TRIPLE POSITIVE GROUP
Comments
-
♥ ♥ ♥
♥ ♥ ♥Not wise. Just logically. Yes Spock was my favorite charater on Star Trek
0 -
LEEA - nice to see you...sounds like you have a lot going on right now plus treatment, not easy. Yes i had my exchange, front feels pretty good, back not so much. Seems i am the minority who has on-going issue thanks to the lat flap. I am managing it..I am actually thinking of replacing them with smaller implants and fat grafting to try to eliviate the weight on my pecs. just dont want to go under the knife again
met with my MO's fellow today for my 3month check up - what a waste of time. She told me that menopause does not cause joint pain after i was complaining that i feel like a 90yr old woman - she said its the tamox but i can tell you that it has gotten worse since they started shutting down my ovaries - THOUGHTS?
0 -
Symptom #26: 34-menopause-symptoms.com You are not crazy
Google it and you will find many women complain about this.
0 -
thanks lago - i can check off quite a few symptoms on this list, fatique is the other really big one
0 -
Believe it or not exercise helps with that too. It takes about a month but you will find you sleep better when you exercise therefore you have less fatique. Also the sleep mask helps me if I do wake up… easier to fall back to sleep.
BTW I have quite a few of those too. Is it nice to know your normal?
0 -
I kinda hate the word normal..... LOL perhaps its just me. Or perhaps its like the word fun. I keep redefining that downward until I can truthfully answer the question, " are we having fun yet?" With a "yes". LOL
0 -
Does everyone have symptoms when cancer spread to bones etc...Why don't doctors do scans you can b asymptotic like a woman I knew died 3 weeks later...lung cancer
0 -
Goutlaw, unfortunately there isn't always symptoms from mets. In my case, I have mets to upper back, neck, shoulder, sternum and hip. My symptoms only started when I fractured my sternum. My back and neck started hurting around that time, but in the beginning I thought it was just bad posture, compensating for the fracture. I've never had any pain in my shoulder or my hip. There are many ladies with mets who've never had any symptoms, others who suffer greatly. It's like everything else - highly individual.
Iago's right. All you can do is live your life as best you can. Better to have had some fun on the way than spending your time waiting for the other shoe to drop. Not easy, believe me I know, but life is too precious to waste on what ifs.....
Nicky0 -
goutlaw There are issues with doing random scans. More radiation and false positives. Our scanning technology is only as good as the person reading it and even then it's subject to opinons. You could end up with a lot of unnecessary scans/procedures. I had to have my liver scanned for 2 years PFC because they saw some lesions. Ended up after 2 years they all felt they were cysts. All that money and radiation spent on cysts.
Remember our bodies will always get the occasional zit on the inside just like the outside. Doesn't mean it's cancer… it usually isn't.
Finally catching mets before you have symptoms (including broken bones like Nicky) doesn't prolong live/effect survival. Take all this into account you can understand why they just don't do random scans for most of us unless there is a reason.
BTW there is some talk about doing MRIs on some people (over 55 that are heavy smokers or were a heavy smoker (5+ cigarettes a day) to see if they can catch lung cancer sooner. Just saw that on the news the other day. These are the people they consider high risk.
0 -
My doc won't do scans either unless there is a problem.
Moon, love your comment about normal and fun!
Anybody have port issues months after it was put in? For the last week the port area and where the tubing goes up to my neck have been itching/hurting. Sometimes it feels like I just want to scratch it out!
0 -
Yes. I have lots of problems with my port. No itching, but it aches most of the time. If I sleep on the port side, it gets smushed by my shoulder. If I sleep on the other side, it feels like it's going to rip out. And even wearing a bra, the weight of the right boob drags the port down and the bra strap rubs across the port. My port is sewn to the chest muscle and feels like it is tugging on those stitches and like the tube to the vein tugs too. I've talked to some fellow chemo patients who say they'd leave it in forever for any kind of blood tests/meds they need after chemo. I can't wait to get rid of this thing! I wonder if you're having an allergic reaction or maybe an infection. Mention it to your onc or nurse.
On a happier note, only two more chemo rounds. Monday and three weeks later. Yea!!!
0 -
Nicki... I LOVE your attitude. I try to live so that I am all finished with
"what if's". I am butchering a quote here...but I just read something that said not to waste too much of today, thinking about yesterday.
Lago...internal pimple....that made me snort almond milk out my nose! You are hilarious!0 -
Karenrm, my port was a pain. I couldn't even touch it. Definitely couldn't sleep on that side. I had a little pillow in the car for the seatbelt. The second they said I could take it out...I did!! You will get there!!
0 -
Very interesting re DCIS ...
http://www.bloomberg.com/news/2013-08-02/women-with-pre-cancer-tumors-urged-to-reconsider-surgery.html0 -
I had trouble first three weeks but then healed and felt great; I am fairy certain you should not be having any discomfort by now. Check with your surgeon; perhaps something went awry.
PS...I did have a wire come out of my skin from the manhandling (don't go to that facility any longer) of the purple power port; fortunately, the surgeon fixed it and I didn't have an infection. XO Poconos3
0 -
The process of getting my port placed was worse than my BMX. Its always a little tender in that area. I wouldnt trade it for anything as I have small veins and a hard stick but I will be happy to see it go too. Had my 6 month check up this week. Everything looks good. Results from my MRI they ordered because of my severe back pain was clear. No cancer causing it. Yay! I really think it is Arimidex because the pain started about a month after starting it. Oh well. I can live with it if it means staying cancer free!
0 -
Thanks for your input about the port. I am definitley glad I have it, just a bit annoyed that it is bothering me now, when it has not bothered me for several months. My PT doesn't seem to think that it is odd that it is bothering me since it is a foreign object in my body. One thing is for sure, I will be very happy to get it out when Herceptin is over. BTW a TN friend got her port put in at the beginning of July and will be finished with chemo and probably have her port out before me! ~sigh~
0 -
Bren, keep checking to make sure it doesn't turn red or get hot. It worries me that it follows the tubing. I think you should get it checked. Much love.
PS, are we having " fun" yet? LOL0 -
moon, no we are not having fun yet, but we are trying!
It is not red or hot, just itchy. And I don't want to go back to the surgeon that put it in. If you remember he is the one who punctured my lung and then his office took 4 days to call in the follow up chest xray, when it was supposed to be done the next day.
0 -
Bren58 - I have had my port since last August, a few months ago it started feeling itchy just over the port and tubing, not all the time but enough to make it bothersome. I just had it accessed again yesterday for Herceptin and it is working fine, just annoying. I've had Doppler ultrasound in May to make sure there is no clot and that was normal so the docs are content to leave it as is. Did you have any radiation on that side?
0 -
Hi Everyone
I've been off for awhile working and keeping busy. I hope everyone is doing well.
I'm off Herceptin for awhile and on Coreg & Lisinopril. Beta blockers and ACE inhibitors. Will do another echo in 3 weeks and see what happens. Hopefully, my heart will heal. I'm back to work full time, except during rad treatments, but that's coming to an end mid Aug.
Thx vballmom for the link will definitely ask.
My hair is coming in & I went out today no wig. Just fuzz all over ( I hate the wig, too hot) Everyone thought I looked great (what are they going to say) But more important I felt free and was wondering what the color protocol is??? Any natural dyes that we're allowed to use. It's mostly white with touches of grey.
Really want to color it.
Happy Weekend
0 -
Cami, I’m sorry to hear you have to go through whatever it is. Hoping for the best possible outcome for you! ((hugs))
Lee, good to see you! Thanks for checking in. Sorry to hear your bad news. The economy seems to be doing better so hopefully it won’t take long for him to find something else?
I know what you mean about bc not prohibiting other bad news -- I have been having knee problems and just got off the phone with the orthopedist’s nurse – turns out my knee is completely and totally f**ed up! (hereinafter “CATFU”). I just felt this awfulness in the pit of my stomach and thought – how surprising to feel this way when it’s not cancer! I do wonder if all the poison contributed to CATFU knee somehow?
Oconnor, that sucks. Sorry you have to deal with this again so soon. Most of us triple positive women do the stuff your oncologist recommended – unless there is something unusual about your circumstances I don’t think you need to go to Chicago to get a 2nd opinion. However I do wonder about the 2 cancers so soon, so it might be a good excuse for a visit. And herceptin isn’t a big deal in terms of SEs, as long as you don’t develop an ejection fraction problem…. And I agree it’s a good idea to talk to get second opinions. You don’t say how big your tumor is.
0 -
Sasha I am sorry about your Herceptin holiday. Hopefully your heart will heal soon and you willbe back on track.
cypher, sorry about your knee. Unfortunately b/c does not stop all the other stuff from happening. But it would be nice if we only had to deal with one thing at a time.
Websister, I did not have rads on either side, so I can't blame it on that. I go for Herceptin on Wednesday so I will say something then if it is still bothering me.
0 -
Bren, I do wonder whether the poison contributed to it however, or accelerated it.
0 -
cypher - I also have a knee that is catfu - ran into an extra large trailer hitch on the back of a truck last April. I had an injection of cortisone into it in May but it still hurts. I am sorry that you are dealing with this too! I have a follow up appt. next week - not sure of the plan. They mentioned injecting lubricant into it as it feels a bit crunchy in there - but I think it may be time for an MRI. I think hormonal therapy is definitely messing with it but I don't feel like mine was affected by chemo. However, I also had some long-awaited dental work done - I had to time it between Prolia injections. The good news was that my dental insurance paid more than the estimate, the bad news - every repair done to an old filling had more decay than showed up on the x-rays. The dentist, whose wife has been treated for stage III ovarian cancer, felt like that was definitely a SE from chemo.
0 -
Specialk and cypher, so sorry you are having knee problems. They F*CLING hurt! And SEs just make it worse. I am having a new TE placed on the 14th. I I can hold that, they will reconsider and possibly do a bilateral knee surgery I have been needing since forever , certainly before my dx in 2011. it would be nice to be able to walk without a cane again. The lubricant injection is ok, but it didn't help me for long. It's WAY expensive tri, and has to ne preapproved. But its still cheaper than a replacement so insurance is willing to try it. Good luck. .
0 -
Ok, big wussie concern. I was traveling home from Philly today. I found out yesterday that my echo was today. Yes, I'm a total doofus and I never put it into my Outlook calendar, just found out because of an email from the Cancer Center. So I called the heart hospital yesterday and rescheduled...for friggen August 26th! That was the earliest I could get. Meanwhile I'm scheduled for herceptin on the 6th of August. I want to just go and do it, but I don't think they'll give it to me.
Did I mention I'm a doofus? In case yins don't know, I'm on a Herceptin vacation because my left ventricular ejection fraction went from greater than 70% to 50%.
Is it bad to go for so long without Herceptin? As I figure it, I've had close to 19 treatments (since I got it weekly with my taxol and didn't get kicked out of the program until the end of June). I'm going to call the Cancer Center on Monday. I'm a raging doofus to the max and am so mad at myself. But I'm also scared not to be doing the very best I can. Do they still do herceptin later after the year if you've had a "vacation"? I guess I mean I was supposed to be done with a year in November, but since I had this break will they keep going? I know, I'm a nut, but I want them to.
Cami, I'm thinking of you!! Hearts and hugs!
0 -
K, my boss had so many dental problems from her treatment, and she is one of those peeps who had little to no side effects from chemo/herceptin/rads. Her dentist says her teeth are messed up due to dry mouth. She told me before I started treatment that I needed to be concerned about that and to use Biotin, but that was never a problem for me (har! Everything else was!)
Lee A I was so wondering where you were!
0 -
Pbrain, IMHO you should just be really sweet and really pushy about getting in for an echo earlier so you don't need to delay it because of that. I don't know how big of a deal the delay is, but it's one thing to delay it b/c your EF is low, it's another to delay it b/c they can't freaking get you in for a month! Yes you screwed up on the appointment, but that's why you'll be really sweet while you're being pushy!!!
0 -
Thanks for the comments about the catfu knee - the main thing is that, as we all know, it's REALLY IMPORTANT to exercise. But with the catfu knee, there are a lot of things (cycling, hiking, stairs, breaststroke) that seem to trigger a flare up. It's so weird -- it seemed fine and then pow! So I do wonder if the drugs played a role. Well hopefully I'll get a better idea about all of it next thursday when I see the orthopedist.
Sigh.
Lee, if you check back in again, what was the curcurmin you recommend?
0
