TRIPLE POSITIVE GROUP
Comments
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Lago, you are just beautiful and congrats on that three-year anniversary. Enjoy reading your posts because I learn so much from them
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Lago - congrats on 3 years!!!!
And thanks for the link. I had a friend who loaned me a water something or other insert that worked okay in my sports bra for today - but they feel like they would slip out if I moved too much.
I have an appointment at Nordstrom next week - hoping they'll have something that is sports bra-ish that will work. I tried a real bra this am, and between the TEs and my port, the band and straps of the bra are painful.
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lago - congrats!!!! im 2yrs this month
kayb "the walk to end womens cancer" in toronto is the one I am doing this year EXACTLY because of the money that was donated to fund this exciting research. I usually am not into all the pink ribbon stuff but i couldnt turn this down knowing how much this walk has raised over the years and its direct funding to this new drug
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Lago, you go! You are an inspiration and most improtantly, all of us following behind so appreciate your support and knowledge! Hope that scratch off is worth a million bucks :-)
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Congrats Lago!! And nice picture
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Congrats Lago!!
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Thanks everyone. That photo is from last October at the ACS Strides walk. Should have a new one this coming October.
Pbrain I bought to tickets to the powerball. I really don't know what all these lotteries are. So confusing for the novice
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Late congrats lago! Glad there is a Powerball neophyte besides me. During recovery from treatment some friends gave me a "thinking of you" type card with a lottery ticket in it that had some kind of luck theme that went with the card - it was a $30 winner!
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Congrats Lago! And many many more.
KB, thanks for the info. I am not find of pink, either, but ill wear it for that! Awesome.
Rozem, have s great time on your walk.
I had to give up my spot in the Livestrong program cause I am putting out too much drainage from my TE placement. Still over 80 a day, over 2 and a 1/2 weeks. . Sucks. That, and a full year PFC and I needed another IV infusion of Magnesium this Thursday.
It would be nice if no one else would have to deal with stuff like this! Keeping fingers crossed that it translates to the human trials!0 -
Hi ladies, I just joined a few days ago and have been reading the threads in the August '13 group. Tonight I stumbled upon this thread for us triple positive girls and I am glad I found you. Looking forward to getting caught up on your posts!
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Congratulations Lago ! That is just about the best news that all of us here can hope for ...NED!
I just want to take this moment to personally thank you for the infinite patience, valuable information, the benefit of your experience and the friendship you have shown to me and so many others in the year and a half..and before... since I found the triple positive forum.
Breastcancer.org and this forum because of people like you have made what would have been impossible to bear alone.....a very rocky road indeed but manageable by your holding our hands along the way.
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Welcome sgyukon Feel free to ask away. Lots of vetrans here… granted some things have changed since I was treated 3 years ago, for the good!
ashla you make me blush. You know you are now one of those women that makes breastcancer.org what it is. Probably more than me since I'm not on here as much or on as many threads as I was in years past.
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In International Study, Patients Prefer Subcutaneous Over Intravenous Trastuzumab for Breast Cancer
By Matthew Stenger
Posted: 8/28/2013 1:13:57 PM
Last Updated: 8/28/2013 1:13:57 PM
Key Points:
In an international study, more than 90% of patients with early-stage HER2-positive breast cancer preferred adjuvant trastuzumab given subcutaneously vs intravenously. (Subcutaneous trastuzumab is not available in the United States.)
Subcutaneous administration was preferred by 96% of those receiving subcutaneous trastuzumab first and by 86% of those receiving intravenous trastuzumab first in the crossover study.
Subcutaneous administration was associated with a higher frequency of mild or moderate injection site reactions.
Subcutaneous trastuzumab (not available in the United States) has been shown to have noninferior efficacy and similar pharmacokinetic and safety profiles compared with intravenous trastuzumab (Herceptin) in patients with early-stage HER2-positive breast cancer. In the PrefHer trial reported in Lancet Oncology, Xavier Pivot, MD, of CHU Jean Minjoz in Besançon, and colleagues found that such patients preferred subcutaneous trastuzumab over intravenous administration.1
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http://www.ascopost.com/ViewNews.aspx?nid=84870 -
Lago,
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So much body pain from taxol...Went to ER for pain med ugggh...She has me taxol every3 weeks and herceptin weekly...I got 3 more times of taxol....Anything else to take for this pain?
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mckatherine - if Nordstrom does not have a ready made sports-like bra that works for you, they should be able to sew a pocket into one for you for free. It is a service they offer. They will also do it for free in any of their bathing suits - or at least they used to. If you sew, here is a link for turining any bra into a mastectomy bra -or- a bra with a pocket for augmenting.
http://www.whatididtosurvive.com/category/how-to-make-a-mastectomy-bra/
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goutlaw what kind of pain? Bones, muscle ache like the flu? I know I became very stiff on Taxotere when I stopped powerwalking. On the weeks that you don't feel as bad can you walk for exercise? Is is from the Nuelasta? How long does it last?
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Huge congrats Lago on the 3 years!!!! Yay!!!!!!
Cami, that poop chair really cracked me up.
Regarding c-diff and/or diarrhea of an unknown cause...I recommend doing some research on Florastor probiotic. And DanActive. Those two specific probiotics (one is a yeast and the other has lacto bacteria) have shown promise in various studies for treating and reducing recurrence.
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YAY Miss Lago on 3 years!
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Congratulations, Lago, and thanks to all you lovely ladies who post and share info here.
I'm a relative newbie who is awaiting final treatment plan after my consult with an oncologist at Univ of Chicago this coming Wed.
Today is Day 19 post-mastectomy and implant. Took my first REAL walk today (brisk) alongside the lovely Wisconsin lakeshore while my husband and daughter visited the waterpark where we are staying. As I was getting to leave the hotel room, I started up a chat with the housekeeper, who, it turns out, is a 16 yr. BC survivor. Not HER2+, but she has battled cancer 5 times now and continues to win. All the women in her family have had BC. It was inspiring to meet her, but it just goes to show you just how prevalent this disease is...so excited to read the news post from Toronto today.
Feeling hopeful and glad to find this group. However, although the tumors I had tested very strongly to both E (over 90%) and HER2/neu (8+ FISH), they were weak for P, so I'm barely triple +.
Hope all are enjoying this holiday weekend!0 -
Congratulations Lago!!!! Beautiful picture!
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Rosamond I'm only 5% PR+. (30% ER+) From what I hear you can't be a little pregnant. You're triple positive. Also I think women who are PR- belong here too since they really don't know much about what that means. You're getting some kind of treatment for HEr2+ & Hormones you belong here.
But we welcome everybody on this thread regardless of diagnosis.
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Thanks, Lago! Congrats, again ;-)
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Thanks Dance, I just bought Florastor from Amazon. I hope it works. I shipped my pants at work last Friday and had to wash them out in the toilet before running to my desk and grabbing my keys. I've had it with this lack of control!!
I love this board. You guys understand. I knew after my diagnosis I would need a support group of some sort because I have a way over-active imagination. You guys have been it!
I hope you have a pretty day for your walk Rozem! I want to find out how to rock Pinktober this year. :-)
Gout, I'm so sorry about all the pain. Hang in there. It is over before you know it, I promise. And then you grow crazy strange poodle hair...and slowly start to feel like yourself again.
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http://www.youtube.com/watch?v=hL4lSavSepcTee hee, I'm so junior high.
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Aw Pbrain...
That commercial is hysterical! Do you friggin believe that this is the stuff we have to talk about these days? Guess we don't actually have to write or talk about them..we just have to LIVE through them!
And what's withthe links process lately? None of mine work.
Feel better Gout! I had aches with Taxol but nothing that needed meds. Hope it resolves.
And welcome Rosamond! I was just barely pr pos on one test and negative on another but I'm here too!0 -
I've seen that commercial on TV. Pretty funny.
Juvenile? Hmmm. I really want one of these and I'm not talking about the T shirt so what does that say about me?: http://www.savingbreasts.com/
granted mine look more like this: linky… hurry only 5 left!
and we can't forget this video: linky
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Goutlaw, as long as you're there every week getting Herceptin, ask to get your taxol weekly too. I think side effects on weekly taxol would be less than on the tri-weekly dose. And my oncologist told me that weekly is more effective than tri-weekly. I had no aches or pains on weekly taxol.
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Lago ...bad bone pain everywhere......10/10 No no neulasta shot...they are not giving it this cycle...Yes when I feel good...I have been going to gym on treadmill, zumba and doing hooping ...Been in pain since my 1st chemo Wed. of taxol and herceptin
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Pat? Why would it b more effective?Aint u getting same dose just in shorter time?
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