TRIPLE POSITIVE GROUP

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Comments

  • ChickaD
    ChickaD Posts: 971

    OMG...miss a day of reading and you left me a book to catch up on...lol

    Welcome to all the newbies....you will find all these woman to be amazing! 

    Hugs to all  xoxo

  • Cypher! Thanks for sharing that blog, I can already tell I really identify with it, how did you know! Also, that is encouraging about your friend and the ac, thanks for sharing!

  • cypher
    cypher Posts: 447

    Websister, yes ironically I do consider it to be good news about my knee.  Ugh I’m sorry about your friend – that’s a lot of positive nodes.  Re my friend – yes that’s more or less what I’m guessing – it’s sounding sort of stage 0-ish.  We’ll find out on Monday.

    Cami – yes it’s a freaking epidemic isn’t it???!!  Oh and like most of us here, my friend is a fit, active nonsmoker, late 40s.  No family history.

    Twinmama, glad to help!

  • NickyJ
    NickyJ Posts: 372

    Sounds like yesterday wasn't a great day for a lot of people!

    Twinmamaheather,

    I'm sorry to hear about your mum, I hope she's not in too much pain and that your boys weren't too traumatized by what happened. If they're anything like my kids I know that after watching me go in and out of the hospital they now panic when something happens. It's not fair that they have to go through so much



    Cypher,

    I think you're right to consider the news about your knee 'good' news, anything not cancer related is good news in my book!



    Camille,

    I'm very upset not to have had the opportunity to read your post full of information 😉! But anything you write is always worth reading



    I'm very happy with the name Portia for my port too - isn't it time to start choosing a name for ChickaD's?



    As for me, the swelling in my hand has gone down a little over night, can move it a little so pretty sure nothing's broken. Don't think I'll bother going to the hospital, but I'll be typing with one hand for a while!



    Nicky

  • camillegal
    camillegal Posts: 15,710

    Good Morning or evening where ever u live----

    Nicky I'm glad u swelling semms to have gone down. BTW the post I lost doesn't amount to a hill of beans compared to what these ladies know--just thought I'd impress someone. LOL

    Cypher see younger, healthier, women who follow better ways of living are getting this cursed thing. I've always said this--there are no rules and until they figure out why there are no rules then they'll come up with why all together.

    I do hope today is a better day==yesterday was like the movie Independence Day with all kinds of weird things happening to alot of people. So I hope today is quiet with some good things going on.

  • geewhiz
    geewhiz Posts: 671

    Ya'll have jinxed me - I had a great day yesterday but I just went to the grocery story and my car died in the parking lot!!!! So here I sit stranded waiting on my sleepy husband and a tow truck! I just got this blasted mobile back from the shop this week for some weird noise. I'm thinking its time to go car shopping : /

  • camillegal
    camillegal Posts: 15,710

    Geewhiz I can so relate--I'm so sorry I hate car problems, and yet we need them. Good Luck

  • karenrm
    karenrm Posts: 69

    Cypher, my bc was early and on the sonogram I could see a darkish thing that looked like a bumpy twig (the tumor) with little white spots that looked kind of like smiles. Radiologist said those were calcifications and those calcifications and the bumpiness of the tumor were "markers" for cancer. Otherwise we'd be looking at a fibrous tumor. I have fibrous breasts and have had several of those call backs after a mamogram to get a sonogram, and the lumps were always just fibrous masses, but this time it looked completely different. The radiologist knew right away it was cancer. I know she didn't want to scare me, but, you know, the air in the room seems to change: quieter, more serious. That's when the whole idea sort of bumps into you and you realize, crap, I've got cancer. Then things went into hyper-speed, and you feel like someone else is running your life and you're just along for the ride! It feels better when things slow down a bit and you get a little control of what and when things happen.

    Now I have one more chemo and then rads. Can't wait to be done with this nonsense.

    TwinMama, I also have twin boys, but they're 31! I also have a 25 yo boy. I couldn't have done this without them. When the DH was freaked out, the boys stepped in and took care of Mom, toting me to appointments and making sure I was OK. I also have a 4 yo grandson who is adorable. Like having a little one again without all the responsibility of parenthood, just the fun parts!

  • websister
    websister Posts: 405

    Geewhiz - hope your back home again and nothing too much wrong with the car



    Camille - I think you are a whole lot wiser than you give yourself credit for. My friend with the eight positive nodes was also very healthy, very active - biking is a favorite activity for her. I quote you - 'there are no rules until they figure out why there are no rules and then they'll come up with why altogether'



    Nickyj - glad the swelling has gone down on your hand



    TwinMamaHeather - took a peek at your blog and like it :) Hope you are doing OK post treatment, that DS's are Ok and that Mom isn't in too much pain and heals quickly.



    Cypher - thanks for sharing your friend's blog, I have a few people that I will refer to it.

    And yes, when the alternative is considered - arthritis is good news



    Chickadee - any hints on your life, interests etc. that would help us name your port? Is it well behaved? ;)



    Better run and get on with the day's activities

  • websister
    websister Posts: 405

    Kayb/Karen - yes - good description of the experience

  • karenrm
    karenrm Posts: 69

    kayb, yeah, I was pretty sure it was cancer too, but, you know how all the previous times you get the all's well and you think, all will be well this time, too, but then, not so much. I thought, now how did that happen?!

    Sorry if I sound whiney. Not feeling so well this week, and it's coming out as feeling sorry for myself and whining about it.  

  • camillegal
    camillegal Posts: 15,710

    Karen  don't sound whiney, u just are having a bad time right now--Anyway u can say anthing u want hear, rant if u want u have every right. This is tuff stuff.

  • ChickaD
    ChickaD Posts: 971

    Hi kids...my life...I'm 50 yrs old..live in Ohio..married to a sweetheart...2 stepdaughters whom I love...3 dogs and 1 cat..love animals....I own a travel agency (CruiseOne...... www.TravelByDana.com), I also work as a Paralegal at the same lawfirm for 30 years...I love turtles and cupcakes...lol...love to make people smile..very easy going, except during chemo roid rage... Lol...my passion is traveling...live out in the country...hate BC

    Hope that helps!

  • karenrm
    karenrm Posts: 69

    I love travel and animals too. Have 3 dogs, 2 parrots, and gobs of fish. Would love to get a cat but JRTerrier is anti cat! Would give my eye teeth to have a horse but DH is anti horse! Still working on the DH. At least he wouldn't eat the horse. Not too sure about the JRT and a cat.

    Been on 11 cruises, mostly caribbean and 1 Alaskan. Also one trip to Scotland. Spectacular. Live in north Texas and have 18 acres in the mountains in west Texas where we hope to retire, when all this bc stuff is done and we recover.

    Thankyou ChickaD and Camille for cheering me up. Can always count on my buds here to steer me clear of too much pity-party.   

  • geewhiz
    geewhiz Posts: 671

    I am home, thanks guys!!

    It was simply corroded cables making a bad connection on the battery. Still need a new car, but might wait a few months if the ole minivan hangs in there!



    A retirement farm in Texas!!!!...lots of cruises?!! ....sounds divine!!



    I'm taking baby steps back to getting in shape. I tore my MCL, lots of rehab later and something is still amiss. But I swam today. I took my 10 yr old son to the pool and went down the slides with him. Great afternoon!

  • rozem
    rozem Posts: 749

    karenrm - when they did my ultrasound the tech said "im going to put your file at the top of the bunch" hmmmm i knew it was cancer at that point!

  • camillegal
    camillegal Posts: 15,710

    As soon as I walked in I knew and I said just take them off, the restaraunt and playground are retired anyway. My dream of being a part time stripper was squashed, as I complained to him,

    KAREN ALL THOSE CRUISES PLUS ALASKA that I heard is one of the best cruises. Oh how wonderful, I bet u'r planning one when all this crap is done and u deserve it completely--not that u didn't deserve the other ones, but this one will be the best wherever u go. U'll love every minute of it.

    Chickie u;r a lucky Duck, u have a DH, kids furbabies and all of us hahaha oh and u r a lucky 50--2 jobs??? one for 30 yrs??? u were a baby when u started working there, now u'r all grown up.

    I know not how to name a port so  have no ideas when under pressure--Karen is there a really special place when u went on a cruise that u stopped some kind of Port????

  • karenrm
    karenrm Posts: 69

    Little things they do that make you realize, "Wow, I'm in the 'special' group."

    What's wonderful about the place in west Texas is that when it's 105 degrees here in Dallas, it's about 85 degrees in those mountains. Still warm but low humidity and such a relief from the relentless heat most of Texas suffers through in July, August, and September. Wish I was there! It's 78 degrees right now.

  • karenrm
    karenrm Posts: 69

    There's a cruise that goes to all my favorite places: Cozumel, Belize, Roatan Honduras, and Grand Cayman. But if the money is there, I'd love to take a Mediterranean cruise that includes Malta. Not holding my breath, but wishful thinking!

    We love the port in Cozumel. There was a cantina right next to the walkway from the ship with tables overlooking the harbor. We could watch the sun set, have a couple of drinks, and then board the ship just in time to leave for the next stop. The water is clear and turquoise. Stunning. Unfortunately, that cantina was blown away in the hurricane that hit Cozumel a few years ago. Miss it every time we disembark. (almost all cruises to western carib go to cozumel).

    So, I usually just call my port Pain-in-the-A**, but maybe something nicer would be better. How about Hurricane or Cozi? 

  • PatinMN
    PatinMN Posts: 784

    How about Cantina?  A cantina is where you go to take in liquids, right?  As is a port, in a way...Cool

  • Such an active forum... haven't caught up on everything but noticed Ashia's post in July about 'vanity' and hair loss, and wanted to share. I wrote a blog post when I shaved my head and part of it is this:

     I’ve been in awe of those who’ve experienced this and the amount of bravery it takes to suddenly look so different. To suddenly have to go out in the world, and know people don’t know how to respond because they don’t know how you are feeling about it all. To suddenly be noticeable where you weren’t before. Yes, even with the scarf.  To suddenly be labeled ‘sick.’  For some, to suddenly trigger that innate fear of cancer that they may have.  To suddenly face your own previous perceptions of those you’ve seen bald, or in chemo caps. To suddenly have a visual look that will require me to pay attention so that my own underlying thoughts aren’t playing havoc and telling me I’m sick.

    I honestly think vanity plays a very wee part, if any,  when we lose our hair, or when we have thinning problems etc. The world tells us it is vanity, but really, there's so much more that goes so much deeper than 'how we look'. 

    My hair stopped growing after a few months of growth after chemo. I was still on herceptin  (and tamoxifen) I felt very panicked because 1. I didn't know what this meant.. permanent no-growth? Would I start losing it? What else is going 'astray' if my hair is struggling? Would I forever be dealing with the things I mentioned in the blog post above? and 2. Docs all said herceptin and tamoxifen shouldn't cause this problem. 

     Good news is that within weeks of finishing herceptin my hair started growing really well. Phew. But for all of us having to deal with hair loss or thinning... let's not beat ourselves up for being vain. We are so much more than that. ~smile~

    ALSO... what the heck?  Car troubles, everyone?  I went on a weeks holiday and my good car had brake problems.. which were new last year, and it cost me $1200 ridiculous dollars!!! 

    Let's all have magical awesome things happen to us this week!! Ya, baby.

  • karenrm
    karenrm Posts: 69

    Magic, that's exactly how I feel: bald, or scarf or wig, people "read" us as sick, as cancer victim. I waited weeks before I told anyone because I hated the idea of people thinking of me as cancer patient. But maybe I was just projecting my own discomfort with that dx. I still have trouble saying the words out loud.

    Patin, love Cantina. Works for taking in liquids and is girlie! Cantina she is, but she's still a pain in the a**!

  • cypher
    cypher Posts: 447

    Karen, thanks for the info about your tumor.  I am hoping my friend is stage 0, er/pr+, grade I, her2 negative, will have a lump + rads + tamox and be done.   I can’t believe that her first post dx appointment is going to be on the same day I’m deported!!  I didn’t really want to handle the mantle over to my friend.  It’s also unnerving b/c I like to think that my gut has some sense about these things and my gut (and her gut) both told us that she was fine.  Sigh.

    Nicky, yes anything that isn’t cancer is good news!  I didn’t really think the knee was a cancer issue, I was more thinking I would perhaps need knee surgery etc etc and I actually prefer to NOT be going to the doctor constantly!  Hard to tell lately.

    Oh and for the record the blogger isn’t a friend of mine, she’s someone who participated on this thread a handful of times, and I really enjoyed reading her blog. 

    Cami, you’re hilarious! 

    And I was also thinking something “port” themed for Chicka dee’s port – like port a call or something, but cami’s idea is better – pick your favorite port!  Or your least favorite port!  I call mine my f-ing port, I’m grateful for it but not the fact that I needed it in the first place, nor the fact htat they gave me a HUGE one.

    Oh and very well expressed reasons why I was glad I did the cold caps….  I didn’t have to be brave about that part, so hopefully I had more bravery to spare for the rest of it.  Though I wasn’t brave enough for an MX….

  • camillegal
    camillegal Posts: 15,710

    I was just thinking at 3AM about the PITA port as cypher put it---Is wine port that there are different names or is that the name of a wine Port. Oh I'm as clever as they come. And Cypher to have a total mastectomy is much less pain than a lumpectomy BTW--there is really no pain. It's afterwards that e are all in the same port of call. Hey it's 3Ayem what do u expect a quote from Wuthering Heights.?

  • NickyJ
    NickyJ Posts: 372

    Camille,

    If it was 3 am on your last post, it must be about 7am now, so good morning! It's 2.15pm for me, we've just gotten home, spent the night at the beach last night with my dh and 2 ds's. thought about you all as I raised my glass of wine and celebrated Portia ports first birthday!

    Nicky

  • camillegal
    camillegal Posts: 15,710

    Nicky u'r right about the time--u'r good--Oh u sounds like u had a great time and relaxed a little Good. U need to.

  • camillegal
    camillegal Posts: 15,710

     This is the official party animal for all occasions---loads of fun.

  • ashla
    ashla Posts: 1,566

    More reason for optimism girls. It sure does seem that all the new treatment breakthroughs are coming from the Her2 pos route.

    New nanodrug for her2 pos cancers...http://www.sciencedaily.com/releases/2013/08/130810063717.htm

  • ashla
    ashla Posts: 1,566

    Camille,

    Is that really you? Too cute for words!

  • ashla
    ashla Posts: 1,566

    This from the NYTimes article...a Buddhist meditation...



    "May we dwell in the heart, "May we be free from suffering, May we be healed wherever healing is called for, May we be at peace."