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ER-, PR-, Her2+ Roll call
Hello everyone My mom was dx in November 2010. She is in her Chemo courses and only 2 sessions left. She is so well now and is very hopefull.My little niece makes her so happy and she is planning for the ceremony of her first birthday. Since she was dx I've explored in this site in different cathegories but sisters with…
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TRIPLE POSITIVE GROUP
This is primarily for people who find themselves with THREE +'s by their diagnosis. If you are new to breast cancer, please click on the link below and read. It is "What I Wish I Knew At the Beginning of Treatment." http://community.breastcancer.org/forum/6/topic/797454
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Phesgo loading dose for 18 cycles
Hello, has anyone been told they need to be on the loading dose of Phesgo 1200-600 every 3 weeks for 18 injections? I read that the first dose is 1200-600 and the remaining should be 600-600 as a maintenance.
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Considering TH regimen for HER2+ microinvasive (very early stage) BC
Anyone have feedback who has done Taxol plus Herceptin? I just met with a medical oncologist to discuss possible chemo as I was thought to have DCIS but in fact, at mastectomy, was found to have about 8 foci of microinvasion (defined as < 1mm each). I was wondering what your experience has been with the TH regimen. The…
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Perjeta and itching
I think this has been discussed a while back, but I was wondering if anyone has anything new to report. I’ve been on Herceptin and Perjeta for about 7 years so far. Weird itching on both my arms (without a rash) started about 6 years ago… got progressively worse, and I’ve been on and off various medications to try to…
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Kadcyla for residual disease after neo adjuvant chemo
Hi All, Starting a new Kadcyla thread as there wasn't one before. I will be starting Kadcyla soon as there was residual disease from surgery pathology report. Kadcyla for 14 cycles is what is recommended. Any of you who have already been on Kadcyla please share how it is going for you.
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HER2 Positive-anyone 10 years out?
Hi ladies, I was wondering if there are any women out there who are 10 years or longer with her2 positive breast cancer? When I was diagnosed in 2008, my prognosis said '80% chance of no recurrence in 10 years'. Wondered what they based this on, as I have yet to talk to anyone past 6-8 years and they seem to have had…
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New Here. What to Expect w/ Paclitaxel + Trastuzumab?
Hello, all. I just joined this forum and am looking for some support. I'm a post-menopausal woman who was diagnosed with ES+/PR+/HER2 + invasive ductal carcinoma this summer. I had a lumpectomy on October 31. Clearly I got the trick not the treat… bah! Anyway, I am fortunate to have had very good outcomes from the surgery:…
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adriamycin heart damage
Hello, Just dx with heart damage due to adriamycin use in 2005. I was dx with Stage 1 bc, ER-PR- Her2+++. Had lumpectomy, chemo ACT then 10 months of Herceptin (had to stop twice due to low muga scores). Radiation. Had genetic testing Pos Braca 1 so had bilateral overies removed then bilateral mastectomy with silicone…
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Herceptin only ... no chemo ... Medicare won't cover it!
My wife is 83 and just had a mastectomy after finding a Stage 1A 4mm size tumor. All margins were clear as well as 3 lymph nodes. The oncologist offered a chemo & Herceptin treatment protocol … but my wife has decided she isn't up to the chemo. She is willing to accept the Herceptin on an every 3 week protocol lasting a…
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Soy
Hi, I had HER2+ stage 1 breast cancer in 2016. Had a mastectomy with chemo for 12 weeks and Herceptin for a year. Does anyone know if it's ok to have a protein powder that may contain soy? It states, may contain soy. Is soy bad for breast cancer survivors? Thank you for any responses.
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Goldilocks surgery after radiation
Hello, Did anyone get Goldilock breast surgery after getting radiation treatment? I am wondering the risks of this surgery for patients who already get radiation. Also, I am a 38C bra person. After this surgery, what is the change that I have a breast-like apperance. Thank you
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Triple Positive- Stage 2- Herceptin/Pertuz side effects
Hello- I am triple positive stage 2- status post lumpectomy, taxol with herceptin/pertuz, 30 day radiation. I am currently getting herceptin/pertuz every three weeks along with IV dexamethasone- 9 more to go. I have not yet started Tamoxifen. I am finding that I am still getting a fair amount of side effects- GI upset,…
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Wife given AC/T + HP for --+ (her2 3+)
Hi, after doing significant research, I've realized that TCHP is the international standard chemotherapy for neoadjuvant Her2 positive breast cancer. However, my wife's oncologist says he prefers AC. She just had her 1st infusion of AC. I also discovered that the AC is down dosed by 25%. Normally in the AC leg the standard…
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HER2+ Recurrence
I was initially diagnosed with HER2+ IDC & DCIS in 2017. I underwent chemo, radiation, and a lumpectomy and was completely in remission. In January 2020 I had a DMX after a DCIS diagnosis. I finished complete reconstruction in October of last year. Now, I am facing another HER2+ IDC diagnosis in the limited amount of…
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calling all t1A (> 1 mm but < 6 mm) sisters who are HER2+
I decided to start this thread to help others who may end up in this "grey" area and are struggling to make a decision about chemo/Herceptin or not. Current national guidelines do not recommend treatment for our stage. Treatment is only considered for 6 mm and up HER2+ sisters. HOWEVER, some docs do still treat t1A…
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Herceptin and Perjeta after initial 6 TCHP cycle or only Herceptin?
I started TCHP for Her2+ invasive breast cancer in January. I had 6 treatments, every 3 weeks. I had the last chemo part of the treatment (T&C) this week. Whilst I am glad to be done with that part of the treatment, there is still a bit of a road ahead. I have surgery in a month's time. My MO was saying that, after…
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Soy or Not?
Can someone please clear up whether women who have hormone positive breast cancer can have soy milk or not? Studies on this subject are very conflicting. I asked my oncologist and she said it’s ok to have. I’m so confused.
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Taxol plus Perjeta Therapy - what's you're experience?
I am looking to connect with anyone who has gone through Taxol plus Perjeta Therapy. I am being prescribed this as a preventative of recurrence of Invasive ductal carcinoma stage 1. I have huge concerns about the side effects of these drugs and would like to know what others experiences have been. Thank-you! Theresasv
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Scar tissue near Lumpectomy area due to Radiation?
Hello, 8.4 weeks out…Just had an ultrasound and scarred of the possibility of recurrance. Radiologist wants me to get a MRI this week. 😫 Has anyone had a big scare and it turned out to be radiation scar tissue or tissue from lumpectomy? Please share your experience…I'm praying what they see is benign and just scar tissue.…
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Starting Taxol-Herceptin Jan. 2024 would love you to share your journey💕
Hello all! I’m over the moon to have found this forum to share with actual ladies on similar journeys. I was was diagnosed through a routine mammogram in June of 2023, completed a biopsy and then lumpectomy in August of 2023 with 2 resections to follow as the cancer kept evading my medical team. It was the determined by 3…
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Triple Positive IDC > No neoadjuvant chemotherapy offered??
Hi Everyone, I wanted to explain my situation and hoping anyone in the same situation could answer my questions.. SUPER stressed ! 🙄 I was diagnosed in September 2023 with Triple Positive IDC, ER+ 90%, PR+ 50%, and HER2+ (3+). So Anatomic stage 2B.. Now here is the deal… the biopsy and initial tests showed a mass of…
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New here - First post - RIB PAIN
Hi everyone. First time posting so I’m not actually really sure what I’m doing. I just need someone to talk to. I’m 35 - I was DX in June last year. HER2+ only. Stage 3. SMX - full response to chemotherapy- PCR Ive been having pain in my Ribs on my left hand side ( same side as my cancer was ) since October. ( before…
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NEED YOUR KIND HELP WITH PATHOLOGY REPORT >> SUSPICIOUS FOR MARGIN INVOLVEMENT ??
Hello Everyone, I was reading my pathology report (after lumpectomy) once again, and I am starting to wonder if I should ask my BS to perform a re-excision. The margins from the IDC component look pretty good. However, a suspicious margin involvement from the DCIS part of it is having me worried. My BS kind of dismissed my…
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Changing chemo drug
Hello, my mom is currently going thru chemo. She had her first chemo few weeks ago “TC”. And she ended up going to ER, admitted in the hospital because of colitis. per the oncologist, chemo caused the colitis. Now she is giving us two options either stick to taxotere but less dose (every 3 week) or change to taxol (weekly)…
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Herceptin - Quick Side Effects Poll
Hi, This is a quick & easy resource for the people who are going to begin Herceptin and the people already on Herceptin. If you are looking for what others have experienced, this is the place. If you are DONE with chemo (or else the side effects are too tangled), please briefly list your Herceptin side effects and state…
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Radiation after masectomy
I was diagnosed 8/2023 with 1b stage breast cancer. tumor 2.1 cm now reduced after 5 rounds of chemo to 1.8cm. Had 3 lymph nodes with cancer, after ultrasound now appear normal. Before chemo there was something working in left breast but biopsy was not performed but now gone after chemo. I am estrogen positive,…
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Biopsy (HER2 3+) vs Surgical specimen (HER2 0)? What this means?
Hi all, I'm new on this forum. I have this dilemma about my HER2 status. Pathology report from biopsy gives HER2 3+, while pathology report from surgical specimen is HER2 0. This is very strange as these two results for HER2 are completely the opposite. Is this theoretically possible and what that means, especially in…
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Stage IV ER+, PR- and HER2+
Hello, I was wondering if there are others who are also dealing with Stage IV breast cancer that is ER+ (2%), PR-, and HER2+ and has spread to their bones. Recently diagnosed earlier this year and completed six cycles of PACL(W)+PERT+TRAS and am currently receiving PERT+TRAS every three weeks. I'm interested in learning…
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Question about Residual Disease
Hi. I finished Kadcyla this past April. My original diagnosis was October 2021, triple positive, Stage 2, pathogenic ATM gene variant. Started chemo (first Taxotere then Taxol (every week) plus Herceptin and Perjeta (every 3 weeks). Mastectomy in March 2022. There was residual disease so I had to start Kadcyla in June…