oz of water/fluid a day. If you drink more try to mix it up with soup etc not just water. Too much water can mess up your electrolytes.
  • LisaMomOfFour
    LisaMomOfFour Posts: 226
    edited May 2012

    CC -- It's normal for it to take a few days before it "hits".  I would have chemo on Thursday, had the steroid high on Friday, felt fine most of Saturday, would start to feel it Sunday - Tuesday, then rebound on Wednesday back to feeling OK.  It's different for everyone I know, but it's not uncommon to feel your worst a few days after chemo.  

    Hang in there... I know it seems like forever when you are going through it...  

    Lago is right...drink as many fluids as you can handle.  I also felt better on the days where I got up and walked for even just fifteen or twenty minutes to start my day.  Even though most days... I really didn't feel like doing it!   

  • joan888
    joan888 Posts: 711
    edited May 2012

    CC- I had TAC every three weeks on Tuesdays.  I felt fine until Friday afternoon and was down for the count over the weekend and then back up on Monday, at least for the first 3 treatments.  After that, it took me another day or two to recover. Headaches could be caused by dehydration.  I lived on fruits... lots of watermelon, oranges, watermelon, Edy's frozen fruit pops, watermelon, even J-E-L-L-O and more watermelon.  I could not stand the taste of plain water, so I drank alot of flavored waters like ProPel, etc.  Hope you are feeling better soon.

    I called my PS's office this afternoon and whined a little bit. Why not?  This drain is beginning to look like it will be around awhile.  I was told that since I had had some "issues", it is not surprising that this last one is lingering on a while.  I really need to get my back surgery rescheduled and PS is now telling me probably not until July. Uggh! Wonder if I can get a bulk supply of NORCO!

    Anyone else want to join us for lunch in the city this Thursday?  Send me PM and I will get you the details. Looks like it will be a beautiful day.

  • lago
    lago Posts: 11,653
    edited May 2012

    Joan it better be sunny and nice. This gray is making me want to slit my wrists Tongue out Seriously I can tolerate this in the winter and part of April but I feel like I have been under a cloud for weeks.

    linky 

    EDIT:
    I must scared someone with my comment. The sun is now out!!!

  • joan888
    joan888 Posts: 711
    edited May 2012

    Whaaaat?  My mother always used to sing "you are my sunshine" on cloudy days. I try to do that now to keep my spirits up on gloomy days.  Well, at least it is not snow!

  • stjude10
    stjude10 Posts: 230
    edited May 2012

    CC, I had the DD AC on Tuesdays and did pretty well for the first couple of days. Steroids I think. My MO had me come in on Fridays and would give me a bag of fluid for hydration. Made all the difference. My weekends were fine, just a bit tired. Good luck!

    Lago, I wish you woulda come down here today and scared the sun out. It was sooo gloomy!

  • lisak7290
    lisak7290 Posts: 103
    edited May 2012

    Well first day back to work went good..my feet started to hurt around 3.. Think I need torso akin the tub for a bit.

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2012

    Lago....I'm with you.  I can take a day or two of rain or gray and then the "edge" starts to grow on me.  I feel trapped and uncomfortable.....not quite ready to fashion a noose, but dreading the possibility that there is more gray on the way.  I feel suppressed....un-natural, and want to curl up somewhere til' the sun comes out again. 

    CC you will find your 'pesonal' pattern and know exactly what to do to minimize the yuckies !!!! Its the pits, but their is a big reward....just keep that in mind and in sight. 

    Rained today....oh lovely......but we have had some good days too, so nothing on me is curling up just now. 

    Way to go Lisa.....yay......hope you enjoyed the tub.  Some nice bath salts to soak in....like Lavendar Epson Salts......

    See you all in the morning.

    Hugs, Jackie

  • kcshreve
    kcshreve Posts: 349
    edited May 2012

    I am visiting Chicago, transitioning a move from Dallas.  It's already very hot and uncomfortable there.  I have been revelling in the cool weather, adoring the fog, taking walks in the mist.  I know you're all sick of it and ready for sun.   Just thought I'd let you know that someone is appreciating your weather.  :)

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2012

    Thought for the Day
    You may be a nobody to most people. What really matters is being somebody to everybody who's somebody to you.

  • GmaNiki
    GmaNiki Posts: 9
    edited May 2012

    I have been reading this thread for some time, and thought I better introduce myself. I am in Peoria. Diagnosed in February and had a LMX with TRAM flap on March 29. Will be seeing the MO today for the results of the Oncotype DX. I am grateful for the great Cancer Treatment Center we have here. Love my BS and PS. Have been very lucky. I have had some problems witht eh abdominal incision. It opened on the right hip to about an inch and I developed an infection with very high fever, set be back about 2 weeks. Still draining, but it is slowly closing. Will see the PS on Friday and fnd out when I can go back to work. Hoping for a low Oncotype score today and can just start the hormone treatment and get on with life.

  • onward
    onward Posts: 229
    edited May 2012

    Hi Ladies, I am sorry but I wrote this up yesterday and failed to hit submit.

    My MRI came out normal. Please see above. I am many things but NOT normal.

    I spoke to Lago last night and said I am kind of disappointed that there is not a quick fix to whatever is going on with me. I was making cookies last night and broke two eggs in the bowl of chocolate chips vs the batter bowl. lol. Yikes. Been in menopause since I was 48 so not thinking that's whats going on.....Onward

  • lago
    lago Posts: 11,653
    edited May 2012

    Ha ha onward. I was thinking the same thing when you said your MRI was normal. But no abnormal brains. It leads to issues: linky

    Welcome GmaNiki Hoping your incision closes soon, drain is begone and low oncotype!

  • [Deleted User]
    [Deleted User] Posts: 4,011
    edited May 2012

    Lago! lol

    Onward - Glad the MRI is spotless. And PLEASE don't ever be normal! ; )

    WELCOME to the new girls!

  • zap
    zap Posts: 1,850
    edited May 2012

    Big sigh of relief for you, Onward!

    This is certainly a new looki!  I have to get used to this.

  • lago
    lago Posts: 11,653
    edited May 2012

    Wow this is going to confuse some folks. It's very pretty. I need to play a bit to see if the interface has improved

  • hawk
    hawk Posts: 255
    edited May 2012

    Welcome to the new girls.  Wow - what a different look!

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2012

    Hey...I'm liking this too......the pictures are a bit different, but I think I could get used to it. 

    Hugs, Jackie

  • lago
    lago Posts: 11,653
    edited May 2012

    I'm liking this too. Just a bit slow today. I can see they are still adding things. It will take about a week for things to settle.

    At some point I will update my profile to include my treatment.

  • mdg
    mdg Posts: 1,468
    edited May 2012

    Hi Girls!  Tattoos are done!  They didn't really hurt or anything.  They were a little tender yesterday but I taught aerobics this morning and did yoga with no issues.  I will try to get photos on the pic board soon.  Jeff did my tattoo's.  He was super nice and really focused on what he is doing.  I was glad I had him to my tattoo's. 

    Onward...so glad tests came back clean!  Great news!!!

    Welcome GMANiki!!!  This is a great group.  Glad you found us!  I hope you have continued healing and LOW oncotype! :)

    I hope this sun stays out!  I want to work in the yard today at some point.  If anyone is a garage saler....our subdivision is having a HUGE one starting Thursday.  I am in Geneva at Mill Creek.  It will run through Saturday and I have heard it is a great garage sale to attend.  I have stuff for sale...I purged since we moved.  I have tons of stuff to dump!

    So now we need to plan a west side walk for anyone that wants to get together.  I was thinking a walk along the Fox River?  If anyone has another scenic location to suggest, let me know.  Since I am newer to the area, I don't know much about what is around.  I can do a mid day walk  (around noon or something).  I am free on Wednesday or Friday.  Who wants to walk with me?  I hope we get a nice sunny day :)

    Hope everyone is doing well. 

  • spunkyboobster
    spunkyboobster Posts: 563
    edited May 2012

    Had a 6 am meeting in Tinley Park today-which means I was up at 4. Now very tired, may need to take a nap.

    Joan- boo to that darn drain lingering.

    GmaNiki- hope you're drain-free soon and you receive low, low, low oncotype scores.

    Hope everyone enjoyed some sun today. Should lift the spirits a bit!

  • roulag
    roulag Posts: 126
    edited May 2012

    Hello my fellow Illinoians (I think that is what we are called), I am new to bc and to these boards. I am in treatment as of this April for her2+ bc. I still wake up in the morning and think that it was a bad dream, but then reality sets in and I realize it wasn't a bad dream but a living nightmare. When I found out I had bc, I couldn't wait for surgery, when they had to go back in cause they found one dcis cell 1/2 mm away from the clear margin, I freaked out. After I had clear margins I couldn't wait to start chemo. Every day that passed felt like the cancer was spreading. I had my first round of TCH on April 19, and have another one this Thursday. I will have a total of 6 treatments. Chemo doesn't feel good but knowing that it is killing the c makes me feel great. Am I the only one who looks forward to the next chemo treatment? Am I doing enough to ensure that this does not come back? All questions that cannot be answered I realize, anybody feel the same way?

  • smerf
    smerf Posts: 476
    edited May 2012

    Good afternoon all! Wow, when did this new form pop up? I think I like it, but the pictures seem slightly distorted.

     Hey Onward, congrats on being normal! Ii is a relief, but I hope you find out soon what is causing your headaches. Maybe sinus from this lovely weather? Don't get too normal, we like you just the way you are!

    Lago, I'm hoping you find your job soon. This economy is so rough roght now. You have so much talent...I could see you helping patients navigate through the hospital system, which I know would be new for you., but you would be good at it.

    mgd  Happy you like your tatoos, and glad it didn't hurt.

    Love the quotes, Jackie. I don't check in every day, so when I do I get to read several, and it's always a better day. Had some sun finally today, but looks like it isn't going to last. I did see the super moon, and it lit up my kitchen about 2AM a couple nights ago! beautiful sight.

    BJ, you're counting down now....field trips will soon be finished, and you can play!

    Joan, really crossing my fingers about that drain!

    Spunky, I won't ask why someone set up a meeting for 6AM, but sheesh! Hope you're enjoying a nap now.

    Wendy, where are you? It was 63 on my deck thia AM.

    Welcome to all the many new ladies I see. You've come to a wonderful, supportive place. Ladies here cannot be beat!

    Laura! Woods must be beautiful about now.

    Have a lovely evening, everyone.

  • smerf
    smerf Posts: 476
    edited May 2012

    By the way, did any of you see the news report about using stem cells for recon? First done in Japan, I think.