TRIPLE POSITIVE GROUP
Comments
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Gratitude, congrats.
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Signing off for the night, you glorious angels, ALL of you
. Thanks so much for all the kind words/congrats. As I fall into bed tonight (always feel crappy after the Herceptin session but rebound quite quickly, thank goodness), I will flood the heavens with prayers of thanks, grateful that I survived the year of treatment, so thankful for the ladies on this thread, mindful of all the love and support that has helped to sustain me, love from family, friends, students and their parents. Good night to all of you!!!0 -
Been away for a few days, so I've just had a lovely read catching up!
Ashla,
My hand isn't too bad, except its completely blue from knuckles to wrist. The swelling has gone down quite a bit but it'll be a few more days before its back to normal.
Gratitude,
Yay for the end of herceptin!!
I'm just getting ready to go to the hospital for mine this morning, and because I'm Her+++ I'll be getting it for the long haul. It'll be a year for me on August 30th. Did my blood test yesterday, all good; very good in fact. The comment made is that 'apart from having cancer, you're in extremely good health'! Nice to know!!!!'
Nice to here some of you raised a glass with me in Saturday - now we just need an excuse for next weekend!
Nicky0 -
Congrats Gratitude for life!
Hi I am Soriya, I am not triple positive, but I am grade3, er/pr- Her2+++. I am 39 years old, with 2 kids 11 and 8. My 2nd TCH was on 8/07/13, I felt a little better today. Nausea, fatique n constipation seems to be okay right now. Hopefully I'll get my energy back by Sat to celebrate my daughter 8th Bday.
I wish my tumor has ER+, like most of you ladies here, but unfortunatley I am the unlucky one with very bad bad tumor.
Good night!0 -
Natural Dentist, Breastcancer.org partner to aid cancer patients with oral complications
http://www.drugstorenews.com/article/natural-dentist-breastcancerorg-partner-aid-cancer-patients-oral-complications0 -
Soriya...your tumor type responds the BEST to chemo!!! And you still have herceptin in your arsenal! The grass is not any greener on this side : )
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Soriya,
Here is an interesting article saying tamoxifen works in even er neg BC!"Use of tamoxifen was associated with reduced risk of contralateral disease, with the benefit appearing to be independent of estrogen receptor (ER) status of first breast cancer. "
http://ascopost.com/ViewNews.aspx?nid=84200 -
By the way I am BRCA1 & BrCA2 negative, that make my tumor even more aggressive, according to someone's post I read somewhere else.
Thank you ladies for your replies! :-)0 -
Hey Ladies of the triple positive group! I am a triple positive and seem to have such a strange scenerio. I found my first lump in 2008 and went through chemo first, lumpectomy, and then radiation. I made it 3 1/2 years and then had a recurrence last year. I was devastated as I felt I had done everything in my power to prevent it from coming back. Last year, I had a bilateral mastectomy and was still going through the reconstruction process when I had another recurrence in May of this year. This time in my lymph nodes. Now I am pissed! It was removed and I was all set to begin herceptin, perjeta, and taxol when my echo came back with a low ejection fraction rate(what???, I am a healthy athletic person!) and my oncologist said we need to hold off until we get more info. I had a heart MRI last week and will get the results on Friday. In the mean time my OC went to the tumor board and they recommended I do 5 treatments of cyber knife radiation to my lymph node area while we are waiting to decide on chemo. They said it was important that I do something. I start 5 treatments tomorrow. Has anyone done this?
I know that there is no way to know why some people get recurrences but I just want to say ##mn I hate cancer. I can say life is not fair , why me, but I would not wish this on anyone else. I hate that we all have to go through this and I hate that my kids and family keep being drug through this again and again. I pray that I win the battle this time and that we all live cancer free.
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Hi Miss BabyRuth...welcome and sorry about your journey....
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Welcome Miss BabyRuth: So sorry to hear about your problems. There are some great ladies here who will respond with lots of knowledge and information. I'm not at all familiar with the cyber knife but sounds amazing.
Best Wishes! You sound like you have a very positive attitude.
Arlene
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Hi Baby Ruth...
Welcome and so sorry to hear what you have been going through. There is some recent research that indicates that us Her2 pos girls are more likely to recur within the first 4 years.
You're one of the pioneers in this treatment. As far as the EF issues goes...that too has been recently found to be somethng us herceptin ladies might face years after treatment.
We discussed this here a few times. And apparently this drop in EF is mostly asymptomatic! Many of our mos are telling us we don't need echos if we end treatment with decent EF's but we're saying not so fast...
There are a few ladies here who have been put on herceptin breaks but have been able
to continue later. Others not yet.
We hear you...0 -
Gratitude, heartfelt congratulations!!!!! Be well!!!
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Soriya123, Welcome and thanks so much for the well wishes. We shall all support you and post any pertinent info., that relates to your particular diagnosis.
BabyRuth, all I know about cyber knife radiation is about its creator, Dr. John Adler. He worked (may still work) out of Stanford University, as Stanford is a premiere site for various kinds of radiation therapy. I know that it is a very targeted therapy that is supposed to be very effective at eradicating cancer tumours cells/doing minimal damage to surrounding tissue. Good luck!!!!
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BabyRuth, Welcome so sorry to here your in this again. Your in this amazing group of ladies here chime in chat with us vent and of course ask away. We are all here for each other.
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Thanks for the welcome ladies! You all are an awesome group. It has been so hard for me because I honestly never thought my cancer would come back. I never feared a recurrence and honestly never really thought about it. I always went to all my follow up appointments and scans but never sweated the results. I guess I was living in my own little dream world. Now all the sudden, I am second guessing myself and wondering if I should have done something different. I chose not to do chemo last year but both my MO and a second opinion MO agreed. Yes I know you can't look back but it is hard.
I am really wanting to start this new chemo regimen(crazy, I know because who in their right mind wants to start chemo) because I feel that I need to go after this with all guns blazing. Just keeping my fingers crossed that my heart MRI comes back with good results.
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Curious BabyRuth...how did you do with your first go round chemo? You had neoadjuvant , right? How was your response?
Frankly, i think you did exactly what you should have done. You went on living your life not thinking, worrying everyday. How would it have made a difference if you had worried incessantly? You would have ruined the last 3 1/2 years! None of us who have been dx'd with cancer..no matter what kind...even those who haven't been dx'd can know what the future holds for us.
Don't look back..... Concentrate now on getting a game plan in place with your team. As my mo told me....we have many weapons in our arsenal. For some of us this will be a chronic situation.
You go girl. We 've got your back.0 -
Pbrain.
Wha happened? Look at this headline..
Roche misses renewal deadline, loses Herceptin patent in India
http://www.livemint.com/Politics/XmQ1zGJlJ4xmSRpEXBEVcJ/Roche-misses-renewal-deadline-loses-Herceptin-patent-in-Ind.html0 -
BabyRuth, so sorry to hear of another recurrence for you. I know this is heart-rending and you were thinking that you would be cancer-free going forward. I also have a recurring cancer and it is in my lymph nodes, has not shown up in my breast in a way that can be seen by imaging. I was hitting eleven years cancer-free when I got diagnosed last December.
All we can do is to accept the treatments that we are presented and pray that they work for us IMHO.
Wishing you all the best and sending you peace and blessings.
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Could someone direct me to the thread entitled "How I Got My Mojo Back"? I need some advice on resuming a pain-free healthy sex life after undergoing chemo and my upcoming surgery.
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Well, I got the results of my bone scan today and they found a spot on my spine. I'm in a fog right now...I'm 33, I'm tired, I don't want this!!!!
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Bethcon, I thought herception suppose to do the job? I am sorry, I was looking fwd to hear good results about your scan.
Don't give up!!!0 -
Must read everyone...there will be a quiz...
"Dear daughter , I hope you have awesome sex"http://goodmenproject.com/ethics-values/brand-dear-daughter-i-hope-you-have-awesome-sex/0 -
Bethcon..
Just noticed your post....so sorry that you are facing this terrible waiting agony again....
We have had many false alarms in this thread...many, many.....it may not be what you fear. Hope people come along to tell you how many spots, lesions, and lumps have been found benign...sending hopeful thoughts your way....0 -
Welcome Baby Ruth, but I know you would rather not be here. After 12 years, I too recurred in my nodes. I don't know anything about cyber radiation, but I surely do hope it works for you!
BethCon, I am so sorry that they saw a spot on your scan. Hopefully it will turn out to be a false alarm.
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honeybair, here is the link you requested
http://community.breastcancer.org/forum/7/topic/69566?page=104#post_3610619
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Hi ladies, Has anyone heard of or tried GENADUR for brittle fingernails. My dermatologist gave a a script but WOW it is expensive $200.00 copay. He gave me a sample bottle to try. If it works I think I will get it. Just want to know if anyone has tried it. Thanking you in advance. Eileen
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BabyRuth, if you do end up having the cyberknife procedure at Stanford Hospital, please know that I live 30 miles away in San Francisco. Should you need a place to stay or someone to go with you to appointments, I would be happy to do so. Please keep us posted as I know you wil.
Blessings
Liz
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Eileenohio, I haven't heard of Genadur, but someone on BCO recommended something called Rejuvacote for brittle, thin nails, which is what I have. I couldn't find Rejuvacote at Walgreens and decided to order through Amazon. It's on the way. Only cost about $7 or $8 and free shipping.
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Hip, hip, hooray Gratitude. We love good news.
Some sad things here today too but hoping the best!
I had my 4 month checkup and my onc reminded me that come January I'm 3 years out. I was diagnosed January 2011. Everything went really well today. I have a MAJOR pain in my bc breast but my mammo and ultrasound are perfectly clear and she felt nothing. She says the radiation has very LONG lasting (maybe forever) impacts on the good tissue (end of the month I'm 2 years past rads).
I'm osteopenia and they have me on Boniva and I quit taking it because it is making me sick. She was perfectly fine with me going off of it for a year. After my next Dexa, if there is major bone change she's suggesting Reclast IV.
Back on Vitamin D. My prior checkup my D was 81 and now 45 so back to 2000IUs per day.
Best wishes to everyone!
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