TRIPLE POSITIVE GROUP

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Comments

  • geewhiz
    geewhiz Posts: 671

    Lol Lago!!! I am going to swipe that for my boring elliptical routine.

    Congrats Dance!!!

    I am as always WAY behind on this thread....but just to spread some hope--I was stage 3, triple positive, with 8 positive nodes, age 42, extensive nodal extension, and lots of cancer throughout the breast, no chance of lumpectomy - all back in 2009!! So it's not a death sentence, although as others mention here, I was obsessed with scouring the Internet and this lifeline of a site for hours a day for months on end. The answers FOR ME, have been green juicing daily, vegan diet, sauna, yoga and meditation. I am not militant about any of it - my head hurts today from drinking a few too many Michelob Ultra Hard Ciders laughing under the stars on a patio last night with good friends.

  • ashla
    ashla Posts: 1,566

    Yeah dancetrancer and WAY TO GO geewhiz!

  • lago
    lago Posts: 11,653

    Geewiz you might prefer the original. I have posted it before so Dance needed a new version. Here's yours: linky 

  • goutlaw
    goutlaw Posts: 268

    Did anyone boob shrink and have dimpling when arms raised?

  • lago
    lago Posts: 11,653

    goutlaw I did not but that not an uncommon symptom of breast cancer. I think the reason why I didn't was the tumor was located closer to my chest wall… and my old girls were so small that if they indented they would be coming out my back Tongue Out

    The dimpling happens because the tumor sticks to tissue holding the tissue in place when you raise your arm. This will all go away once the tumor is either melted by chemo and/or removed by surgery.

  • goutlaw
    goutlaw Posts: 268

    Yea one more question lol...Where do the dead cells go? And how can u get rid of cells in ur body? I should look this up

  • lago
    lago Posts: 11,653

    My first thought is you would shit, pee, shed or sweat them out. Just checked. I'm pretty close: linky

    Did you know that most dusk is made up of dead skin cells?

  • ChickaD
    ChickaD Posts: 971

    Yay Miss Dance!

  • goutlaw
    goutlaw Posts: 268

    No actually the white blood cells called macrophage smell and eat the dead cells lol

  • ang7894
    ang7894 Posts: 427

    Great yay Dance.

  • moonflwr912
    moonflwr912 Posts: 5,945

    Yay, Dance!!!!!! Happy for you!

    Geewhiz, glad you had fun last nite.

    ChickaD hope you are feeling better, but you are halfway done. Hang in there.



    And, goutlaw, my understanding is if the blood can make it there, so does the chemo. And drinking fluids and exerciseing helpbit get there, and help it leave your body, via all the ways Lago pointed out.

    Much love to all.

  • camillegal
    camillegal Posts: 15,710

    I lost my post :(

    Dance---yeah for u.

    And ChickaD I remember when u started and u'r almost there--u'r a trooper.

    and goutlaw If they knew how BC started and why they would probably have a cure. But there are no rules on this disease so the best u can do is fight it with any arsonal u can find.

  • Hi, I read alot on this sight but haven't posted very much. What are the chances of getting Multiple Sclerosis after Breast Cancer? Because I think I have it, here are some symptoms: Sensory disturbances, overactive reflexes, vision disorders, weakness in limbs, abnormal patterns of speech. Flare ups happen with stress. On my worsed episode I thought I was having a stroke, All of my muscles lock up and froze I was totally paralized and could not talk. My DH called 911. It lasted for about 15 min. then slowly got better. Has anyone else had this experience?Frown I am getting tested for it, I get a spinal tap, MRI, see a neurologist. Lucky me!!!

    *Some people choose a quest; others have a quest thrust upon them. 

  • ChickaD
    ChickaD Posts: 971

    Thank you Miss Cam...hopefully only one more TCH.....you will hear me cheering very loudly...and hopefully it will be without the poopy shot!

    My other thing is those damn bumps on my bald head tripled in number and they really hurt...calling my dermatologist tomorrow....did any of you use anything for this?  Tried the Head and Shoulders but no help.

  • ChickaD
    ChickaD Posts: 971

    Miss Live2....I was diagnosed with MS....then undiagnosed....I am a bit of a medical mystery in the autoimmune disease department. ?.MS seems to be hard to pin down unless you have very telling signs....the spinal tap will help tell.

  • I hope that I can get answers soon. What are your symptoms, why do they say its not MS? Thanks for replying.

  • camillegal
    camillegal Posts: 15,710

    Live to---When are u geting this test--I hope it has nothing to do with MS--I know there could be other reasons, I was taken by ambulance with very similiar syymtoms last year, I was paralized and it was awful and very scary. but mine was from extremely low electolytes--which I never thought it was so extreme alot of the same things were happening to me--but I'm sure they did a complet panel on u. But that's why I'm saying their are other things this can be and I truly hope it is some stupid thing that they can just fix.  

  • cypher
    cypher Posts: 447

    kelly, I’m in the trial that Iago mentioned, it’s called aphinity.  I think they might take stage III women so you should ask your doctors.  You can also ask dr. google.  “Any amount”?  It could be 6 figures…..  Unfortunately, I’m pretty sure I’m in the placebo group.  : (

    Liveto, eesh, I haven’t a clue but I hope it’s nothing like that!!!

    Dance, congrats!

  • Pbrain
    Pbrain Posts: 773

    Live2, the spinal fluid testing isn't really that definitive (neither are the other diagnostic tests used for MS).  I used to read those gels when I worked in pathology.  What you are looking for is to see if there is a break down in the blood brain barrier, so you want to see if there are proteins in the spinal fluid that shouldn't be there.  Many times we wouldn't see any odd proteins, so we'd report no evidence of disease, only to see the patient back again later.  They could still have a normal test.  It was annoying for the physicians, but it was about all we had to give them.

    Hopefully you aren't dealing with MS.  Keep us posted.

  • cypher
    cypher Posts: 447

    Here's some annoying news for the  day - http://nz.news.yahoo.com/a/-/top-stories/18000832/alcohol-cancer-link-stronger-than-ever/

    Just thinking about it makes me want to drink!!!

  • PatinMN
    PatinMN Posts: 784

    Had my first mammogram since diagnosis this morning - all clear, thank goodness. I actually thought squishing the lumpectomy boob was less painful than the "good" one. I also saw my breast surgeon this morning for my one-year follow-up. I explained that I had kept my hair by using cold caps, and he was really upset that he had never heard of them, despite having weekly meetings with the oncologists across the street (where they are set up with a private room and medical freezer for cold caps). He said "this is really important" to so many women whose first question is "will I lose my hair", and some of whom decline chemo because of that. So I think my breast surgeon will be bringing it up at their next weekly meeting! I firmly believe all women should at least be informed about cold caps, and be allowed to make their own decision on whether or not to use them. (I found out about cold caps through a friend's sister, not from medical personnel.)

  • ang7894
    ang7894 Posts: 427

    Oh man now we can't have a cocktail :(   the only thing at times that made me relax...

  • Granna1948
    Granna1948 Posts: 67

    PatinMN, does this work for only infusion chemo? I will be taking chemo pills on a daily basis, so I guess this isn't applicable for that? Thanks.

  • LizA17
    LizA17 Posts: 102

    Called my Oncologist today about my back pain. He wants me to have an x-ray. I have a spasm every once in a while but now am feeling just a subtle ache in my lower back. I really think it is because I've been alot more active post chemo. My blood counts bounced back nicely and are normal 8 wks post chemo. I guess I put off saying anything about my back because I figured he would order a scan. Ive had no scans post chemo. Just an xray on Thursday. Hopefully, its just herceptin or Arimidex and the pain means its working!

  • PatinMN
    PatinMN Posts: 784

    Granna1948, yes, the cold caps are only for infused chemo.  Frown

  • moonflwr912
    moonflwr912 Posts: 5,945

    Cypher, either the article or the study is poorly written. They don't actually tell you what the link is. I am especially annoyed that it said that 800 alcohol related deaths, 43% were from accidents or other related incidents. Then comes the claim of 30% having a relation to BC. Again what us the relation? Did they drink one drink a year. Month, week, day, hour? Or did they drink to cut the pain from BC? So poorly explained. I don't drink much, on the order of one drink every couple months, and I don't believe this study says anything. LOL. So I am having a drink when I want one. Much .love.

  • I was suppose to start Herceptin today after completing Chemo 3 weeks ago. No more Herceptin for me. Had a test for my heart and it went from 65% to 42% In just 3 months.



    Mixed emotions about not being able to go the entire year with Herceptin.

    The good news is they are sending me to a cardiologist to work on reversing the damage.



    Onward to radiation in a couple of weeks.

  • vballmom
    vballmom Posts: 153

    Soccrmom13 - I got pulled at the same point.  I went to a cardiologist and was put on Lisinopril.  I added CoQ10 with permission from my MO and went back on after a 3 month holiday.  I have four to go.  I'm sorry you are dealing with this - it's stressful.  Did you have Herceptin with your chemo?

  • camillegal
    camillegal Posts: 15,710

    Soccrmom don't worry about the Herceptin and get the numbers up. What a rat race this is.

    OK I read the article, I agree with Moon, they put actual money into this. I mean if they mention liver mets they might have been able to make a case of some sort--but it wasn't mentioned--who gave money for this grant to see if alcohol is related. I know more drunks that died of old age and no disease than sober people. That's one of the reasons I don't read many studies, everyone is guessing because in 2 or 3 yrs, there is another study that eliminates the previous one. Besides it is what it is. So drink up--Cheers

  • ChickaD
    ChickaD Posts: 971

    Oh no ...you sports girls and Herceptin...prayers and hugs