TRIPLE POSITIVE GROUP
Comments
-
Ashla - I did not test positive for "the gene" but I will likely be doing a double due to a few factors 1) my age
my hormone receptor status and Three) I just want the extra little bit of insurance - even though, yes, I do know that I could still recur.If you read my latest blog post {but don't feel like you have to, I just don't want to get into it again}, you will see that I am really struggling with the whole plastic surgery thing. It's put me in quite the funk. I just HATE it so much. :~/
I don't want to say that I am "glad" to hear that there will likely be some more young women chiming in, but I haven't actually met many young women with this particular diagnosis. I have met MANY young women, in real life, who are here to support me, but most of them are triple negative and have their own diagnosis worries due to that. So here is where I will come when I need me some hercptin lovin' support!
0 -
did someone say bordeaux? im in!!!! i love france - nickyj some of my family lives near the alsace region. My hubby and I travelled all through France about 10yrs ago and had an amazing time. Most of my relatives are in the southern coast - my aunt lives in lambesc which is a pin dot on the map!
for those ladies who are at least a year out of active treatment (including H) have your energy levels come back to pre-cancer normal or is it wishful thinking that this will ever happen? I know the zoladex (lupron type) shots to shut down my ovaries have significantly affected my energy. I am hoping that once the results of the SOFT trial come out it will confirm once and for all if ovarian suppression plus tamox is beneficial for us pre-meno women
0 -
Hi everyone,
Like twinmama I too am a "lurker" and have only posted a few times
But I am also comforted by everyone's words of wisdom and read these posts regularly. I'm 36 years old and half done with my TCH. On Tuesday I returned home from the hospital after a four night stay for a fever and low counts (missed my two little boys terribly). I received the Neupogen shot twice in the hospital so I'm guessing I will get the Neulasta shot for my 3 remaining chemos??? The Claritin really works? I'm really nervous about the shot.
I was also wondering if anyone here can recommend another anti-nausea med that worked for them. My second day after treatment is the worst; I can hardly eat or drink at all. I've tried Zofran, Compazine and Reglan. None of them have really helped.
Thank you in advance
Marisa0 -
Hey look at that Marisa! We actually started treatment on the same day. Totally different regimen, but still, we are treatment buddies. :~)
Sorry about your recent hospital stay, that really really stinks. I have heard that the TC combo can be super hard to take. Hopefully this will be your only stay and you will sail through the remainder of treatments without issue. On the nausea, I feel like you probably are, but I am asking anyway, are you staying on top of the meds by taking them before the nausea ever hits? Like are you taking them the first day and overnight so that you don't wake up without meds in your system? I understand that it is way easier to prevent the nausea than to fend it off after it arrives. As far as other meds, is Ativan one you have tried? I have also heard that valium can prevent nausea. In addition to those can you try ginger tea or chewing on some crystallized ginger? That might be stupid, I don't know, but maybe it would help.
0 -
Hi MarisaC
I happen to be one of the lucky ones who took the express train thru chemo. My SE's were were very manageable with alot of help from my friends in this forum so I 'm not able to advise on your nausea issues. I made sure I took my anti nausea stuff per instructions. Whenever you figure out your particular problems... It's best to get ahead of them.0 -
Twin mama,
My BS.... Who I absolutely love... Is the pioneer of nipple sparing one step immediate to implant mastectomy. I've seen the results. Unbelievable and these women are able to resume regular schedules in a few weeks. People come from all over the world. Have no idea about insurance coverage.0 -
Thanks Ashla. I thought I was doing well too until I ended up in the hospital. The nausea was my biggest problem. And it is only really bad for that one day. So I didn't want to complain!
Twinmama I love being your treatment buddy although I wish we could erase the treatment part I have been on top of the meds. I get the Zofran in my IV the day of chemo, take it that night, and every eight hours for four days. It seems to help, just not at all enough on that second day. I actually get the Ativan the day of chemo as well so maybe I'll try it on my bad day too. Thanks! 0 -
They didn't give you Emend? I got zofran and Emend...Emend the first of three daily pills as soon as infusion started and then the next two mornings. But there are several other meds too . The other girls will step in to advise you.
0 -
Ashla, where is you surgeon located? The surgeon I have seen is quite amazing, but she is all about the DIEP procedure. I actually don't have enough belly fat for it so she would want to take tissue from my inner thighs, but even that would only give me boobs that were about 50% the size of what they are now {which is a B, sooooo......yeah}. I really want to just go with implants, but I know I will likely have radiation and that they would have a high fail rate. However, I think I am willing to take that chance and then correct it if they do fail. I have been reading up on a procedure where they do fat grafting with the implants, which lowers the fail rate after radiation. I don't know. It just sucks. ha.
0 -
TwinMamaHeather,
I sent you a private message with the information.0 -
First of all, even though I'm a newbie here myself, I'd like to say hello to twinmama and MarisaC. Ladies, all I can say is the welcome I got here was tremendous. The support and warmth here is evident from the first post you read. I truly felt at home here immediately and I sincerely hope you both will too.
Nicky0 -
Rozem and Jenn - your places are booked! Prepare yourselves to raise your arms in a toast!
Nicky0 -
Welcome to the new ladies!
Twinmama, I was given a choice of zofran or emend. Zofran worked for me but it didn't for my friend. We got her switched to Emend and that did the trick! There are quite a few options- just advocate for yourself! No need with all the drugs out there to be nauseous. Good luck!0 -
Welcome Heather, Nicky and Marisa! I hope you truly feel an embrace from these women. These boards are a tremendous source of encourangement, comfort and information.
I got Emend and Aloxi with my chemo and then used phenergan in the days following chemo. geewhiz is right, there are so many anti-nausea meds out there you should be able to find one that will work for you.
0 -
Ha ha ha!! Nicky, you have to go with Ashla's name! That is hysterical!!!
0 -
Goodness, more newbies. Welcome! You'll find so much information and support here. Great little family it is! Nausea! I actually didn't have much but they loaded me up with stuff before chemo and I had the Zofran for severe nausea which I don't think I every had to take....there was another one for mild nausea which I took a couple of times. We are all so very different!
Good luck ladies and welcome! I always stress to the new ladies, water, water, water. I drank a minimum of 100 ounces a day during chemo to flush that poison right on through the system and I think it helped me keep the constipation away.
0 -
Hi +++ sisters...I have 2 new unused Raquel Welsh wigs and I would be happy to share them with someone in need...they are the same color..one is a bit longer than the other but very similar.....please PM me if you are interested.Here are some photos......
0 -
jen28, how was your tramp flaP? i am getting the DIEP flap in oct....how was your recovery? my port doesn't have a name..but while i had chemo brain i had made a statment because i was laughing hard,"my port laughs when i hurt." so the joke around my house is what did your port say today? my last fec is aug 19..man the 12 weeks of taxol and herceptin was cake..this suked!
0 -
The real reason why most of us stick around on this thread is because camillegal is frikin' hilarious. Seriously laughter is the best way to survival all this. (OK yeah, there are a few other funny gals here too
)Nicky 🍷 Don't cross the LE stide! (Yeah I got that too)
TwinMamaHeather We'll take the unequivival. You're in. We don't care. We are all in this together. Star bellied or no star belly. linky US are not always accurate. It could be those nodes might not be smaller but they are shrinking like swiss cheese.
Hi MarisaC Always love seeing someone from MA. My home state. I didn't have nausea but tell your onc the meds arent' working for you. I know someone who is a physician at Merk. She told me that there are other nausea drugs but they are not always prescribed because they are $$. I had Emmend during chemo infusion and a day after only.
your wigs are a bit scary with no head in them0 -
Hello TwinMama & MarisaC, Im fairly new here myself, already it has been so helpful. I hope your nausea dissipates. Has anyone tried medical MJ? I have heard that it is good for nausea and appetite. I realize it is not legal everywhere and apologize if that is the case for your State.
0 -
Marijuana worked wonderfully well for me during chemo. Helped keep the nausea down to queasy levels and helped trigger my very poor appetite. I live in Los Angeles and am very fortunate that it is legal here for medicinal purposes.
0 -
Medical Marijuana is now legal in Illinois as of last week.
0 -
Welcome to Marrisa and Heather. And anyone new or even just lurking. And if you're lurking, Come out come out where ever you are! We don't usually bite! LOL And a question for PBrain, why would Nicky want to name her port Ashley? LOL. Starbellied or not, us sneeches are sick and tired of the f*ckn "Scenic Detours" on the d*mned "Journey". LOL
Much love to all0 -
cypher: I like Doctor's Best Curcumin with Bioperine (500mg). I can't take it during radiation and I'm really missing it (and feeling the effects of not taking it).
0 -
Also, re: echocardiograms and/or MUGA scans I asked my MO about it last week and he said that since I'm not showing any signs of any problems no echocardiogram is necessary. This makes me kind of nervous.
0 -
Hello Ladies, I am triple positive also.
0 -
nursenay - I had a bilateral free TRAM last September after having initially had a lumpectomy the previous December. I definitely don't regret it!
9 days in hospital and 2 further weeks off work after that. I won't lie and say painless because it wasn't. But, my lumpectomy had left me with chronic pain in the breast and now I have no pain. I had skin sparing, nipple sacrificing. I have full feeling in all of my original skin on both breasts and totally no feeling on the ovals of skin that came from my abdomen.
I had a tweaking operation in May this year and am booked for nipple recon in November this year. Oh, and I can use my stomach muscles for everything I used them for before.
Jenn0 -
I am triple positive too. Bonjour tout le monde/hello everyone!
0 -
Hi jen_randall and LOutlandPotvin!
LOutlandPotvin We spend out honeymoon (back in the early 90 's) in Montreal. Love your city.
0 -
Welcome Jen (with one n) and Lout--alot for me to type--I'm glad u came in to this thread, questions, concerns, fears ask and tell them all there are so many very nice and knowledgeable people here that care and stay to help newbies which is wonderful of them. I still don't know anything so i can't really help but I can help with make-up and stuff like that.
I can't wait for Monday I know I'm repeating and repeating but I want this surgery over and I'm goofy about being put out, well everyone knows that--so I don't know when it;s going to be, but hopefully it will get all straighten out Monday--sorry I keep on complaining but that's one of the things I do best--so I keep it up.
0
