Illinois ladies facing bc
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Oh this got knowcked off my fav. lists--I missed so much--but I'm back I can't imagine that I did that. well lately I've been doing goofy things more than usual. LOL
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Hi lago...I am planning on signing up for Making Strides on October 20. I have a couple of questions on how it works...is it the kind of thing where we ask others to donate to our team, or is the entrance fee the fundraiser? Do we get people to join us to walk? My kids and husband may want to walk too, so should we start a new team or join the Illinois ladies? Maybe none of this matters, but it's all new to me. It will be my first walk, so I'm trying to figure all of this out.
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camillegal-glad you found your way back.
kjliberty-this was my third trip, and my favorite.
Adey-pm'd you re: dentist.
G'nite-sweet dreams.
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Lago - I will probably sign up for the walk too. We leave on vacation on the 21st so if I plan carefully I should be able to walk that day with you guys. It should be fun!
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Rabitt please join our team. The registration fee for each person is $25 and it goes towards fundraiser. You are more than welcome to ask others to join our team.
It's my first walk too. I usually just donate. The site is pretty simple to navigate (at least for me). If you are having difficulties contact me off list. We can exchange phone numbers and I can talk you though.
c2belevit This group/thread is good for body mind and soul. So glad you found us.
Adey I love my dentist but since your favorite Mexican restaurant is no longer it might not be that convenient. He was right down the street.
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One of my favorites:
Gratitude unlocks the fullness of life.
It turns what we have into enough, and more.
It turns denial into acceptance,
chaos to order, confusion to clarity.
It can turn a meal into a feast,
a house into a home, a stranger into a friend.
Gratitude makes sense of our past,
brings peace for today,
and creates a vision for tomorrow.
- Melody Beattie0 -
Things not to say or ask a breast cancer survivor or possible survivor:
1. The first thing out of your mouth shouldn't be about the story/ies of all the people you know that have died after battling of breast cancer for 10 year battle. (I was at a networking event last night wearing my sleeve. Woman was trying to recruit me to some committee and I explained I was a bit too involved right now with the ACS strides event. I know she could tell I was a survivor).
2. In an elevator of people, when someone asks about that sleeve and they reply "I have a circulation problem" Don't ask "Is it for lymphedema, my mom wears one too." Even one of the other women in the elevator said to me "Wow I bet you didn't expect to be interrogated about this!"
OK rant over. Off to the gym
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c2believe -- it is all about whatever the needs are of anyone to be supported in a variety of ways. I hope you will put us in your favorites and share whenever you like, and whatever you need to on your journey back to wholeness.
Cammillegal -- I found myself....when using the jump to bottom button -- hitting the other right below which was/is the remove button. After doing that five or six times ( slow learner I guess ) I realized that unlike before BC. Org changed the format on this....I was really going to have to FOCUS much harder to get it right. I think I finally learned to look if it was the shaded space ( wrong one ) or the white one. I'm doing fine with it now, but I had fits for a while.
Waiting and praying for rain today. At least it is cloudy and a little cooler though the humidity is still way up. Most of the storms are North of us now. Today I start late --- but ok for today and tomorrow as I will have the week-end off.
Hope you are all having a fabulous day.
Hugs, Jackie
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hahaha Jackie I did do that I'm sure OOOO what a brain I have.LOL
Lago to funny actually---when I do go places where I don't know many people I put a sling on that arm and the stories are endless from skiing mishap to simple car accident--that's me tho, m sister hangs her head in shame and I remind her she didn't get Le with hers. so shut up. And she laughs and usually says u r such a hero to so many people with that arm of u'rs. Again I am a little different.
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I would like to tell people it "holds the bionics in place, watch out I have a mean left" but these people live in my building. The sling is pretty funny too.
Today I was one of those obnoxious people handing out literature for the walk. One woman came up to me. She too was a survivor. Treated at the same place. Had my BS's partner do her surgery about a week after mine. We hugged. Sounds like she might come in October.
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Lago &Camillegal~ LOLOLOLOL at the responses to over-curious strangers!
Hi all~ I can't believe it was 3 weeks ago today that I had my BMX. My sister returned home to CO this past Tuesday and I'm slowly but surely adjusting to life without daily humor! We had such a good time in the midst of tragedy.
I met with my onc today for the first time since before surgery. We discussed AI use, specifically Anastrozole. Needless to say I am fearful. I was surprised to learn that it only reduces the chance of recurrence by 8-10%. I'll keep my fingers crossed for minimal SE and since I got slammed with febrile neutropenia & a 4 day hospital stay after my last chemo I think I am deserving!
At this point my biggest complaint is lack of energy. I feel like I can only do one "major" task a day whether it be an errand or a visit, simple mundane daily living has become tiresome. I can't wait until I can do 2 things in one day and I'm hoping it will be prior to returning to school August 20th!
I am thinking of you all and so grateful to share in your wisdom, laughs and challenges. I have learned so much from you and I am forever thankful!
So any advice on the AI? Is it a "wait and see" regarding SE? Is there anything I can do to become compatible with Anastrozole? My onc has encouraged weight bearing exercise but what about vitamin supplements?, etc.?
Peace to all! CC
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C-squared I too was wiped out after surgery. Your body is healing. It uses up lots of energy to do that. It's normal. I would wake up energetic but it wouldn't last long.
I too was fearful of the estrogen sucking drug (ESD). I'm on Anastrozole. It really is a wait and see. I have some stiffness in the morning and when I sit too long but for the most part I'm doing fine. I was doing the weight bearing exercise before all this (some strength training along with power walking and/or elliptical). The walking really does help you get through chemo.
Here's some info from the ACS on nueropathy and chemo. At the end it discusses some studies. Not sure where they are with them now. There might be some newer information. This is over 1.5 years old. I did take Acety-L-Carnitine. Not mega doses. I swear it helped prevent neuropathy. It started in my left heel and some pins & needles in my left hand. Once I started taking it I only has some in my left heel. Still have some of that but it's just numb not painful and not all the time. linky I was on taxotere which does have nueropathy associated with it.
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Lago- OMG!! No longer! Gasp.
Las Pinatas is still in business........ for now. Nice rant. (c:0 -
C-squared Well it is one thing at a time and then 2, 3 etc. Even tho pain is minimal it zaps u'r energy but I 'm glad to hear u had fun with u'r sister==that's so uplifing--my sister lives close by and we laugh at all our cancer stuff instead of cry. LOL It's always hard to say how u'rll react to anything from now on--we all have different experiences so I hope u have the best of them.
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Hi Yall, even though I havent checked in in awhile, you are never far from my thoughts. June and July have been crazy busy, the boys are home, girlfriends stayed, weddings, birthdays and anniversaries. Hopefully it will slow down and I can check in more often.
ADEY: Call me, I have a dentist for you.
Newbies: Welcome.
Blessings to all. Onward
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In our willingness to give that which we seek,
we keep the abundance of the universe circulating in our lives.
- Deepak Chopra0 -
Possibly a break in the hot weather today?
This has been the busiest July that I can recall. Not a single idle weekend. This weekend we're off to Madison to see Pirates of Penzance. Anyone else nuts for G&S?
Deep breathing time, too. It'll be an eventful August. I get my port on Wednesday and start chemo on Thursday. Oldest starts her last year of college, youngest starts her first year of college. (Middle doesn't go back until Labor Day.) Yes, we were stupid with birth planning - three in school at the same time. When I'm not feeling sorry for myself that all my little birds have left the nest, I'm thinking of putting up a collection tin on a street corner to help pay for it all.
Have a great weekend all.
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Morning to all. A bit cooler this a.m. and won't have triple digits today though never got our rain storm....did get 14 and 2/3rds. drops though. Oh my.....well over the week-end there may be some more coming....hope, hope, hope. I'll take the cooler temps anyway.
Lynn.....I never planned my kids either --- just about 2 yrs. exactly apart. Figured I'd get what I got when the good Lord sent them along.
Waving hi to you Onward. You sound like you really have had a whirlwind going on. Time for a vacation.
Hoping for good things for all.
Hugs, Jackie
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Saying hi this a.m. to Navy Mom, Lemondrop, Lisamed, and madismommy.
Hugs, Jackie
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AHUMMM Jackie-----
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Wow, I just opened my mail and there was a card letting me know that SHE knew that in a few days, I would be two years out from my double mastectomy. Holy cow, I myself forgot about it. My first thought was that she was wrong, it had to have been longer than that but she was right.
So ladies who are heading towards surgery or our still in treatment, there will be a day that you look back and say REALLY????
Blessings sometimes come in suprising boxes.
Onward
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Drains OUT!!!!!!!!!!!!!!!!!!!!!!!!!! 0
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Yay Drano HeideK!
Onward Congratulations. I'm right behind you. Au 31st. This is our 2 year NED date! Hard to believe it was 2 years ago. Boy do I remember that scary summer of 2010 before treatment but after diagnosis. Seems like it happened to someone else.
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C-Squared and Lago: I, too, have an rx for Anastrozole. It has been sitting on my kitchen counter for a week now. I have been stalling.... I will start tomorrow.Lago: What time of day do you take it? I have sleep issues anyway, and that's one of the MANY S/E's of thhis wonder ESD. Any suggestions, and as C-Squared asked, any supplement suggestions would be much appreciated. My MO just suggested Calcium w/Vit. D.0
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My NP told me to take in the morning so I wouldn't have sleep issues. I am on plenty of calcium and D suppliments too.
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Lago: Thanks!
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KJ same thing here, Mh supplement I take every Sat.??? Vti c and D--My sister and I were ralking today and we both take xanax at night and 1/2 of05 was always enough for her--be since she went generic she's taking a full one and I take more too. We don't know if we're building up an immunity to it or it's generic so it's different a wee bit. So sleep issues still going on now for us.
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kjiberty~ You're a step ahead of me..., My prescription is sitting at the pharmacy! LOLOL
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Go for it ladies, take the plunge.
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Question for you Caltrate (or Caltrate substitute) ladies: I heard you can get bone pains or aches from taking it. Have you had such experience? If aching bones is also a SE from Neulasta, I don't want to double up on the likelihood of a problem even though the MO recommended starting it. On the other hand, osteoporosis isn't pretty. I have always had heavy strong bones, but between age and chemo that is probably changing.
Off to Mad City and the man devoted to duty and the woman who mis-heard pilot.
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