TRIPLE POSITIVE GROUP

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  • ang7894
    ang7894 Posts: 427

    ashla I asked for mine too and they said no.  But he did let me see it after he had it out.

    Kind of weird I kept everything I had got from this, From cards to wigs that I only used  twice, To pink stones of hope to pink ribbons,  even Pills.  I literally have two shoe boxes full of this stuff.

  • ashla
    ashla Posts: 1,566

    Bordeaux....Nicky's house... Bordeaux .. Southwest France.....Lagos and I .. Any other takers? All the wine is on me!

  • gratitudeforlife
    gratitudeforlife Posts: 138

    NickyJ, just reviewed your postings on the board. Wow, how fateful is the fall from the ladder??? As Ashla wrote, it is obviously not good that any of us is here, but this forum is FABULOUS as the gals are intelligent, humourous, compassionate, supportive. No one will ever understand what we are enduring/have endured, in addition to all the SEs during and post-treatment. 

    Ah, yeeeeeeeeeeeeeeees, I will gladly go to Southwestern France to have a glass of cabernet or Bordeaux!!!  Count me in. Was in Paris in the summer of 2010 and fell in love with the city . . . as have millions of others.

  • Shasha10
    Shasha10 Posts: 212

    Ok I'm in for the Bordeaux as well. Love Paris. But willing to go anywhere.

    Thx everyone for your input on the Herceptin.

    As far as weight loss

    My husband lost 40 pounds on the Dukan diet. Very easy to follow. High protein mostly

    My onco doesn't want me to color my hair for a few months. I think I might last a few more weeks.

    Sugar. I also read that sugar feeds cancer, I really miss my chocolate:( and Mexican food. I'm trying to eat healthy. So boring.

    Thx for the info gratitude I feel so lucky to have benefited from all this research. Now if I can just survive the treatment. :)





  • lago
    lago Posts: 11,653

    Oooh Cabernet.  I like that too. But we go were Nickij is drinking

  • cypher
    cypher Posts: 447

    Ok I'm also in for the Bordeaux trip.
    Shasha, mexican food doesn't have to be bad for you!  Try Chipotle (mexican-inspired, I guess). 

  • NickyJ
    NickyJ Posts: 372

    I would dearly love to see you all here, and if any of you do travel to Bordeaux you HAVE to come and stay with me!! Failing that, I'll be raising a glass to toast one year into tx on Saturday, if anyone wants to join me 😀

    Ashla, seriously I would love

  • NickyJ
    NickyJ Posts: 372

    Sorry, that went too fast! Wanted to say I'd love it if you named my port!

    Nicky

  • lago
    lago Posts: 11,653

    Chipotle is very high in calories. Be very careful if you eat there. Just the burrito tortilla is 250. You can calculate your calories here: linky The trick is to stay away from the cheese, sour cream torillas (get a bowl). Avacado is high in calorie but it is good for you. 

    Nicky given the conversation about wine just call it Port Whine… and we know as a gal from France you would perfer Bordeaux Tongue Out

  • geewhiz
    geewhiz Posts: 671

    Lago I actually add avocado to smoothies. And if you blend it with cocoa powder it tastes like chocolate pudding. Sounds gross, but its a super healthy treat!

    I'm in for Bordeaux...but I'm Irish...can I bring my Guinness!!

  • ashla
    ashla Posts: 1,566

    Another interesting article on turmeric/ curcumin....keep forgetting to buy it.

    http://www.hopkinsmedicine.org/news/publications/johns_hopkins_health/summer_2013/a_simple_spice_that_may_battle_cancer?utm_source=twitter&utm_medium=&utm_content=080713+turmeric&utm_campaign=jhmsocial

  • ashla
    ashla Posts: 1,566

    Any more suggestions for Nicky J's port?

  • lago
    lago Posts: 11,653

    Geewhiz you can as long as you don't make me drink that swill Mogen David… guess what I am

  • oconnor2450
    oconnor2450 Posts: 32

    Count me in too for wine? Too far south for Calvados???

    Can't say enough about the support this forum offers, I am new( sort of, 2nd diagnosis) Already it has been a great virtual knowledge base with actual experienced thrivers and surviviors. It helps so much with the isolating feelings that can accompany bc. I thank you all and would LOVE to drink a toast of water, wine, etc... :)

  • ashla
    ashla Posts: 1,566

    I'm just sitting here picturing a gang of us hormone deprived, sleep deprived, chemo brained, anything that tastes or feels good deprived ladies with a serious" don't mess with me I'm kicking cancer's ass" attitude ....converging on NickyJ's peaceful bucolic little town.! There's a movie here somewhere!

  • ashla
    ashla Posts: 1,566

    Oconnor2450,



    I agree about this forum. I only discovered it when I was midway through chemo but it has been such a huge source of invaluable first hand information, knowledge and psychological support. Words cannot express.

  • PatinMN
    PatinMN Posts: 784

    ashla, I finally bought some curcumin (from Amazon) and just about the same time it arrived I saw something somewhere (probably a link you posted!) that said curcumin interacted in a bad way with omeprazole and all the other proton pump inhibitors (Prilosec, etc.).  I take omeprazole daily, so I haven't started the curcumin.  I asked my MO's nurse about it, and she said to talk to the pharmacist, which I haven't done yet.  So here my curcumin sits.  Anyone know anything about the curcumin-omeprazole issue?

  • ashla
    ashla Posts: 1,566

    PatinMN,

    Good point and it is true about all kinds of alternative supplements...learn all you can about them before you go all in. I try to do everything in moderation.

  • camillegal
    camillegal Posts: 15,710

    This thread is wonderful especially for newbies who don't have a clue and Ashla, Lago, Pbrain---OH chit I can't name them all give so so much info on all kinds of things to help and encourage each and everyone. At least there is no requirement dor adding info, cuz well u know. I just soak some things in and am thankful u guys don't ask me any questions hahaha This week seems so long when u'r waiting to see a Surgeon about things, otherwise it would fly by and yet I don't want to go--I'm tired of surgeries and Drs. but it is what it is.

  • websister
    websister Posts: 405

    I'm in for Bordeaux



    Camille - you have such a wonderful attitude. Hope you hear soon, waiting is the worst. Sending hugs

  • NickyJ
    NickyJ Posts: 372

    Great suggestions still coming in - you're going to have a hard job choosing Ashla!!

    Geewhiz, from one Irish girl to another, you can definitely stick with your Guinness if that's what you want - sláinte! And there's a great Irish pub not too far from me too!

    As for my 'peaceful and bucolic town' - if they can put up with me, they can definitely put up with you girls!!

    I'll be thinking of you all as I raise a glass on Saturday, anyone who wants to join me is more than welcome 🍷



    Camille,

    I'm sorry you're stuck in another week of waiting. It sucks. Will be waiting to hear how you get on, I'm crossing my fingers and toes for you (no mean feat considering the hand and foot on my left side are twice the normal size due to LE) !



    OConnor (another good Irish name!) not really the region for calvados, but if that's what you want, I'm not going to say no!!!

    I agree with you about this site, its what keeps me going 😊



    Nicky

  • twinmamaheather
    twinmamaheather Posts: 103

    Hi ladies. I have been a long time lurker {Well, since June at least!} and an infrequent poster. I guess posting makes this feel too "real" to me. However, because I have been reading here for a while I feel like I "know" you all and I already feel like this would be a comfortable and positive place for me, and inn fact, this is pretty much the only thread I follow, so I feel like I should introduce myself.

    I am 35 years old and went for the mammo/US that ultimately started the diagnosis process 2 days after my 35th birthday. I found the lump myself, but as many of us do, I have lumpy breasts and it was passed off as "normal" until it was obvious that it was not. :~/ I have twin boys who just turned 3 in July. They are wonderful and perfectly ornery and I love them oh so much, I know that is obvious, but I still want to say it as my biggest fears in all of this revolve around their sweet little hearts. When I first got to this site, someone {not on this board} suggested that fertility treatments {which I did not have} could have "caused" my bc, that really rubbed me the wrong way.

    So, technically I am not HER2+, but I am "equivocal" as measured by both IHC and FISH, my score on each was 2. However, because I am not a hard negative, this is where I feel like I belong. I am EXTREMELY highly ER/PR positive and I have at least 1 known lymph node involved {as indicated on biopsy}, however 2 can be seen as abnormal on Us/ MRI.

    I am currently involved in a clinical trial where people who are weakly positive for HER2 are given weekly Abraxane and Herceptin for 12 weeks, followed by 4 dose dense cycles of A/C. Tomorrow is my 9th A/H treatment. So far this phase of the treatment program has been easy, well, as easy as can be expected, which leaves me pretty terrified to begin the A/C. All you hear/ read about with A/C are horror stories, so I am not looking forward to that, especially during my favorite months of the year {september/ october}.

    As of right now, it appears that my body is responding well to the treatment. The primary tumor is no longer palpable and it was previously measured at ~3 cm by palpation. By US it is still detectable, but it has reduced in size by about 50%. I am guessing it is no longer to be felt b/c it is thinning out and getting softer, but that's just speculation on my part. :~) The lymph nodes are shrinking, but not as quickly as I would like. I honestly feel like they FEEL smaller, by quite a lot, but on US they just haven't shrunk that much, I am hoping that is normal. The nodes are beginning to have more features of normal nodes on US, so I guess that is good. The docs don't seem concerned about it, they have said that nodes take longer and the creation of scar tissue can make it harder for them to go down, I am hoping this is true.

    It's really really hard for me not to worry all the time. I try my best to keep things normal for my family and myself, but some days, like today, I find my mind in a darker place than I would like. I love coming here and seeing so many of you doing so well. It's hard, this new normal. :(

    So, anyway, hello, it's nice to meet you, although I wish it could have happened in any number of other ways.

  • gratitudeforlife
    gratitudeforlife Posts: 138

    TwinMamaHeather,

    Welcome, darling girl, although you are correct to state that it would be better to meet for another reason.  Oh well, life presents us with challenges, and the way in which we respond strengthens us and reveals to ourselves and others from what mettle we are truly made---I think we are all made from titanium, but I am biasedTongue Out.

    The initial diagnosis, for all of us, is the most unbelievable, shocking, horrible part; then, once you wrap your head around it and begin to accept it, slowly, reluctantly, I hope your mind now focuses on how blessed you are that it was caught early, that you live in a country where you can receive excellent treatment and that the medical teams are 100% in your corner. The gals here will raise you up on your darkest, bleakest days, and they will educate you and make you laugh, all great things.  I pray for all people on this board, every night, so now you are added to the list. 

  • twinmamaheather
    twinmamaheather Posts: 103

    gratitude - Thank you for the warm welcome and for the addition to your prayer list. It always makes me feel so warm to hear that someone is thinking of me when they pray.

  • camillegal
    camillegal Posts: 15,710

    Welcome Twinmama, I'm glad u picked thi thread--u will learn anything u want with so much care--It will bw good for u and u;r civumstances. This is a wonderul goup of ladies.

  • ashla
    ashla Posts: 1,566

    TwinMamaHeather,



    Anywhere but here would have been the place to meet but alas....welcome.

    We have many young women in this forum... You'll meet them in time and will likely have a great deal to share. They seem to be here less frequently and probably school , summer vacation keeps them even more busy.

    My IHC test was equivocal but the FISH and the Mammaprint showed ER pos.. 65% and Her2 pos. Mammaprint classified me as Erbb2 type.

    We have been reading about many new treatment protocols and clinical trials for early stage Her2 and even some Her2- . The cost of Herceptin is so high but it seems that it may be effective in even those who don't over express and in other types of cancer like colon cancer.

    You will teach us about the new protocols and hopefully they will pave the way for long, happy healthy lives for us as well as those who unfortunately follow.

    Welcome again.

  • ChickaD
    ChickaD Posts: 971

    Welcome Miss TwinMama....all of these women are the amazing .... you found a warm loving place to be!

  • ashla
    ashla Posts: 1,566

    Twinmama..

    One question..any idea whether u will be doing mastectomy or lumpectomy?

  • ang7894
    ang7894 Posts: 427

    Welcome twinmama-- All the ladies here are wonderful you can snuggle in right here with all of us.

  • Jennt28
    Jennt28 Posts: 1,095

    Just popping in to grab some of that Bordeaux... And now wondering if we could find a grant and a documentary maker to get us all to France!



    Welcome to the women newly arrived here. Wish we could have met over wine in France.



    Jenn

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