TRIPLE POSITIVE GROUP
Comments
-
Shasha10--- Yay Happy dance last chemo
Honeybair-- So sorry you had to go through this crummy crap again. Congrats on going to be done tomorrow for the neoadjuvant treatment
0 -
Honeybair, Glad you are finishing your last tx tomorrow! There a few us here that fall into that under 2% category. If you haven't seen Beesie's board on DCIS yet, you might want to take a look at it. She some info on there about the recurrence rates for DCIS.
http://community.breastcancer.org/topic_post?forum_id=68&id=790992&page=1
0 -
TwinMamaHeather I know many women who did chemo first. The nice thing about doing chemo first is they can see if it's working. From what I can see they seem to do it more with those who are node positive. I know a gal treated by the same onc and BS, also HER2+ (hormone negative) with a tumor the same size as mine. She was treated about 4 months after I started chemo. She had chemo first… but had positive nodes. Eitherway one is no more effective than the other.
Ang another 9lbs! that's awesome.
camille I know I really enjoy you… and feel lucky that you are on my two most visited threads.
Sasha Yay! chemo done
Honeybair if I don't stop by tomorrow know that I too am happy you are finishing. Also I don't know if you Beesie have met but she to had DCIS and recured many years later. She is very very knowledgeable about DCIS.
My first reach to recovery partner, also triple positive finished her last chemo today. She's been such a trooper. She really didn't need my support.
0 -
Honeybair---wonderful day tomorrow.!!!!!
Ang I thik more of us have had that problem then we even read on here-every so often someone will make mention that their thyroid isn't working at all--but I don't think we get that upset ony cuz it's not cancer and a relief that u will start to feel better.
0 -
camillegal-- well said very true..
I was just curious that's all, Did not know much about it. I don't have family or friends that I can talk to they all have moved on so the mention of anything and I get the rolls the eyes bit so I know not to talk about anything any more. So I was just rambling on here.
0 -
Hi Ang--Did I make sense? I was rambling myself cuz it was late---hahaha Not til about 6 mos ago. I got a blood panel for my thyroid and they said mine didn't work t the time--so they started me on 50 mg. of Synthroid, then upped it to 75mg. I just had another blood test and it was in normal range. I think (personally) meds have to do with this---only cuz my 1 DD is on a lot of meds and her thyroid got shot to, So I surmize maybe meds cuz she never had chemo. (my own theory) and her hystery with meds is different than mine. But I did not have it till this yr. Then I found out quiet a few women With BC get this. I get confused because I think u can have a thyroid removed and be on meds and it will replace what a thyroid does, but if nothings working it knocks the hell out of u too. That's really all I know --just guess work as usual.Ang U know come here and talk about every and anything--don't feel funny about it--have u ever seen my questions or what I talk about---everyone will help u with anything.
0 -
Great news...England is creating a database of cancer patients.
That no one ever did this before is mindboggling.
12 June 2013 Last updated at 07:06 ET Share this pageEmailPrint
450
ShareFacebookTwitter
Public Health England to launch largest cancer database
By James Gallagher
Health and science reporter, BBC News
Continue reading the main story
Related Stories
Breast cancer map 'a key moment'
NHS 'must back genetic medicine'
DNA mapping for cancer patients
The world's largest database of cancer patients is being set up in England in an attempt to revolutionise care, Public Health England has announced.
It will collate all the available data on each of the 350,000 new tumours detected in the country each year.
The aim is to use the register to help usher in an era of "personalised medicine" that will see treatments matched to the exact type of cancer a patient has.
Experts said it was "great news".
The old definitions of cancer - breast, prostate, lung - are crumbling.
Cancer starts with a mutation that turns a normal cell into one that divides uncontrollably and becomes a tumour. However, huge numbers of mutations can result in cancer and different mutations need different treatments.
Research into the genetics of breast cancer means it is now thought of as at least 10 completely separate diseases, each with a different life expectancy and needing a different treatment.
The national register will use data from patients at every acute NHS trust as well 11 million historical records.
Continue reading the main story
“
Start Quote
It'll be easier and quicker to further cancer research, and will speed up work to deliver personalised cancer medicine to patients in the future.”
Emma Greenwood
Cancer Research UK
It will eventually track how each sub-type of cancer responds to treatment, which will inform treatment for future patients.
'Fundamental change'
Jem Rashbass, national director of disease registration at Public Health England, said: "Cancer-registry modernisation in England is about to deliver the most comprehensive, detailed and rich clinical dataset on cancer patients anywhere in the world."
He told the BBC: "This will fundamentally change the way we diagnose and treat cancer.
"In five years we'll be sequencing cancers and using therapies targeted to it."
The service will also exchange information with Wales, Scotland and Northern Ireland, which have their own registers.
The Department of Health has already committed £100m to sequence the entire genetic code of 100,000 patients with cancer and rare diseases in order to accelerate progress in personalised medicine.
Emma Greenwood, Cancer Research UK's head of policy development, said: "It's great news that this national database has been set up.
"It means we have all the UK's cancer information in one place, making us well equipped to provide the highest quality care for every cancer patient.
"It'll be easier and quicker to further cancer research, and will speed up work to deliver personalised cancer medicine to patients in the future."
http://www.bbc.co.uk/news/health-22870352#?utm_source=twitterfeed&utm_medium=twitter0 -
Ang, hypothyroidism is really common in women once they get above ~40 years. Your TSH levels are high. That is the hormone that the brain spits out to make the thyroid work, so the higher it is, the more sluggish the thyroid. The pills you will take are synthetic thyroid hormone and they'll work because your thyroid isn't.
Keep in mind though while the different drugs are all supposedly the exact same thing, some work better than others in different people, so if you don't feel better after a few weeks of taking yours, talk to your doctor about finding a different brand. I have a good friend who gets no response from her generic drug, so she has to request a brand name each time she gets her prescription refilled. She has many fights with Caremark!!
And look for other things that could happen--good things--besides feeling better, your hair should get thicker, your skin won't be so dry and you can definitely lose weight :-) (the drug you'll get--synthroid--was actually used as a diet pill in the 60's!) Keep us posted, but I think you should be thrilled that you figured this out!
0 -
Thx for your input my mo wants me to ask my ro before I start any supplements. Another 6 weeks isn't so bad. At least this part is over
0 -
PBrain---I have been on this drug about 6 mos. and my# 's are fine----NO WEIGHT LOSS---Soory I didn't mean to yell--but tht's more upsetting than my throid not working. LOL
0 -
Great news...Public Health England is starting a huge cancer database in the hopes that they can analyze the data and revolutionize care. Can't believe it hasn't been done before.
http://www.bbc.co.uk/news/health-22870352#?utm_source=twitterfeed&utm_medium=twitter0 -
Ashla, I agree -- great news but seriously why are they just doing this now? Especially in the age of computers, seems like it shouldn't be too hard to track this stuff and find trends.
0 -
Pbrain thank you so much for the info
I was actually not wanting to take the pill but talked to the nurse this morning And she said some of the things your saying. So I will start to Take it in Friday we will see how it goes..0 -
Hi to all of you,
Shasha10, congrats on finishing chemo
. It is a significant milestoneAng7894, I think it is terrific that your underactive thyroid has been diagnosed. I have friends who have also suffered from undiagnosed thyroid issues, and they say they feel life has been reclaimed since taking the thyroid replacement medication. Afterall, your thyroid controls your body's metabolism, amongst other things, so it is important that it work well. It may take you awhile to get it regulated, but don't give up.
I am posting a video I think all of you could benefit from viewing. It is from the Medscape site. Yes, it is over 19 minutes, but all the conversation is quite relevant to all of us ladies on this board, for one reason or another. Topics discussed include "How cancer cells set up shop in the axilla (armpit) region"; "Axillary Lymph Node Involvement"; "The Yin and Yang of Adjuvant Treatment" (my favorite part of the video!!); "Clearing Up Confusion About Dose-Dense Treatment"; and, "BOLERO-3: Lessons in Walking Through Water. Here it is:
0 -
Ashla, I had a conversation with my MO about this just last week. I find it hard to believe that we don't have a national database. Thousands of women are being treated with chemo and radiation and Tamoxifen each year, and yet the info we have to go on is the limited clinical trial data. HIPPA makes sense in some ways, but makes things ridiculous in others.
Good news - got the all-clear from the colonoscopy. It was a crazy day of prep and the procedure is no big deal since I was out like a light. My cardiologist says my heart is strong and I got the go-ahead to keep on the Herceptin. I will have another ECHO in 6 weeks.
Got my gall bladder surgery scheduled for the 24th. I cannot believe how many doctors appointments I still have. It's just nuts.
0 -
Vballmom LOL it just keeps ongoing---I had my GB out after rads anf my sister had hers out with the robot. I wanted pics but she doesn't ask, I would have--Alot of uh had the GB out sometimediring or after--now I have Kidney stones--Marbles in my head and stones in my kidneys. I keep on loosing marbles stones are harder LOL
0 -
Ang just wanted to let you know my mom has been on synthroid since I was a sophmore in college due to having her thyriod removed. She's in her mid 70s.
0 -
Gratitudeforlife: thanks for the link! It was very interesting!
0 -
Ha ha, Ang, let's make a pact. My Arimidex is still sitting at the pharmacy, and has been for 6 days. Now that stuff, I don't want to take. You got the good end of the deal. So let's both start on Friday and see how we are feeling in a month. I bet you'll be like "Oh, I feel great, my hair is shiny, I'm peppy, my skin doesn't itch anymore, I've lost 12 lbs and I want to run a marathon!"
I'll be like "oh, my hair is falling out, I am grouchy, I have hot flashes and night sweats, my skin is wrinkling, I've gained 40 lbs and I want to sleep!"
Tee hee!
Cami, is your TSH down to 3? That is what the guidelines call normal, although so many doctors still say below 6 is fine. If it isn't, ask for a new prescription. There is a lot of data behind the porcine thyroid hormones, but I think they are a little expensive? I'm not sure, google it. You should have bouncy hair and be bungy jumping! ;-)
0 -
PBrain I'm LOLing so hard--where have u been---Do u really think I know what that is--I don't ask much at all--I keep track of my Pot. and Mag really cuz I'm always low on those 2 (I'm on meds) that doesn't help me with energy, plus I take so many different things and during the day I'm a walking pharmacy like most of us--15 different kinds of meds---thensome a few times a day--U know how long that took me when to take them--eat, don't eat, a certain hr, in the morning, at night--before bed hahahahha--And I'm usually on an antibiotic for infections (I get something all the time) When I call my Dr. for an app't she sends me right to the emergency room LOL Most of them are my Drs. and nurses. Sometimes I'm kept in and sometimes I go home--When I go My DD just drops me off I don't even have anyone stay with me it's so silly.So when I say I know nothing I really mean it. Wait I do know what my Pot. is and really understand that one.I'm sorry--but thank u so much for carrying to write about that.
0 -
Pbrain-- Lol your so funny I needed a good laugh thanks
Thanks gratitude --- for the info and the link.
Largo-- Glad your mom did well on it. I have been reading about it most people have to take it for life.
And here I thought tamox for 5 years was going to be a struggle.
thank you all I feel so much better thanks for being there for me.
you all are truly awesome!!!
0 -
Hello, another triple positive checking in.
0 -
Welcome Beth happy to meet u--altho not on here unfortunately---This is a great bunch of women filled with so much help and kindness--good u found this one.
0 -
Waving at Beth
0 -
Thanks. I usually just post on the Young Survival Coalitions site, but their boards are slower and it can take a week to get a reply. This site seems more active.
0 -
Sometimes I miss a little Beth and I have 2 pages to catch up on then zi forget if i had a question--this one goes fast which is good whe u'd like someone to talk to .
0 -
BethCon,
We actually have a bunch of young survivors in our forum. I'll let them pop up and identify themselves. Most aren't prolific posters. Small children, careers I guess.
Maybe they're lurking and will pop in to say hi.0 -
Hello, Beth
your in the best forum and All these Ladies are so great and knowledgeable.
Talk away, vent, ask Questions we are all here for each other. It is such a good feeling.
0 -
Welcome Beth!
0 -
Hi Beth! This is a great forum. We're like a 24-hour diner, always open. Sorry you are here, but here is where you want to be if you are +++. Tell us a little about you.
0
