Exchange City
Comments
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Roan...I was afraid too. Its not so bad. And....it gets better.
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cmartin- Thank you for the info. I'm so ready for the process to be over. However, I've grown pretty fond of my TE's!
I've got patients that have been in our Cardiac Rehab that was here from the beginning of my diagnosis in May and they want to "feel' them. I had one of the ladies just grab a handful in the lobby of my hospital. That cracked me up.Roan- I slept in my bra from the TE surgery for 2 wks. I would wash it everyday, because my hubby and I were always getting the drain fluids on it. I'm sorry you are in such pain. Hope you feel better tomorrow get some sleep and take the good drugs.
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Chrisrenee.....same here. I work with a friend who is infatuated with feeling! I don't blame them. You know they wonder. My TEs looked pretty good too. I have pictures on the forum if you are a member.
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I'm with everyone else who is saying that the final product is so much better than the TEs. I only took one pain pill, the first night, because I thought I should. I've been sleeping on my side (AHHH....) since the second night. And my breasts are awesome looking too! I've said that they're probably better than the originals! I was worried when I had the TEs in, because they were too high. But mine are now just the right size, and where they should be, or close to it. I seriously did not think I would get nipple recon because my "frankenboobs" didn't look or feel right. Now I'm not so sure. My PS wants to see me in three months, and we'll decide then.
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cmartin- how do you get to be a member of the picture forum? I would love to see what others look like, because all I have to go by is what mine look like. I know sounds kinda pervy to say I want to look at other women boobs. haha! When my hubby and I were looking at boobs for my recon, he told me to go to the porn site to see what I liked there.
Nurse Lizzie- Do you still sleep in a bra/sports bra since you've had your exchange surgery?
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Pm Milan and she'll get you access.
I'm in a bra almost 24/7. Its more comfortable.0 -
That is supposed to be Lilah. Auto spell check!
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thanks cmartin- i have PM'd her.I don't know if I fall within her guidelines or not. so we'll see. I am just so amazed at this whole process from start to finish. I've received so much, much need advice from alot of you lovely ladies. It's so hard to talk about how I feel with people who have never had to deal with it or someone who doesn't get tired of me talking about it. I hate to bore people with my "illness", and at least on these forums everyone knows how we feel.
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Chrisrenee - my PS doesn't insist that I wear a bra 24/7. His only bra "rules" are that he doesn't necessarily want me in an underwire, and that I can't do any high impact activities braless. Otherwise, I can wear whatever is comfortable, which right now are soft sports bras and camisoles.
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I'm in envy of all who have had there exchanges mine was suppose to be today but was postponed do to the style Sientra 550's on back order go figure can't wait for the TE'S to be out the pain for the last year and a half has been awful hopefully surgery will be before the holidays would be a really nice present so I can move forward feel so stuck..sorry for venting but was so excited to have it done then bam postponed...
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I am in envy too! My journey has not been long but I am so excited to get rid of these TEs. Each week gets worse for me and I am getting really grumpy. I also hate the way I look. Hearing all the positive stories really motivates me!
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Well, poop. Having lots of implant pain today, and I'm two months out!!!
Today they hurt kind of like - GASP! TE's!!!!

Could be because I've been wearing very supportive underwire bras for the past few days, OR -
it could be because there is a low pressure weather front coming it. That always made my TEs hurt.
Sheesh! New occupation: meteorologist.
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Blessings : Sorry for the pain...:( ...You have such a great sense of humor ! You always make me laugh ! Thank you !
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Blessings....NO!!!!!!!!! Who knew you could predict the weather??
Sherry....sooooo sorry. Hang in there.
Chrisrenee...the guidelines aren't something you couldn't meet. They just watch here to make sure you are a participant and ask that you participate in some way on that site....even if just a thank you to those who post.
Jess.....it gets better!
My PS didn't give me ANY bra guidelines....just wear what you want. Oh well. So I muddle around trying to find what works. For me too, usually a good sports bra. I haven't found an undewire that works or is comfortable.
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Good afternoon ladies, I had my exchange this morning, I am on pain meds but I am so excited because they are soft. They already feel much better without those hard TE's. I know it is early to know exactly how I feel but they are softer, more even, and look more like breasts. I didn't get a bra just bandages. They did put in 600CC's high profile silicone. My PS did get my right foob out from under my arm and I am praying this will ease my pain but being on pain meds, I can't tell now. My PS did have to do a lot of stitching to get my foobs placed better and I think they are going to be fabulous. Small but perky is good for a 63 year old. lol I was a 36 DD but will never complain being rid of the cancer. God Bless you all and praying you all have good results and after 5 surgeries I feel that I am beginning to feel normal again.
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Exchange completed...so happy!
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Caro...great news!
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Caro, I am so glad your surgery went well and that you are feeling good.
CMartin, I visited your blog. I have a blog too: www.joyfuljohnsons.blogspot.com
I still feel pretty rotten, and I hope this is an ok place to have my pity party! Today is day 5 after my exchange. The drains are still in. I had no bandages, just a little bit of gauze across my incisions. Today I took off my bra to give myself a sponge bath and had a good look. The foobs look pretty good. A little flat across the front, but they are not very big (my request). They are 250cc. I was so small before my BMX that I did not want to be much bigger after I was reconstructed. I am not in any pain, but I feel terrible! I am nauseous, and I just want to lie in the recliner and sleep or play mindless games on my iPad or read on the internet. Then take a nap. Yuk! I am used to being extremely active all day long, and I have no desire to even try to walk across the house. I hope that tomorrow after I see the PS and get these drains out (he better take them out!!), I will perk up. I will take a shower and wash my nasty hair!
My children are all so helpful and I feel guilty just lying in the recliner all day. I wonder if I will ever feel normal again? I am sure I felt this bad after my BMX, but I have already forgotten!I hope to post again in a few days with a report that I am back to my normal self. Ever since my diagnosis of breast cancer back in February I have kept such a positive outlook. I have been a fighter. For some reason, this last, supposedly easiest and happiest of all surgery has knocked me down.
Sorry to be so down. I know that many of you can understand.
Hugs!
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Roan
I know exactly how you feel!! By your dates posted, you had your diagnosis and surgeries about 3 weeks after I did, and I went through exactly the same emotions. I felt so fortunate and optimistic, because, after all, I *just* had DCIS. And then one day last week, I had a terrible fight with my husband over something really stupid, I screamed at a couple of coworkers, cried myself to sleep. No reasons, it just happened.
I honestly think that I underestimated the emotional impact of a cancer diagnosis, and felt that I had so much to be grateful for, and that I shouldn't ever feel down. Don't get me wrong - I am so thankful for finding my cancer early, and having it taken care of so promptly. However, sometimes just thinking about it is overwhelming.
One day at a time, keep your chin up blah blah blah... Things will seem better tomorrow, or that's what I tell myself.
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lizzie- as I was told on one of these boards, it's not just a "just". You had breast cancer. I had stage 2 but did not receive any chemo or rad treatments, I was fortunate but not fortunate enough not to lose my boobs. I don't think there has ever been anyone to say cancer is easy, you know? I thought once I had my BMX I would be fine. Boy was I so WRONG. I don't feel complete yet even though I have my TE's. I have real boob envy. I used to be envious of women who had nice pretty implants, knowing that I could never afford to get them on my own. Now that insurance is covering for reconstruction all I want is mine. I want clothes to feel and fit right. I want the confidence that I should have. oh pity parties, I need to stop having mine. But I am extremely happy that I may only have one more fill visit with my PS and then wait to have my exchange surgery hopefully by the end of November. I can't wait.!
hope everyone is having a wonderful day.
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Best wishes to those recovering from exchange surgery. And I relate so much to the comments made about the emotional aspect. I had a big ole' pity party for myself last week and then I spoke with my friend today who is stage 4. They have now found cancer on her kidney that is a new cancer- not MBC. She is entitled to a pity party-not me! I am lucky they found my cancer early. But when I'm running on little sleep because I can't sleep on my side, emotions are hard to keep in check.
My exchange will be Dec. 4th and I'm more excited than nervous. Good luck to those about to undergo exchange surgery!
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Roan - I understand what you are saying. I was more of a mess after my exchange then my MX. I think during the treatment phase we are in fighting mode. After reconstruction, it hits us like a delayed reaction. At least that was the way with me. It will get better. You feel how you feel and that's all. Be kind to yourself. - hugs -
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Roan...thanks! I'll check out your blog. I am so sorry you are having this bump in the road. It gets better. Yes, showers and clean hair always make the world a better place.

Lizzi...true, one day seems okay, the next I can't believe this has happened. I tell my DH that quite often....I still can't believe this has happened. I am diabetic on an insulin pump so that is a 24/7 issue. This is almost the same. You can't get away from it. I would actually like to take my foobs off and put them away for a while.

Jamie, good point. I went in 4 days after my exchange and my surgeon said "see you in three months". Part of me felt like saying "that's it? After all this....that's it". I'm thrilled to be healthy but that doesn't mean we don't have our challenges.
I am really feeling the effect on my back and neck. I want a massage but am not sure about lying face down. Anyone tried that?
Good day to you all. Hugs.
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Thanks to everyone for their support and understanding. Delayed reaction is the best way to put it. I also felt that after my exchange, I would be past the emotions, and they have come flooding in! My breasts look pretty awesome, and I'm looking forward to nipples, tatoos, whatever will give them their "crowning glory", which I still need to decide about. So its frustrating to feel like such a cry baby. However, today's a good day!!
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I agree 100% with Jamie. We are so preoccupied with staying strong through all our surgeries and treatments that once we get the exchange and the end is so close it kind of just hits us what has happened. I mean I didn't even feel sick when I was diagnosed as I bet most of you did not. I was actually in better shape than I had been in a very long time.
We are forever changed by this physically and emotionally. I think we mourn the loss of our breasts and of our old selves. As good as reconstruction is, it is not perfect. Not that we were perfect before though.
It is difficult sometimes for me to feel grateful to have found my cancer early, that I only had it in one breast and it was not in the lymph nodes. I try to be grateful that even though I had no insurance medicaid paid for everything. I was able to get a bmx and chemo and tomixifen and treat this thing agressively and beat it.
Now as I face my next and hopefully last surgery to get my nipples on tuesday. I am hopeful the lipo and fat grafting and nipples will make me feel more whole again. But it's kind of like getting a new dog or cat when your old one dies. Your happy to have a new one but still so sad to have lost your old friend.
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Your post gave me chills Carrol.
I had no idea how attached I was to my "girls." I know now that I took them for granted. A dear friend of mine has always wanted augmentation. I didn't understand it. She's beautiful, inside and out. She looks like Gwen Stefani (no really she does, she's a beauty) anyway, after two kids her "girls" are not what they once were. When (pre-bc) I tried to talk her out of augmentation, she said, "You don't understand. You've always had nice breasts." Now I understand. It surprised me when I realized instead of now asking, "Why would you want to go through all of that?" I'm saying, "If you want, I'll go to the PS with you. I know a good one."
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I agree with both carol and Jamie. I never liked my old boobs, but they were mine. I was always against plastic surgery no offense to the ones that have had it, but because we weren't made that way. Both my sisters had elective augmentation they both were low B cup size and both beautiful. After I had the TE's placed I asked them why would they do elective surgery to do that because it was not a pleasant feeling. Then reality sets in mine was completely different from theres. But I'm all about referring my PS to people, I absolutely adore him.
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Hi All,
An update from me, I haven't been on the site for a few months. I had my second fat grating Tuesday Oct 23rd, feeling fine, just somewhat achy in the belly. I am bruised, but I think the results are coming along well. Quite a simple procedure actually. It is doing a good job of making my reconstructed breast look like my natural breast.
I tried Tamoxifen, but the hot flashes were SEVERE!! even though I started Effexor a few weeks before it. Also, my hair was falling out. Not fun. I will try Aromasin in a few months....
And also - I agree with the above posts.....depression is very likely to hit after exchange surgery, treatment, etc. That did happen to me, I only realized after starting the Effexor and I started feeling MUCH better. The medication options are so good now, I only wish I had tried meds sooner....but depression really creeps up on you very sneakliy....feel better all!!! and hang in there.
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Roan...I read your blog. Our stories and timelines are so similar. Thank you for sharing. You have a beautiful family.
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CMartin - I am desperate for a massage, but I think I need a table where there's a hole cut out for The Girls, just like there's a hole cut out for your face.
We're going to Laguna Beach in a few weeks....I'll bet there's something fancy-schmancy like that there or in Newport Beach....
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