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TRIPLE POSITIVE GROUP
This is primarily for people who find themselves with THREE +'s by their diagnosis. If you are new to breast cancer, please click on the link below and read. It is "What I Wish I Knew At the Beginning of Treatment." http://community.breastcancer.org/forum/6/topic/797454
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ER-, PR-, Her2+ Roll call
Hello everyone My mom was dx in November 2010. She is in her Chemo courses and only 2 sessions left. She is so well now and is very hopefull.My little niece makes her so happy and she is planning for the ceremony of her first birthday. Since she was dx I've explored in this site in different cathegories but sisters with…
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Question about Residual Disease
Hi. I finished Kadcyla this past April. My original diagnosis was October 2021, triple positive, Stage 2, pathogenic ATM gene variant. Started chemo (first Taxotere then Taxol (every week) plus Herceptin and Perjeta (every 3 weeks). Mastectomy in March 2022. There was residual disease so I had to start Kadcyla in June…
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calling all t1A (> 1 mm but < 6 mm) sisters who are HER2+
I decided to start this thread to help others who may end up in this "grey" area and are struggling to make a decision about chemo/Herceptin or not. Current national guidelines do not recommend treatment for our stage. Treatment is only considered for 6 mm and up HER2+ sisters. HOWEVER, some docs do still treat t1A…
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HER2 Positive-anyone 10 years out?
Hi ladies, I was wondering if there are any women out there who are 10 years or longer with her2 positive breast cancer? When I was diagnosed in 2008, my prognosis said '80% chance of no recurrence in 10 years'. Wondered what they based this on, as I have yet to talk to anyone past 6-8 years and they seem to have had…
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My Stroke During Herceptin Treatment
Every three injections of Herceptin I have an electrocardiogram to check the heart function is not affected. Herceptin is the drug of choice to prevent HER2 breast cancer recurrence. My last electro cardiogram during treatment showed a weakness in the heart function, and treatment was suspended for the heart to recover.…
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HER2 negative but actually a low positive and neratinib
I'm making a list of questions for my oncologist appointment coming up and in looking at posts relative to metformin I came across neratinib. I realize the metformin trial ended up demonstrating that it was not beneficial in lessening recurrence rates. But apparently neratinib trials were because it was approved by the FDA…
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Any one Triple Positive 10+ year out?
Any one Triple Positive 10+ year out?
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Kadcyla for residual disease after neo adjuvant chemo
Hi All, Starting a new Kadcyla thread as there wasn't one before. I will be starting Kadcyla soon as there was residual disease from surgery pathology report. Kadcyla for 14 cycles is what is recommended. Any of you who have already been on Kadcyla please share how it is going for you.
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Enhertu side effects
Hello, I am diagnosed with metastatic breast cancer. zi was on Kadcyla, Nerlynx, and Capecitabine and was doing good. However, nasty cancer has come back. I had 3 seizures. I am on Enhertu now. It is my 9th treatment and the side effects are bad. I slept for a few days. I can't get up to do general things. my brain feels…
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advice and help
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New treatment
My questions are based on the information below: 2007 IDC 1.6cm, er/pr-, Her2 very positive. Lumpectomy followed by AC/THP and radiation. 2021 reoccurrence, diagnosis identical to 1st time (except this time 1cm), same breast, almost same location. Dmx, THP. Questions:1) Are there any other treatments I should have had, or…
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Anyone enrolling in DESTINY Breast05 (HER2+, no PCR)?
I will have surgery at the end of January, beginning of February. The primary lesion still feels hard to touch so I am expecting some cells lingering between scar tissue there, preparing for no PCR and if PCR comes, it will be a nice surprise for me (I'd be so grateful). I was checking my options for no PCR and it seems…
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HER2- BT and HER2+ LN: Anomaly. Who knows anything about this?
How can I have both a HER- BT (breast tumor) rated “Equivocal” and a HER2+ LN (lymph node) at 50% positive? If the assumption in current cancer medicine (2023) is that breast cancer begins in the breast and spreads to the lymph node as I’m told is the case; how is it possible to have the above diagnosis? I’ve been told…
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Looking for Her2 Positive survivor stories
Hello, I was dx in February with Her2+ BC. I went through the chemo, the mastectomy and now in the midst of radiation. I will finish that in December and will be on the Herceptin through March. I, like so many BC survivors, have a constant fear of metastisis. I can't shake it. I think what I need is to read stories of…
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HER2+ Recurrence
I was initially diagnosed with HER2+ IDC & DCIS in 2017. I underwent chemo, radiation, and a lumpectomy and was completely in remission. In January 2020 I had a DMX after a DCIS diagnosis. I finished complete reconstruction in October of last year. Now, I am facing another HER2+ IDC diagnosis in the limited amount of…
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Almost made it to 10 years...new LCIS DCIS diagnosis
This ain't my first rodeo. I haven't been on this forum for a while. I was diagnosed with ILC HER2Neu triple positive (rare, i know) in 2012 in my left breast ,had 37 radiation treatments and a lumpectomy and had been free and clear..until June 22, 2022 when I flunked my annual mammogram. Suspicious calcifications in my…
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Questions for your "end-of-treatment" oncologist appointment?
What questions did you ask your oncologist, at your final visit after chemo/treatment? And/or what information should I hope to get? My last HP is on Thursday, and I'll have an end-of-treatment visit with my oncologist while I'm there. Any tips or suggestions?
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Starting Neratinib (Nerlynx)
I was dx early stage, node negative, triple positive in the summer of 2021. I did 12 weeks of taxol and a year of Herceptin. I had a lumpectomy, re-excision and three weeks of radiation. I’m starting neratinib early March and wonder how others have experienced the first few months on it, especially with the slow increase…
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Vaccine Phase 1 approved
Her2+ vaccinesomeone sent me an article of a phase 1 vaccine passing for Her2+ . What is everyone’s thoughts?
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Dentist appointment while on Herceptin?
Hi - has anyone had a dentist appointment, while on Herceptin, Perjeta, or Phesgo? My chemo ended in April, but I'm on Phesgo until Feb. Phesgo is just injectible Herceptin plus Perjeta. I have a dentist appointment on Tuesday (checkup with cleaning). Just wondering whether anyone had any problems. Thanks!
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Lab results
My liver enzymes have been elevated since staring taxol herceptin weekly. After #6 tx noticed some bloating lower abdomen as side effect. I had # 7 today the NP orders abdominal liver scan just wondered If anyone else on this tx has this issue. Now kind of worried. I am 1c grade 3 no lymph node involvement has lumpectomy…
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Enhertu's Benes Conf. for HER2+ MBC; Could Help Early Stages
Enhertu's Benefits Confirmed for Metastatic, HER2-Positive Breast Cancer; Could Help Treat Early-Stage Disease Dec 14, 2022 Updated results from the DESTINY-Breast02 and DESTINY-Breast03 studies confirmed the benefits of Enhertu for previously treated metastatic, HER2-positive breast cancer, and results from the TALENT…
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Paid survey for Her2+ early stage
Hello! I wanted to let anyone interested know that RC Horowitz is looking for earlier stage, being Stage I, II, or III, Her2+ participants for a paid survey. I have done surveys with this company since 2020, and I have a great relationship with them. I will place the information below. I do not work for them. This is for…
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Herceptin - Quick Side Effects Poll
Hi, This is a quick & easy resource for the people who are going to begin Herceptin and the people already on Herceptin. If you are looking for what others have experienced, this is the place. If you are DONE with chemo (or else the side effects are too tangled), please briefly list your Herceptin side effects and state…
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Her2 positive, ER negative ,PR negative
I am interested to hear from folks who have this specific sub type and compare notes. I was diagnosed 6/2021 with L. Breast Ca Stage 11B, 2 positive nodes. Ki-67 90%. Had neoadjuvant TCHP x 6 July’21, double mastectomy 11/21, (tissue expanders, exchange to implants hopefully November 22) followed by Phesgo every 3 wks…
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Biopsy (HER2 3+) vs Surgical specimen (HER2 0)? What this means?
Hi all, I'm new on this forum. I have this dilemma about my HER2 status. Pathology report from biopsy gives HER2 3+, while pathology report from surgical specimen is HER2 0. This is very strange as these two results for HER2 are completely the opposite. Is this theoretically possible and what that means, especially in…
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Denovo Her2 +++
Denova ladies, 1. How long were you on Herceptin and perjeta before ( if) you had progression? 2. If no progression, how long have you been Ned or stable? 3. Who all has gone off treatment? This has probable been asked before but I couldn't find it. Thank you sisters. I am grateful for the support.
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ATEMPT Clinical Trial - Roll Call
The ATEMPT clinical trial has been going on for several years. Are you participating? The recruiting period is over. The planned participant level of 500 has been met.
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Surgery before chemo, for a large-ish HER2+ tumor?
Hi - I was recently diagnosed with ER-/PR-/HER2+++ IDC/ILC. Largest tumor is about 3 cm, and at least one lymph node is positive (was biopsied). Has anyone here with a similar diagnosis been given the option of having surgery first, and chemo afterward?