TRIPLE POSITIVE GROUP
Comments
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Marlene I love to hear whe things are wrapping up--Good for u.
Sasha happy trip for u too
Ashla good links--u always come up with them.
TonLee I'm glad u'r so busy loving what u are doing--that's the best.
Cypher That one ovary can still be producing so Tami it is for u- and it can still cause crap too. Tricky little thing the siz of a walnut.
Just checking in, I start PT Thursday so we'll see. LOL
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Thanks for the links Ashla! Interesting and promising info on the osteo drug!!!
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Great stuff Ashla!
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"Nothing Man Made Is More Resilient Than Is The Human Spirit ..." posted by BS John Rimmer on his website yesterday. :')
Marlene...lots of Enya on the yoga setting of Pandora...great for napping babies IMHO.0 -
Oh, I guess Pandora doesn't work in Canada
("licensing constraints")
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Marlene ...
Apparently there are several ways to get Pandora in Canada.. Here is one I just found but have no idea if it works. If you have the time it's worth little research to try to enjoy the service.
http://www.howtogetitincanada.com/how-to-get-pandora-in-canada/0 -
Just getting back on the forum. It has been a while. I finished 4 rounds of TAC and just had my first round of Taxotere and Herceptin. It hasn't been too bad. Have not missed any work and my daily activities have not changed drastically. I have been tired, mostly my legs. This has impeded my working out, but I just started back walking the last 2 weeks. I am up to a mile today, so I feel more like myself. My hemoglobin is still at a 4. Does anyone know what I can do to boost it, short of getting blood? (I am not going there) I had my Tax and Herceptin this past Thur and the only SE that I have are my finger/toe nails hurt and my mouth is tender/sore inside. Thoughts?
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GIGIF, I can't believe you are able to walk a mile when your hemoglobin is 4! My oncologist told me that if my hemoglobin got as low as 8 I would need a transfusion. Mine never got that low, but even so I felt the tiredness in my legs and steps were difficult. I believe Pbrain got a transfusion during chemo (sorry, Pbrain, if it wasn't you). I would go with the transfusion if I were you!
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Ugh, I just can't stomach the thought of a transfusion. If I had any idea I would need blood down the road, I would have stockpiled some b4 I started treatments. My onc has asked me to get some blood the last 2 treatments, but I just don't feel bad enough to do it.
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GIGIF,
Unfortunately I had transfusions all through tx along with potassium because that was also low I also had to get platelets to...my levels were always low..Good luck with the rest of your tx0 -
gigi - very low hemoglobin, like yours, carries risks other than feeling tired. Congestive heart failure, heart attack and stroke are all potential issues with a very low hemoglobin. Because you are also on Herceptin, which is cardio-toxic, you might want to go ahead with a transfusion for safety's sake. If it would make you feel better you can ask a friend or family member who is a compatible blood type to do a directed donation for you, if anyone is available. Getting a transfusion is preferable to a heart attack, or permanent damage to your heart.
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GIGIF Please just go for the transfusion--tell u'r Dr. u'll get it and do it. For u and u'r family.
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Gigi, I am with KayB. Hospitals are not fun. I needed transfusions twice, unfortunately. But I felt so much better so fast. My count before my first transfusion was 6. I hadn't even realized that chemist might leave me with a need for a tx! I was naive, I guess! sometimes we don't even know what the question should be!
And for whomever it was that needed music for relaxing, try Twilight Piano Melodies. (DON'T JUDGE ME, LOL!!!!) LOL I got mine from I tunes, but it is beautiful music, probably just tried to use Twilight movie tie in to sell. It has no relation to the movie, except for some titles of the songs, but this is my de-stress music. Just go to iTunes and listen to a sample. Sorry, for the ad, but it really saved my sanity when I was going to school, never mind chemo! Another one I used a lot is called Old English Melodies. I found that one at Target a few years ago in the aisle with one of those kiosks with nature music! LOL much love to all.0 -
GIGIF, my onco had me taking iron supplements throughout chemo. But my hemoglobin didn't go below 8. There's also epo for those who won't do blood transfusions, but it has some scary side effects of it's own.
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Morning ladies and especially all you neebies. I haven't been on in a bit.
Ashla: Thanks for the links. Excellent information.
I have my mammo/ultrasound tomorrow and guess I'll forever be pensive when going for those tests. Wow, I'm well ove 2 years now and last chemo was June 6, 2011. Wow, how time flies.
Have a great day all!
Arlene
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Arlene - in your pockets tomorrow, had my first mammo since diagnosis last Monday, good to have it over with
Gigi - my advice would be the same as SpecialK's - she said it very well0 -
arlenea - good luck with your mammo/US - I am sure it is anxiety producing, and probably always will be. We finished chemo the same week! It is hard to believe it has already been that long.
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GiGiF, I got down to a hemoglobin of 6 and could barely function. I have no idea how you are feeling ok at 4! I had a transfusion of packed red blood cells (one unit) and I felt like super woman the next day. I wish I could thank the donor. I was feeling so crappy up until then.
The blood supply is safe with lots of testing done on each unit for infectious diseases. In addition, we chemo patients get cytomegalovirus negative blood (meaning blood that doesn't even have IgG to CMV). That's not easy for blood banks to find since most adult Americans have been exposed to it, but they are extra cautious with immunocompromised patients. I'd go ahead and do it if I were you. You'll feel like a million bucks!
Congrats on being relatively symptom-free. I was plagued by every odd thing in chemo and am so glad it is over.
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Thanks Ladies. SpecialK: I forgot we were so close together. I wish they US'd both breasts but seems only the one that had the cancer.
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I know this is way off topic but My 17 year old daughter moved out today and not on good terms
I have been crying all day. For anyone out there have you been through this? Does the hurt eventually go away?Anyway sorry Ladies I just needed to talk to someone.
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Oh Ang, I am so sorry..I hope you know where she is and that she will be safe. Never had childred so I have no advice,only my thoughts and prayers that you and she resolve your conflict..
Sending you a big hug ..
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ang7894 - I moved out (and in with my boyfriend) at 17yrs on not good terms with my parents either.
I am now in my late 40's - did an admin training course; held down some good jobs; supported myself (after that relationship broke up); married at 23yrs; owned our own home at 24yrs; had 3 kids by 30yrs; moved country with my hubby's job; worked part-time while the kids were at school; found a new career at 40yrs; started a university degree in science at 41yrs which I will finish up next year.
Moving out at 17yrs under acrimonious circumstances is a challenge for both the child and the parent. Best bit of advice I can give is DON'T do what my mother did... She phoned our share house every evening for six months. If no-one answered the phone she kept ringing. When I picked up the phone she yelled/screamed at me what a bad thing I was doing. If my boyfriend picked up she yelled/screamed at him. Our parent/child relationship was irreparably damaged.
Hugs to you having to go through this. Hope your daughter is safe with someone who cares about her and not out on the street.
Jenn0 -
I am brand new to this board and am excited about the osteo drug! I'm going to mention it to my onc when I see her next week. It's encouraging that there continue to be more options out there.
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Arlene, all this time I thought you were an Australian! I never noticed the little FL after Melbourne. Har!!
Ang, so sorry to hear about your daughter. She will probably come around. I have two good friends who were so awfully rebelious in their teens and 20's who are now best friends with their moms. They sure weren't close for years though. I think they had to do a lot of stupid stuff to realize how much they do love and treasure their mothers. So do your best to stay positive. I suspect that is hard to do :-( Jenn is right, just let her be for now.
So I'm frustrated. I'm 16 weeks post chemo and I still have times where I feel so weak. I keep telling myself to be patient and not to fret, but like I said before, I'm queen of fretting. I also tell myself it isn't all the time like it was during treatment and that I'm doing much better, but I was so used to being physically strong and a little more flexible. And I think the Arimidex is making me dizzy? Not bad dizzy, but mildly dizzy. I used to get that at points during my menstrual cycle, so maybe it is low estrogen/estradiol?
I'm done moaning and wailing. I keep telling myself to be happy. I haven't shipped my pants in weeks, where there were days during chemo where I had to run 3 unplanned washloads. Depends are good, but not 100% the answer...
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Oh, and question I've been meaning to ask--is there actually a stage 1c for breast cancer? I had never heard of that, and the pathologists I've worked with say no. But my MO has me staged there. Breastcancer.org doesn't have one. ACS doesn't have one...When I read about Stage 1a, that's me all over. Stage 1b calls out micromets in the nodes. On histology, I had none. My tumor was 1.3 cm. So any thoughts why I'm a 1c?
I'd ask my MO, but I don't see him that much right now, which is a good thing, even though I adore him
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pbrain - could that be a typo? I am unaware of a stage 1c.
ang - sorry about your difficulties with your DD, I am sure you are upset and worried, but hopefully the "tincture of time" will solve the problem.
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no there isn't a stage IC or IIC
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Ok, so for everyone that was freaking out (me included), my hemoglobin is 8 not 4. (Nurse gave out bad info). I have 2 sisters and 2 kiddos that all said they would donate blood if needed. My onc said I am ok for now, but to have them go in and get typed. After talking with the nurse today it is a bit of a labor intensive process to get blood from fam. BTW now my fingers/toes are tingling and my nails hurt like crazy. Is that the taxotere or the herceptin? I'm going to be upset if it's the herceptin, b/c I just completed #1 in a year long series. If it's the tax I'm ok, b/c I only have one more dose to go.
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Ang....so sorry for our troubles with yr dd...mother daughter relationships are so complex.
Pbrain.... I ' m still fatigued 15 mos pfc!
Someone just posted this on twitter... Lots of good advice that runs the gamut of this miserable ride...
Especially this one..
"9. Thou shalt seize the day. There’s no doubt cancer is the elephant in the room. But sometimes you just have to pat its big ugly flank and say, “Excuse me, elephant, but I’m going to the beach, or the movies, or the back yard with my kids. I’ll catch you when I get back. Right now, I’m off to have some fun"
The 10 Commandments of breast cancer....
http://secondbasedispatch.com/2011/09/21/the-10-commandments-of-breast-cancer/0 -
Oh..forgot....talk about seizing the day....I just received a beautiful swimsuit I ordered online.UGh!
That is it..I'm telling my MO next appointment that I want some estrogen. Please...I beg you...some estrogen!0
